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Haemolytic anaemia
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How do I start on self injecting?
I have been on B12 injections for years, but since covid they don't last. I get mine every 8 weeks, but symptoms return after only one week now and get progressively worse, tremors, ataxia, severe pain in spine.... but GP refuses injections more frequently. How do I go about self injecting, where do
I have been on B12 injections for years, but since covid they don't last. I get mine every 8 weeks, but symptoms return after only one week now and get progressively worse, tremors, ataxia, severe pain in spine.... but GP refuses injections more frequently. How do I go about self injecting, where do
totallyFrustrated
in
Pernicious Anaemia Society
9 months ago
My profile
Have GCA . My mother had it and two of my siblings have/had PMR- a genetic link. The steroids 55 mg to start now down to 40 mg rewiring my brain mainly positive. Not getting enough sleep however. At present a lot of mental discomfort with buzzing at the sides of my head /where I suspect the arteries
Have GCA . My mother had it and two of my siblings have/had PMR- a genetic link. The steroids 55 mg to start now down to 40 mg rewiring my brain mainly positive. Not getting enough sleep however. At present a lot of mental discomfort with buzzing at the sides of my head /where I suspect the arteries
BillCapita
in
PMRGCAuk
6 months ago
Vitamin B12 status in health and disease: a critical review. Diagnosis of deficiency and insufficiency – clinical and laboratory pitfalls
This is an extraordinary thorough review of B12 deficiency and B12 insufficiency, with an actual description of the difference, including severity of symptoms. One interesting factoid is quoted here: "In 1900, Russell noted characteristics of B12 deficiency that are overlooked with surprising frequency
This is an extraordinary thorough review of B12 deficiency and B12 insufficiency, with an actual description of the difference, including severity of symptoms. One interesting factoid is quoted here: "In 1900, Russell noted characteristics of B12 deficiency that are overlooked with surprising frequency
WiscGuy
in
Pernicious Anaemia Society
11 months ago
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Escape from Augmentation
I have continued to make progress on my path to getting my dopamine receptors back to somewhere near normal. I last used a DA patch in September. I am using buprenorphine patches and pregabalin as RLS blockers to assist in the process. There is some improvement (perhaps 60%) in my sleep regime and in
I have continued to make progress on my path to getting my dopamine receptors back to somewhere near normal. I last used a DA patch in September. I am using buprenorphine patches and pregabalin as RLS blockers to assist in the process. There is some improvement (perhaps 60%) in my sleep regime and in
davchar23
in
Restless Legs Syndrome
6 months ago
frustrating!!
so I posted my sons blood results being concerned over his very low active b12 and having to wait weeks for an appointment with Gp. Finally seen Gp who question the private bloods and ordered her own. She tested for pernicious anaemia apparently. Other blood results have returned and are Ferritin
so I posted my sons blood results being concerned over his very low active b12 and having to wait weeks for an appointment with Gp. Finally seen Gp who question the private bloods and ordered her own. She tested for pernicious anaemia apparently. Other blood results have returned and are Ferritin
Blister4
in
Pernicious Anaemia Society
9 months ago
It's not the adrenals it’s AF!
I kept thinking it was because of my tapering: I was short of breath, felt “chesty” and dizzy. The monitor I wore showed <1% incidence of AF but still at risk for stroke- so Eliquis for me. Scheduled for a visit to the electrophysiology lab for assessment. I believe it’s getting more frequent. Stopped
I kept thinking it was because of my tapering: I was short of breath, felt “chesty” and dizzy. The monitor I wore showed <1% incidence of AF but still at risk for stroke- so Eliquis for me. Scheduled for a visit to the electrophysiology lab for assessment. I believe it’s getting more frequent. Stopped
Karenjaninaz
in
PMRGCAuk
11 months ago
Tirosint
I am unable to take tablet form levothyroxine, I have a gene issue with metabolising some medications. I have started liquid thyroxine but I think the ingredients are affecting my stomach and I have been told to stop taking this to see if it is the cause. I see that Tirosint is quite pure but not sure
I am unable to take tablet form levothyroxine, I have a gene issue with metabolising some medications. I have started liquid thyroxine but I think the ingredients are affecting my stomach and I have been told to stop taking this to see if it is the cause. I see that Tirosint is quite pure but not sure
Da52
in
Thyroid UK
6 months ago
b12 injections done but don’t feel better
hi I’ve recently been diagnosed with b12 deficiency, no idea why my if was fine apparently and no sign of coeliac. Dr doesn’t seem to want to look into it any further which is annoying. But I’m finished with my initial injections almost two weeks ago and I don’t feel any better. Is this normal?
hi I’ve recently been diagnosed with b12 deficiency, no idea why my if was fine apparently and no sign of coeliac. Dr doesn’t seem to want to look into it any further which is annoying. But I’m finished with my initial injections almost two weeks ago and I don’t feel any better. Is this normal?
16131613
in
Pernicious Anaemia Society
11 months ago
what is Transferrin and why is mine low?
Merry Xmas everyone i had a recent full iron panel & blood count done. Everything is ok/in range but my transferrin is low. any idea what it is and it should be the ONLY thing that’s out of range for me? thank you
Merry Xmas everyone i had a recent full iron panel & blood count done. Everything is ok/in range but my transferrin is low. any idea what it is and it should be the ONLY thing that’s out of range for me? thank you
PixieElv
in
Thyroid UK
6 months ago
Floradix and Hemoglobin
Has anyone had experience using Salus forumula "Floradix" Fer + plantes to help support healthy hemoglogin levels in someone with CLL? My husband's iron levels have always run on the low side and now with the CLL pushing down on his hemoglobin and platelets combined with a reduction of heme-iron in
Has anyone had experience using Salus forumula "Floradix" Fer + plantes to help support healthy hemoglogin levels in someone with CLL? My husband's iron levels have always run on the low side and now with the CLL pushing down on his hemoglobin and platelets combined with a reduction of heme-iron in
Minou1
in
CLL Support
11 months ago
Raising funds - Brighton Marathon places
still looking for some volunteers - please like and share the below information We have secured three places for Brighton Marathon Sunday 7th April 2024 in the name of The Pernicious Anaemia Society. We are looking for runners who want to help us raise awareness and raise money for the Pernicious Anaemia
still looking for some volunteers - please like and share the below information We have secured three places for Brighton Marathon Sunday 7th April 2024 in the name of The Pernicious Anaemia Society. We are looking for runners who want to help us raise awareness and raise money for the Pernicious Anaemia
PAScomms
in
Pernicious Anaemia Society
9 months ago
Everything's normal!?
Here are my latest GP results. Feeling ĺike a hashi flare/swing. Tiredness, bloating, anxiety, pins and needles, palpitations. Nurse called to say everything is normal. Serum free T3 (RHX) 3.6 (3.90-6.80) (Borderline low but rest of TFTs normal) Serum TSH 0.78 (0.35-5.00) Serum free T4 22.3 (11.00
Here are my latest GP results. Feeling ĺike a hashi flare/swing. Tiredness, bloating, anxiety, pins and needles, palpitations. Nurse called to say everything is normal. Serum free T3 (RHX) 3.6 (3.90-6.80) (Borderline low but rest of TFTs normal) Serum TSH 0.78 (0.35-5.00) Serum free T4 22.3 (11.00
jasmine804
in
Thyroid UK
11 months ago
Blood test results Vitamins / Digestive problems
Blood results done by GP : “ Serum folate 4 ug/L Serum ferritin 21 ug/L low iron stores Serum vitamin B12 513 ng/L. ” Vit D not done. I see Tesco are offering cheap tests for various vits. Thoughts ? I am housebound so I take vit D. 25 ug daily. Also omega 3 fish oil and a multivitamin. I was
Blood results done by GP : “ Serum folate 4 ug/L Serum ferritin 21 ug/L low iron stores Serum vitamin B12 513 ng/L. ” Vit D not done. I see Tesco are offering cheap tests for various vits. Thoughts ? I am housebound so I take vit D. 25 ug daily. Also omega 3 fish oil and a multivitamin. I was
Applethorpe
in
Thyroid UK
11 months ago
Pernicious Anaemia
Hi all, following conversation on here I asked my doctor for a blood test to check for Pernicious Anaemia. These are the results. They all look good. Could someone please point out which ones the pernicious anaemia tests are? TIA 😊. Results in comments as I can’t figure out how to attach multiple
Hi all, following conversation on here I asked my doctor for a blood test to check for Pernicious Anaemia. These are the results. They all look good. Could someone please point out which ones the pernicious anaemia tests are? TIA 😊. Results in comments as I can’t figure out how to attach multiple
EllsBells591
in
Thyroid UK
9 months ago
paradoxical b12 deficiency - getting injections
hi there I have symptoms of anaemia but b13 comes back high My anxiety is getting the roof and eyesight etc getting very bad Super fatigued all the time So how can I get some b12 injections and see if this helps me ?
hi there I have symptoms of anaemia but b13 comes back high My anxiety is getting the roof and eyesight etc getting very bad Super fatigued all the time So how can I get some b12 injections and see if this helps me ?
Sarahpoppe232
in
Pernicious Anaemia Society
11 months ago
I have terrible RLS, it includes not only LEGS, but also my HANDS AND MOUTH CHATTERING
I have been suffering, RLS which includes not only my LEGS but also my HANDS AND MOUTH & JAWS CHATTERING, can anyone can help me ??. I HAVE ATTACHED my IRON REPORT. Patient Name: Mr.RAMANATH T SCollected: 16/Jul/2023 09:14AM Age/Gender: 64 Y 4 M 24 D /MReceived: 16/Jul/2023 12:52PM UHID/MR No
I have been suffering, RLS which includes not only my LEGS but also my HANDS AND MOUTH & JAWS CHATTERING, can anyone can help me ??. I HAVE ATTACHED my IRON REPORT. Patient Name: Mr.RAMANATH T SCollected: 16/Jul/2023 09:14AM Age/Gender: 64 Y 4 M 24 D /MReceived: 16/Jul/2023 12:52PM UHID/MR No
Ramuu
in
Restless Legs Syndrome
11 months ago
Looking for guidance on RLS and Parkinson's Management
Good Morning, Read this forum regularly... thank you for sharing ... Looking to learn more about RLS and Parkinson's, especially from persons with these two conditions particularly their medication management. My husband has both conditions, RLS since mid 2000s, Parkinson's since 2018. And we are
Good Morning, Read this forum regularly... thank you for sharing ... Looking to learn more about RLS and Parkinson's, especially from persons with these two conditions particularly their medication management. My husband has both conditions, RLS since mid 2000s, Parkinson's since 2018. And we are
gardening57
in
Restless Legs Syndrome
11 months ago
Vitamins
I inject sc roughly every other week but am going to try every week. I’ve read that necessary to take folic acid ( various ideas on this re amounts) but do you take other vitamins especially B vitamins on a regular basis? Also recommendations re potassium intake? Any other nutritional advice welcome.
I inject sc roughly every other week but am going to try every week. I’ve read that necessary to take folic acid ( various ideas on this re amounts) but do you take other vitamins especially B vitamins on a regular basis? Also recommendations re potassium intake? Any other nutritional advice welcome.
smg1950
in
Pernicious Anaemia Society
11 months ago
Iron Deficiency
Are many people diagnosed with PV Iron deficient at the time of diagnosis? I’ve read on the internet that almost everyone with PV is iron deficient at time of diagnosis (hence the low ferritin) and that phlebotomy makes the iron deficiency worse. My heam told me I was iron deficient before even starting
Are many people diagnosed with PV Iron deficient at the time of diagnosis? I’ve read on the internet that almost everyone with PV is iron deficient at time of diagnosis (hence the low ferritin) and that phlebotomy makes the iron deficiency worse. My heam told me I was iron deficient before even starting
Hereforalongtime
in
MPN Voice
11 months ago
Bit confused and overwhelmed
Hello, Thanks for being there! Recently given advice from GP to start B12 tablets over the counter but told I may need injections in 3 months time after being retested. Beyond exhausted and struggling to go to work, rest of my life on pause for now. After 2 weeks went back and now started on loading
Hello, Thanks for being there! Recently given advice from GP to start B12 tablets over the counter but told I may need injections in 3 months time after being retested. Beyond exhausted and struggling to go to work, rest of my life on pause for now. After 2 weeks went back and now started on loading
Bequia
in
Pernicious Anaemia Society
11 months ago
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