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Haemolytic anaemia
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Intrinsic factor blood test
I had a blood test and got the result today - I haven't a clue what this means?? Any ideas? Intrinsic factor antibody level Intrinsic factor antibody level < 0.5 U/mL [0.0 - 6.9]; Negative <7 Equivocal 7 - 10 Positive >10 I can't even work out which part of the above is the result? I receive B12
I had a blood test and got the result today - I haven't a clue what this means?? Any ideas? Intrinsic factor antibody level Intrinsic factor antibody level < 0.5 U/mL [0.0 - 6.9]; Negative <7 Equivocal 7 - 10 Positive >10 I can't even work out which part of the above is the result? I receive B12
Loobs39
in
Pernicious Anaemia Society
22 days ago
And breathe …..
On a blood test from my GP 3 weeks ago the results showed blasts, where previously I hadn’t had any. Obviously this caused me a great deal of worry. I had blood taken on Tuesday and spoke to haematologist this afternoon. He said he’d looked at the blood film on both tests himself and couldn’t see anything
On a blood test from my GP 3 weeks ago the results showed blasts, where previously I hadn’t had any. Obviously this caused me a great deal of worry. I had blood taken on Tuesday and spoke to haematologist this afternoon. He said he’d looked at the blood film on both tests himself and couldn’t see anything
lizzziep
in
MPN Voice
23 days ago
Probably nearing treatment -some questions
My haematologist has sent a letter to my GP that she will be asking me to meet with her in several weeks time "with a view to starting treatment given the evidence of cutaneous progression." I missed my last appointment with her because she was ill, so had a phone appointment with another of the consultants
My haematologist has sent a letter to my GP that she will be asking me to meet with her in several weeks time "with a view to starting treatment given the evidence of cutaneous progression." I missed my last appointment with her because she was ill, so had a phone appointment with another of the consultants
JEEA
in
CLL Support
24 days ago
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B12 & Folic Acid and Anxiety
I have suffered with anxiety and panic for a long time but since my loading doses of hydroxocobalamin and folic acid my anxiety and panic are unbearable. I just wondered if anyone experienced this and then started feeling better? I'm nervous to inject further and wondered if I'd be better waiting 2-3
I have suffered with anxiety and panic for a long time but since my loading doses of hydroxocobalamin and folic acid my anxiety and panic are unbearable. I just wondered if anyone experienced this and then started feeling better? I'm nervous to inject further and wondered if I'd be better waiting 2-3
Chocolatelover15
in
Pernicious Anaemia Society
25 days ago
The Railway Worker
Please DO NOT READ if you are a bit squeamish. On 13 September 1848, a young man called Phineas Gage was at work in Vermont. He was an ‘efficient and capable’ railroad construction foreman and on that day was making roadbeds. The process involved using explosive powder and compressing it with an iron
Please DO NOT READ if you are a bit squeamish. On 13 September 1848, a young man called Phineas Gage was at work in Vermont. He was an ‘efficient and capable’ railroad construction foreman and on that day was making roadbeds. The process involved using explosive powder and compressing it with an iron
Narwhal10
in
Pernicious Anaemia Society
26 days ago
These are my Iron levels - have RLS but also Parkinson's
My original post was https://healthunlocked.com/rlsuk/posts/150970580/low-iron-rls-but-also-with-parkinsons If you remember I had had a test for iron done on 30th May (ferritin only) which came back as Serum ferritin level 15 ng/mL [10.0 - 180.0] So I requested and got another test for Iron, (this
My original post was https://healthunlocked.com/rlsuk/posts/150970580/low-iron-rls-but-also-with-parkinsons If you remember I had had a test for iron done on 30th May (ferritin only) which came back as Serum ferritin level 15 ng/mL [10.0 - 180.0] So I requested and got another test for Iron, (this
Jess123dog
in
Restless Legs Syndrome
26 days ago
B12 how much and how often
I’ve been struggling with PA for 2 and 1/2 years. No one would listen. Finally from Israel I was advised to get the Intrinsic Factor Antibody Blood Test and the Parietal Cell Antibody Blood Test. Pernicious Anemia. I have to take a shot of Methylcobalamin daily. The Israelis recommend taking a shot
I’ve been struggling with PA for 2 and 1/2 years. No one would listen. Finally from Israel I was advised to get the Intrinsic Factor Antibody Blood Test and the Parietal Cell Antibody Blood Test. Pernicious Anemia. I have to take a shot of Methylcobalamin daily. The Israelis recommend taking a shot
Jeep13
in
Pernicious Anaemia Society
27 days ago
Does anyone have a weak heart and fast heartbeat, physical anxiety feeling, as their main low b12 symptom?
I sometimes get a feeling of weak heart and uncomfortable chest, too fast heartbeat, and a feeling like physical anxiety in my stomach/heart while mentally feeling completely calm so it's definitely a physically caused thing. My heart area feels uncomfortable and it makes sleep very difficult. I also
I sometimes get a feeling of weak heart and uncomfortable chest, too fast heartbeat, and a feeling like physical anxiety in my stomach/heart while mentally feeling completely calm so it's definitely a physically caused thing. My heart area feels uncomfortable and it makes sleep very difficult. I also
Carrie234
in
Pernicious Anaemia Society
27 days ago
Excess Folic Acid and Vitamin B12 Deficiency: Clinical Implications?
This is a very recent paper. Some of the areas covered are well-known. Such as not treating B12 deficiency with folic acid. But, in the more speculative parts, I think it does raise questions over the prescribing of high dose (e.g. 5 milligrams a day) of folic acid in those who are currently low in
This is a very recent paper. Some of the areas covered are well-known. Such as not treating B12 deficiency with folic acid. But, in the more speculative parts, I think it does raise questions over the prescribing of high dose (e.g. 5 milligrams a day) of folic acid in those who are currently low in
helvella
in
Pernicious Anaemia Society
28 days ago
vitamin dose timings?
Hello again, I posted recently about my Mum who has early dementia and lifelong RLS now augmented after about 12y of ropinerole. We are trying to get her an appointment with Prof W but earliest is late Sept. So in the meantime I want to get her to try Mg, B complex and gentle iron (9mth ago Ferritin
Hello again, I posted recently about my Mum who has early dementia and lifelong RLS now augmented after about 12y of ropinerole. We are trying to get her an appointment with Prof W but earliest is late Sept. So in the meantime I want to get her to try Mg, B complex and gentle iron (9mth ago Ferritin
SunnyJim100
in
Restless Legs Syndrome
29 days ago
Help Please! How Do I Fit 2 Doses Of NDT & Vitamin Supplements + Iron In My Day Without Negative Interactions?
Advice would be greatly appreciated in how I can fit all this in without one thing affecting another. I take NDT am and pm (afternoon), Vitamins with dinner and Iron/C before bed, but taking Iron this late is affecting my sleep and stomach. I have difficulty enough sleeping properly. I don't know the
Advice would be greatly appreciated in how I can fit all this in without one thing affecting another. I take NDT am and pm (afternoon), Vitamins with dinner and Iron/C before bed, but taking Iron this late is affecting my sleep and stomach. I have difficulty enough sleeping properly. I don't know the
MindfulMoments
in
Thyroid UK
30 days ago
another iron infusion? and low ALT level
Hello, dear RLS friends! I would really appreciate your advice regarding my mother's ferritin levels. So she is currently on 0.375 mg (some days up to 0.5 mg) and 900 mg neurontin. I know DAs are not optimal, but at this point it would really be a problem to withdraw, especially that mom did start with
Hello, dear RLS friends! I would really appreciate your advice regarding my mother's ferritin levels. So she is currently on 0.375 mg (some days up to 0.5 mg) and 900 mg neurontin. I know DAs are not optimal, but at this point it would really be a problem to withdraw, especially that mom did start with
daisydaisy26
in
Restless Legs Syndrome
1 month ago
Intrinsic Factor (IF) Antibodies testing while on B12
Hello folks - If someone has IF Antibodies and is taking b12 ...would that affect an IF and IF Antibodies blood test..? I dont think it should - as if you have errosive gastritis / malabsorbtion issues etc, you got them...and the B12 wont improve that in any way...? Thanks lovely PA folks
Hello folks - If someone has IF Antibodies and is taking b12 ...would that affect an IF and IF Antibodies blood test..? I dont think it should - as if you have errosive gastritis / malabsorbtion issues etc, you got them...and the B12 wont improve that in any way...? Thanks lovely PA folks
Treesong2023
in
Pernicious Anaemia Society
1 month ago
Cofactors - B complex?
should I be starting on a B complex? I had iron infusion end of May and have been on EOD B12 injections since then. I am also taking folic acid 5mg every day and a spray vitamin D & K. I have been reading that some people take a B complex, but the one I saw also has folate in it and don’t want to
should I be starting on a B complex? I had iron infusion end of May and have been on EOD B12 injections since then. I am also taking folic acid 5mg every day and a spray vitamin D & K. I have been reading that some people take a B complex, but the one I saw also has folate in it and don’t want to
Chickens44
in
Pernicious Anaemia Society
1 month ago
Diet and B vitamins
Hello, I take a daily supplement dose of plant based vitamin B12 Complex and try to eat a range of foods that are healthy. I drink alcohol - maybe 5 units four/five times a week and I read that maybe I should take additional B vitamins to cover myself against there being insufficient to counteract this
Hello, I take a daily supplement dose of plant based vitamin B12 Complex and try to eat a range of foods that are healthy. I drink alcohol - maybe 5 units four/five times a week and I read that maybe I should take additional B vitamins to cover myself against there being insufficient to counteract this
Fishing_fred
in
Healthy Eating
1 month ago
After some B12 advice following results
Hi everyone, thanks in advance for reading. These sites and forums have been so useful since having found out I was deficient in a few things a few months ago. Following a blood test, it showed I had low B12, deficient in Folate and Vit D and low iron, but not deficient. This topic was not one I knew
Hi everyone, thanks in advance for reading. These sites and forums have been so useful since having found out I was deficient in a few things a few months ago. Following a blood test, it showed I had low B12, deficient in Folate and Vit D and low iron, but not deficient. This topic was not one I knew
BlackberryJam
in
Pernicious Anaemia Society
1 month ago
Help with self-injecting
Hi everyone. As scared as I am to think of self-injecting, I finally placed an order for B12 ampoules today. (Thanks, Wedgewood for the info!) I have injections every eight weeks but like clockwork at four weeks in, I always have trouble while out on walks, feel like I am going to fall over
Hi everyone. As scared as I am to think of self-injecting, I finally placed an order for B12 ampoules today. (Thanks, Wedgewood for the info!) I have injections every eight weeks but like clockwork at four weeks in, I always have trouble while out on walks, feel like I am going to fall over
rubyone
in
Pernicious Anaemia Society
1 month ago
Tolterodine.
Have recently had prostate surgery and on follow up with surgeon,been told I have Overactive Bladder (OAB)and been prescribed Tolterodine.Checked on HealthUnlocked Bladder site but they only discuss whether it works for bladder problem.Will it have any affect on my RLS?
Have recently had prostate surgery and on follow up with surgeon,been told I have Overactive Bladder (OAB)and been prescribed Tolterodine.Checked on HealthUnlocked Bladder site but they only discuss whether it works for bladder problem.Will it have any affect on my RLS?
Lambretta175
in
Restless Legs Syndrome
1 month ago
Would I absorb B12 in tablet form if I had PA?
Hi all, On a hunt to figure out the cause of my continued iron loss... Had an iron infusion in July 2021 and I'm now back to deficiency. GP has done all they can, confirmed by private GP. The guidelines now assume iron loss is related to periods... except mine are very light and only last a day so
Hi all, On a hunt to figure out the cause of my continued iron loss... Had an iron infusion in July 2021 and I'm now back to deficiency. GP has done all they can, confirmed by private GP. The guidelines now assume iron loss is related to periods... except mine are very light and only last a day so
WitchingHour2point0
in
Pernicious Anaemia Society
1 month ago
Iron infusion
I've been si eod for 18mnths now, I have had blood tests to keep an eye on ferritin, iron and folate every 4/5 months in that time,the results are checked by a private Dr who diagnosed me with PA after months of back and forth to gp feeling awful ( PA runs in the family)My iron has depleted now so I
I've been si eod for 18mnths now, I have had blood tests to keep an eye on ferritin, iron and folate every 4/5 months in that time,the results are checked by a private Dr who diagnosed me with PA after months of back and forth to gp feeling awful ( PA runs in the family)My iron has depleted now so I
Charlie27612
in
Pernicious Anaemia Society
1 month ago
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