Does anyone on this forum have Primary Auto Immune Haemolytic Anaemia (AIHA)

[thyreoidea]

Are there any other people on this forum who have Primary Auto Immune Haemolytic Anaemia (AIHA)

[waveylines]

I don't but a neighbour of mine has had it 15yrs. She is regularly monitored by the hospital & has done well..

[thyreoidea in reply to waveylines]

Hi waveylines, thank you for your response.

I have some questions if you do not mind and know the answers to.

Have they had COVID , if so how did they get on and did they get the antivirals or other treatment?

Do they routinely have the COVID booster due to their illness or age such as the recent spring campaign that finished yesterday.

Thanks anyway.

[waveylines in reply to thyreoidea]

No not had covid. Yes has regular covid booster vaccinations.Are you getting them?

[thyreoidea in reply to waveylines]

Missed this one as Haematologist was slow in answering my questions regarding the booster. I did not want Pfizer as no one was sure whether my onset of this condition last spring was caused by the flu jab in Nov 21 or the COVID booster Nov 21. Had Moderna last October but this spring it was in short supply and used up by the time I got the go ahead so couldn't risk Pfizer just in case.

[waveylines in reply to thyreoidea]

Am pretty sure hers have been Pfizer. Certainly the ones I've had have been. If its any consolation the one I've just had made me really quite poorly for a few days... Lol

[thyreoidea in reply to waveylines]

Both Pfizer in 21 and Moderna in 22 knocked me for 6 for at least 36-48 hours, some say it means they are mounting an immune response as they should.

[waveylines in reply to thyreoidea]

Yes that's my understanding of it too...