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Giant axonal neuropathy
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IM injections
So I definitely feel better after my IM injection at my doctors surgery. So I’m going to be learning how to IM. I had been doing subcut injections but I started to feel ill again so it either must be the brand of B12 I’m using or the delivery method. Hopefully my supply isn’t spoiled. Bit nervous about
So I definitely feel better after my IM injection at my doctors surgery. So I’m going to be learning how to IM. I had been doing subcut injections but I started to feel ill again so it either must be the brand of B12 I’m using or the delivery method. Hopefully my supply isn’t spoiled. Bit nervous about
Littledancingtiger
in
Pernicious Anaemia Society
6 years ago
Cell Forte IP-6 & Inositol Question
Is there any concern for the high calcium amount in Cell Forte IP-6 & Inositol formulation? There is 520 mg or 52% of DV in just one scoop. High calcium is associated with risk of aggressive disease. I thought perhaps the calcium amount was calculated to just balance out the absorption inhibition
Is there any concern for the high calcium amount in Cell Forte IP-6 & Inositol formulation? There is 520 mg or 52% of DV in just one scoop. High calcium is associated with risk of aggressive disease. I thought perhaps the calcium amount was calculated to just balance out the absorption inhibition
Spaceman210
in
Advanced Prostate Cancer
6 years ago
FISTULA for future kidney dialysis
Does anyone have any positive comments on the Fistula surgery? It's for future kidney dialysis. I'm having it done on March 6. Barry
Does anyone have any positive comments on the Fistula surgery? It's for future kidney dialysis. I'm having it done on March 6. Barry
BIFF68
in
Healthy Eating
6 years ago
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Advice please
Hi i have suffered with liw b12 over many years and in the past have been as low as 80 . I am only pisitive for parietal cell antibodies. (So possibly PA) My b12 levels after loading dose and regular 2 month injections have stayed up in the 600 mark for the last 6 months which i am truly grateful
Hi i have suffered with liw b12 over many years and in the past have been as low as 80 . I am only pisitive for parietal cell antibodies. (So possibly PA) My b12 levels after loading dose and regular 2 month injections have stayed up in the 600 mark for the last 6 months which i am truly grateful
Sandra_Holmes_R
in
Pernicious Anaemia Society
6 years ago
Going backwards
Keep feeling like I’m going backwards at the moment. Started self injecting every other day end of October. Felt like I was picking right up and had some good days. Was only getting neuropathy when tired or from walking too much. Thought would be smoothish sailing from there. Middle of December everything
Keep feeling like I’m going backwards at the moment. Started self injecting every other day end of October. Felt like I was picking right up and had some good days. Was only getting neuropathy when tired or from walking too much. Thought would be smoothish sailing from there. Middle of December everything
Littledancingtiger
in
Pernicious Anaemia Society
6 years ago
Lyrica
Hi I have been on Lyrica for many years not really sure how many as it gives me a foggy brain and I have lost a lot of memories. I have Refractory RLS. Well they put it under the umbrella of RLS. I have my pain 24/7 They did not know what else to call what I have. Restless legs the brain tells the legs
Hi I have been on Lyrica for many years not really sure how many as it gives me a foggy brain and I have lost a lot of memories. I have Refractory RLS. Well they put it under the umbrella of RLS. I have my pain 24/7 They did not know what else to call what I have. Restless legs the brain tells the legs
Hidden
in
Restless Legs Syndrome
6 years ago
Pregabalin
i have been taking Pregabalin 50mg twice daily for a few months - it is not helping with neuropathy pain so I have decided to stop taking it. Has anyone done this (maybe cold turkey?) or is it better to wen off even with a low dose? Thanks
i have been taking Pregabalin 50mg twice daily for a few months - it is not helping with neuropathy pain so I have decided to stop taking it. Has anyone done this (maybe cold turkey?) or is it better to wen off even with a low dose? Thanks
foxglove
in
Pain Concern
6 years ago
WP Thyroid warning
So I recently bought WP Thyroid because it apparently only had two inactive ingredients: inulin and medium chain triglycerides. So I received it and took some today, and had a very bad allergic reaction. After reading the instructions it also has lactose monohydrate in it. It doesn’t state this on
So I recently bought WP Thyroid because it apparently only had two inactive ingredients: inulin and medium chain triglycerides. So I received it and took some today, and had a very bad allergic reaction. After reading the instructions it also has lactose monohydrate in it. It doesn’t state this on
HypoHden
in
Thyroid UK
6 years ago
Neuropathy
Hi all. This is beginning to be a real pain of late and I wondered what others experiences might be. I can’t even conclude whether it’s PD or some other insidious process running underneath. But it’s getting worse and doesn’t respond to PD meds. I have tingling in fingers and toes and one leg and now
Hi all. This is beginning to be a real pain of late and I wondered what others experiences might be. I can’t even conclude whether it’s PD or some other insidious process running underneath. But it’s getting worse and doesn’t respond to PD meds. I have tingling in fingers and toes and one leg and now
jeeves19
in
Cure Parkinson's
6 years ago
Tandarts who needs advice
I have CMT 1(a). Was diagnosed in 1991, had two new knees , toes straightened etc . I would like to know if someone has leg and ankle braces and if so does it work. I don’t want anymore operations ie ankles to keep me on my feet and postpone a wheelchair. I’m 69 in June. Hate taking Lyrica for the peripheral
I have CMT 1(a). Was diagnosed in 1991, had two new knees , toes straightened etc . I would like to know if someone has leg and ankle braces and if so does it work. I don’t want anymore operations ie ankles to keep me on my feet and postpone a wheelchair. I’m 69 in June. Hate taking Lyrica for the peripheral
Tandarts
in
Charcot-Marie-Tooth UK
6 years ago
How long before B12 peripheral neuropathy starts to go away?
Hello. I'm on B vitamin shots. My main symptom of peripheral neuropathy is burning feet. My other symptoms is very slight numbness on my left foot (kind of like when you put your foot in cold water for a long time) I have been taking B-complex shots for 1 month and 1 week. Right after my first shot which
Hello. I'm on B vitamin shots. My main symptom of peripheral neuropathy is burning feet. My other symptoms is very slight numbness on my left foot (kind of like when you put your foot in cold water for a long time) I have been taking B-complex shots for 1 month and 1 week. Right after my first shot which
Hidden
in
Pernicious Anaemia Society
6 years ago
Neuropathy due to herpes infection
I have been pins and needles pain and burning my hands and feet almost 2 months for now , and i have herpes simplex 1 infected ,which could damaged my nerves. What i should do for treatment, and i never have out break or cold sore yet. Thanks
I have been pins and needles pain and burning my hands and feet almost 2 months for now , and i have herpes simplex 1 infected ,which could damaged my nerves. What i should do for treatment, and i never have out break or cold sore yet. Thanks
Pat491
in
Thyroid UK
6 years ago
Spinal cord stimulator for RLS?
My pain doctor who is prescribing me my tramadol and Lyrica is considering a spinal cord stimulator as a possible way to control this. Does anybody know anything about using a spinal cord stimulator for RLS? I tried doing a search on here but nothing came up.
My pain doctor who is prescribing me my tramadol and Lyrica is considering a spinal cord stimulator as a possible way to control this. Does anybody know anything about using a spinal cord stimulator for RLS? I tried doing a search on here but nothing came up.
LanaCSR
in
Restless Legs Syndrome
6 years ago
So here we r start r 3rd fresh cycle soon
So yesterday we had a planning nurse appointment. I had a scan to see how many follicles I have even though I was on my day two period ...6 on one side and 8 on another. Then I had a trial Embryo transfer due to my c section I had . Everything is good and look healthy. We sign all forms and had calendar
So yesterday we had a planning nurse appointment. I had a scan to see how many follicles I have even though I was on my day two period ...6 on one side and 8 on another. Then I had a trial Embryo transfer due to my c section I had . Everything is good and look healthy. We sign all forms and had calendar
Olivia1980xxx
in
Fertility Network UK
6 years ago
Not what I wanted for Christmas
Well I saw my oncogist this morning. Carboplatin and Taxol worked for first two chemo rounds but by third the cancer started fighting back and is growing. They plan to start me on Capecitabine for which I am having a blood test as its dangerous for some people, and Oxaliplatin in the new year. Onviously
Well I saw my oncogist this morning. Carboplatin and Taxol worked for first two chemo rounds but by third the cancer started fighting back and is growing. They plan to start me on Capecitabine for which I am having a blood test as its dangerous for some people, and Oxaliplatin in the new year. Onviously
Lymetree
in
My Ovacome
6 years ago
MUA of the coccis - Success
I am 6 weeks after having the coccis manipulation and I can tell you that it was a success. I am almost pain free,I can seat for some period without any pain on my seating cushion. I hope just that it will last.. I was sedate, so I don't know how exactly the procedure was done. I was in some more pain
I am 6 weeks after having the coccis manipulation and I can tell you that it was a success. I am almost pain free,I can seat for some period without any pain on my seating cushion. I hope just that it will last.. I was sedate, so I don't know how exactly the procedure was done. I was in some more pain
monikoki
in
Pain Concern
6 years ago
What do I do?
So i aoologise now, this is long!! So I am now 3 ivf cycles down, the final 2 nhs rounds were with icsi. I have low AMH and I am a carrier of the C4M2 mutation (which means my blood could be too think for implantation or could cause early miscarriage) which I take Clexane for to thin my blood. My husband's
So i aoologise now, this is long!! So I am now 3 ivf cycles down, the final 2 nhs rounds were with icsi. I have low AMH and I am a carrier of the C4M2 mutation (which means my blood could be too think for implantation or could cause early miscarriage) which I take Clexane for to thin my blood. My husband's
AnnieAnnie
in
Fertility Network UK
6 years ago
Numbness below knee
Hi, I've been having a lot of pain in my right hip, had x-ray but only slight narrowing showing up. Also there's a patch of numbness below my knee, in fact the whole of my leg feels really sore, does this sound like some nerve damage is happening?
Hi, I've been having a lot of pain in my right hip, had x-ray but only slight narrowing showing up. Also there's a patch of numbness below my knee, in fact the whole of my leg feels really sore, does this sound like some nerve damage is happening?
marie5454
in
Scleroderma & Raynaud's UK (SRUK)
6 years ago
Neurology, Oxycodone, and only two days until I finally give up Ropinirole!
Hello all I’ve not been able to post earlier as I was without Internet access for three weeks – what did we do before we had it!!! I am now down to 0.25mg Ropinirole. I’m glad I didn’t keep reducing when I was coming up to the concert (which went well enough!). But reduced that night and again six
Hello all I’ve not been able to post earlier as I was without Internet access for three weeks – what did we do before we had it!!! I am now down to 0.25mg Ropinirole. I’m glad I didn’t keep reducing when I was coming up to the concert (which went well enough!). But reduced that night and again six
RosieRow
in
Restless Legs Syndrome
6 years ago
Blurry vision
I’ve got a red mark under my left eye which appeared roughly Thursday I think . It’s getting redder and sore. Today at work just before half 8 I got blurry vision in my left eye. The best way to describe it is that it felt like my vision was blurry around the eye. It last for maybe 20 mins felt like
I’ve got a red mark under my left eye which appeared roughly Thursday I think . It’s getting redder and sore. Today at work just before half 8 I got blurry vision in my left eye. The best way to describe it is that it felt like my vision was blurry around the eye. It last for maybe 20 mins felt like
LouLamb
in
LUPUS UK
6 years ago
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