Advice please: Hi i have suffered with... - Pernicious Anaemi...

Pernicious Anaemia Society

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Advice please

Sandra_Holmes_R
Sandra_Holmes_R

Hi i have suffered with liw b12 over many years and in the past have been as low as 80 . I am only pisitive for parietal cell antibodies. (So possibly PA)

My b12 levels after loading dose and regular 2 month injections have stayed up in the 600 mark for the last 6 months which i am truly grateful for.

However i intermittently get pins and needles in my legs and arms also a burning sensation on my arms is this normal ??? Or do i have other issues going on

Appreciate any help

4 Replies

You may have other problems. The only way to tell for sure is to be examined by a neurologist.

How are your other symptoms? Have the pins and needles got worse? Improved?

clivealive
clivealiveForum Support

Hi Sandra_Holmes_R you may need to have your Folate level checked as a deficiency in this may cause numbness and tingling in the feet and hands

and muscle weakness.

I am not a medically trained person but I've had Pernicious Anaemia (one of many causes of B12 deficiency) for more than 46 years.

I wish you well.

probably normal because the nerves are waking up again--I got shocks for 6 months when I started the injections.

Did you have pins and needles and the burning sensation before you started treatment? It could be that your levels have further dropped due to not having frequent enough injections and/or your folate and ferritin (iron stores) levels are too low to support the absorption of the b12.

Folate needs to be 17+ and ferritin 80+

BNF guidelines that GPs should be following state alternate day injections until no further improvement with neurological symptoms. The guidelines also state not to retest once you start treatment.

Sleepybunny has replied to other posts and included links to articles, books and videos. The replies are very comprehensive, detailed and informative. You might want to do a search for some.

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