Search
Search
About
Log in
Join
Experiences with
Giant axonal neuropathy
Posts
Communities
4,074 public posts
Filter results
Benfotiamine In The Mix For PD Again?
The following new animal study (December 2023) suggests that the fat soluble form of vitamin B1, Benfotiamine, may also be suitable for PD : https://www.sciencedirect.com/science/article/abs/pii/S0014299923007483?via%3Dihub Here is a relevant study quote :
' The results demonstrated that treatment
The following new animal study (December 2023) suggests that the fat soluble form of vitamin B1, Benfotiamine, may also be suitable for PD : https://www.sciencedirect.com/science/article/abs/pii/S0014299923007483?via%3Dihub Here is a relevant study quote :
' The results demonstrated that treatment
chartist
in
Cure Parkinson's
8 months ago
Creatine?
I have a new personal trainer who I am using to help build and maintain muscle mass. I am not yet on ADT (TBD), but I want to have good habits for strength training if indeed I end up going that way. He mentioned recently that he might recommend creatine to me. I did some brief research and it seems
I have a new personal trainer who I am using to help build and maintain muscle mass. I am not yet on ADT (TBD), but I want to have good habits for strength training if indeed I end up going that way. He mentioned recently that he might recommend creatine to me. I did some brief research and it seems
MakeItRainbows
in
Advanced Prostate Cancer
9 months ago
central sensitivity syndrome
Has anyone heard of CSS. My dr said this can cause restless legs and stems from childhood trauma. Sort of crappy to think that yes, my childhood was super traumatic and potentially from that I still need to suffer.
Has anyone heard of CSS. My dr said this can cause restless legs and stems from childhood trauma. Sort of crappy to think that yes, my childhood was super traumatic and potentially from that I still need to suffer.
Jenevewill
in
Restless Legs Syndrome
9 months ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
ADT therapy and breast enlargement
Hello, any feedback on outlook for breast enlargement with ADT therapy ..currently taking Lupron and Bicalutmide? Diagnosed in Japan this June , 56, Gleason 7 , 4+3, PSA18, most likely no metastasis..was fairly fit…165, 5’10 but gaining weight and some man boobs. I generally was working out 4 days a
Hello, any feedback on outlook for breast enlargement with ADT therapy ..currently taking Lupron and Bicalutmide? Diagnosed in Japan this June , 56, Gleason 7 , 4+3, PSA18, most likely no metastasis..was fairly fit…165, 5’10 but gaining weight and some man boobs. I generally was working out 4 days a
Yokohama2023
in
Advanced Prostate Cancer
9 months ago
Adding more stims mid Cycle
Hi, This is my second round of IVF, and they have changed me to a long protocol to try and get more eggs, I have been stimming for 6 days, and had bloods yesterday, which I have been told my hormones levels are not looking goods, and they have added 150 menopur to my cycle along with the Gonal F 300
Hi, This is my second round of IVF, and they have changed me to a long protocol to try and get more eggs, I have been stimming for 6 days, and had bloods yesterday, which I have been told my hormones levels are not looking goods, and they have added 150 menopur to my cycle along with the Gonal F 300
Anubis18
in
Fertility Network UK
3 months ago
Pergoveris vs gonal f
Hello, not sure if anyone can answer this but I thought I’d ask in any case. I did my first IVF round at the age of 35 using gonal f. This was successful. Fast forward to current time and I’ve been on pergoveris for my last two rounds which has not been very successful. We have decided to do another
Hello, not sure if anyone can answer this but I thought I’d ask in any case. I did my first IVF round at the age of 35 using gonal f. This was successful. Fast forward to current time and I’ve been on pergoveris for my last two rounds which has not been very successful. We have decided to do another
Londongirl84
in
Fertility Network UK
4 months ago
Too much B12??
Can high serum and active B12 levels (above recommended levels) cause the nerve damage? I recently had to visit my GP clinic and couldn’t get my favourite doctor so, agreed to seeing another doctor. Upon looking at my file he was shocked to see my apparently ‘very high B12’ results. In his opinion, too
Can high serum and active B12 levels (above recommended levels) cause the nerve damage? I recently had to visit my GP clinic and couldn’t get my favourite doctor so, agreed to seeing another doctor. Upon looking at my file he was shocked to see my apparently ‘very high B12’ results. In his opinion, too
GoneWithTheWind1972
in
Pernicious Anaemia Society
9 months ago
Ovaries did not respond to stimulation drugs
I started my fifth cycle last week and yesterday my doctor told me that ovaries did not respond. This was the first time it happened to me. I took Genatropin 0.5, Gonal f 225, Letrozol 2x1 and Femara 1 tablet per day. On my previous cycles medications worked really well. I don't know what happened I
I started my fifth cycle last week and yesterday my doctor told me that ovaries did not respond. This was the first time it happened to me. I took Genatropin 0.5, Gonal f 225, Letrozol 2x1 and Femara 1 tablet per day. On my previous cycles medications worked really well. I don't know what happened I
ET54AA
in
Fertility Network UK
4 months ago
Trouble making blasts, new protocol: Estrogen priming w/ microdose leupron + GH + duostim
Hoping to get people's thoughts about my new IVF protocol as there are a lot of changes... Background: Have done 5 rounds of IVF (3 for banking embryos, 2 with fresh transfers) all with poor results. -->Embryo banking cycles (one clinic): -January 2023 (menopur 150, gonal F 150); 13 eggs, 6 mature
Hoping to get people's thoughts about my new IVF protocol as there are a lot of changes... Background: Have done 5 rounds of IVF (3 for banking embryos, 2 with fresh transfers) all with poor results. -->Embryo banking cycles (one clinic): -January 2023 (menopur 150, gonal F 150); 13 eggs, 6 mature
nf2952
in
Fertility Network UK
4 months ago
Scientists say mystery of how red wine headaches occur may be solved
Thought this could be relevant on at least two grounds: First, so many members say they have issues tolerating alcoholic drinks, especially red wine. And it is specifically in this respect that I am posting. Not ordinary excessive drinking. Second, there are numerous posts here which advocate taking
Thought this could be relevant on at least two grounds: First, so many members say they have issues tolerating alcoholic drinks, especially red wine. And it is specifically in this respect that I am posting. Not ordinary excessive drinking. Second, there are numerous posts here which advocate taking
helvella
Thyroid UK
in
Thyroid UK
9 months ago
3 eggs on high dose, none fertilised
I'm 38 with a low egg reserve. I had my 1st cycle on the NHS and I was on protocol 9, which is their highest protocol. I was on 75 luveris and 375 gonal-f for a total of 18 days before I took my trigger and I had my retrieval on Monday there. They got 3 eggs, and the next morning I found out that 2 had
I'm 38 with a low egg reserve. I had my 1st cycle on the NHS and I was on protocol 9, which is their highest protocol. I was on 75 luveris and 375 gonal-f for a total of 18 days before I took my trigger and I had my retrieval on Monday there. They got 3 eggs, and the next morning I found out that 2 had
Woolooblue
in
Fertility Network UK
4 months ago
Vagus nerve stimulation'
I've posted here a few times to discuss gut health for those of you suffering from PA who also have gut issues. In my quest to find some relief from visceral hypersensitivity and massive intolerances (leading to malabsorption) I began acupuncture treatment this year. I am very lucky to have an anethesist
I've posted here a few times to discuss gut health for those of you suffering from PA who also have gut issues. In my quest to find some relief from visceral hypersensitivity and massive intolerances (leading to malabsorption) I began acupuncture treatment this year. I am very lucky to have an anethesist
expatkerry
in
Pernicious Anaemia Society
9 months ago
small fibre neuropathy
How long does small fibre neuropathy due to prolonged B12 deficiency for many years take to be reversed, if possible ? After 14 months of self injecting daily and pathology results finally returning to normal (holotranscobalamin and serum B12 normal) and taking Lyrica for my neuropathy the past six
How long does small fibre neuropathy due to prolonged B12 deficiency for many years take to be reversed, if possible ? After 14 months of self injecting daily and pathology results finally returning to normal (holotranscobalamin and serum B12 normal) and taking Lyrica for my neuropathy the past six
GoneWithTheWind1972
in
Pernicious Anaemia Society
9 months ago
Disappointing response to stims 🙁
Hello everyone, I hope everyone’s journeys are going well. A bit of background about me … I follow a non standard protocol for FET where I inject gonal f alternate days to stimulate one or two follicle growth so the natural oestrogen encourages my lining to thicken. This normally takes 5 doses.
Hello everyone, I hope everyone’s journeys are going well. A bit of background about me … I follow a non standard protocol for FET where I inject gonal f alternate days to stimulate one or two follicle growth so the natural oestrogen encourages my lining to thicken. This normally takes 5 doses.
Daisy-Delilah
in
Fertility Network UK
5 months ago
Living with Disc Issues
Hi all. So i herniated my L4-L5 lumbar disc (and minor abnormalities from L2 to L4) from doing too much weight on an inclined leg press and bad form. I also somehow caused bulging discs in my neck (cervical vertebrae, can't remember which ones) from either years of scrunching my neck during workouts
Hi all. So i herniated my L4-L5 lumbar disc (and minor abnormalities from L2 to L4) from doing too much weight on an inclined leg press and bad form. I also somehow caused bulging discs in my neck (cervical vertebrae, can't remember which ones) from either years of scrunching my neck during workouts
GoToHealth
in
Pain Concern
9 months ago
Taxotere causing horrible neuropathy on just the 3rd day.
I had my first infusion last Thursday and starting yesterday I've had a severe worsening of my existing neuropathy. I can barely walk. I'm experiencing a wide variety of nerve pains from my waist downward. From nearly total numbness in my toes and feet to rippling pain coursing down from my hips. Sometimes
I had my first infusion last Thursday and starting yesterday I've had a severe worsening of my existing neuropathy. I can barely walk. I'm experiencing a wide variety of nerve pains from my waist downward. From nearly total numbness in my toes and feet to rippling pain coursing down from my hips. Sometimes
V10fanatic
in
Advanced Prostate Cancer
9 months ago
buzzing in foot
Hi all, I’m new to the this post, but I have not been diagnosed by a doctor yet. I have my vitamin B 12 check six months ago and it was fine a few weeks ago I started to have the buzzing in my foot, it felt like I had a cell phone buzzing in the bottom of my foot, and it would start at night when I was
Hi all, I’m new to the this post, but I have not been diagnosed by a doctor yet. I have my vitamin B 12 check six months ago and it was fine a few weeks ago I started to have the buzzing in my foot, it felt like I had a cell phone buzzing in the bottom of my foot, and it would start at night when I was
Sandalsforever
in
Pernicious Anaemia Society
9 months ago
For People With Parkinson's Taking Levodopa Medication: The Danger of B6 Deficiency Is Dire and Vastly Outweighs the Danger of B6 Excess
Vitamin B6 is an essential cofactor for over 100 enzymatic reactions. We need abundant B6 to keep what is left of our dopaminergic neurons as healthy as possible, especially since they are already compromised by Parkinson's. Levodopa medication depletes vitamin B6. B6 is only present in foods in low
Vitamin B6 is an essential cofactor for over 100 enzymatic reactions. We need abundant B6 to keep what is left of our dopaminergic neurons as healthy as possible, especially since they are already compromised by Parkinson's. Levodopa medication depletes vitamin B6. B6 is only present in foods in low
park_bear
in
Cure Parkinson's
9 months ago
natural ivf cycle experience
Hi our 6th attempt at ivf (medicated cycle 225units of Gonal F) was not successful as the eggs were abnormal. Other than ‘no eggs’ I think we have had every eventuality that does not involve a positive test. The clinic have now advised either natural IVF, mild IVF where medication would be started
Hi our 6th attempt at ivf (medicated cycle 225units of Gonal F) was not successful as the eggs were abnormal. Other than ‘no eggs’ I think we have had every eventuality that does not involve a positive test. The clinic have now advised either natural IVF, mild IVF where medication would be started
Keepondreaming
in
Fertility Network UK
5 months ago
B6 - advice
I’m confused about B6. is the advice with Co-Careldopa not to take, at all. Or to take after Co-Careldopa has been absorbed. my recent blood tests showed me deficient in B6. thanks
I’m confused about B6. is the advice with Co-Careldopa not to take, at all. Or to take after Co-Careldopa has been absorbed. my recent blood tests showed me deficient in B6. thanks
Nb11
in
Cure Parkinson's
9 months ago
1
...
8
9
10
...
100
Next page
10
20
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
Fertility Network UK
707 results
Fibromyalgia Action UK
322 results
Pernicious Anaemia Society
267 results
View top 10 communities
Sort by
Most Relevant
Newest