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Giant axonal neuropathy
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Gabapentin
Anyone have any experience of gabapentin? Uctd Sjogrens, with lupus features Current medication- hydroxychloquine. The pain in my hands and feet, going up in my legs and hips has become unbearable. It's a numb, tingling, stabbing, thrombin pain. Gp wants to try me on gabapentin for nerve pain.
Anyone have any experience of gabapentin? Uctd Sjogrens, with lupus features Current medication- hydroxychloquine. The pain in my hands and feet, going up in my legs and hips has become unbearable. It's a numb, tingling, stabbing, thrombin pain. Gp wants to try me on gabapentin for nerve pain.
BonnyB
in
LUPUS UK
1 year ago
Fiber
I have taken three doses of Metamucil daily for many years. This should alleviate any constipation and adds healthy fiber.
I have taken three doses of Metamucil daily for many years. This should alleviate any constipation and adds healthy fiber.
Stub007
in
PBC Foundation
1 year ago
Newswire Spring 2023 - my thoughts
I just finally got round to reading this and am left feeling more inspired and positive on the whole. There is still a long way to go and so much to learn about the baffling diseases of PMR and GCA but when I think back to when I was first diagnosed and struggling between 2012 and 2015, there are definite
I just finally got round to reading this and am left feeling more inspired and positive on the whole. There is still a long way to go and so much to learn about the baffling diseases of PMR and GCA but when I think back to when I was first diagnosed and struggling between 2012 and 2015, there are definite
tangocharlie
in
PMRGCAuk
1 year ago
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Going round in circles
Following my gastroscopy this is on the report: THE GASTRIC MAPPING SHOW MODERATE CHRONIC INFLAMMATION. THERE IS MULTIFOCAL INTESTINAL METAPLASIA THROUGHOUT THESE BIOPSIES. THERE IS ALSO SEVERE GLANDULAR ATROPHY WITH NEUROENDOCRINE HYPERPLASIA. NO MUCOSAL ULCERATION OR ACTIVE INFAMMATION SEEN.
Following my gastroscopy this is on the report: THE GASTRIC MAPPING SHOW MODERATE CHRONIC INFLAMMATION. THERE IS MULTIFOCAL INTESTINAL METAPLASIA THROUGHOUT THESE BIOPSIES. THERE IS ALSO SEVERE GLANDULAR ATROPHY WITH NEUROENDOCRINE HYPERPLASIA. NO MUCOSAL ULCERATION OR ACTIVE INFAMMATION SEEN.
Helliborous
in
Pernicious Anaemia Society
6 months ago
It is not all in my head.
If I take B6 Vitamin Pyridoxal 5 Phosphate 25 mg with water twice a day and B12 hydroxocobalamin subcutaneously 1 mg three times a day then symptoms known to be experienced with B12 deficiency are dramatically are reduced. If I only take B12 than symptoms become severe. The most noticeable and therefore
If I take B6 Vitamin Pyridoxal 5 Phosphate 25 mg with water twice a day and B12 hydroxocobalamin subcutaneously 1 mg three times a day then symptoms known to be experienced with B12 deficiency are dramatically are reduced. If I only take B12 than symptoms become severe. The most noticeable and therefore
WIZARD6787
in
Pernicious Anaemia Society
1 year ago
Is it possible to get pregnant whilst taking buserelin?
I'm currently going through my first cycle of IVF. I started taking Buserelin on May 30th. It's now June 18th, and I've not had a bleed yet. I've spoken to my nurse and she said it could be one of two things. Either, the endometrial lining isn't very thick and there's not really anything there to shed
I'm currently going through my first cycle of IVF. I started taking Buserelin on May 30th. It's now June 18th, and I've not had a bleed yet. I've spoken to my nurse and she said it could be one of two things. Either, the endometrial lining isn't very thick and there's not really anything there to shed
HJLawrence1995
in
Fertility Network UK
1 year ago
Rectal fissure - healed!
I'm not sure if this is the correct group to post in as I do not have IBS, however for 10+ years, I had a rectal fissure that just wouldn’t go away. I live in the Caribbean, have a healthy lifestyle and diet. Years ago, when first diagnosed with the fissure, I was prescribed Lidoprocto suppositories
I'm not sure if this is the correct group to post in as I do not have IBS, however for 10+ years, I had a rectal fissure that just wouldn’t go away. I live in the Caribbean, have a healthy lifestyle and diet. Years ago, when first diagnosed with the fissure, I was prescribed Lidoprocto suppositories
StogStog
in
IBS Network
7 months ago
IVF: Bad clinic - no scan until day 10?
Hello I am due to start my first IVF cycle tomorrow. Unfortunately the clinic have told me the wrong protocol 4 times and now I'm anxious the latest one is also a mistake. What I want to know is if it
is normal not to have a scan until day 10 of your cycle?
The last nurse I spoke to insisted
Hello I am due to start my first IVF cycle tomorrow. Unfortunately the clinic have told me the wrong protocol 4 times and now I'm anxious the latest one is also a mistake. What I want to know is if it
is normal not to have a scan until day 10 of your cycle?
The last nurse I spoke to insisted
Hidden
in
Fertility Network UK
1 year ago
Hi. Mebeverine 200mg
Hi. I have been to the doctors again as really struggling again. My grandma has been diagnosed with lung cancer. And my symptoms have got worse. Im scared to eat as i need to work and colleagues making comments about my leaving due to my stomach. One day i only had two breakfast bars all day. Im having
Hi. I have been to the doctors again as really struggling again. My grandma has been diagnosed with lung cancer. And my symptoms have got worse. Im scared to eat as i need to work and colleagues making comments about my leaving due to my stomach. One day i only had two breakfast bars all day. Im having
Glutenlover
in
IBS Network
7 months ago
Neuropathy
Are there any new helpful remedies to ease the discomfort of this neurological disorder? I am into another round of chemotherapy, docetaxel and Carboplatin and would love to have minimal addition to the discomfort I already endure.
Are there any new helpful remedies to ease the discomfort of this neurological disorder? I am into another round of chemotherapy, docetaxel and Carboplatin and would love to have minimal addition to the discomfort I already endure.
docbulldog
in
Advanced Prostate Cancer
1 year ago
Alpha Lipoid Acid & Acetyl L Carnitine - Help!
Hi everyone, I have a dilemma - can you help me? I have hypo-thyroidism which is treated with lexothyroxine. I'm also a type-1 diabetic and just been diagnosed with peripheral neuropathy (although still being investigated), I've been put on duloxetine for pain, but am experiencing some not-very-pleasant
Hi everyone, I have a dilemma - can you help me? I have hypo-thyroidism which is treated with lexothyroxine. I'm also a type-1 diabetic and just been diagnosed with peripheral neuropathy (although still being investigated), I've been put on duloxetine for pain, but am experiencing some not-very-pleasant
mids_thyman
in
Thyroid UK
1 year ago
New issue: cubital tunnel syndrome
Hi guys, looks like I’m about to get diagnosed with a new problem: cubital tunnel syndrome. I didn’t know what this was until about 2 days ago, when I got the results of an ultrasound on my elbow. It’s like carpal tunnel, but in your elbow instead of your wrist. For months now I’ve been having increasing
Hi guys, looks like I’m about to get diagnosed with a new problem: cubital tunnel syndrome. I didn’t know what this was until about 2 days ago, when I got the results of an ultrasound on my elbow. It’s like carpal tunnel, but in your elbow instead of your wrist. For months now I’ve been having increasing
MusicalFurbaby
in
LUPUS UK
1 year ago
Fissure or fistula
For the last few weeks I have been getting stabbing pains up the rear exit. Like I sat on a needle!! I used to suffer a lot with piles but not bled for about a year now. But today after large bm I bled! What concerns me is I should be having a camera look at my bladder on Saturday under local anaesthetic
For the last few weeks I have been getting stabbing pains up the rear exit. Like I sat on a needle!! I used to suffer a lot with piles but not bled for about a year now. But today after large bm I bled! What concerns me is I should be having a camera look at my bladder on Saturday under local anaesthetic
Edgar77
in
IBS Network
7 months ago
SIBO/IMO investigations
Hello, community. I have a putative diagnosis of SIBO-IMO and would like to know of other people's recent experience of SIBO testing /investigations. Thank you. I'm new to this forum but have been on HU for many years. I have Lupus, Raynaud's, Erythromelalgia; IBS-c and Muscular Dystrophy (FSHD-1
Hello, community. I have a putative diagnosis of SIBO-IMO and would like to know of other people's recent experience of SIBO testing /investigations. Thank you. I'm new to this forum but have been on HU for many years. I have Lupus, Raynaud's, Erythromelalgia; IBS-c and Muscular Dystrophy (FSHD-1
skylark15
in
IBS Network
7 months ago
Lidocaine Patches update
Hello everyone, Just thought i'd update you about getting Lidocaine Patches as yesterday i asked my Pain Consultant about them. She said They can still be prescribed to us as long as we have nerve pain. GP's were prescribing them for any pain and they're expensive and not effective which is why the
Hello everyone, Just thought i'd update you about getting Lidocaine Patches as yesterday i asked my Pain Consultant about them. She said They can still be prescribed to us as long as we have nerve pain. GP's were prescribing them for any pain and they're expensive and not effective which is why the
misty14
in
Pain Concern
1 year ago
Hot flashes?
Am having ever more hot flashes and sweating around my neck over last several months. Could it be the steroids? In the distant past, was relying on welbutrin for depression but got hot flashes and changed to escatolepram. In the last few years I started taking a small dose of welbutrin in addition
Am having ever more hot flashes and sweating around my neck over last several months. Could it be the steroids? In the distant past, was relying on welbutrin for depression but got hot flashes and changed to escatolepram. In the last few years I started taking a small dose of welbutrin in addition
Merryfield
in
PMRGCAuk
1 year ago
Can you 'demand' Tocilizumab for GCA?
I was diagnosed with PMR in January 23, responded well to steroids (15mg) but quickly developed GCA symptoms (severe headache pain, blurred vision and jaw claudication) when these were reduced to 12.5mg after 3 weeks and 'normal' CRP/ESR tests. I was referred to Ambulatory care but an ultrasound showed
I was diagnosed with PMR in January 23, responded well to steroids (15mg) but quickly developed GCA symptoms (severe headache pain, blurred vision and jaw claudication) when these were reduced to 12.5mg after 3 weeks and 'normal' CRP/ESR tests. I was referred to Ambulatory care but an ultrasound showed
tweety_pie
in
PMRGCAuk
1 year ago
Meralgia paresthetica
Does anybody know if it is possible that this only affects you when you go to bed at night? After 5 to 10 minutes of laying down, I begin to get a tingling sensation from my hip to my knee. I often feel like I need to stretch or foam roll for temporary relief, though once I lay down again the sensations
Does anybody know if it is possible that this only affects you when you go to bed at night? After 5 to 10 minutes of laying down, I begin to get a tingling sensation from my hip to my knee. I often feel like I need to stretch or foam roll for temporary relief, though once I lay down again the sensations
T-Gee
in
Pelvic Pain Support Network
1 year ago
Tocilizumab
Hi. Has anyone had Tocilizumab injections for pmr? I've been looking at recent research which seems to suggest favourable outcomes for pmr sufferers who have problems tapering prednisolone.
Hi. Has anyone had Tocilizumab injections for pmr? I've been looking at recent research which seems to suggest favourable outcomes for pmr sufferers who have problems tapering prednisolone.
BlueMozart
in
PMRGCAuk
1 year ago
Clinical trial - Recorded hypnosis or relaxation reduced cancer pain and anxiety. Hypnosis also improved fatigue and sleep.
Hypnosis and relaxation interventions for chronic pain management in cancer survivors: a randomized controlled trial Linda H. Eaton, Min Kyeong Jang, Mark P. Jensen, Kenneth C. Pike, Margaret M. Heitkemper & Ardith Z. Doorenbos Supportive Care in Cancer volume 31, Article number: 50 (2023) Cite this
Hypnosis and relaxation interventions for chronic pain management in cancer survivors: a randomized controlled trial Linda H. Eaton, Min Kyeong Jang, Mark P. Jensen, Kenneth C. Pike, Margaret M. Heitkemper & Ardith Z. Doorenbos Supportive Care in Cancer volume 31, Article number: 50 (2023) Cite this
Graham49
in
Fight Prostate Cancer
7 months ago
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