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Giant axonal neuropathy
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Private Rheumatologist Consultation
Would anyone have recommendation on private rheumatologist close to Falmouth? My next NHS rheumatologist appointment is in Aug. I need to see rheumatologist for my painful feet, hands and jaw. I went to see the local GP about my pain, but they're unable to prescribe medication to relieve the swelling
Would anyone have recommendation on private rheumatologist close to Falmouth? My next NHS rheumatologist appointment is in Aug. I need to see rheumatologist for my painful feet, hands and jaw. I went to see the local GP about my pain, but they're unable to prescribe medication to relieve the swelling
Mikiki
in
LUPUS UK
1 year ago
The MAO inhibitors phenelzine and clorgyline revert enzalutamide resistance in castration resistant prostate cancer
I am not using enza (yet) wondering if it's worth taking some nutmeg to keep those mao in check anyway! :-P https://www.nature.com/articles/s41467-020-15396-5
I am not using enza (yet) wondering if it's worth taking some nutmeg to keep those mao in check anyway! :-P https://www.nature.com/articles/s41467-020-15396-5
Maxone73
in
Fight Prostate Cancer
8 months ago
Finally diagnosed after twenty years!
I have finally got a diagnosis of IBS after at least twenty years of endoscopies, colonoscopies, scans, investigations, etc, etc. Strangely I feel much better even though they say it's a lifelong condition with no cure. My problem today is that it's after half past six in the evening, I have had one
I have finally got a diagnosis of IBS after at least twenty years of endoscopies, colonoscopies, scans, investigations, etc, etc. Strangely I feel much better even though they say it's a lifelong condition with no cure. My problem today is that it's after half past six in the evening, I have had one
Merry_Widow
in
IBS Network
8 months ago
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Dental Issues on Finesteride
Five weeks after starting on finesteride 5 mg I developed painfully sensitive teeth both top and bottom on left side of my mouth. Here's what a google search turned up: https://forum.propeciahelp.com/t/propecia-and-dental-problems/1254 https://www.ehealthme.com/ds/finasteride/toothaches/ I became
Five weeks after starting on finesteride 5 mg I developed painfully sensitive teeth both top and bottom on left side of my mouth. Here's what a google search turned up: https://forum.propeciahelp.com/t/propecia-and-dental-problems/1254 https://www.ehealthme.com/ds/finasteride/toothaches/ I became
fast_eddie
in
Fight Prostate Cancer
8 months ago
Chronic diarrhea after chemo; any suggestions?
Hello lovely ladies; unfortunately my disease came back after 2.5 years and 70 cm of my small intestines had to be removed with surgery. 6 cycle of chemo is given. 4 finished so far. But i'm experiencing terrible diarrhea. Everyday more than 10 (sometimes 18) visits to restroom and pain during after
Hello lovely ladies; unfortunately my disease came back after 2.5 years and 70 cm of my small intestines had to be removed with surgery. 6 cycle of chemo is given. 4 finished so far. But i'm experiencing terrible diarrhea. Everyday more than 10 (sometimes 18) visits to restroom and pain during after
Sybil71
in
My Ovacome
8 months ago
constipation!!!
Hello anyone I have got this constant gnawing ,scratching ,pinching ETC going on in my bum and for 3/4 months really bad constipation frightened to poop in case I "UNBLOCK" myself to the nasty stuff I just can't control I looked it up on DR GOOGLE and it came up with Proctalgia Fugax/ Levator Syndromeas
Hello anyone I have got this constant gnawing ,scratching ,pinching ETC going on in my bum and for 3/4 months really bad constipation frightened to poop in case I "UNBLOCK" myself to the nasty stuff I just can't control I looked it up on DR GOOGLE and it came up with Proctalgia Fugax/ Levator Syndromeas
bungi1961
in
Bowel Disease Support
8 months ago
Horizant
After pregabalin and gabapentin both made me nervous (I successfully tolerated the pregabalin for years, with daytime sedation however). Codeine also seems to be waking me up instead of sedating me. Doctor is suggesting trying Horizant. I know it is for people who experience symptoms all day, but
After pregabalin and gabapentin both made me nervous (I successfully tolerated the pregabalin for years, with daytime sedation however). Codeine also seems to be waking me up instead of sedating me. Doctor is suggesting trying Horizant. I know it is for people who experience symptoms all day, but
wantokporo
in
Restless Legs Syndrome
1 year ago
EMG test
Hello all I hope you are doing the best you can. I have received a letter from Sheffield Hallam today and I’m being booked in for an EMG has anyone had this and do the results reflect your symptoms and how you feel with your type of ataxia. It’s a long waiting list so I have to be a good patient 🤨.
Hello all I hope you are doing the best you can. I have received a letter from Sheffield Hallam today and I’m being booked in for an EMG has anyone had this and do the results reflect your symptoms and how you feel with your type of ataxia. It’s a long waiting list so I have to be a good patient 🤨.
Guardsman68
in
Ataxia UK
1 year ago
Desperate for help
next Friday I will have a PSMA PTscan , which I failed because lie straight on the table due to pain. Lately, with the doctor it has been decided to cut the pain meds. Removed patches, pills down. Ok! Tried to lie down straight and I couldn’t do it!? What can be done in order to get me ready for the
next Friday I will have a PSMA PTscan , which I failed because lie straight on the table due to pain. Lately, with the doctor it has been decided to cut the pain meds. Removed patches, pills down. Ok! Tried to lie down straight and I couldn’t do it!? What can be done in order to get me ready for the
p1411887
in
Advanced Prostate Cancer
1 year ago
Neuropathic Foot Pain
Hello Warriors: I've just finished my second pluvicto injection and everything seems to be going fine. PSA is going down and I do have mild bouts of diarrhea but that is totally manageable. My 20 year battle with this disease continues. I will never give up . I continue to have neuropathic foot
Hello Warriors: I've just finished my second pluvicto injection and everything seems to be going fine. PSA is going down and I do have mild bouts of diarrhea but that is totally manageable. My 20 year battle with this disease continues. I will never give up . I continue to have neuropathic foot
Hidden
in
Advanced Prostate Cancer
1 year ago
Hemorrhoids and ibs
Hi firstly happy new year to all and apologies for the long post - I have had bowel related symptoms mainly constipation but sometimes diarrhea as well as bloating and intermittent abdominal pain for most of my life and was told many years ago that it is "probably ibs". I have had a recent FIT test which
Hi firstly happy new year to all and apologies for the long post - I have had bowel related symptoms mainly constipation but sometimes diarrhea as well as bloating and intermittent abdominal pain for most of my life and was told many years ago that it is "probably ibs". I have had a recent FIT test which
Jojams
in
IBS Network
9 months ago
My IBS Team Sheet – 2. Haemorrhoids (How I manage)
I think that having experienced having Haemorrhoids about six years ago that led me to be diagnosed with IBS, the relationship between IBS and Haemorrhoids could be a bit of a Red Herring! To be fair, I have experienced having haemorrhoids once since my first diagnosis, but now that I exercise regular
I think that having experienced having Haemorrhoids about six years ago that led me to be diagnosed with IBS, the relationship between IBS and Haemorrhoids could be a bit of a Red Herring! To be fair, I have experienced having haemorrhoids once since my first diagnosis, but now that I exercise regular
MountainHare1
in
IBS Network
9 months ago
restricted urinary flow
Finished IMRT/ SBRT radiation to lymph nodes last week. Since then Ive begun have early AM restricted urinary flow - Very narrow stream. Rad Onc suggested tamsulosin or ibuprophen. MO, tamsulosin. Any work around for the early AM problem that I could take overnight? Ibuprophen has to be taken all
Finished IMRT/ SBRT radiation to lymph nodes last week. Since then Ive begun have early AM restricted urinary flow - Very narrow stream. Rad Onc suggested tamsulosin or ibuprophen. MO, tamsulosin. Any work around for the early AM problem that I could take overnight? Ibuprophen has to be taken all
kainasar
in
Fight Prostate Cancer
9 months ago
Sitting is a pain 😖
Does anyone experience anal/rectal discomfort when sitting on hard surfaces? I feel it comes and goes. I'm female and don't have hemorrhoids What have doctors told you? Have you been diagnosed with anything? Has anything helped?
Does anyone experience anal/rectal discomfort when sitting on hard surfaces? I feel it comes and goes. I'm female and don't have hemorrhoids What have doctors told you? Have you been diagnosed with anything? Has anything helped?
Catsandsunsets
in
IBS Network
9 months ago
Day 18 of Stims
Hey guys.... NHS round, and follicles are just being really slow at responding, im trying to be patient, and not going to lie i'm beginning to become more anxious (having nightmares). My left ovary is doing better, 1 at 16, 2 at 11, 1 at 10, 30 below 10. Right ovary, 1 at 11, 2 at 10, 20 below 10....
Hey guys.... NHS round, and follicles are just being really slow at responding, im trying to be patient, and not going to lie i'm beginning to become more anxious (having nightmares). My left ovary is doing better, 1 at 16, 2 at 11, 1 at 10, 30 below 10. Right ovary, 1 at 11, 2 at 10, 20 below 10....
herewego89
in
Fertility Network UK
1 year ago
Starting pregabalin
I have received a letter from Leicester hospital following my consultation with a neurology Registrar. I am on 1100mg of Gabapentin suggested dose of Pregabalin is 75mg at 6.00pm and 75mg 30 minutes before bedtime, can be uptitrated as required. Does this sound right? I have zero confidence in registrar
I have received a letter from Leicester hospital following my consultation with a neurology Registrar. I am on 1100mg of Gabapentin suggested dose of Pregabalin is 75mg at 6.00pm and 75mg 30 minutes before bedtime, can be uptitrated as required. Does this sound right? I have zero confidence in registrar
Elsie77
in
Restless Legs Syndrome
1 year ago
neuropathy, pins, and needles in the face!! Has anyone else had this?
I have been experiencing this randomly and faintly over the past 7 months. Now I have been receiving b12 shots for 8 weeks, along with hot aching pins and needles in my feet and hands I woke this morning to way more intense pins and needles on my face. Both sides of my face and across my jaw. From what
I have been experiencing this randomly and faintly over the past 7 months. Now I have been receiving b12 shots for 8 weeks, along with hot aching pins and needles in my feet and hands I woke this morning to way more intense pins and needles on my face. Both sides of my face and across my jaw. From what
brenanddave
in
Pernicious Anaemia Society
1 year ago
Extended Gonal F
I have PCOS, and my follicles are growing just abit slower…. After doing some reading I think this is because I started on Lower doses of Gonal F due to the risks of OHSS, I’m on day 12 now and only have 4 above 10mm and they want me to extend the Gonal F before starting the morning jab… I’m worried
I have PCOS, and my follicles are growing just abit slower…. After doing some reading I think this is because I started on Lower doses of Gonal F due to the risks of OHSS, I’m on day 12 now and only have 4 above 10mm and they want me to extend the Gonal F before starting the morning jab… I’m worried
herewego89
in
Fertility Network UK
1 year ago
Finally a specialist appointment...
I am looking forward to an appt in 2 days with a specialist in proctology and she is a colon surgeon and does pelvic floor therapy as well. My hemerrhoids - or whatever this is - are not getting better. Keeping the constipation under control with diet, water, miralax and occasional stool softener.
I am looking forward to an appt in 2 days with a specialist in proctology and she is a colon surgeon and does pelvic floor therapy as well. My hemerrhoids - or whatever this is - are not getting better. Keeping the constipation under control with diet, water, miralax and occasional stool softener.
NewEnglander
in
IBS Network
9 months ago
Going round in circles
Following my gastroscopy this is on the report: THE GASTRIC MAPPING SHOW MODERATE CHRONIC INFLAMMATION. THERE IS MULTIFOCAL INTESTINAL METAPLASIA THROUGHOUT THESE BIOPSIES. THERE IS ALSO SEVERE GLANDULAR ATROPHY WITH NEUROENDOCRINE HYPERPLASIA. NO MUCOSAL ULCERATION OR ACTIVE INFAMMATION SEEN.
Following my gastroscopy this is on the report: THE GASTRIC MAPPING SHOW MODERATE CHRONIC INFLAMMATION. THERE IS MULTIFOCAL INTESTINAL METAPLASIA THROUGHOUT THESE BIOPSIES. THERE IS ALSO SEVERE GLANDULAR ATROPHY WITH NEUROENDOCRINE HYPERPLASIA. NO MUCOSAL ULCERATION OR ACTIVE INFAMMATION SEEN.
Helliborous
in
Pernicious Anaemia Society
10 months ago
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