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Giant axonal neuropathy
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Pain and hypnotherapy
Hello - I'm a podcast producer and I'm looking for someone who has successfully managed their chronic pain with hypnosis/hypnotherapy to be interviewed for an upcoming podcast series. It's quite a last minute interview so if you think you might be interested please do get in touch and I can send more
Hello - I'm a podcast producer and I'm looking for someone who has successfully managed their chronic pain with hypnosis/hypnotherapy to be interviewed for an upcoming podcast series. It's quite a last minute interview so if you think you might be interested please do get in touch and I can send more
podproducer
in
Pain Concern
1 year ago
Crosstalk between the neuroendocrine system and bone homeostasis
Immensely frustrating that the abstract is so sparse and that is all we can access. At present, I simply hope we can get away from the extremely simplistic view that low TSH, in itself, causes bone problems. But all we can really see is that it is complicated. [i][/i] [i]
Crosstalk between the neuroendocrine
Immensely frustrating that the abstract is so sparse and that is all we can access. At present, I simply hope we can get away from the extremely simplistic view that low TSH, in itself, causes bone problems. But all we can really see is that it is complicated. [i][/i] [i]
Crosstalk between the neuroendocrine
helvella
Thyroid UK
in
Thyroid UK
1 year ago
Started my grandmother on TTFD
I am my grandmother's primary care taker. I recently learned about HDT and decided to try it on her. Every morning I videotape her eating, which I will use to see if her condition gets better or worse over time. She is 87, having parkinson's for at least 25 years. In the last year her on-state dyskinesia
I am my grandmother's primary care taker. I recently learned about HDT and decided to try it on her. Every morning I videotape her eating, which I will use to see if her condition gets better or worse over time. She is 87, having parkinson's for at least 25 years. In the last year her on-state dyskinesia
philipmurray
in
Cure Parkinson's
1 year ago
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6 days to my baseline scan -FET - oestrogen side effects
Hi all I got a bleed on the 12th of October so 5 days ago and started oestrogen on day 3 of the cycle - I am told to take 3 tablets a day . I am feeling absolutely horrible on them .. nausea , cramps , really low . My scan is on the 23rd .. time is going by so slow . I am 26 with pcos just lost
Hi all I got a bleed on the 12th of October so 5 days ago and started oestrogen on day 3 of the cycle - I am told to take 3 tablets a day . I am feeling absolutely horrible on them .. nausea , cramps , really low . My scan is on the 23rd .. time is going by so slow . I am 26 with pcos just lost
Hidden
in
Fertility Network UK
9 months ago
Lyrica pregabalin
Since Horizant is now breaking down before 24 hours, I’m thinking of switching to Pregabalin/Lyrica. What is the group’s experience with pregabalin? Has it helped people?
Since Horizant is now breaking down before 24 hours, I’m thinking of switching to Pregabalin/Lyrica. What is the group’s experience with pregabalin? Has it helped people?
tagaxel
in
Restless Legs Syndrome
1 year ago
Hi there , could anyone tell me where to buy methylcobalamine or hydroxocobalamine for self injection. Thank you
I was diagnosed with PA 11 years ago and started to SI just a year ago. My GP will only give me a prescription for 6 vials of hyhydroxocobalamine a year. Could anyone advice me where I can purchase more . Thanks
I was diagnosed with PA 11 years ago and started to SI just a year ago. My GP will only give me a prescription for 6 vials of hyhydroxocobalamine a year. Could anyone advice me where I can purchase more . Thanks
Helliborous
in
Pernicious Anaemia Society
1 year ago
Sadly Pluvicto did not work ...
After receiving the results from my PSMA PET scan at the Mayo Clinic in Jacksonville, I am sad to say my disease is progressing. I had four Pluvicto infusions with no SE's what so ever.. I felt that they mirrored my Docetaxel treatments again other than my hair falling out I had no other SE's. which
After receiving the results from my PSMA PET scan at the Mayo Clinic in Jacksonville, I am sad to say my disease is progressing. I had four Pluvicto infusions with no SE's what so ever.. I felt that they mirrored my Docetaxel treatments again other than my hair falling out I had no other SE's. which
TheWizardofWesley
in
Advanced Prostate Cancer
1 year ago
Foot pain
Since the recent temperature change I've began having serious pain in my feet. Feels like I've been walking all day. Night times are bad as feet feel like they are on fire so have to keep them out of the bed sheets. It all started after a recent holiday and since being back and the increase in temp back
Since the recent temperature change I've began having serious pain in my feet. Feels like I've been walking all day. Night times are bad as feet feel like they are on fire so have to keep them out of the bed sheets. It all started after a recent holiday and since being back and the increase in temp back
Aka-Ice
in
Fibromyalgia Action UK
1 year ago
HELP! Firmagon reaction?
Hi - yesterday I had my 3rd monthly (80mg) injection of Firmagon. For all my previous injections, including the 2 initial loading doses, I did not have any major side effects, just some minimal soreness at the injection site which resolved in less than 2 days. Yesterday's injection was a little bit
Hi - yesterday I had my 3rd monthly (80mg) injection of Firmagon. For all my previous injections, including the 2 initial loading doses, I did not have any major side effects, just some minimal soreness at the injection site which resolved in less than 2 days. Yesterday's injection was a little bit
LongevityAT
in
Advanced Prostate Cancer
1 year ago
Leg Cramping, Ankle Neuropathy...Help!
Hello all! When I last posted 2 months ago, I had questions regarding the possibility that my daily 1,000 mcg sublingual might no longer be adequate to address PA, even though all of my test results were adequate (MMA, Homocysteine, MCV). Since then, however, I've developed left ankle numbness/pain.
Hello all! When I last posted 2 months ago, I had questions regarding the possibility that my daily 1,000 mcg sublingual might no longer be adequate to address PA, even though all of my test results were adequate (MMA, Homocysteine, MCV). Since then, however, I've developed left ankle numbness/pain.
Greeneyecolor
in
Pernicious Anaemia Society
1 year ago
Evaluating Success
See profile for current understanding of my life long B12 deficiency and self designed supplementation regiment. [u]July 2023[/u] Over time I changed by supplementation starting 90 days ago. Before that I was improving to some degree. I used the pain from Peripheral Neuropathy to monitor improvement
See profile for current understanding of my life long B12 deficiency and self designed supplementation regiment. [u]July 2023[/u] Over time I changed by supplementation starting 90 days ago. Before that I was improving to some degree. I used the pain from Peripheral Neuropathy to monitor improvement
WIZARD6787
in
Pernicious Anaemia Society
1 year ago
Oxycodone
Hello everyone & especially Sue & Jules. I have now had 4 blissful months sleep on 10mg of Oxycodone.I have now successfully reduced my gabapentin from 2,100 to 1,500mg. But am now starting to get one breakthrough session of rls a night & am worried it will get worse. Should I stop reducing the gabapentin
Hello everyone & especially Sue & Jules. I have now had 4 blissful months sleep on 10mg of Oxycodone.I have now successfully reduced my gabapentin from 2,100 to 1,500mg. But am now starting to get one breakthrough session of rls a night & am worried it will get worse. Should I stop reducing the gabapentin
Simkin
in
Restless Legs Syndrome
1 year ago
Sotalol and troubles breathing
I would like to reach out to see if anybody has ever had similar experience as I do at present.After 7 cardioversions and 2 ablations I was eventually and surprisingly converted to sinus 7months ago with Sotalol(amiodarone and flecainide failed to do so) and remained in sinus since. I am very active
I would like to reach out to see if anybody has ever had similar experience as I do at present.After 7 cardioversions and 2 ablations I was eventually and surprisingly converted to sinus 7months ago with Sotalol(amiodarone and flecainide failed to do so) and remained in sinus since. I am very active
55zuzanka61
in
AF Association
1 year ago
Neuropathy with PD
Has anyone had "neuropathy," in hands/legs? Over the last few weeks I have noticed numbness and tingling. Here we go....another "thing" to deal with. Good ol' PD.
Has anyone had "neuropathy," in hands/legs? Over the last few weeks I have noticed numbness and tingling. Here we go....another "thing" to deal with. Good ol' PD.
cjCardio53
in
Cure Parkinson's
1 year ago
Private Rheumatologist Consultation
Would anyone have recommendation on private rheumatologist close to Falmouth? My next NHS rheumatologist appointment is in Aug. I need to see rheumatologist for my painful feet, hands and jaw. I went to see the local GP about my pain, but they're unable to prescribe medication to relieve the swelling
Would anyone have recommendation on private rheumatologist close to Falmouth? My next NHS rheumatologist appointment is in Aug. I need to see rheumatologist for my painful feet, hands and jaw. I went to see the local GP about my pain, but they're unable to prescribe medication to relieve the swelling
Mikiki
in
LUPUS UK
1 year ago
Horizant
After pregabalin and gabapentin both made me nervous (I successfully tolerated the pregabalin for years, with daytime sedation however). Codeine also seems to be waking me up instead of sedating me. Doctor is suggesting trying Horizant. I know it is for people who experience symptoms all day, but
After pregabalin and gabapentin both made me nervous (I successfully tolerated the pregabalin for years, with daytime sedation however). Codeine also seems to be waking me up instead of sedating me. Doctor is suggesting trying Horizant. I know it is for people who experience symptoms all day, but
wantokporo
in
Restless Legs Syndrome
1 year ago
EMG test
Hello all I hope you are doing the best you can. I have received a letter from Sheffield Hallam today and I’m being booked in for an EMG has anyone had this and do the results reflect your symptoms and how you feel with your type of ataxia. It’s a long waiting list so I have to be a good patient 🤨.
Hello all I hope you are doing the best you can. I have received a letter from Sheffield Hallam today and I’m being booked in for an EMG has anyone had this and do the results reflect your symptoms and how you feel with your type of ataxia. It’s a long waiting list so I have to be a good patient 🤨.
Guardsman68
in
Ataxia UK
1 year ago
Desperate for help
next Friday I will have a PSMA PTscan , which I failed because lie straight on the table due to pain. Lately, with the doctor it has been decided to cut the pain meds. Removed patches, pills down. Ok! Tried to lie down straight and I couldn’t do it!? What can be done in order to get me ready for the
next Friday I will have a PSMA PTscan , which I failed because lie straight on the table due to pain. Lately, with the doctor it has been decided to cut the pain meds. Removed patches, pills down. Ok! Tried to lie down straight and I couldn’t do it!? What can be done in order to get me ready for the
p1411887
in
Advanced Prostate Cancer
1 year ago
Neuropathic Foot Pain
Hello Warriors: I've just finished my second pluvicto injection and everything seems to be going fine. PSA is going down and I do have mild bouts of diarrhea but that is totally manageable. My 20 year battle with this disease continues. I will never give up . I continue to have neuropathic foot
Hello Warriors: I've just finished my second pluvicto injection and everything seems to be going fine. PSA is going down and I do have mild bouts of diarrhea but that is totally manageable. My 20 year battle with this disease continues. I will never give up . I continue to have neuropathic foot
Hidden
in
Advanced Prostate Cancer
1 year ago
Starting pregabalin
I have received a letter from Leicester hospital following my consultation with a neurology Registrar. I am on 1100mg of Gabapentin suggested dose of Pregabalin is 75mg at 6.00pm and 75mg 30 minutes before bedtime, can be uptitrated as required. Does this sound right? I have zero confidence in registrar
I have received a letter from Leicester hospital following my consultation with a neurology Registrar. I am on 1100mg of Gabapentin suggested dose of Pregabalin is 75mg at 6.00pm and 75mg 30 minutes before bedtime, can be uptitrated as required. Does this sound right? I have zero confidence in registrar
Elsie77
in
Restless Legs Syndrome
1 year ago
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