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GCA relief of symptoms?
Hi, help please.I have had a GCA flare, headaches, sore temples, total fatigue, dizzy spells and jaw pain. Rheumatologist appt 20 Sept 2023 increased pred to 40mgs a day for 3 weeks, then reducing. 16 days later though, I still have the symptoms. Does that sound ok? Previously I had been on 3mgs of
Hi, help please.I have had a GCA flare, headaches, sore temples, total fatigue, dizzy spells and jaw pain. Rheumatologist appt 20 Sept 2023 increased pred to 40mgs a day for 3 weeks, then reducing. 16 days later though, I still have the symptoms. Does that sound ok? Previously I had been on 3mgs of
Chespoll
in
PMRGCAuk
7 months ago
internal shingles
hi, I’ve been diagnosed with internal shingles and it’s the most painful thing I have ever experienced. I’m on my last day of Aciclovir, I’m taking paracetamol and codeine during the day and 3 amitriptyline at night, this has been going on for over a week. Is this normal? Any advice gladly accepted
hi, I’ve been diagnosed with internal shingles and it’s the most painful thing I have ever experienced. I’m on my last day of Aciclovir, I’m taking paracetamol and codeine during the day and 3 amitriptyline at night, this has been going on for over a week. Is this normal? Any advice gladly accepted
Mongoose123
in
PMRGCAuk
5 months ago
Finally got an endocrinology appointment
Hi there everyone!In early January this year I caught COVID and was really rough with it even though I have had all my jabs, come February I was still feeling rough, tired, always cold, brain fog... The list goes on. I went to the GP and explained my symptoms but didn't say I'd had COVID (expecting
Hi there everyone!In early January this year I caught COVID and was really rough with it even though I have had all my jabs, come February I was still feeling rough, tired, always cold, brain fog... The list goes on. I went to the GP and explained my symptoms but didn't say I'd had COVID (expecting
unlucky-angler
in
Thyroid UK
5 months ago
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Covid and Blood Tests
Hello lovely people. I wasn't given the jab this year and I've recently had a pretty bad dose of Covid (four days of fever at 102, oxygen sats down to 92% at one point) and my heart rate went crazy and I had one episode of SVT briefly the first time I got out of bed after the fever. Only one, mind
Hello lovely people. I wasn't given the jab this year and I've recently had a pretty bad dose of Covid (four days of fever at 102, oxygen sats down to 92% at one point) and my heart rate went crazy and I had one episode of SVT briefly the first time I got out of bed after the fever. Only one, mind
SilverSavvy
in
Thyroid UK
5 months ago
Enerzair Inhaler
Has anyone come across this inhaler? I’ve gone from Fostair to Relvar and now to this. Haven’t started it yet but does this suggest I’m now on triple therapy? It’s a bit disconcerting to be on what appears to be a pretty strong inhaler a year into chronic bronchitis. I feel it leaves little room to up
Has anyone come across this inhaler? I’ve gone from Fostair to Relvar and now to this. Haven’t started it yet but does this suggest I’m now on triple therapy? It’s a bit disconcerting to be on what appears to be a pretty strong inhaler a year into chronic bronchitis. I feel it leaves little room to up
PW_R
in
Lung Conditions Community Forum
1 year ago
Vaccine disparities are worse post-emergency KATELYN JETELINA NOV 28 Data is starting to roll in on Covid-19 vaccine inequities this fall
Vaccine disparities are worse post-emergency KATELYN JETELINA NOV 28 https://yourlocalepidemiologist.substack.com/p/vaccine-disparities-are-worse-post?utm_source=post-email-title&publication_id=281219&post_id=139105358&utm_campaign=email-post-title&isFreemail=true&r=dr96q&utm_medium=email - Oof.
Vaccine disparities are worse post-emergency KATELYN JETELINA NOV 28 https://yourlocalepidemiologist.substack.com/p/vaccine-disparities-are-worse-post?utm_source=post-email-title&publication_id=281219&post_id=139105358&utm_campaign=email-post-title&isFreemail=true&r=dr96q&utm_medium=email - Oof.
lankisterguy
Volunteer
in
CLL Support
6 months ago
Xstich
my husband has pulmonary fibrosis, since having pneumonia last November the coughing has got worse and he is bringing up phlegm. He’s now having trouble swallowing food mainly his dinner, he chews & chews the food but can’t swallow it, he recently had a gastroendoscopy with polyps found in the stomach
my husband has pulmonary fibrosis, since having pneumonia last November the coughing has got worse and he is bringing up phlegm. He’s now having trouble swallowing food mainly his dinner, he chews & chews the food but can’t swallow it, he recently had a gastroendoscopy with polyps found in the stomach
Xrossstich
in
Lung Conditions Community Forum
1 year ago
Advice request - going in circles with doctors
Hi all, I've been suffering with endometriosis for years but I'm really struggling to get proper help with it, and the doctors seem to be thinking now it might be something else. I've had surgery to remove endometriosis twice (and the second time I also had an ovarian cyst removed which was larger than
Hi all, I've been suffering with endometriosis for years but I'm really struggling to get proper help with it, and the doctors seem to be thinking now it might be something else. I've had surgery to remove endometriosis twice (and the second time I also had an ovarian cyst removed which was larger than
Bookworm321123
in
Endometriosis UK
2 months ago
what to do - advice please
afternoon all, one of my very occasional posts for some advice basically I am feeling rubbish! (Aren’t we all they say) This time last year I note that I was going down from 7mgs to 6.5mgs but put myself back up to 12 mgs because I was aching and then 15mgs, caught a mild dose of COVID as well, with
afternoon all, one of my very occasional posts for some advice basically I am feeling rubbish! (Aren’t we all they say) This time last year I note that I was going down from 7mgs to 6.5mgs but put myself back up to 12 mgs because I was aching and then 15mgs, caught a mild dose of COVID as well, with
Billiebobdog
in
PMRGCAuk
6 months ago
Shingles and MTX
I'm due to go visit family but brother-in-law has shingles. Normally I wouldn't worry as I have had chicken pox but the NHS in advice on taking MTX says to contact the doctor if you've been exposed to shingles (which suggests we should avoid contact with shingles patients). Has anyone been advised to
I'm due to go visit family but brother-in-law has shingles. Normally I wouldn't worry as I have had chicken pox but the NHS in advice on taking MTX says to contact the doctor if you've been exposed to shingles (which suggests we should avoid contact with shingles patients). Has anyone been advised to
Gottarelax
in
NRAS
7 months ago
Alvesco and fostair
I am currently on fostair 100 mart, with the ability to switch to fostair 200 when I need it. Along with spiriva. My asthma is relatively uncontrolled, but spiriva has helped a lot. My consultant has just put Alvesco 160 into the mix twice a day. Any idea of what he is doing, apart from just increasing
I am currently on fostair 100 mart, with the ability to switch to fostair 200 when I need it. Along with spiriva. My asthma is relatively uncontrolled, but spiriva has helped a lot. My consultant has just put Alvesco 160 into the mix twice a day. Any idea of what he is doing, apart from just increasing
Homely2
Administrator
in
Asthma Community Forum
7 months ago
still not diagnosed but concerned about IBS
Sorry for lengthy post I am new here. I started an antibiotics course (one week) Doxycycline on 24 April 2023 for throat infection and fever,as soon I finish it, I started having diarrhoea. That time I was in very stress and depression for another reason. It's been almost over 9 months now. Diarrhea
Sorry for lengthy post I am new here. I started an antibiotics course (one week) Doxycycline on 24 April 2023 for throat infection and fever,as soon I finish it, I started having diarrhoea. That time I was in very stress and depression for another reason. It's been almost over 9 months now. Diarrhea
Fmkhan
in
IBS Network
7 months ago
Wish me luck.
We are having our Thanksgiving dinner today (a day late) with my husband's side of the family. Last year we had Thanksgiving dinner with them and it turned out to be a Covid superspreader event. Ten out of the twelve people in attendance came down with Covid. The two that didn't had it a few months
We are having our Thanksgiving dinner today (a day late) with my husband's side of the family. Last year we had Thanksgiving dinner with them and it turned out to be a Covid superspreader event. Ten out of the twelve people in attendance came down with Covid. The two that didn't had it a few months
punkster
in
Anxiety and Depression Support
6 months ago
Colds
Have another really bad cough and cold (not COVID) - is this related to the immune system being reduced by pred ? I am on 6 mg after about 5 years
Have another really bad cough and cold (not COVID) - is this related to the immune system being reduced by pred ? I am on 6 mg after about 5 years
Daffodilia
in
PMRGCAuk
10 months ago
Help! Stomach Bug & Holiday!
For over a week I have had some sort of stomach bug with awful pains in the lower stomach, causing loose stools, feeling chilled then hot, with a recurring headache. I contacted my doctor asking for urgent stool tests, as I am due to go on holiday to Spain next Monday, just in case it is a stomach bug
For over a week I have had some sort of stomach bug with awful pains in the lower stomach, causing loose stools, feeling chilled then hot, with a recurring headache. I contacted my doctor asking for urgent stool tests, as I am due to go on holiday to Spain next Monday, just in case it is a stomach bug
laurajn087
in
IBS Network
7 months ago
Covid
Hi I’ve just tested positive for Covid . I’m on 5 mg of prednisone and 15 mg methotrexate. Is there any advice about how to manage meds while having Covid. I feel very achy and it feels like I’m having a flare. Thanjs in advance for any advice.
Hi I’ve just tested positive for Covid . I’m on 5 mg of prednisone and 15 mg methotrexate. Is there any advice about how to manage meds while having Covid. I feel very achy and it feels like I’m having a flare. Thanjs in advance for any advice.
Belfastman
in
PMRGCAuk
6 months ago
MSA-C with ataxia rebound
I have not been diagnosed as yet. A neurologist I am seeing is committed to finding out what is causing the symptoms. I was diagnosed with large fiber polyneuropathy with ataxia in 2021. Since then dysautonomia has presented itself. Exercise for balance has really helped but unfortunately my ataxia is
I have not been diagnosed as yet. A neurologist I am seeing is committed to finding out what is causing the symptoms. I was diagnosed with large fiber polyneuropathy with ataxia in 2021. Since then dysautonomia has presented itself. Exercise for balance has really helped but unfortunately my ataxia is
rideabike
in
Multiple System Atrophy Trust
6 months ago
Night sweats worse and facial flushing after steroid injection
I had a steroid injection last Friday and have had facial flushing and raised bp in the morning and raised pulse since. Sometimes I wake up about 2am sweating with raised pulse and if I move even slightly it shoots up to about 110. It’s very slow to return to normal. Anyone have a similar experience
I had a steroid injection last Friday and have had facial flushing and raised bp in the morning and raised pulse since. Sometimes I wake up about 2am sweating with raised pulse and if I move even slightly it shoots up to about 110. It’s very slow to return to normal. Anyone have a similar experience
Gwelos
in
AF Association
6 months ago
Covid has just hit our Thanksgiving plans!
My daughter just called to tell me she was just diagnosed with covid and can't come to our family gathering😪! She's a teacher and during the school year I rarely see her--she's too far away for me to go to her! This comes on top of the news that I do in fact have another met on my brain, likely
My daughter just called to tell me she was just diagnosed with covid and can't come to our family gathering😪! She's a teacher and during the school year I rarely see her--she's too far away for me to go to her! This comes on top of the news that I do in fact have another met on my brain, likely
PJBinMI
in
SHARE Metastatic Breast Cancer
6 months ago
When to restart Biologics after Covid Infection
Tested positive for Covid ( for the first time) last Wednesday. Was able to access Antivirals by Friday and by Monday was testing negative. Finished Paxlovid this morning. Should have injected Abatacept at the weekend but obviously didn’t! Just wondering what people have been advised re timing of restarting
Tested positive for Covid ( for the first time) last Wednesday. Was able to access Antivirals by Friday and by Monday was testing negative. Finished Paxlovid this morning. Should have injected Abatacept at the weekend but obviously didn’t! Just wondering what people have been advised re timing of restarting
Intheend
in
NRAS
6 months ago
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