immunosuppressed, covid positive - anyone have an experience with antivirals?

[ruablue]

hello lovely people of this wonderful forum - seeking any insight or guidance

I was diagnosed (11 months ago) with scleroderma & myositis with lung involvement (ILD) on Mycophenolate for treatment.

Despite being very cautious and careful, I have just tested positive for Covid, (having avoided it for last 4 years).

I wonder if anyone could share their Covid experiences and the antiviral process and if they found antivirals impactful, which ones were they?

Thanks as always

yours ruablue (who may be slightly anxious, given the circumstances - eek)

[SoonToBe]

I sufferer from NAM and am on Ritexumab. I suffered a bout of covid in Nov 22 and whilst it was just like a bad case of the flu the week after I developed a skin rash which took several months to clear up. I had a suspected case around July 23. ( may have been a false positive as only 1 out of 3 test showed positive). I was given antivirals as a counter measure just in case. They made me feel sick for the first 24 hours of taking them (felt like I was going to throw up for 24 hours) but after that things went ok

[ruablue in reply to SoonToBe]

Thank you so much for the feedback- really appreciate it! Covid is a tricky thing / managed to secure antivirals so will see how it goes - thanks again for sharing - I hope that you are well 😊

[Staff11]

hi, I have DM and am on mycophenolate acid, and although have majority of the covid vaccines, I still got covid. Results from the injections were not so good, especially when given when the flu vaccine. But the shivering, feeling poorly only lasted 36hrs.

Hope this helps a little

[ruablue]

Hi - thank you so much for your insight - much appreciated 😊

[Redowl1223]

Hi sorry to hear Covid has got you. I was recently prescribed oral antivirals called Paxvolid. They made me feel a whole lot better very quickly. They did cause some diarrhoea after 1st dose and left a metallic taste in my mouth while I was taking them but these side effects were mild. Hope you feel better soon .

[ruablue in reply to Redowl1223]

Thank you so much Red owl (absolutely adore that name - owls and penguins are my all time favourite). This has really reassured me - have a wonderful weekend 😊