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Update on Chemotherapy
I have been taking a break from the board for a few reasons. I have been busy with work, run out of gas earlier, and there hasn’t been much to report. I started Cabazitaxel treatment on September 23 and get an infusion every three weeks. January 6 was the 6th treatment. Important news to share with
I have been taking a break from the board for a few reasons. I have been busy with work, run out of gas earlier, and there hasn’t been much to report. I started Cabazitaxel treatment on September 23 and get an infusion every three weeks. January 6 was the 6th treatment. Important news to share with
Philly13
in
Advanced Prostate Cancer
3 years ago
I apologize for my last post
Hi all, I’m crawling out of my hole some more today. I realize I may not have been clear with my past and it was taken out of context. To clarify, no, my husband isn’t abusive, he just has alot of past trauma himself and was triggered and really stressed out and handled it in bad a way. I realize now
Hi all, I’m crawling out of my hole some more today. I realize I may not have been clear with my past and it was taken out of context. To clarify, no, my husband isn’t abusive, he just has alot of past trauma himself and was triggered and really stressed out and handled it in bad a way. I realize now
JennaShi
in
LUPUS UK
2 years ago
Ketruda Round 9
So Keytruda has been working to keep my PSA relatively stable for 27 weeks with minimal side effects through round 8, however PSA did rise from 19.1 to 26.7 so I may be failing Keytruda. After receiving my 9th Keytruda infusion I started having extreme pain in my knees, ankles, and shoulders, to the
So Keytruda has been working to keep my PSA relatively stable for 27 weeks with minimal side effects through round 8, however PSA did rise from 19.1 to 26.7 so I may be failing Keytruda. After receiving my 9th Keytruda infusion I started having extreme pain in my knees, ankles, and shoulders, to the
Jackpine
in
Advanced Prostate Cancer
3 years ago
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Going into rehab
I fell off the wagon just before Christmas, no excuses, just major family stress reasons which I didn't cope with. Had an endoscopy yesterday to reassure myself I wouldn't have a bleed in there. I am absolutely terrified of detoxing on my own, away from husband etc. They use benzos and anti-emetics to
I fell off the wagon just before Christmas, no excuses, just major family stress reasons which I didn't cope with. Had an endoscopy yesterday to reassure myself I wouldn't have a bleed in there. I am absolutely terrified of detoxing on my own, away from husband etc. They use benzos and anti-emetics to
theoldboiler
in
British Liver Trust
3 years ago
Genetic counselling
Hi everyone, has anyone had genetic counselling and if so what to expect? Thank you xx
Hi everyone, has anyone had genetic counselling and if so what to expect? Thank you xx
Aurora20
in
Fertility Network UK
3 years ago
Possible AMN , I’m in the process of finding out
My brother has ALD , he is 26 and doing ok considering it all he suffers with sight problems , Addison and lots of fatigue and decreased function as a person overall , but is he and will always be him and his personality is still very strong , I have helped my dad with caring for him since a very young
My brother has ALD , he is 26 and doing ok considering it all he suffers with sight problems , Addison and lots of fatigue and decreased function as a person overall , but is he and will always be him and his personality is still very strong , I have helped my dad with caring for him since a very young
TiaPhipps
in
AMN EASIER
3 years ago
Teetering on the edge
I feel like I am going crazy. For a while I felt like my ADHD meds were great, but recently I feel this intense anger and it scares me. I mean, at the slightest thing that's challenging I can lose my shit and end up crying and screaming at my inability to handle whatever it is that I have to do. For
I feel like I am going crazy. For a while I felt like my ADHD meds were great, but recently I feel this intense anger and it scares me. I mean, at the slightest thing that's challenging I can lose my shit and end up crying and screaming at my inability to handle whatever it is that I have to do. For
slumbers
in
CHADD's Adult ADHD Support
3 years ago
STEMI, feeling low and anyone tested for familial hypercholestrolemia.
Hi All, on 25th Oct, I had a STEMI on LAD, luckily managed to reach the hospital and emergency angioplasty was carried out. I am now recovering but has surely left a long term impact both physically and mentally. I am 47 and now with Low EF and generally feeling low. I have been reading about genetic
Hi All, on 25th Oct, I had a STEMI on LAD, luckily managed to reach the hospital and emergency angioplasty was carried out. I am now recovering but has surely left a long term impact both physically and mentally. I am 47 and now with Low EF and generally feeling low. I have been reading about genetic
dharkan
in
British Heart Foundation
3 years ago
Ongoing OCD, PTSD, Anxiety, and Depression
Hey everyone, I'm new here but not new to OCD and my other disorders. I'm 37 and have been dealing with them most of my life. I was fortunate as a kid to have good insurance, which led to me getting diagnosed and treated in my teen years. I've have lots of counseling and have taken various medications
Hey everyone, I'm new here but not new to OCD and my other disorders. I'm 37 and have been dealing with them most of my life. I was fortunate as a kid to have good insurance, which led to me getting diagnosed and treated in my teen years. I've have lots of counseling and have taken various medications
Overthinker84
in
My OCD Community
3 years ago
Assessment from Psychiatrist and Psychologist counseling
Hello everyone, I visited a Psychiatrist for my ADHD issue, dr. prescribed Atomoxetine Attera 18mg tablets once every day and to increase the dose after a week, he also recommended to get Psychologist tested and counseling to test my intelligence. FYI, Atomoxetine is not a cure, I need to take it consistently
Hello everyone, I visited a Psychiatrist for my ADHD issue, dr. prescribed Atomoxetine Attera 18mg tablets once every day and to increase the dose after a week, he also recommended to get Psychologist tested and counseling to test my intelligence. FYI, Atomoxetine is not a cure, I need to take it consistently
JimWalter
in
CHADD's Adult ADHD Support
3 years ago
CHEK2 and Lynparza
Diagnosed three years ago. Psa 14.7 and Gleason 9. Have had docetaxel Am on eligard every four months. Xtandi and zytiga did not with for me. Todays bone scan FINDINGS: Delayed whole-body planar images were obtained. Interval significant progression of skeletal metastases is noted. The number
Diagnosed three years ago. Psa 14.7 and Gleason 9. Have had docetaxel Am on eligard every four months. Xtandi and zytiga did not with for me. Todays bone scan FINDINGS: Delayed whole-body planar images were obtained. Interval significant progression of skeletal metastases is noted. The number
Altamonttt
in
Advanced Prostate Cancer
3 years ago
Genetic Testing study. I've done this and it was free and simple. I talked to my MO first and she thinks it is a valid test.
https://www.prostatecancerpromise.org/how-it-works/
https://www.prostatecancerpromise.org/how-it-works/
Hidden
in
Advanced Prostate Cancer
3 years ago
Feeling v lost: When you reach the end of the line - any tips for counselling, support groups?
First, apologies this isn't a very inspiring post. None of us want to get to this point and all hope we won't and probably don't want to read about it! It feels like the bit of the 'journey' which in many ways is the least supported and discussed, perhaps even a bit taboo. Please look away if this isn't
First, apologies this isn't a very inspiring post. None of us want to get to this point and all hope we won't and probably don't want to read about it! It feels like the bit of the 'journey' which in many ways is the least supported and discussed, perhaps even a bit taboo. Please look away if this isn't
fingerscrossedX
in
Fertility Network UK
3 years ago
Nilotinib/Tasigna for SCA 1,2,3,6,7, and 17 patients with low to no symptoms.
This is a drug which has been mentioned here numerous times over the years, but may finally have some real results. Unfortunately this post is likely not relevant to most posters here, but for those people with an inherited form of SCA who are just beginning to see symptoms or who have no symptoms and
This is a drug which has been mentioned here numerous times over the years, but may finally have some real results. Unfortunately this post is likely not relevant to most posters here, but for those people with an inherited form of SCA who are just beginning to see symptoms or who have no symptoms and
CardiCorgi
in
Ataxia UK
3 years ago
Mom’s MBC Diagnosis - Intro & Questions
Hi everyone! I am writing on behalf of my mom. In Dec 2001 at 37 years old, she was diagnosed with Stage 2/Grade 3/ER +/PR +/ HER2 -. She had surgery, chemo, radiation and 5 years of tamoxifen. December 2021, she’s received a metastatic diagnosis. She had a routine mammogram in August which was clear
Hi everyone! I am writing on behalf of my mom. In Dec 2001 at 37 years old, she was diagnosed with Stage 2/Grade 3/ER +/PR +/ HER2 -. She had surgery, chemo, radiation and 5 years of tamoxifen. December 2021, she’s received a metastatic diagnosis. She had a routine mammogram in August which was clear
ntalley8
in
SHARE Metastatic Breast Cancer
3 years ago
Alex TLC Digital Community Weekend
The agenda for our weekend is available to view: https://www.alextlc.org/digital-community-weekend-2021/ On Saturday, the Science Day, we have presentations about the new NHS Inherited White Matter Disorders Patient Registry and research updates on the following Leukodystrophies: - AMN & ALD - Alexander's
The agenda for our weekend is available to view: https://www.alextlc.org/digital-community-weekend-2021/ On Saturday, the Science Day, we have presentations about the new NHS Inherited White Matter Disorders Patient Registry and research updates on the following Leukodystrophies: - AMN & ALD - Alexander's
Hidden
Partner
in
Leukodystrophy Support
3 years ago
Mult. Med changes
I was recently diagnosed with ADHD and trying to find the right medication has been hard. I even did my genetic testing that basically told me nothing. I am maxed out on adderall 20mg twice a day. I don't feel focused at all. I will say I get up and get moving but I also have a hard time sleeping. Which
I was recently diagnosed with ADHD and trying to find the right medication has been hard. I even did my genetic testing that basically told me nothing. I am maxed out on adderall 20mg twice a day. I don't feel focused at all. I will say I get up and get moving but I also have a hard time sleeping. Which
Britt2021
in
CHADD's Adult ADHD Support
3 years ago
ADHD or something else?
My ADHD spouse will eat everything in the refrigerator, even if it belongs to someone else or was for a group. He eats dozens of cookies baked as gifts, an entire tray of meat balls cooked for shared dinner. I at one point had a locked food cage to keep him off of other peoples things. When asked
My ADHD spouse will eat everything in the refrigerator, even if it belongs to someone else or was for a group. He eats dozens of cookies baked as gifts, an entire tray of meat balls cooked for shared dinner. I at one point had a locked food cage to keep him off of other peoples things. When asked
Oh-gawd
in
CHADD's Adult ADHD Support
3 years ago
Feeling helpless
Hi… very new and nervous to all this and not sure if anyone can help me. A little bit of background as there too much to say - I’m in my 40s, 2 children (19,16) a VERY lovely, thoughtful and caring husband who would do anything for me and very good successful job. 12 years ago, I cared for my mum
Hi… very new and nervous to all this and not sure if anyone can help me. A little bit of background as there too much to say - I’m in my 40s, 2 children (19,16) a VERY lovely, thoughtful and caring husband who would do anything for me and very good successful job. 12 years ago, I cared for my mum
Smart21
in
Mental Health Support
3 years ago
PSA rising - Dec/21
My father went back to do all the usual scans and blood tests. This time the news is not so exciting. He had an increase in PSA (first 4 and now 9), and a small metastasis in the lymph nodes in the chest area was detected. Doctors will meet to decide the next step to take. Also, he had an appointment
My father went back to do all the usual scans and blood tests. This time the news is not so exciting. He had an increase in PSA (first 4 and now 9), and a small metastasis in the lymph nodes in the chest area was detected. Doctors will meet to decide the next step to take. Also, he had an appointment
JNunes
in
Advanced Prostate Cancer
3 years ago
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