Experiences with

Genetic counseling

He either lacked knowledge or did not want the responsibility of any genetic counseling so I was on my own. I found a free genetic testing trial called PROMISE that would pay for it and do any genetic counseling if warranted. So I enrolled and did the testing.

Hey, I'm pretty new to all this. I had a large PE 6 years ago thought to be attributed to birth control, was told all genetic testing after was fine. Hematology didn't want to do precautionary asprin daily after released from care. Fast forward 3 years ago, I had another (very small) blood clot, this

Hi! My 10 yo has ADHD and we have struggled to find a medication that works for her. I am interested in how the gene testing works from people who have done it. A few specific questions: 1) how did you actually do it? (e.g., where did you get the test, where did you send it, etc); 2) how much did

Actually there were many more doctors but I forgot the names (the webinar has been recorder by Prostate Cancer Foundation, so I suppose there will be a link to watch it). 1 - there are many options and more will come soon 2 - they always push for curative even if stage 4 with mets 3 - darolutamide

Hi. I was recently diagnosed with hemochromatosis based on slightly off bloodwork and genetic test. Neither of my parents had hemochromatosis but both were carriers and I inherited the gene from both. My ferritin is currently 111 (I previously always had very low ferritin and actually had one transfusion

I'm having trouble with my urology team that are doing my TRUS/Fusion biopsy next week. The doc is unwilling to send my sample out right away for Decipher. From what I understand, in my 'high risk' category, just based on MRI, genetic testing may be hugely helpful going forward. For the past week I've

Had posted this earlier but am reposting. These is the summary from dad’s genetic testing report. The detailed numbers report is attached in the reply section below As of now he is on hormone therapy. Does the report indicate more options for him in the future Thanks 😊

I have been diagnosed with intermediate non-favorable risk prostate cancer. Currently, we are conducting Decipher testing along with PSMA PET and genetic testing. My father is a prostate cancer survivor; he had brachytherapy 12 years ago, then experienced a recurrence at 78 and underwent intensity-modulated

Got this NGS report from the genetic testing lab for dad , 83. He has metastates to various bones but no organs. Currently on Orgovyx and Xtandi 120 mg. Seems to be tolerating them well apart from hot flashes. Will be doing bloodwork this week and meeting the MO Would appreciate any insights

Just had second round of IVF with a failed fresh blastocyst transfer and a first round with no blastocysts (I am 43 with an AMH of 0.8). When I had my initial consultation, I’m pretty sure that the consultant told us that our chances if trying naturally were at around 5%. He said (I think) that

Hi, I’m Rexi and I’m from Germany. Over 30 years ago, I was diagnosed with Type 1 diabetes. I spent a year without insulin and have been taking insulin since then, but only very, very few units. Since my C-peptide level is still quite high and I have no antibodies, a genetic test for MODY was done. It

Like many people on this forum I'm having problems accessing the help I need to feel well and manage my condition. I was diagnosed with Hashimotos 20 years ago but despite taking levo I have not seen any improvement in my symptoms. I have had SAD depression since adolescence so I put my symptoms down

I have always struggled with social anxiety, which has affected my confidence and self-esteem. It has resulted in me avoiding social situations involving large groups. However I have recently started doing a degree, it has involved alot of group work and presentations, which make me feel totally uncomfortable

I am about 12 years out of retirement (RPh for 37 years). I had post-retirement depression due to a loss of identity and boredom. About 5 years into that, I joined a local art studio with other artists around my age. It was a blast! I had community. Then the personality of the group began to change when

Since developing thyroid issues my health anxiety has really ramped up. I think it probably started when I was trying to get pregnant/pregnant (an awful, very stressful time) but it's now morphed into a monster really. The constant checking of bodily symptoms, over reaction to some symptoms is leaving

dealing with PTSD is really hard on me specially dealing with trauma . I need some support and reassurance I’m willing to message via text to help me get through these dark days I was doing counseling then the councler up and left me and haven’t talked since to her so been struggling

My son has recently been diagnosed with DCM and I came across some info suggesting first degree relatives should be referred to a specialist clinic to be checked out. The BHF apparently will provide a letter to your GP to support this referral. How does this work. Will there be a fee for the letter?

hi everyone, love this forum it’s so helpful. I wanted to ask if you think my T3 is low? My current results after my top up of 5 weeks on Levo at 75mg is now : Tsh 0.40 0.27-4.20 Free Throxine 18.5 12.0-22.0 Total T3 1.9 1.3 -

Hi to all suffering w mental illness,I was just recently at the hospital er for my severe anxiety and bipolar I been having alot mania,I got treated like frap,ignored at best..I feel like there's no hope,I been having out control anxiety n my mania acting up,I go sometimes 3 4 days w out sleep,and no

Smoking and Diabetes If you smoke, you’re more likely to get type 2 diabetes (T2D). In fact, your chances go up by 30%-40% when compared to someone who doesn’t smoke. If you already have diabetes, smoking can make it harder to control your blood sugar. It can also worsen other health problems. One