Experiences with

Genetic counseling

He either lacked knowledge or did not want the responsibility of any genetic counseling so I was on my own. I found a free genetic testing trial called PROMISE that would pay for it and do any genetic counseling if warranted. So I enrolled and did the testing.

hi everyone June some questions about Primary ciliary dyskinesia. I have severe asthma and. My doctor decided to test me for this. I did a genetic test says I have the mutations for this and now she want to send me for this nose noxide test. I was wondering if if anyone else got tested for this before

Hi, In this study they talk about Intraductal PCa patterns : Pattern 1 and Pattern 2 (with Pattern 2 not responding well to the treatment, but Pattern 1 only a little worse than "normal" PCa. https://onlinelibrary.wiley.com/doi/full/10.1002/pros.24809 [i]After PSM, our first cohort included 108

Hi! I have been on here for a while and really appreciate all of your posts and comments. I have read so many threads and learned so much from all of you! And to be honest, this journey is lonely and I don't have any IRL friends who get it. There is a lot of comfort in not being alone. My son is 8

Hello all, I'm new here. Feeling pretty scared facing this CKD diagnosis. Watching myself slowly get worse is really hard. I was diagnosed with stage 2 CKD in 2020, which was only caught by taking a life insurance exam and it came back showing large amounts of protein in my urine. I had just had my annual

Hey, I'm pretty new to all this. I had a large PE 6 years ago thought to be attributed to birth control, was told all genetic testing after was fine. Hematology didn't want to do precautionary asprin daily after released from care. Fast forward 3 years ago, I had another (very small) blood clot, this

Hi! My 10 yo has ADHD and we have struggled to find a medication that works for her. I am interested in how the gene testing works from people who have done it. A few specific questions: 1) how did you actually do it? (e.g., where did you get the test, where did you send it, etc); 2) how much did

Actually there were many more doctors but I forgot the names (the webinar has been recorder by Prostate Cancer Foundation, so I suppose there will be a link to watch it). 1 - there are many options and more will come soon 2 - they always push for curative even if stage 4 with mets 3 - darolutamide

Hi. I was recently diagnosed with hemochromatosis based on slightly off bloodwork and genetic test. Neither of my parents had hemochromatosis but both were carriers and I inherited the gene from both. My ferritin is currently 111 (I previously always had very low ferritin and actually had one transfusion

For 21 years I have been depressed and medicated. It started when my aunt passed away. I swear it was grief. So I went to Hospice for grief counseling. I had my last child a few months before my aunt passed. Hospice said I was going through postpartum depression and that I should go see my doctor.

Hi! You may call me Wan. I am 19. I had unknowingly suffered from generalized anxiety all my life till a specialist diagnosed me with it, and i realized that everything started to make sense. I was always called sensitive; more so than my siblings. Every little thing used to worry me in the mightiest

Ive had some experience with NHS counselling which I went to a good few years back. I've been trying to grapple with a serious NHS complaint involving a death, which was getting nowhere due to NHS defensive attitude with regard to their negligent mistakes, coupled with the collusive and opaque manner

Dear all, I don't remember seeing any posts about the relation between your mental health and RLS, I am just interested, if anyone consulted a therapist for RLS? I think I read somewhere that cognitive-behavioral therapy that is some sort of counseling might be helpful. And in general, would you say

A very important baseline study for those considering treatment options. This paper would have been very useful for a very good friend of mine who treated with Cyberknife RT several years back. He had severe radiation cystitis following the RT ([i]which failed to improve with hyberbaric treatments)[/

Like many people on this forum I'm having problems accessing the help I need to feel well and manage my condition. I was diagnosed with Hashimotos 20 years ago but despite taking levo I have not seen any improvement in my symptoms. I have had SAD depression since adolescence so I put my symptoms down

I have always struggled with social anxiety, which has affected my confidence and self-esteem. It has resulted in me avoiding social situations involving large groups. However I have recently started doing a degree, it has involved alot of group work and presentations, which make me feel totally uncomfortable

I am about 12 years out of retirement (RPh for 37 years). I had post-retirement depression due to a loss of identity and boredom. About 5 years into that, I joined a local art studio with other artists around my age. It was a blast! I had community. Then the personality of the group began to change when

Since developing thyroid issues my health anxiety has really ramped up. I think it probably started when I was trying to get pregnant/pregnant (an awful, very stressful time) but it's now morphed into a monster really. The constant checking of bodily symptoms, over reaction to some symptoms is leaving

I'm having trouble with my urology team that are doing my TRUS/Fusion biopsy next week. The doc is unwilling to send my sample out right away for Decipher. From what I understand, in my 'high risk' category, just based on MRI, genetic testing may be hugely helpful going forward. For the past week I've

dealing with PTSD is really hard on me specially dealing with trauma . I need some support and reassurance I’m willing to message via text to help me get through these dark days I was doing counseling then the councler up and left me and haven’t talked since to her so been struggling