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Free Genetic Testing Promise Trial
He either lacked knowledge or did not want the responsibility of any
genetic
counseling
so I was on my own. I found a free
genetic
testing trial called PROMISE that would pay for it and do any
genetic
counseling
if warranted. So I enrolled and did the testing.
He either lacked knowledge or did not want the responsibility of any
genetic
counseling
so I was on my own. I found a free
genetic
testing trial called PROMISE that would pay for it and do any
genetic
counseling
if warranted. So I enrolled and did the testing.
Mgtd
in
Advanced Prostate Cancer
18 days ago
Genetic counseling & testing
Meanwhile, my oncologist at MN Oncology has recommended that I do
genetic
counseling
and further
genetic
and tumor testing. I am 43% Ashkenazi Jew (source: 23 & Me), which makes sense since my Mom's parents were both Jewish, from Hungary and Czech Republic.
Meanwhile, my oncologist at MN Oncology has recommended that I do
genetic
counseling
and further
genetic
and tumor testing. I am 43% Ashkenazi Jew (source: 23 & Me), which makes sense since my Mom's parents were both Jewish, from Hungary and Czech Republic.
Skifanatic
in
Advanced Prostate Cancer
1 year ago
Webinar: Research into inherited retinal disease and the benefits of genetic counselling
Research optometrist Shelley Black and genetic counsellor Claire Kirk join us from the Northern Ireland Clinical Research Network (NICRN) this month for our second My Macular and Me webinar. Shelley will be sharing information on the latest macular and inherited retinal disease research, while Claire
Research optometrist Shelley Black and genetic counsellor Claire Kirk join us from the Northern Ireland Clinical Research Network (NICRN) this month for our second My Macular and Me webinar. Shelley will be sharing information on the latest macular and inherited retinal disease research, while Claire
Carol_MacularSociety
Partner
in
Macular Society
9 months ago
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One last push ..please...help for my Dad. NHS treatments no longer viable - Pca stage 4.
Guys...do not know how to connect this post to my previous ones..sorry. I'm also all over the place, forgive my ramblings! I have finally gotten hold of Dad's records. Nothing more NHS can do, so am looking at Turkey for Lu 177. I know this is an option, but want to literally exhaust anything in the
Guys...do not know how to connect this post to my previous ones..sorry. I'm also all over the place, forgive my ramblings! I have finally gotten hold of Dad's records. Nothing more NHS can do, so am looking at Turkey for Lu 177. I know this is an option, but want to literally exhaust anything in the
kikinini
in
Advanced Prostate Cancer
3 days ago
Lots of updates to Genetics of Prostate Cancer (PDQ®)–Health Professional Version
Genetics of Prostate Cancer •We updated information on •Executive Summary •Risk Factors for Prostate Cancer •Risk Assessment for Prostate Cancer •Indications for Prostate Cancer Germline Genetic Testing •Genetic Testing Approach for Prostate Cancer •Prostate Cancer Genetics: Screening, Surveillance
Genetics of Prostate Cancer •We updated information on •Executive Summary •Risk Factors for Prostate Cancer •Risk Assessment for Prostate Cancer •Indications for Prostate Cancer Germline Genetic Testing •Genetic Testing Approach for Prostate Cancer •Prostate Cancer Genetics: Screening, Surveillance
KocoPr
in
Advanced Prostate Cancer
13 days ago
Genetic Testing
My husband has been genetic tested and the results take about 9 months to come back I am worried sick as we have a daughter. I haven't discussed it really as I feel I need to wait for results. Has anyone else experienced this. He has CBD and FTD as well as PSP. I worry because the little that I
My husband has been genetic tested and the results take about 9 months to come back I am worried sick as we have a daughter. I haven't discussed it really as I feel I need to wait for results. Has anyone else experienced this. He has CBD and FTD as well as PSP. I worry because the little that I
Hidden
in
PSP Association
17 days ago
IVF stims cycle - do I have to wait for Stork?
Hi everyone, I appreciate this is a pretty niche question, but I'm throwing it out there on the off-chance someone here has been through similar. As a bit of backstory, I had a failed stims cycle in Feb and the plan with my clinic has always been to do my next cycle in June. I've had various delays
Hi everyone, I appreciate this is a pretty niche question, but I'm throwing it out there on the off-chance someone here has been through similar. As a bit of backstory, I had a failed stims cycle in Feb and the plan with my clinic has always been to do my next cycle in June. I've had various delays
neonpg
in
Fertility Network UK
22 days ago
End of the Journey
Today my lovely daughter had her 5th & final embryo transfer. It was different from the previous 4 in that she has changed clinics, opted for a frozen 5 day transfer and genetic testing. One last throw of the dice....her choice. She is doing this alone and has been so strong throughout. She has decided
Today my lovely daughter had her 5th & final embryo transfer. It was different from the previous 4 in that she has changed clinics, opted for a frozen 5 day transfer and genetic testing. One last throw of the dice....her choice. She is doing this alone and has been so strong throughout. She has decided
Beingamum23
in
Fertility Network UK
23 days ago
Genetic Testing
Greetings, I'm concerned about my condition (chronic/acute pancreatitis) being a health risk to my children/grandkids. I am wondering if anyone has a good opinion of the many testing companies out there. It seems they all have good/bad points. Any comments and/or suggestions would be appreciated.
Greetings, I'm concerned about my condition (chronic/acute pancreatitis) being a health risk to my children/grandkids. I am wondering if anyone has a good opinion of the many testing companies out there. It seems they all have good/bad points. Any comments and/or suggestions would be appreciated.
IH8EPI
in
Chronic Pancreatitis Support
29 days ago
Update and question about Olaparib
Its my 60th birthday today! Glad to still be here! CT scan was stable but CA15 continues to rise on Trodelvy. CA15 is an important indicator for me. This info plus a comprehensive new Gardian DNA blood genetic test showed us some new options based on my mutations/bio markers (I am an architect so firgive
Its my 60th birthday today! Glad to still be here! CT scan was stable but CA15 continues to rise on Trodelvy. CA15 is an important indicator for me. This info plus a comprehensive new Gardian DNA blood genetic test showed us some new options based on my mutations/bio markers (I am an architect so firgive
Iwasborntodothis
in
SHARE Metastatic Breast Cancer
30 days ago
Seeking any info: Our son was recently diagnosed with kidney disease
Hi, I'm a parent who is looking for possible answers or similar situations out there. Our 16-year-old son was diagnosed with kidney disease in March 2024. We've been trying to find medication and treatment to help with it. This all started in January 2024, when our son was complaining about back pain
Hi, I'm a parent who is looking for possible answers or similar situations out there. Our 16-year-old son was diagnosed with kidney disease in March 2024. We've been trying to find medication and treatment to help with it. This all started in January 2024, when our son was complaining about back pain
BlueGuitar123
in
Parents of Children with Kidney Disease
1 month ago
Advancing Prostate Cancer Care: Treatment Approaches to Precision Medicine, Biomarker Innovations, and Equitable Access -ASCO - May 23, 2024
While not a lot of specific focus on PCa (Like at the GU ASCO Meeting earlier this year), this full-access section from their Educational Book released at this week's ASCO Annual Meeting in Chicago may be of interest to those here who want to understand the oncology community's current view on precision
While not a lot of specific focus on PCa (Like at the GU ASCO Meeting earlier this year), this full-access section from their Educational Book released at this week's ASCO Annual Meeting in Chicago may be of interest to those here who want to understand the oncology community's current view on precision
cujoe
in
Fight Prostate Cancer
1 month ago
lost my brother to SADS
Hello, I recently lost my brother at Christmas, he was only 30 years old and was fit, active and health. Was studying at university to become a physiotherapist and had his whole life ahead of him. We recently got his cause of death which was due to SADS. I’m due to go for genetic testing and have
Hello, I recently lost my brother at Christmas, he was only 30 years old and was fit, active and health. Was studying at university to become a physiotherapist and had his whole life ahead of him. We recently got his cause of death which was due to SADS. I’m due to go for genetic testing and have
MeganR13
in
British Heart Foundation
1 month ago
PSA rockets up to 344
Hello - I received quite shocking news during my visit to the Mayo Clinic last week. My PSA has jumped to 344 from a low of 3.6 last November, when I completed chemo with cabazitaxel. PSA did start to rise quite soon, into double digits, but this is by far my highest PSA ever. Dr. Kwon recommended
Hello - I received quite shocking news during my visit to the Mayo Clinic last week. My PSA has jumped to 344 from a low of 3.6 last November, when I completed chemo with cabazitaxel. PSA did start to rise quite soon, into double digits, but this is by far my highest PSA ever. Dr. Kwon recommended
Arcticfox44
in
Advanced Prostate Cancer
1 month ago
SC5NA Gene mutation
hey, I’ve just been diagnosed with an SC5NA gene mutation after having genetic testing done which has identified the cause of my Brugada, I’ve now been advised I’m at risk of cardiomyopathy. Has anyone else experienced this diagnosis and can offer any advice?
hey, I’ve just been diagnosed with an SC5NA gene mutation after having genetic testing done which has identified the cause of my Brugada, I’ve now been advised I’m at risk of cardiomyopathy. Has anyone else experienced this diagnosis and can offer any advice?
Lilbandit88
in
British Heart Foundation
1 month ago
New Post, community only please
HiI found out I had APS during my 8th pregnancy in 2006. I had PEs. Fast forward to 2024. One of my adult daughters had PEs in pregnancy, horrific treatment from hospital, which was minutes from losing both my daughter and her baby (at 39 weeks) I'm now waiting to have a genetic test for APs as I
HiI found out I had APS during my 8th pregnancy in 2006. I had PEs. Fast forward to 2024. One of my adult daughters had PEs in pregnancy, horrific treatment from hospital, which was minutes from losing both my daughter and her baby (at 39 weeks) I'm now waiting to have a genetic test for APs as I
Dawnm10
in
Hughes Syndrome APS Forum
2 months ago
First PSA post surgery
Hello, Just had my first 3 month PSA test post surgery. <0.01. Good news but need to monitor every 3 years due to intraductal component. I just want to thank everyone that has been so supportive and has given me positive feedback on this forum. I am also getting genetic testing done this week as well
Hello, Just had my first 3 month PSA test post surgery. <0.01. Good news but need to monitor every 3 years due to intraductal component. I just want to thank everyone that has been so supportive and has given me positive feedback on this forum. I am also getting genetic testing done this week as well
Granolaberry
in
Prostate Cancer Network
2 months ago
Arcticfox44
Hello - I'm about to return to the Mayo for the first review since my previous visit last November. As I've reported here, my last major treatment was chemo with cabazitaxel at the Oncology Center in Nicosia, Cyprus, where I live. This was successful: PSA fell from 83 at the start of chemo to about 3
Hello - I'm about to return to the Mayo for the first review since my previous visit last November. As I've reported here, my last major treatment was chemo with cabazitaxel at the Oncology Center in Nicosia, Cyprus, where I live. This was successful: PSA fell from 83 at the start of chemo to about 3
Arcticfox44
in
Advanced Prostate Cancer
2 months ago
Prostate biopsy from rib ?
My dad , 83 , diagnosed with pc with mets to bones as per mri and psma. Not done biopsy yet as nervous to put dad through it and one oncologist said it’s not needed as the treatment would be ADT but then 3 other oncologists say it’s good to get it done as we would know what exactly we dealing with
My dad , 83 , diagnosed with pc with mets to bones as per mri and psma. Not done biopsy yet as nervous to put dad through it and one oncologist said it’s not needed as the treatment would be ADT but then 3 other oncologists say it’s good to get it done as we would know what exactly we dealing with
Tinkudi
in
Advanced Prostate Cancer
2 months ago
List of good Genetic Tests in Homologous Recombination Deficiency in PCa and the Mechanisms of Resistance to PARP Inhibitors
I was searching RAD50 and PARPinhibitors and since i am going for a high risk genetic consult i came across this good explanation of different genetic testing. Title of article:
Homologous Recombination Deficiency in Ovarian, Breast, Colorectal, Pancreatic, Non-Small Cell Lung and Prostate Cancers
I was searching RAD50 and PARPinhibitors and since i am going for a high risk genetic consult i came across this good explanation of different genetic testing. Title of article:
Homologous Recombination Deficiency in Ovarian, Breast, Colorectal, Pancreatic, Non-Small Cell Lung and Prostate Cancers
KocoPr
in
Advanced Prostate Cancer
2 months ago
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