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Hello everyone, not sure if this helps... I went through genetic testing and they found my KMT2B gene activated. This is odd due to my age and how aggresive it is. My Dr has never seen this happen before. In actuality, there is nothing in written human history (as far as I know) that shows late stage
Hello everyone, not sure if this helps... I went through genetic testing and they found my KMT2B gene activated. This is odd due to my age and how aggresive it is. My Dr has never seen this happen before. In actuality, there is nothing in written human history (as far as I know) that shows late stage
Hidden
in
Functional Neurological Disorder - FND Hope
1 year ago
Looks like lutetium is next for me (if I can get it)
Finished 6 cycles of chemo with Carboplatin added. Scans show mixed results. mipsma 2. Dr. Kwon is suggesting lutetium to push the cancer off the edge of the cliff. He’s suggesting to have it sooner rather than later. I have low tumor load. And Mets to Lymph nodes in pelvic region and subclavical. My
Finished 6 cycles of chemo with Carboplatin added. Scans show mixed results. mipsma 2. Dr. Kwon is suggesting lutetium to push the cancer off the edge of the cliff. He’s suggesting to have it sooner rather than later. I have low tumor load. And Mets to Lymph nodes in pelvic region and subclavical. My
mysticmini
in
Advanced Prostate Cancer
1 year ago
In despair
I’m 38, almost 39 and about to start my 5th ivf cycle. My husband and I had a huge row tonight about how we’ve waited too long to start our 6th round. July was our last egg collection (with transfers in between) and the next will be end of feb. He’s worried that my eggs will have deteriorated drastically
I’m 38, almost 39 and about to start my 5th ivf cycle. My husband and I had a huge row tonight about how we’ve waited too long to start our 6th round. July was our last egg collection (with transfers in between) and the next will be end of feb. He’s worried that my eggs will have deteriorated drastically
darkbuthappyplace
in
Fertility Network UK
1 year ago
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Macmillan and BUPA
Just a head's up that you can ring Macmillan and get free counselling from BUPA. Just in case you need someone to talk to. xx
Just a head's up that you can ring Macmillan and get free counselling from BUPA. Just in case you need someone to talk to. xx
candyapplegrey
in
My Ovacome
1 year ago
test results help
I would love some advice with what to ask my family doctor for medication wise as I am still waiting for my thyroid specialist referral. for context I will provide markers going back 6 months along with the ranges. normal ranges: t3 3.5-6.5 t4 9-23 TSH 0.2-4 June 2022 150mcg synthroid 20mcg liothyronine
I would love some advice with what to ask my family doctor for medication wise as I am still waiting for my thyroid specialist referral. for context I will provide markers going back 6 months along with the ranges. normal ranges: t3 3.5-6.5 t4 9-23 TSH 0.2-4 June 2022 150mcg synthroid 20mcg liothyronine
Abirose97
in
Thyroid UK
1 year ago
Cardiff University School of Medicine are conducting a Study
Cardiff University School of Medicine are conducting a Study: A qualitative study exploring the impact that increasing options due to new genetic/genomic technologies may have on patient perceptions of genetic responsibilities Would you like you to contribute to valuable research? Do you want to talk
Cardiff University School of Medicine are conducting a Study: A qualitative study exploring the impact that increasing options due to new genetic/genomic technologies may have on patient perceptions of genetic responsibilities Would you like you to contribute to valuable research? Do you want to talk
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Arrhythmia Alliance
1 year ago
6yo ADHD-Anger Outbursts
I'm looking for advice on how to handle the BIG emotions. My 6yo does well most of the time, but he tends to have severe anger outbursts at home, usually around hearing the word "no" I'm looking into counseling, but in the meantime, I'm lost on how to handle this? I know he loves to get a rise out
I'm looking for advice on how to handle the BIG emotions. My 6yo does well most of the time, but he tends to have severe anger outbursts at home, usually around hearing the word "no" I'm looking into counseling, but in the meantime, I'm lost on how to handle this? I know he loves to get a rise out
adhdmom08
in
CHADD's ADHD Parents Together
1 year ago
Starting to consider a number 2
Hi lovely ladies in this community, i suffered PP after my first born in January 2021, with admission to an MBU 10 days postpartum and a second time 2.5 months later. I have bounced back incredibly well and feel like my old self again, entirely weaned of meds and no longer requiring counseling either
Hi lovely ladies in this community, i suffered PP after my first born in January 2021, with admission to an MBU 10 days postpartum and a second time 2.5 months later. I have bounced back incredibly well and feel like my old self again, entirely weaned of meds and no longer requiring counseling either
Wiwa21
in
Action on Postpartum Psychosis
1 year ago
Creatitine blood test...
Hello everyone!So my husband got bloodwork from his family doc yesterday for a Metabolic Panel and a Lipid Panel. For the past 3 years, he's been dealing with unexplained (Also clinically low @ 1.3 to 1.4 g in 24 hours) proteinuria and a gradually lowering GFR. (Biopsy was inconclusive. Now they are
Hello everyone!So my husband got bloodwork from his family doc yesterday for a Metabolic Panel and a Lipid Panel. For the past 3 years, he's been dealing with unexplained (Also clinically low @ 1.3 to 1.4 g in 24 hours) proteinuria and a gradually lowering GFR. (Biopsy was inconclusive. Now they are
Bananas2007
in
Early CKD Support
1 year ago
anxiety and help also family understanding
hi I am sorry I have not added this on but I just wanted to write about how I am feeling. I know that fibromyalgia is not fatal and I hope it doesn't get worse, but I am still struggling with anxiety as I have mentioned before. I want to get my life back on track and I feel my anxiety is taking over
hi I am sorry I have not added this on but I just wanted to write about how I am feeling. I know that fibromyalgia is not fatal and I hope it doesn't get worse, but I am still struggling with anxiety as I have mentioned before. I want to get my life back on track and I feel my anxiety is taking over
fibrogirl41
in
Fibromyalgia Action UK
1 year ago
Kidney Disease mystery solved! ADTKD UMOD genetic disease...
I did a genetic test to discover why my kidneys failed at the age of 49. It turns out I have Autosomal dominant tubulointerstitial kidney disease (ADTKD). UMOD version. It, for now, is considered a rare disease, but many more people may have this genetic disease and not know it. If you don't know the
I did a genetic test to discover why my kidneys failed at the age of 49. It turns out I have Autosomal dominant tubulointerstitial kidney disease (ADTKD). UMOD version. It, for now, is considered a rare disease, but many more people may have this genetic disease and not know it. If you don't know the
Quallie
in
Rare Kidney Disease ADTKD
1 year ago
Need a break - how do you stay well and positive?
I'm just going through a heavy withdrawal bleed after my first go at icsi, which ended up being a freeze all cycle (due to overstimulation). I'm not sure whether it's the hormones or the bad menstrual cramps or just generally fatigue, but feeling rather negative about the future.We were thrilled last
I'm just going through a heavy withdrawal bleed after my first go at icsi, which ended up being a freeze all cycle (due to overstimulation). I'm not sure whether it's the hormones or the bad menstrual cramps or just generally fatigue, but feeling rather negative about the future.We were thrilled last
Minniemouse88
in
Fertility Network UK
1 year ago
Anger management/Rages
I'm really struggling with my anger management at the moment. I've become addicted to online backgammon (but I don't play for money) and whenever I lose a game I am getting angry and sometimes that spills over and I smash things. I've just smashed the second laptop in 3 months and I have cuts all over
I'm really struggling with my anger management at the moment. I've become addicted to online backgammon (but I don't play for money) and whenever I lose a game I am getting angry and sometimes that spills over and I smash things. I've just smashed the second laptop in 3 months and I have cuts all over
StompyBoy1
in
Anxiety and Depression Support
1 year ago
RESTLESS LEGS - INSOMNIA - HIGH ANXIETY
RLS - I know that alcohol is a no, no for RLS or if taking meds, but I recently read an article that drinking an ounce of brandy at night helps with insomnia. After not sleeping at all for four nights (high anxiety) Out of desperation, I mixed an ounce of brandy with eggnog (grandkids left in fridge
RLS - I know that alcohol is a no, no for RLS or if taking meds, but I recently read an article that drinking an ounce of brandy at night helps with insomnia. After not sleeping at all for four nights (high anxiety) Out of desperation, I mixed an ounce of brandy with eggnog (grandkids left in fridge
Josana13
in
Restless Legs Syndrome
1 year ago
Started Triplet Therapy this week, new doc, new (better) treatment plan!
Started triplet therapy this week with first dose of NUBEQA on Wednesday and Docetaxel yesterday afternoon at City of Hope in Duarte, CA. "Fired" my local general oncologist whose plan was Xtandi, radiation, and Xgeva for me. She was against chemo in my case since the mets weren’t in organs. Contrast
Started triplet therapy this week with first dose of NUBEQA on Wednesday and Docetaxel yesterday afternoon at City of Hope in Duarte, CA. "Fired" my local general oncologist whose plan was Xtandi, radiation, and Xgeva for me. She was against chemo in my case since the mets weren’t in organs. Contrast
Gl448
in
Advanced Prostate Cancer
1 year ago
My Mother (Support Person/Trauma Bonded to) told me her Counselor said our relationship is unhealthy
I've been saying this for a while myself; we've trauma bonded and our relationship is unhealthy. The problem lies in the fact that I don't have many people in my life I am close to: a best friend and my mother. I rely on my mother for most of my social interaction. Her counselor just told her that
I've been saying this for a while myself; we've trauma bonded and our relationship is unhealthy. The problem lies in the fact that I don't have many people in my life I am close to: a best friend and my mother. I rely on my mother for most of my social interaction. Her counselor just told her that
LifeisLikeGarden
in
Anxiety and Depression Support
1 year ago
PSA rising…..Duke Champ?
In November I posted my concerns that my psa increased from.01 to.27 after 15 months of Zytiga. Test today showed it at .67. Unfortunately, ct scans also showed spread in lymph nodes. I am certainly mCRPC now which answers my question from my last post. Also, I had a bladder tumor scraped via scope
In November I posted my concerns that my psa increased from.01 to.27 after 15 months of Zytiga. Test today showed it at .67. Unfortunately, ct scans also showed spread in lymph nodes. I am certainly mCRPC now which answers my question from my last post. Also, I had a bladder tumor scraped via scope
SimplyT
in
Advanced Prostate Cancer
1 year ago
Anxiety and counseling
hi I am sorry I have not added this on, I have forgotten how but I was wondering I suffer from anxiety and stress don't know why now, I sometimes feel like I have knots in my stomach and cough a bit and sometimes feel like wretching and still have anxiety attacks and wondered if I could get counseling
hi I am sorry I have not added this on, I have forgotten how but I was wondering I suffer from anxiety and stress don't know why now, I sometimes feel like I have knots in my stomach and cough a bit and sometimes feel like wretching and still have anxiety attacks and wondered if I could get counseling
fibrogirl41
in
Fibromyalgia Action UK
1 year ago
Life after ICU
My dad was rushed into hospital before Xmas with pneumonia and ended up on a ventilator in ICU. He was fully intubated and sedated for two weeks and for the last week and a bit has been on a trachy. I know it's a long road ahead and although he is weaning off the ventilator slowly, he is in a better
My dad was rushed into hospital before Xmas with pneumonia and ended up on a ventilator in ICU. He was fully intubated and sedated for two weeks and for the last week and a bit has been on a trachy. I know it's a long road ahead and although he is weaning off the ventilator slowly, he is in a better
Pookyal
in
ICUsteps
1 year ago
vADS presentation vs hEDS, especially on darker skin tones
I am under investigation with NHS at the moment, at my request, given I think a lot of what I have experienced over decades corresponds to EDS. The NHS physio has confirmed generalised joint hypermobility at our initial meeting, given my medical history we’re having a more extensive examination next
I am under investigation with NHS at the moment, at my request, given I think a lot of what I have experienced over decades corresponds to EDS. The NHS physio has confirmed generalised joint hypermobility at our initial meeting, given my medical history we’re having a more extensive examination next
Buffstera
in
Ehlers-Danlos Support UK
1 year ago
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