The agenda for our weekend is available to view: alextlc.org/digital-communi...
On Saturday, the Science Day, we have presentations about the new NHS Inherited White Matter Disorders Patient Registry and research updates on the following Leukodystrophies:
- AMN & ALD
- Alexander's Disease
- GM1 gangliosidosis
- Krabbe
- MLD
On Sunday, the Condition Management Day, we have presentations about Transitioning to Adult Services, Genetic Counselling, Long Term Impacts of Bone Marrow Transplant and much more...
We also have interactive sessions which include a Mindfulness session, Physical Wellbeing Activity and ways to get involved with Alex TLC!
Genetic testing for under 16s
Difference between AMN and ALD