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myelofibrosis
Ive been on watch and wait now for a year or so just taking aspirin ,but I read somewhere that some treatment can stop the disease progressing ,anyone know if this is correct,thanks.
Ive been on watch and wait now for a year or so just taking aspirin ,but I read somewhere that some treatment can stop the disease progressing ,anyone know if this is correct,thanks.
glyndale
in
MPN Voice
9 months ago
Yendo’s history with lung problems.
Diagnosed with asthma in 1972 and started on Ventolin. In 1987 I was rushed to hospital after suffering a severe asthma attack caused after taking two aspirin pills. Previously, I had been taking aspirin for years with no adverse reactions, but I was told that allergies can begin at any time of life.
Diagnosed with asthma in 1972 and started on Ventolin. In 1987 I was rushed to hospital after suffering a severe asthma attack caused after taking two aspirin pills. Previously, I had been taking aspirin for years with no adverse reactions, but I was told that allergies can begin at any time of life.
Yendo
in
Lung Conditions Community Forum
9 months ago
anticoagulants-or not..
I have read a number of articles which I think say that the protocol for when to add to the CHaDs s score for prescribing anticoagulants with AF was based on patients who were very obviously symptomatic whereas many newer patients have fewer symptoms and discover AF through smart watches / other devices
I have read a number of articles which I think say that the protocol for when to add to the CHaDs s score for prescribing anticoagulants with AF was based on patients who were very obviously symptomatic whereas many newer patients have fewer symptoms and discover AF through smart watches / other devices
OldJane
in
Atrial Fibrillation Support
9 months ago
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Weight and Exercise
I became diabetic so lost weight. After about 3 months I had lost 2 1/2 stone by giving up dairy, most carbohydrates and all big meals. I was then able to stop Metformin. I then found I had large kidney stones. Once they are taken out I may know more about what may have caused them. It could have
I became diabetic so lost weight. After about 3 months I had lost 2 1/2 stone by giving up dairy, most carbohydrates and all big meals. I was then able to stop Metformin. I then found I had large kidney stones. Once they are taken out I may know more about what may have caused them. It could have
DoctorRascal
2023 December
in
Weight Loss Support
9 months ago
Low dose aspirin
Had anyone who is on low dose aspirin for life, found their iron levels have dropped. Went for pre assessment for total knee replacement a few weeks before Christmas and blood test showed my iron levels had dropped, so now going for iron infusion at local hospital this afternoon. Looking back on past
Had anyone who is on low dose aspirin for life, found their iron levels have dropped. Went for pre assessment for total knee replacement a few weeks before Christmas and blood test showed my iron levels had dropped, so now going for iron infusion at local hospital this afternoon. Looking back on past
annpavitt250448
in
British Heart Foundation
9 months ago
Medications
I have tried various medications to control my RLS. Does anyone know which medication, i.e. antidepressants, cough mixture, aspirin etc can exacerbate RLS symptoms? My life is a misery, not sleeping and then sleeping too long at the wrong times. HELP
I have tried various medications to control my RLS. Does anyone know which medication, i.e. antidepressants, cough mixture, aspirin etc can exacerbate RLS symptoms? My life is a misery, not sleeping and then sleeping too long at the wrong times. HELP
Keith1231
in
Restless Legs Syndrome
9 months ago
Idglm
Hi Had stent 10 years ago no issues at all. Had 2nd one October next to 1st one plus balloon to open first one again. All ok then couple of weeks ago started with pulse pain in chest pains in shoulders numb left ear jaw mostly in evening when resting. Had usual checks blood ecg all clear but still happening
Hi Had stent 10 years ago no issues at all. Had 2nd one October next to 1st one plus balloon to open first one again. All ok then couple of weeks ago started with pulse pain in chest pains in shoulders numb left ear jaw mostly in evening when resting. Had usual checks blood ecg all clear but still happening
Idgl
in
British Heart Foundation
9 months ago
Armpit swelling
Anyone else have armpit swelling that never completely goes away? I have had this on one side only for around 4 years now. Seen by breast clinic twice, no answers! I have now worn out two dresses, the material under the armpit has gone thin and frayed as my arm rubs the material when swollen. I'm
Anyone else have armpit swelling that never completely goes away? I have had this on one side only for around 4 years now. Seen by breast clinic twice, no answers! I have now worn out two dresses, the material under the armpit has gone thin and frayed as my arm rubs the material when swollen. I'm
bathouse
in
LUPUS UK
9 months ago
Just diagnosed with 4.0 cm aneurysm of ascending aorta and severe calcification
Hi Friends I cannot express how shocked and dismayed I am finding out that I have severe calcification of my aorta and a 4.0 cm aneurysm. I have read that the aneurysm can be monitored yearly with imaging but there is nothing that can be done for the calcification. In the past 3 years, I have had
Hi Friends I cannot express how shocked and dismayed I am finding out that I have severe calcification of my aorta and a 4.0 cm aneurysm. I have read that the aneurysm can be monitored yearly with imaging but there is nothing that can be done for the calcification. In the past 3 years, I have had
Wewo01
in
MPN Voice
9 months ago
Aspirin/Inhixa timings
Hi recently joined this group & wanted to see if any one had any advice with medication timings . I am currently 8 weeks pregnant with our rainbow baby, I’ve been on Inhixa (blood thinning injections) since I started the stims for egg collection. I had my viability scan this week and alls well so
Hi recently joined this group & wanted to see if any one had any advice with medication timings . I am currently 8 weeks pregnant with our rainbow baby, I’ve been on Inhixa (blood thinning injections) since I started the stims for egg collection. I had my viability scan this week and alls well so
butterfliez
in
Fertility Network UK - Pregnancy Support
9 months ago
Weight Loss
Hi, Quick history, had HA 14 weeks ago & had a stent fitted. Since HA, my diet has changed only slightly as it was never too bad but snacking has stopped. I still eat as much as I did before etc. But my weight is still falling off, so far since HA, I lost 1 stone 9 lbs. I lose about 1-2 lbs a week
Hi, Quick history, had HA 14 weeks ago & had a stent fitted. Since HA, my diet has changed only slightly as it was never too bad but snacking has stopped. I still eat as much as I did before etc. But my weight is still falling off, so far since HA, I lost 1 stone 9 lbs. I lose about 1-2 lbs a week
Washo66
in
British Heart Foundation
9 months ago
chemical pregnancy?
hi all. I’ve previously had an MMC from a natural pregnancy followed by 2 x failed IUI cycles. I then had my daughter through a 3rd IUI in 2022. Since then I’ve had a natural MC. I’m now under care of a new clinic and agreed to try naturally with progesterone and aspirin support for 2/3 my cycles before
hi all. I’ve previously had an MMC from a natural pregnancy followed by 2 x failed IUI cycles. I then had my daughter through a 3rd IUI in 2022. Since then I’ve had a natural MC. I’m now under care of a new clinic and agreed to try naturally with progesterone and aspirin support for 2/3 my cycles before
London_Em
in
Fertility Network UK
9 months ago
Blood test
Hi I had quad bypass Sept 2022 and had my yearly blood test all came back normal cholesterol at 2.7 only abnormality was blood red cell count low at 4.35 needs to be over 4.5 ,I have my yearly Medication review in Jan and wondered if any meds will be stopped or lowered, my cholesterol was over 5.5 before
Hi I had quad bypass Sept 2022 and had my yearly blood test all came back normal cholesterol at 2.7 only abnormality was blood red cell count low at 4.35 needs to be over 4.5 ,I have my yearly Medication review in Jan and wondered if any meds will be stopped or lowered, my cholesterol was over 5.5 before
Charl70
in
British Heart Foundation
9 months ago
Covid
Just recovering from a very nasty covid bout - my first. I'm a pretty healthy, active 76 year old with no medical issues other than PV. I don't need to take any prescription medicines other than HU, and otherwise take only aspirin and vitamins. Nevertheless, I was seriously sick for 2 weeks with all
Just recovering from a very nasty covid bout - my first. I'm a pretty healthy, active 76 year old with no medical issues other than PV. I don't need to take any prescription medicines other than HU, and otherwise take only aspirin and vitamins. Nevertheless, I was seriously sick for 2 weeks with all
saltmarsh
in
MPN Voice
9 months ago
GP cancelled my free prescriptions as doesn't classify ET as a blood cancer, and even if it was, I'm not recieving ongoing treatment!?
Well Folks, I've got a personal battle to fight with my GP.... Having recently recieved a letter from the NHS Business Services Authority informing me that my NHS Medical exemption certificate is about to expire - the one I was allocated when originally diagnosed with ET - the letter requested that
Well Folks, I've got a personal battle to fight with my GP.... Having recently recieved a letter from the NHS Business Services Authority informing me that my NHS Medical exemption certificate is about to expire - the one I was allocated when originally diagnosed with ET - the letter requested that
anewpath
in
MPN Voice
9 months ago
Pain in hip, leg down to shins, ET Jak2 prefibrotic MF
Diagnosed earlier this year with ET Jak2 and Prefibrotic myelofibrosis. Have been in pain since 1st Nov - checked for DVT -nothing - Having MRI of hip on Friday. Am on 500mg Hydrea 5 days x 1 starting 2 on Sat and I’ve been taking 2 on Sunday. 75 mg Asprin plus all other meds on top for neuropathic
Diagnosed earlier this year with ET Jak2 and Prefibrotic myelofibrosis. Have been in pain since 1st Nov - checked for DVT -nothing - Having MRI of hip on Friday. Am on 500mg Hydrea 5 days x 1 starting 2 on Sat and I’ve been taking 2 on Sunday. 75 mg Asprin plus all other meds on top for neuropathic
JOL13
in
MPN Voice
9 months ago
Fibrosis result confusion
Hi all, I have been a lurker on this wonderful forum for about 61/2 years when I was diagnosed with alcohol related disease. Only symptoms were ascites and weight loss, about 3st. 8 litres were drained from abdomen at that time and I have never had any liquid build up since then. I am completely compensated
Hi all, I have been a lurker on this wonderful forum for about 61/2 years when I was diagnosed with alcohol related disease. Only symptoms were ascites and weight loss, about 3st. 8 litres were drained from abdomen at that time and I have never had any liquid build up since then. I am completely compensated
parkeranger500
in
British Liver Trust
9 months ago
Help with reading bloods
My 24 year old daughter has not been well for some time now and we've had an appointment with an endo doctor. Her symptoms in her words are: physical fatigue not just tired (I have got to the stage where I have to lie down during the day and have gone from an active person to a very sluggish person
My 24 year old daughter has not been well for some time now and we've had an appointment with an endo doctor. Her symptoms in her words are: physical fatigue not just tired (I have got to the stage where I have to lie down during the day and have gone from an active person to a very sluggish person
WendyW1964
in
Thyroid UK
10 months ago
bleeding at 6 weeks- clexane?
ladies is anyone else on aspirin (I’m on 75mg), clexane and prednisone? I had a bleed at 5am this morning (I’m 6 weeks, 3 days) and am going to get a scan tomorrow to check on things. I’m taking clexane every other day and wondering if I should take it today after the bleed?
ladies is anyone else on aspirin (I’m on 75mg), clexane and prednisone? I had a bleed at 5am this morning (I’m 6 weeks, 3 days) and am going to get a scan tomorrow to check on things. I’m taking clexane every other day and wondering if I should take it today after the bleed?
Samballover
in
Fertility Network UK
10 months ago
Persistent Angina/Palpitations Following Stent & Multi Vessel Atherosclerosis Diagnosis
Hi everyone. Have had my RH artery stented following heart pain whilst exercising. RH artery 90% blocked and other vessels 50%-70% blocked. Have had persistent palpitations and/or mild angina every day now since the operation in March 2021. Now on 80mg Atorvastatin, 10mg Ramipril, 5mg Bisoprolol and
Hi everyone. Have had my RH artery stented following heart pain whilst exercising. RH artery 90% blocked and other vessels 50%-70% blocked. Have had persistent palpitations and/or mild angina every day now since the operation in March 2021. Now on 80mg Atorvastatin, 10mg Ramipril, 5mg Bisoprolol and
Torbjorn
in
British Heart Foundation
10 months ago
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