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Tale of woe, sort of
I've been on ticagerol 90 and other meds (bisoprolol, aspirin, Losartan, etc) since my heart attack in May 2021, with second stent inserted via rotablation in Nov 2021. The surgeon said to continue the blood thinners for a year. I was originally treated at Luton and Dunstable hospital (L&D), and the
I've been on ticagerol 90 and other meds (bisoprolol, aspirin, Losartan, etc) since my heart attack in May 2021, with second stent inserted via rotablation in Nov 2021. The surgeon said to continue the blood thinners for a year. I was originally treated at Luton and Dunstable hospital (L&D), and the
Harefieldfan
in
British Heart Foundation
2 years ago
FET #5 Taking so much medication I rattle 😜. Thin lining is even thinner!!
Does anyone else feel like they can't keep up with all the medication?! This time I'm on 2 x patches, aspirin, viagra , vitamin E and 4 x progesterone. All this plus vitamins and 3 raspberry leaf teas a day!! 🤪. My skinny lining is causing problems again, this time I didn't even have a bleed after
Does anyone else feel like they can't keep up with all the medication?! This time I'm on 2 x patches, aspirin, viagra , vitamin E and 4 x progesterone. All this plus vitamins and 3 raspberry leaf teas a day!! 🤪. My skinny lining is causing problems again, this time I didn't even have a bleed after
Pebbles345
in
Fertility Network UK
2 years ago
et diagnoses age 30
hi all I’ve been diagnosed with ET after ongoing tests from July confirmed with a BmB I didn’t have the gene but still awaiting mutation result my question is my levels are 1473 and have been that level since august I am happy to take aspirin daily and be monitored every 3 months they have prescribed
hi all I’ve been diagnosed with ET after ongoing tests from July confirmed with a BmB I didn’t have the gene but still awaiting mutation result my question is my levels are 1473 and have been that level since august I am happy to take aspirin daily and be monitored every 3 months they have prescribed
Bracken2022
in
MPN Voice
2 years ago
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nausea feeling but in throat
just wanted to ask, over the last couple of days I have a ‘sicky feeling’ but in my throat. It’s like any food I have eaten has not gone down and is stuck in my throat as though you are going to be sick from it…. Not sure if it’s in relation to any other medication I take but not started any new meds
just wanted to ask, over the last couple of days I have a ‘sicky feeling’ but in my throat. It’s like any food I have eaten has not gone down and is stuck in my throat as though you are going to be sick from it…. Not sure if it’s in relation to any other medication I take but not started any new meds
Grendall
in
MPN Voice
2 years ago
Anybody healed their gut from acid reflux caused by aspirin?
Hi, I have PV and taking Hydroxyurea and aspirin. My heamatocrit level is around .45 - .47. I take 200mg aspiring once a day without the film/sugar coating. I was having acid reflux after eating and also during sleep. Sometimes it was so severe that it was difficult to sleep and I had to take those
Hi, I have PV and taking Hydroxyurea and aspirin. My heamatocrit level is around .45 - .47. I take 200mg aspiring once a day without the film/sugar coating. I was having acid reflux after eating and also during sleep. Sometimes it was so severe that it was difficult to sleep and I had to take those
bd_97
in
MPN Voice
2 years ago
To take aspirin or not?
hey peeps hope everyone doing as good as you can. question is possible transfer on Monday or Wednesday depending on quality and it will be a fresh transfer. I know some people who have taken low dose on a frozen. Let me know if anyone has taken a low dose for fresh transfer. TIA XX
hey peeps hope everyone doing as good as you can. question is possible transfer on Monday or Wednesday depending on quality and it will be a fresh transfer. I know some people who have taken low dose on a frozen. Let me know if anyone has taken a low dose for fresh transfer. TIA XX
Mgkt2021
in
Fertility Network UK
2 years ago
hydroxycarbamide
Hello I was diagnosed with myeloma last December 2021 and I was advised to take aspirin 75mg and four times venesections however this August they’ve given me hydroxycarbamide .I am taking 2 x for four days and 3 x for three days. I had some black lines on my toenails and fingernails as side effects.
Hello I was diagnosed with myeloma last December 2021 and I was advised to take aspirin 75mg and four times venesections however this August they’ve given me hydroxycarbamide .I am taking 2 x for four days and 3 x for three days. I had some black lines on my toenails and fingernails as side effects.
kid12kg
in
British Heart Foundation
2 years ago
Another covid question Re blood clotting/high risk
So. It's finally got me... At the moment, it just feels like flu with a bad chest (not terrible, just raspy and sore). I'm 4 vaccinated so hopefully it doesn't get wildly worse. But I'm only on day 2 and obviously panicking about the risks of it getting severe. I am struggling to understand exactly what
So. It's finally got me... At the moment, it just feels like flu with a bad chest (not terrible, just raspy and sore). I'm 4 vaccinated so hopefully it doesn't get wildly worse. But I'm only on day 2 and obviously panicking about the risks of it getting severe. I am struggling to understand exactly what
Jane8143
in
MPN Voice
2 years ago
Turmeric supplements inc pepper and ginger
is it ok and if so what dosage for taking turmeric along with black pepper and ginger ? I have had two heart attacks, stents implanted and take aspirin, ramipril and statins.
is it ok and if so what dosage for taking turmeric along with black pepper and ginger ? I have had two heart attacks, stents implanted and take aspirin, ramipril and statins.
patience4
in
British Heart Foundation
2 years ago
Constipation
Hi, it's been 6 weeks after my heart attack, and having 4 stents inserted. I am currently on Aspirin, Atorvastatin, Lansoprazole, Prasugrel, Ramipril, Melatonin, Tildiem and Diltiazem. I am experiencing severe constipation, despite taking multiple laxative drinks. Is this a normal side effect & if
Hi, it's been 6 weeks after my heart attack, and having 4 stents inserted. I am currently on Aspirin, Atorvastatin, Lansoprazole, Prasugrel, Ramipril, Melatonin, Tildiem and Diltiazem. I am experiencing severe constipation, despite taking multiple laxative drinks. Is this a normal side effect & if
Blindheart
in
British Heart Foundation
2 years ago
Left arm pain and numbness
Would like some help, in understanding what Im going through, and if its in relation to my recent visit to a&e. So early Oct ending up in a&e with pain in left arm and chest pain, and the hospital ruled out a heart attack. So diagnosed with angina, and prescribed medication, spray, aspirin and statins
Would like some help, in understanding what Im going through, and if its in relation to my recent visit to a&e. So early Oct ending up in a&e with pain in left arm and chest pain, and the hospital ruled out a heart attack. So diagnosed with angina, and prescribed medication, spray, aspirin and statins
Fitbit-Joe
in
British Heart Foundation
2 years ago
Long Term Hydrea patients?
Hi, I'd like to hear from any long term Hydrea PV/ET patients out there? I'm 74. I was diagnosed about 7 years ago with Jak2 ET. Refused Hydrea and just stayed on daily aspirin. About 18 months ago my diagnosis was changed to PV. So I decided to take daily 1 Hydrea (500mg), My counts are well controlled
Hi, I'd like to hear from any long term Hydrea PV/ET patients out there? I'm 74. I was diagnosed about 7 years ago with Jak2 ET. Refused Hydrea and just stayed on daily aspirin. About 18 months ago my diagnosis was changed to PV. So I decided to take daily 1 Hydrea (500mg), My counts are well controlled
Jamesxyz
in
MPN Voice
2 years ago
CAC Score of 477, what next?
Greetings, I always had borderline high cholesterol (190/200), In 2019 had a CT scan and was a bit shocked that it was 477 as I was very active with Crossfit..etc. That number, according to Dr. Google, is shockingly bad, and I stress every time I think about it. My cardiologist gave me a stress treadmill
Greetings, I always had borderline high cholesterol (190/200), In 2019 had a CT scan and was a bit shocked that it was 477 as I was very active with Crossfit..etc. That number, according to Dr. Google, is shockingly bad, and I stress every time I think about it. My cardiologist gave me a stress treadmill
SierraSix
in
British Heart Foundation
2 years ago
High Platelet count
Can anyone advise how to lower the platelet count and is Asprin advisable? What foods to avoid etc
Can anyone advise how to lower the platelet count and is Asprin advisable? What foods to avoid etc
Jaydie
in
MPN Voice
2 years ago
thank you
thank you to every who supported me through my uncles bypass, valve and aneurysm surgery. you answered questions and gave me advice. He is finally home after 3 weeks, he ended up having a pacemaker also due to low heart rate after surgery. He’s had little falls, he had dizzy spells before but got bad
thank you to every who supported me through my uncles bypass, valve and aneurysm surgery. you answered questions and gave me advice. He is finally home after 3 weeks, he ended up having a pacemaker also due to low heart rate after surgery. He’s had little falls, he had dizzy spells before but got bad
Lydia_1
in
British Heart Foundation
2 years ago
raised potassium levels
I have just seen this post from FB for ET patients…. Anyone see an increase in their potassium level? Have ET Jak 2 positive for 9 years. Been on Hydrea 500 mg 3 times a week. The last 3 blood tests show my potassium levels creeping up above normal. No changes in my diet. I am on my third blood
I have just seen this post from FB for ET patients…. Anyone see an increase in their potassium level? Have ET Jak 2 positive for 9 years. Been on Hydrea 500 mg 3 times a week. The last 3 blood tests show my potassium levels creeping up above normal. No changes in my diet. I am on my third blood
Grendall
in
MPN Voice
2 years ago
myelofibrosis
well my et has progressed to mf,platelets normal ,wcc normal, hb slightly low spleen slightly enlarged, main symptom is fatigue. my score is low intermediate so just continue with aspirin and repeat bloods in 3 months.not sure how I feel about it all .
well my et has progressed to mf,platelets normal ,wcc normal, hb slightly low spleen slightly enlarged, main symptom is fatigue. my score is low intermediate so just continue with aspirin and repeat bloods in 3 months.not sure how I feel about it all .
glyndale
in
MPN Voice
2 years ago
Low VO2 Max - should I care?
I am 9 months post AVR surgery and remain on Low dose aspirin, bisoprolol and atorvastin. I have a smart watch and all my measures look good except my VO2 Max, which is consistently very low at 23. I am active and feel pretty fit, at target weight, so should I be concerned? Could this simply be a consequence
I am 9 months post AVR surgery and remain on Low dose aspirin, bisoprolol and atorvastin. I have a smart watch and all my measures look good except my VO2 Max, which is consistently very low at 23. I am active and feel pretty fit, at target weight, so should I be concerned? Could this simply be a consequence
Wizard_of_Oz
in
British Heart Foundation
2 years ago
ET and lumps?
hi, this is my first time posting and new to this site. I was diagnosed with ET in May 2020 after finding my platelets were high whilst pregnant with my second daughter. I was just put on aspirin daily until my platelets shot up to 1500 and stayed that high for a few week/a month in February/March of
hi, this is my first time posting and new to this site. I was diagnosed with ET in May 2020 after finding my platelets were high whilst pregnant with my second daughter. I was just put on aspirin daily until my platelets shot up to 1500 and stayed that high for a few week/a month in February/March of
Lena1992
in
MPN Voice
2 years ago
Am I at risk of having too much calcium in my blood?
diagnosed Sept. 21 now tapered to 2 mg. in the summer I was informed that I would require some dental treatment, possibly an implant. After speaking to my dentist about the risks involved, as I was taking Alandronic acid, which I have always disliked taking, I decided for better or worse (and especially
diagnosed Sept. 21 now tapered to 2 mg. in the summer I was informed that I would require some dental treatment, possibly an implant. After speaking to my dentist about the risks involved, as I was taking Alandronic acid, which I have always disliked taking, I decided for better or worse (and especially
Fetlar73
in
PMRGCAuk
2 years ago
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