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Prepare for a Flare!
I’m not being pessimistic but let’s face it it’s going to happen one day - so why not prepare for a flare? I thought I’d share this - it may help you! On a pain course I went to they told us we should prepare for a flare. They advised we get a nice box and put in it things like: Music, meditation music
I’m not being pessimistic but let’s face it it’s going to happen one day - so why not prepare for a flare? I thought I’d share this - it may help you! On a pain course I went to they told us we should prepare for a flare. They advised we get a nice box and put in it things like: Music, meditation music
WendyWoo50
in
Hughes Syndrome APS Forum
5 years ago
Answering Questions about Deep Brain Stimulation
https://www.michaeljfox.org/form/dbs-pdf-form?id=2&os_cid=tw-a1b1R0000086fBT
https://www.michaeljfox.org/form/dbs-pdf-form?id=2&os_cid=tw-a1b1R0000086fBT
Farooqji
in
Cure Parkinson's
5 years ago
Invasive and non‐invasive brain stimulation in Parkinson's disease: Clinical effects and future perspectives
Deep brain stimulation (DBS) can improve motor symptoms in moderate to advanced PD. However, the optimal stimulation paradigm for non‐motor symptoms, freezing of gait and the optimal timing of DBS are still under investigations. The findings of pathological oscillations and abnormal frequency to amplitude
Deep brain stimulation (DBS) can improve motor symptoms in moderate to advanced PD. However, the optimal stimulation paradigm for non‐motor symptoms, freezing of gait and the optimal timing of DBS are still under investigations. The findings of pathological oscillations and abnormal frequency to amplitude
Farooqji
in
Cure Parkinson's
5 years ago
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About DBS
Does anyone undergone for DBS, 1. After DBS also should take medicine 2. Any side effects 3. How long it will take to recover post surgery 4. What is the IPG machine using, which machine is good
Does anyone undergone for DBS, 1. After DBS also should take medicine 2. Any side effects 3. How long it will take to recover post surgery 4. What is the IPG machine using, which machine is good
Vishwa228
in
Cure Parkinson's
5 years ago
Home made gluten free shortbread biscuits with ground almonds 🌞
Hi everyone, These are one of my favourite biscuits made with ground almonds and plain GF flour which includes buckwheat flour. I used organic butter free range eggs and unrefined sugar with ground almonds to top so they are still much healthier than many shop bought biscuits and a treat for those
Hi everyone, These are one of my favourite biscuits made with ground almonds and plain GF flour which includes buckwheat flour. I used organic butter free range eggs and unrefined sugar with ground almonds to top so they are still much healthier than many shop bought biscuits and a treat for those
Hidden
Administrator
in
Healthy Eating
5 years ago
DBS for essential tremors?
I'm new to this site and am considering DBS. Has anyone had DBS (deep brain surgery) for essential tremors of hands, head (cervical dystonia) and voice? What result? My neurologists say it will help with my shaky head. I know DBS helps shaky hands, it's my shaky head that is annoying!
I'm new to this site and am considering DBS. Has anyone had DBS (deep brain surgery) for essential tremors of hands, head (cervical dystonia) and voice? What result? My neurologists say it will help with my shaky head. I know DBS helps shaky hands, it's my shaky head that is annoying!
piano_gal
in
National Tremor Foundation
5 years ago
Losing hope
Dx 2003 aged 46. until about 6 months ago i refused to be beaten. Now I am utterly beaten. For years I’ve taken madopar every 90 mins . I have always had sudden swings between off and on but was able to make them bearable – with the odd blip - with extra madopar. I worked out years ago that protein interferes
Dx 2003 aged 46. until about 6 months ago i refused to be beaten. Now I am utterly beaten. For years I’ve taken madopar every 90 mins . I have always had sudden swings between off and on but was able to make them bearable – with the odd blip - with extra madopar. I worked out years ago that protein interferes
pen1
in
Cure Parkinson's
5 years ago
IGA deficiency and celiac disease
I was diagnosed with Hashis when I was around 15. When I turned 23, a blood test came back with these results (I was eating gluten): IMMUNOGLOBULIN A: 0.58 g/L (0.70-4.00) Gliadin Antibodies (IgG): 0.3 U/ml (Negative: <7 / Equivocal 7-10 / Positive >10) Gliadin Antibodies (IgA): 0.0 U/ml (Negative
I was diagnosed with Hashis when I was around 15. When I turned 23, a blood test came back with these results (I was eating gluten): IMMUNOGLOBULIN A: 0.58 g/L (0.70-4.00) Gliadin Antibodies (IgG): 0.3 U/ml (Negative: <7 / Equivocal 7-10 / Positive >10) Gliadin Antibodies (IgA): 0.0 U/ml (Negative
dannyhashimotos
in
Thyroid UK
5 years ago
Playing with the settings of my brain
Hi all This is a link to my vlog about DBS and speech issues. https://www.youtube.com/watch?v=Sn4IP7-px0w Cheers, Ian
Hi all This is a link to my vlog about DBS and speech issues. https://www.youtube.com/watch?v=Sn4IP7-px0w Cheers, Ian
Ianfrizell
in
Cure Parkinson's
5 years ago
I'm loosing my mind. Okay, maybe not my mind, but I did loose a shrimp!
No, not really, I knew I was in the basement, where my pantry,
deep
freeze
, and spare fridge are at. But for the life of me couldn't remember why. Didn't recover from that one.......okay, I used to do that all the time. Now it's only on occasion.
No, not really, I knew I was in the basement, where my pantry,
deep
freeze
, and spare fridge are at. But for the life of me couldn't remember why. Didn't recover from that one.......okay, I used to do that all the time. Now it's only on occasion.
MarkUpnorth
in
My MSAA Community
5 years ago
First year report - Linear Weight loss
I lost weight the way I am now maintaining: No counting, and a lifetime healthy eating lifestyle. Weight loss can be quite linear (...I did Stay The Same one week early on, but I lost six pounds in two weeks - and left out the intervening plots!) Height:……6ft 3" Age .............70 Weight: 15 Stone
I lost weight the way I am now maintaining: No counting, and a lifetime healthy eating lifestyle. Weight loss can be quite linear (...I did Stay The Same one week early on, but I lost six pounds in two weeks - and left out the intervening plots!) Height:……6ft 3" Age .............70 Weight: 15 Stone
S11m
Volunteer 70lb IF20
in
Fasting and Furious
5 years ago
DBS, has anyone considered this procedure to help with tremors?
I am scheduled to have this procedure next month. I have heard some good things from some PD patients and would like to hear other PD patient’s prospective. My diagnosis was in early 2018. Right hand tremor, now taking 25/100 x 3 (3 times/day), my procedure will be on my left side. Meds work, but tire
I am scheduled to have this procedure next month. I have heard some good things from some PD patients and would like to hear other PD patient’s prospective. My diagnosis was in early 2018. Right hand tremor, now taking 25/100 x 3 (3 times/day), my procedure will be on my left side. Meds work, but tire
PHN001
in
Cure Parkinson's
5 years ago
Coeliac blood test, when to eat gluten?
I've been on a gluten free diet now for 6 years since I was in my mid 20s as even the slightest amount of cross contamination from crumbs etc. started to set me off with severe bowel issues and I lost 2 stone. It still has the same effect now so I avoid it completely. My old GP put it down to IBS and
I've been on a gluten free diet now for 6 years since I was in my mid 20s as even the slightest amount of cross contamination from crumbs etc. started to set me off with severe bowel issues and I lost 2 stone. It still has the same effect now so I avoid it completely. My old GP put it down to IBS and
KarteR26
in
Gluten Free Guerrillas
5 years ago
Looking for advice regarding current treatment
Hi, This is my first post, so I'll try and include as much relevant info as possible. I've had an underactive thyroid for over 20 years, (I'm in my early forties now) but over the last 18mths my results have been all over the place and I have been feeling very unwell, even more tired than usual, weight
Hi, This is my first post, so I'll try and include as much relevant info as possible. I've had an underactive thyroid for over 20 years, (I'm in my early forties now) but over the last 18mths my results have been all over the place and I have been feeling very unwell, even more tired than usual, weight
HBC76
in
Thyroid UK
5 years ago
B1 Intolerance
My husband has tried taking B1 twice. Firstly with powder then recently with Solgar capsules as recommended. He started on 500mg capsule in the morning then 500mg late afternoon. After 7 days he felt it was making his symptoms worse and had to stop.I read how so many people are benefitting from B1 and
My husband has tried taking B1 twice. Firstly with powder then recently with Solgar capsules as recommended. He started on 500mg capsule in the morning then 500mg late afternoon. After 7 days he felt it was making his symptoms worse and had to stop.I read how so many people are benefitting from B1 and
JeanieBeanie
in
Cure Parkinson's
5 years ago
Unresolved thyroid condition
I posted a couple of months ago results from medichecks and historical NHS tests. Since then I have had several visits to the GP who refused to acknowledge medicheck tests (which included T3 and vitamin analysis). I had further NHS tests done which contradicted private tests and which I simply do not
I posted a couple of months ago results from medichecks and historical NHS tests. Since then I have had several visits to the GP who refused to acknowledge medicheck tests (which included T3 and vitamin analysis). I had further NHS tests done which contradicted private tests and which I simply do not
Mall1
in
Thyroid UK
5 years ago
Gluten free diet??
Did glutenfree and diary free diet help with egg quality and improve AMH??and wet have a successful Pregnancy... anybody has experience d dis do share please....
Did glutenfree and diary free diet help with egg quality and improve AMH??and wet have a successful Pregnancy... anybody has experience d dis do share please....
Twobaby
in
Fertility Network UK
5 years ago
Appetite
Has anyone found that they have lost their appetite, and lost weight, after an Ataxia diagnosis? Has anyone tried a gluten free diet? I live in North London/Enfield, am 70, and wonder if their is anyone locally who has been diagnosed with Ataxia? My diagnosis, some 2 years ago, is idiopathic late onset
Has anyone found that they have lost their appetite, and lost weight, after an Ataxia diagnosis? Has anyone tried a gluten free diet? I live in North London/Enfield, am 70, and wonder if their is anyone locally who has been diagnosed with Ataxia? My diagnosis, some 2 years ago, is idiopathic late onset
peakerhome
in
Ataxia UK
5 years ago
Advice Needed
Just completed parkrun this morning 28.30 😜 as part of ju-ju week 3 Run 2! First run for 8 days since i felt a slight tightening of my left hammy on my last run! Anyway started off fine this morning until around half way when I felt the same again except worse! I managed to keep going albeit at a slower
Just completed parkrun this morning 28.30 😜 as part of ju-ju week 3 Run 2! First run for 8 days since i felt a slight tightening of my left hammy on my last run! Anyway started off fine this morning until around half way when I felt the same again except worse! I managed to keep going albeit at a slower
Cfc55
in
Bridge to 10K
5 years ago
Dystonia and Parkinson's disease: What is the relationship?
Dystonia and Parkinson's disease are closely linked disorders sharing many pathophysiological overlaps. Dystonia can be seen in 30% or more of the patients suffering with PD and sometimes can precede the overt parkinsonism. The response of early dystonia to the introduction of dopamine replacement therapy
Dystonia and Parkinson's disease are closely linked disorders sharing many pathophysiological overlaps. Dystonia can be seen in 30% or more of the patients suffering with PD and sometimes can precede the overt parkinsonism. The response of early dystonia to the introduction of dopamine replacement therapy
Farooqji
in
Cure Parkinson's
5 years ago
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