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Concerned
Husband had DBS, device not turned on yet, but tremors & anxiety aremuch, much worse since the surgery, anyone else experience this?
Husband had DBS, device not turned on yet, but tremors & anxiety aremuch, much worse since the surgery, anyone else experience this?
dhill
in
Cure Parkinson's
4 years ago
No weight loss
I have ongoing thyroid issue - underactive and has never been sorted in 12yrs - I am ok for 4/6 weeks and then my levels rise - approx may/ April this my tsh hit a high of 86 . My meds were increased to 150mg tested again in July tsh was 43 (0.4-5.5) T4 11 ( 11.0-26.0) meds increased to 175mg tested
I have ongoing thyroid issue - underactive and has never been sorted in 12yrs - I am ok for 4/6 weeks and then my levels rise - approx may/ April this my tsh hit a high of 86 . My meds were increased to 150mg tested again in July tsh was 43 (0.4-5.5) T4 11 ( 11.0-26.0) meds increased to 175mg tested
Merw
in
Thyroid UK
4 years ago
45 mins conversation with dr. Jeanmonod regarding FUS
Hi all! I just spoke with dr. J about my situation. In my case he said the PD looks very easy (after 4 years) and he recommended an evaluation exam to determine if I really need a FUS surgery at this time. He said I'm at the border line. The cost of that it will be 2000 CF which will be subtracted from
Hi all! I just spoke with dr. J about my situation. In my case he said the PD looks very easy (after 4 years) and he recommended an evaluation exam to determine if I really need a FUS surgery at this time. He said I'm at the border line. The cost of that it will be 2000 CF which will be subtracted from
ion_ion
in
Cure Parkinson's
4 years ago
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Levodopa or Dopamine Agonist after DBS in Parkinson's Disease? We finally have some evidence.
Levodopa Versus Dopamine Agonist After Subthalamic Stimulation in Parkinson's Disease https://onlinelibrary.wiley.com/doi/full/10.1002/mds.28382#.X6lTvADhDPE.twitter
Levodopa Versus Dopamine Agonist After Subthalamic Stimulation in Parkinson's Disease https://onlinelibrary.wiley.com/doi/full/10.1002/mds.28382#.X6lTvADhDPE.twitter
Farooqji
in
Cure Parkinson's
4 years ago
DBS — What questions to ask the DBS neurosurgeon?
I have an appointment with the DBS neurosurgeon next week for evaluation before the surgery, should I decide. I’ve already had the brain MRI and the Neuropsych evaluation. I’m 70 yrs old, female, 86 lbs, and diagnosed 6 1/2 yrs ago. I’m on C/L only, one tablet, 3 times daily. I’ve tried other meds
I have an appointment with the DBS neurosurgeon next week for evaluation before the surgery, should I decide. I’ve already had the brain MRI and the Neuropsych evaluation. I’m 70 yrs old, female, 86 lbs, and diagnosed 6 1/2 yrs ago. I’m on C/L only, one tablet, 3 times daily. I’ve tried other meds
Kingdomcome
in
Cure Parkinson's
4 years ago
W4
W4 run 1 copleted tonight! Having to nurse a painfull right knee, anyone got some advise, have been rubbing deep heat in, before run.
W4 run 1 copleted tonight! Having to nurse a painfull right knee, anyone got some advise, have been rubbing deep heat in, before run.
Peternielsen44
in
Couch to 5K
4 years ago
Constipation
Hello everyone, I suffer really badly with constipation and I have to drink a powder sachet every day to help me go but I am still not going everyday it could be every 3 days. I eat lots of fruit and veg and I am on a Gluten free diet. Is this fibro related and does anyone have any tips that could
Hello everyone, I suffer really badly with constipation and I have to drink a powder sachet every day to help me go but I am still not going everyday it could be every 3 days. I eat lots of fruit and veg and I am on a Gluten free diet. Is this fibro related and does anyone have any tips that could
Jeep2000
in
Fibromyalgia Action UK
4 years ago
Dried blood spot sampling offers an inexpensive way to widen access to antibody testing for COVID-19.
Currently antibody testing for COVID-19 uses serum or plasma, which requires a full intravenous blood sample, collected by a trained phlebotomist. For population-wide or high volume testing, the use of such sampling is limited by logistic challenges, resources, and costs, as well as the risk of SARS-CoV
Currently antibody testing for COVID-19 uses serum or plasma, which requires a full intravenous blood sample, collected by a trained phlebotomist. For population-wide or high volume testing, the use of such sampling is limited by logistic challenges, resources, and costs, as well as the risk of SARS-CoV
2greys
in
Lung Conditions Community Forum
4 years ago
Study examines the potential of spinal cord stimulation
A new study lays a new way of treating PD out " A new study finds that spinal cord stimulation could represent an alternate therapy for people with Parkinson’s disease that is resistant to conventional treatments. The researchers claim that this emerging technology may help decrease pain and improve
A new study lays a new way of treating PD out " A new study finds that spinal cord stimulation could represent an alternate therapy for people with Parkinson’s disease that is resistant to conventional treatments. The researchers claim that this emerging technology may help decrease pain and improve
Abdiqani
in
Cure Parkinson's
4 years ago
Very low TSH. Dr wants to reduce thyroxine.
I feel like crying and don’t know what to do. My Dr asked me to do a routine blood test to repeat my prescription. The results were; TSH 0.14 FT4 20 Vitamin D 57. N nmol/L less than 75nmol/L is insufficient I have been taking 3000iu of vit D a day for the last 3 months yet my vit D is still insufficient
I feel like crying and don’t know what to do. My Dr asked me to do a routine blood test to repeat my prescription. The results were; TSH 0.14 FT4 20 Vitamin D 57. N nmol/L less than 75nmol/L is insufficient I have been taking 3000iu of vit D a day for the last 3 months yet my vit D is still insufficient
sja11
in
Thyroid UK
4 years ago
diabetes with celiac
Hello my Granddaughter has had diabetes 1 from the age of 4 she is now 9 and it was hard to keep her level on track last year she was diagnosed with celiac so she has to follow gluten free diet I would suggest she gets tested for this as it is very common with diabetes 1 good luck
Hello my Granddaughter has had diabetes 1 from the age of 4 she is now 9 and it was hard to keep her level on track last year she was diagnosed with celiac so she has to follow gluten free diet I would suggest she gets tested for this as it is very common with diabetes 1 good luck
sophy456-
in
Diabetes India
4 years ago
Spinal Cord Stimulation Alleviates Parkinson’s Pain in Small Study
Spinal cord stimulation can effectively decrease pain, and also may help alleviate motor symptoms, in people with Parkinson’s disease (PD), regardless of whether patients have previously undergone deep brain stimulation, a small study suggests. https://parkinsonsnewstoday.com/2020/10/02/spinal-cord-stimulation-alleviates-parkinsons-pain-small-study-suggests
Spinal cord stimulation can effectively decrease pain, and also may help alleviate motor symptoms, in people with Parkinson’s disease (PD), regardless of whether patients have previously undergone deep brain stimulation, a small study suggests. https://parkinsonsnewstoday.com/2020/10/02/spinal-cord-stimulation-alleviates-parkinsons-pain-small-study-suggests
JayPwP
in
Cure Parkinson's
4 years ago
Hypothyrosis and Hashimoto
I have hypothyrosis since 2009. When i was diagnosed and then from time to time I asked to do T3 also. However, as I have no big flucktations I do now only fT4 and TSH sensitive. For the antibodies that are increased (Hashimoto) it is important to take SE and have a gluten free diet. The therapy and
I have hypothyrosis since 2009. When i was diagnosed and then from time to time I asked to do T3 also. However, as I have no big flucktations I do now only fT4 and TSH sensitive. For the antibodies that are increased (Hashimoto) it is important to take SE and have a gluten free diet. The therapy and
SaEva
in
Thyroid UK
4 years ago
14 year old son constipation
My son is 14 and is autistic. He is constantly pooing small amounts at a time. He is on Cosmocol as he has constipation. He leaks as well in his pants. He was disimpacted on the advice of bowel nurse. He had 4 sachets and it made him sick and he was unwell in it. Although it did seem to do the job.
My son is 14 and is autistic. He is constantly pooing small amounts at a time. He is on Cosmocol as he has constipation. He leaks as well in his pants. He was disimpacted on the advice of bowel nurse. He had 4 sachets and it made him sick and he was unwell in it. Although it did seem to do the job.
CT79
in
ERIC
4 years ago
Melatonin For Parkinson's Disease (Pt. 2)
In case you missed part 1, here is a link to it : https://healthunlocked.com/parkinsonsmovement/posts/143507411/melatonin-for-parkinsons-disease....finally Melatonin is the only naturally occurring substance in the body that I have found that can help return the body toward homeostasis through multiple
In case you missed part 1, here is a link to it : https://healthunlocked.com/parkinsonsmovement/posts/143507411/melatonin-for-parkinsons-disease....finally Melatonin is the only naturally occurring substance in the body that I have found that can help return the body toward homeostasis through multiple
chartist
in
Cure Parkinson's
4 years ago
Our virtual pub took place today. I believe everybody enjoyed it. Next Sunday, 9/27, 2nd HU virtual gathering @ 5 PM London time.
50+ people gave me their email addresses. 25 people plugged in. We got to introduce ourselves and put a face to the name. Zoom has 4 breakout rooms. In order to allow more substantive conversation, next week, I thought I would send the 1st ten who plug-in to one breakout room and the 2nd 10
50+ people gave me their email addresses. 25 people plugged in. We got to introduce ourselves and put a face to the name. Zoom has 4 breakout rooms. In order to allow more substantive conversation, next week, I thought I would send the 1st ten who plug-in to one breakout room and the 2nd 10
MBAnderson
in
Cure Parkinson's
4 years ago
Is Gluten Sensitivity causing your Fibro?
Hi, I wondered if anyone has ever suspected NCGS (Non-Coeliac Gluten Sensitivity) as the cause, or as A cause, of their Fibro. Mine has flared up recently, after I've been on a much healthier diet than I have in years, and I'm baffled by this. Why would I get sorer and tireder while IMPROVING my diet
Hi, I wondered if anyone has ever suspected NCGS (Non-Coeliac Gluten Sensitivity) as the cause, or as A cause, of their Fibro. Mine has flared up recently, after I've been on a much healthier diet than I have in years, and I'm baffled by this. Why would I get sorer and tireder while IMPROVING my diet
Chancery
in
Fibromyalgia Action UK
4 years ago
Hashimoto's long term , antibodies doubled after 2 moths gluten free diet and and 6 weeks after increase in Levo up to 100msg.
i am very confused now after my new blood result come back. TSH -0,03 (0.25-5.00) FT4 -19,7( 9.00-23.00) FT3-4.2(3,5-6.5) Thyroid peroxidase antibodies -1300 (<34) 2 month back on 75mcg TSH -0,19 (0.25-5.00) FT4 -16.1( 9.00-23.00) FT3-3.2(3,5-6.5) Thyroid peroxidase antibodies -575(<34
i am very confused now after my new blood result come back. TSH -0,03 (0.25-5.00) FT4 -19,7( 9.00-23.00) FT3-4.2(3,5-6.5) Thyroid peroxidase antibodies -1300 (<34) 2 month back on 75mcg TSH -0,19 (0.25-5.00) FT4 -16.1( 9.00-23.00) FT3-3.2(3,5-6.5) Thyroid peroxidase antibodies -575(<34
Tati0e0o
in
Thyroid UK
4 years ago
Algesal Cream
I have found something that helps. When my legs start getting painful, it always starts in a different place, arch of my foot, back of my knee, thigh, calf, really random. As soon as I feel it, I rub my leg to see where it's painful and massage it with this cream. It seems to work! It also works
I have found something that helps. When my legs start getting painful, it always starts in a different place, arch of my foot, back of my knee, thigh, calf, really random. As soon as I feel it, I rub my leg to see where it's painful and massage it with this cream. It seems to work! It also works
Bee27
in
Restless Legs Syndrome
4 years ago
DBS doesn't seem to work?
I had DBS surgery 2 month ago and had 2 programming sessions, but still far from feeling any better. I can say, My tremors and distonia on presurgery status, taking much more medication than before and still having bad days (mostly of them). Does it mean failure of DBS? I don't know what to do. I feel
I had DBS surgery 2 month ago and had 2 programming sessions, but still far from feeling any better. I can say, My tremors and distonia on presurgery status, taking much more medication than before and still having bad days (mostly of them). Does it mean failure of DBS? I don't know what to do. I feel
koshca
in
Cure Parkinson's
4 years ago
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