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Experiences with
D-bifunctional protein (DBP) deficiency
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IRON DEFICIENCY
Hi I was wondering if anyone has had iron deficiency and anemia. I was diagnosed with ss in May last year. These blood tests have been normal until yesterday. In a matter of 3 months my tests have changed quite significantly. My rheumy is quite concerned but my gp doesn't seem as an has done
Hi I was wondering if anyone has had iron deficiency and anemia. I was diagnosed with ss in May last year. These blood tests have been normal until yesterday. In a matter of 3 months my tests have changed quite significantly. My rheumy is quite concerned but my gp doesn't seem as an has done
jennye1967
in
The Australian Sjögren's Syndrome Association
9 years ago
Deep brain stimulation for pain?
Hi, I was just wondering if any One has had, or been referred for DBS surgery for chronic pain? My neurologist has just referred me, but due to the cost of it he said it might be a fight with my GPs, and commissioner to have it done. I'm scared, as I have no one to talk to about it, and I can't find
Hi, I was just wondering if any One has had, or been referred for DBS surgery for chronic pain? My neurologist has just referred me, but due to the cost of it he said it might be a fight with my GPs, and commissioner to have it done. I'm scared, as I have no one to talk to about it, and I can't find
trappedinlife
in
Pain Concern
9 years ago
DBS - STN or GPi?
I have been told by my neuro-team that STN DBS would be risky due to some bouts of depression I had last year and also the compulsive behavioural episodes I suffered while on Pramipexole. They have recommended GPi DBS - has anyone on here undergone this procedure and, if so, was it successful? Many
I have been told by my neuro-team that STN DBS would be risky due to some bouts of depression I had last year and also the compulsive behavioural episodes I suffered while on Pramipexole. They have recommended GPi DBS - has anyone on here undergone this procedure and, if so, was it successful? Many
Gaz1403
in
Cure Parkinson's
9 years ago
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any one else have problems with anemia
Hi i have raynauds scleroderma does any one else suffer from Anemia and low hemoglobin, i am having a terrible time at the moment and would be glad of any advice
Hi i have raynauds scleroderma does any one else suffer from Anemia and low hemoglobin, i am having a terrible time at the moment and would be glad of any advice
lmpieroni
in
Scleroderma & Raynaud's UK (SRUK)
9 years ago
Are my iron/b12/folate/ferritin ok?
Hi, On the advice of some very helpful people on here I got a print out of my results. Doc doesn't think I need supplements other than the vit D she gave. The results are within range, but I've read on here that they should be higher than they are for Levothyroxine to work effectively. I'm now on 50
Hi, On the advice of some very helpful people on here I got a print out of my results. Doc doesn't think I need supplements other than the vit D she gave. The results are within range, but I've read on here that they should be higher than they are for Levothyroxine to work effectively. I'm now on 50
jeanlouise
in
Thyroid UK
9 years ago
Very weak after losing a lot of blood
Following heart surgery five months ago (two more stents fitted to coronary arteries) l was prescribed a very strong anti platelet drug called Ticagrelor. The alarming side effects to this drug put me in hospital and I lost a lot of blood from both my prostate and a pierced bladder which was damaged
Following heart surgery five months ago (two more stents fitted to coronary arteries) l was prescribed a very strong anti platelet drug called Ticagrelor. The alarming side effects to this drug put me in hospital and I lost a lot of blood from both my prostate and a pierced bladder which was damaged
Classicmichael
in
PMRGCAuk
9 years ago
Sierra Ferris
I had DBS two years ago, it doesn't appear to have helped a great deal. I live in the UK and am considering a consultation with Sierra, just wondered if anyone has seen this lady and their experiences. I was diagnosed 10years ago at 40
I had DBS two years ago, it doesn't appear to have helped a great deal. I live in the UK and am considering a consultation with Sierra, just wondered if anyone has seen this lady and their experiences. I was diagnosed 10years ago at 40
sasmmayday
in
Cure Parkinson's
9 years ago
Help with results please
Hi, here are my recent bloods. Please could you give any advice. I'm on 150mcg Levo. Been treated for last 14 years (I'm 37). GP wants to reduce my thyroxine even though I have no hyper symptoms and still some hypo symptoms. I also take Vit D and Berroca daily. TSH 0.01 FT4 18.7 (11.00 - 22.60) FT3
Hi, here are my recent bloods. Please could you give any advice. I'm on 150mcg Levo. Been treated for last 14 years (I'm 37). GP wants to reduce my thyroxine even though I have no hyper symptoms and still some hypo symptoms. I also take Vit D and Berroca daily. TSH 0.01 FT4 18.7 (11.00 - 22.60) FT3
Polina44
in
Thyroid UK
10 years ago
Feeling ill
Can I ask is it normal to feel really ill .I feel so bad that I find it hard to get up.I try and do jobs but I shake violently and the sweat pours out of me and have to lie down.I have been to the GP several times.I had dbs two years ago.I take 75 of stalevo 6 times a day cant convince any body im not
Can I ask is it normal to feel really ill .I feel so bad that I find it hard to get up.I try and do jobs but I shake violently and the sweat pours out of me and have to lie down.I have been to the GP several times.I had dbs two years ago.I take 75 of stalevo 6 times a day cant convince any body im not
libberty21
in
Cure Parkinson's
9 years ago
Red or blushing skin...full body
Had a fright last night...my whole body and face was bright red, like I had been mildy sun-burned all over. Felt a bit like that too. I have been looking at allodynia re my parathesias - also wondered if It might be a sign of over- medicated or antibody flare up. The best way to describe is niacin
Had a fright last night...my whole body and face was bright red, like I had been mildy sun-burned all over. Felt a bit like that too. I have been looking at allodynia re my parathesias - also wondered if It might be a sign of over- medicated or antibody flare up. The best way to describe is niacin
helbell
in
Thyroid UK
10 years ago
Seeking help with iron blood test results
Hi everyone. I’m a newbie here, diagnosed a few days ago with B12 deficiency and hypothyroidism. I’ve learned so much since – and have a lot more to learn – about each condition, and want to thank every single person who has taken the time to share their experiences and knowledge, which have helped
Hi everyone. I’m a newbie here, diagnosed a few days ago with B12 deficiency and hypothyroidism. I’ve learned so much since – and have a lot more to learn – about each condition, and want to thank every single person who has taken the time to share their experiences and knowledge, which have helped
Thalia56
in
Pernicious Anaemia Society
10 years ago
When is the right time for DBS surgery?
I've been given conflicting advice as to when is the optimal time to have DBS surgery. I consider myself to be fairly high functioning ie, I still drive and work full-time. But now I walk with a pronounced limp. I can barely speak above a whisper and can't even hold a pen let alone write my name. Things
I've been given conflicting advice as to when is the optimal time to have DBS surgery. I consider myself to be fairly high functioning ie, I still drive and work full-time. But now I walk with a pronounced limp. I can barely speak above a whisper and can't even hold a pen let alone write my name. Things
Prncssbuttercup8
in
Cure Parkinson's
10 years ago
Latent iron difficiency ... Ferritin 5 for 3 years. Anyone come across this?
Finally got the go ahead for iron infusions for my chronically low ferritin level. I asked what was causing it and the consultant said that it wasn't necessarily blood loss ( stock diagnosis for most females in their late 40's) but could possibly be that I just use up my iron too quickly and therefore
Finally got the go ahead for iron infusions for my chronically low ferritin level. I asked what was causing it and the consultant said that it wasn't necessarily blood loss ( stock diagnosis for most females in their late 40's) but could possibly be that I just use up my iron too quickly and therefore
Chablis
in
Thyroid UK
10 years ago
DBS self adjusting
For those that have DBS, how many of you have been instructed by your programmer to adjust the voltage intensity? How about pulse width or frequency?
For those that have DBS, how many of you have been instructed by your programmer to adjust the voltage intensity? How about pulse width or frequency?
etterus
in
Cure Parkinson's
10 years ago
Ferritin !!!!!
Ferritin ! Hi everybody, Hope you can help, last year I was very anemic, this was sorted by iron supplements. I've had a hysterctomy since, I thought this would end the anemia issue for me ( long story about that !) I have my Ferritin results as I'm on Levo and feeling like crap again ! Serum Ferritin
Ferritin ! Hi everybody, Hope you can help, last year I was very anemic, this was sorted by iron supplements. I've had a hysterctomy since, I thought this would end the anemia issue for me ( long story about that !) I have my Ferritin results as I'm on Levo and feeling like crap again ! Serum Ferritin
123happy
in
Thyroid UK
10 years ago
Ridged nails - dermatologist diagnosis
Dermatologist said my nail condition was washboard nails also known as fungal paronychia, but looking at the images for each of these shows a different type of effect on the nails. Mine resembles the washboard images which is due to picking at the cuticles, which I do. The fungal paronychia is due to
Dermatologist said my nail condition was washboard nails also known as fungal paronychia, but looking at the images for each of these shows a different type of effect on the nails. Mine resembles the washboard images which is due to picking at the cuticles, which I do. The fungal paronychia is due to
cc120
in
Thyroid UK
10 years ago
help again please
hi just had my blood results and would love some help with them . my levothyroxine was increase by 25 to 175 micro grams i do have a lot of problems with iron had an infusion once but took a very bad reaction on liquid iron a tiny amount per wk as it is all i can manage. oh i should say as well i have
hi just had my blood results and would love some help with them . my levothyroxine was increase by 25 to 175 micro grams i do have a lot of problems with iron had an infusion once but took a very bad reaction on liquid iron a tiny amount per wk as it is all i can manage. oh i should say as well i have
ayrshirelass13
in
Thyroid UK
10 years ago
Blood results
Hi everyone, Not sure if this is the correct forum for this post, but as I have hashimoto's I thought someone may be able to advise...here goes.... TSH is 4.02 (has been static since about November, doc has now prescribed T3 but supply is low where I live so waiting for that, currently on 100 mcg
Hi everyone, Not sure if this is the correct forum for this post, but as I have hashimoto's I thought someone may be able to advise...here goes.... TSH is 4.02 (has been static since about November, doc has now prescribed T3 but supply is low where I live so waiting for that, currently on 100 mcg
Mhel
in
Thyroid UK
10 years ago
Syndol/Hypothyroid?
I have just read that Syndol (an over the counter painkiller) should be used with caution in hypo people. Does anyone know why that might be? The ingredients are: paracetamol, codeine phosphate, doxylamine succinate and caffeine. Unfortunately, the original Syndol have been available for ages due to
I have just read that Syndol (an over the counter painkiller) should be used with caution in hypo people. Does anyone know why that might be? The ingredients are: paracetamol, codeine phosphate, doxylamine succinate and caffeine. Unfortunately, the original Syndol have been available for ages due to
infomaniac
in
Thyroid UK
10 years ago
Positive parietal cell antibody
After eventually seeing a neurologist with regard to my tingling limbs, I have today received a copy of a letter he sent to my GP. He says that the MRI scan was normal, so pleased about that. However, he then says, quote: "I note she as a positive parietal cell antibody and that some provisional blood
After eventually seeing a neurologist with regard to my tingling limbs, I have today received a copy of a letter he sent to my GP. He says that the MRI scan was normal, so pleased about that. However, he then says, quote: "I note she as a positive parietal cell antibody and that some provisional blood
Twitchen
in
Thyroid UK
10 years ago
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