Search
Search
About
Log in
Join
Experiences with
D-bifunctional protein (DBP) deficiency
Posts
Communities
2,106 public posts
Filter results
Changing from NDT to Levothyroxine
Hi all, I've been taking NDT (Thyroid-S) now for 3 years and have done pretty well on it. I have followed the guidelines from STTM regarding supplementing my low iron, D3 and B12 in that time, although for around the past 6 months I've cut back a bit on iron and D3 because of the cost. According to
Hi all, I've been taking NDT (Thyroid-S) now for 3 years and have done pretty well on it. I have followed the guidelines from STTM regarding supplementing my low iron, D3 and B12 in that time, although for around the past 6 months I've cut back a bit on iron and D3 because of the cost. According to
Dannia
in
Thyroid UK
8 years ago
Dr. B on Iron Infusions
http://video.google.com/video play?docid=-7766971241156535124&hl=en Within the above transcript is the following direct quote from Dr. B. His word is gospel and I hope you all feel the same: "What the guys at Hopkins did, they gave iron intravenously usually about 2 or 3 or 4 series of infusions of this
http://video.google.com/video play?docid=-7766971241156535124&hl=en Within the above transcript is the following direct quote from Dr. B. His word is gospel and I hope you all feel the same: "What the guys at Hopkins did, they gave iron intravenously usually about 2 or 3 or 4 series of infusions of this
Hidden
in
Restless Legs Syndrome
8 years ago
Ferritin/folate/vitamin D/vitamin B12 results
As requested here are my results for ferritin/folate/vitamin D/vitamin B12. I feel very unwell at the moment. Thank you. Serum folate: 4.1 ug/L (4.6 - 18.7) currently prescribed folic acid Serum ferritin: 64 ug/L (15 - 150) currently prescribed ferrous fumarate Serum vitamin B12: 247 pg/L (190 - 900
As requested here are my results for ferritin/folate/vitamin D/vitamin B12. I feel very unwell at the moment. Thank you. Serum folate: 4.1 ug/L (4.6 - 18.7) currently prescribed folic acid Serum ferritin: 64 ug/L (15 - 150) currently prescribed ferrous fumarate Serum vitamin B12: 247 pg/L (190 - 900
Angel332
in
Thyroid UK
8 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Deciding to have Deep Brain Stimulation surgery
My latest vlog about deciding to have brain surgery https://youtu.be/0yZdMv8_jNI Cheers, Ian
My latest vlog about deciding to have brain surgery https://youtu.be/0yZdMv8_jNI Cheers, Ian
Ianfrizell
in
Cure Parkinson's
8 years ago
Results for ferritin folate vitamin B12 vitamin D advice please
Hi Does my GP need to do anything about these? Thanks Ferritin - 7 (15 - 150) Folate - 2.1 (2.5 - 19.5) Vitamin B12 - 203 (190 - 900) Total OH vitamin D - 22.7 (<25 severe vitamin D deficiency. Patient may require pharmacological preparations)
Hi Does my GP need to do anything about these? Thanks Ferritin - 7 (15 - 150) Folate - 2.1 (2.5 - 19.5) Vitamin B12 - 203 (190 - 900) Total OH vitamin D - 22.7 (<25 severe vitamin D deficiency. Patient may require pharmacological preparations)
Sam88
in
Thyroid UK
8 years ago
Gait freezing
Does anyone has problems with walking because of gait freezing, i.e freezing suddenly while walking. My husband had DBS done for the freezing problem. The dr who operated on him said that it has to be programmed different way, not as for dyskenesia. But unfortunately the dr who is doing his programming
Does anyone has problems with walking because of gait freezing, i.e freezing suddenly while walking. My husband had DBS done for the freezing problem. The dr who operated on him said that it has to be programmed different way, not as for dyskenesia. But unfortunately the dr who is doing his programming
Lodiroad
in
Cure Parkinson's
8 years ago
Clean Eating - The Dirty Truth
Happened to see this program listed and thought at least some members might find it interesting. To be broadcast (in the UK) on Thursday 19 Jan 2017 at 21:00 on BBC Two (repeated later - follow link at end for more details). [i]
Clean Eating - The Dirty Truth
Horizon, 2016-2017 Imagine if the
Happened to see this program listed and thought at least some members might find it interesting. To be broadcast (in the UK) on Thursday 19 Jan 2017 at 21:00 on BBC Two (repeated later - follow link at end for more details). [i]
Clean Eating - The Dirty Truth
Horizon, 2016-2017 Imagine if the
helvella
Thyroid UK
in
Thyroid UK
8 years ago
Take my pain away, P-L-E-A-S-E!!!!
I had a stroke when I was 50 (hole of my heart - now closed). I am fine, with some little frustration but I really would like the government to have funding for DBS which would take my hemiplegic pain away!! From my hair of my head to the toes of the foot on my right sided of my body, the pain I have
I had a stroke when I was 50 (hole of my heart - now closed). I am fine, with some little frustration but I really would like the government to have funding for DBS which would take my hemiplegic pain away!! From my hair of my head to the toes of the foot on my right sided of my body, the pain I have
Kiwibron
in
NHS England: A Call to Action
8 years ago
Time to abandon the serum cobalamin level for diagnosing vitamin B12 deficiency
You might be interested in this PAS thread: [i] "Time to abandon the serum cobalamin level for diagnosing vitamin B12 deficiency"[/i] https://healthunlocked.com/pasoc/posts/134770410/time-to-abandon-the-serum-cobalamin-level-for-diagnosing-vitamin-b12-deficiency
You might be interested in this PAS thread: [i] "Time to abandon the serum cobalamin level for diagnosing vitamin B12 deficiency"[/i] https://healthunlocked.com/pasoc/posts/134770410/time-to-abandon-the-serum-cobalamin-level-for-diagnosing-vitamin-b12-deficiency
helvella
Thyroid UK
in
Thyroid UK
8 years ago
Blood Results
Was wondering if someone has similar issues. My iron is at 9 which is high now use to be 2-4 mvc is 68 which is higher than normal at 52 being normal my vitamin b-12 is great hemoglobin is 102 which is great for me normally it is at 67-92 I have been told i am anemic and take 320 mg or iron three times
Was wondering if someone has similar issues. My iron is at 9 which is high now use to be 2-4 mvc is 68 which is higher than normal at 52 being normal my vitamin b-12 is great hemoglobin is 102 which is great for me normally it is at 67-92 I have been told i am anemic and take 320 mg or iron three times
Patricia333
in
Pernicious Anaemia Society
8 years ago
Advice needed on serum ferritin level
Hi all I am a bit worried about my ferritin level as was high when last tested 197.4 (13.0 -150.0) Date done 27/10 /16 After getting print out of blood test done in last year from dr I have seen it was also high in may 20/16 198.5 (13.0 -150.0) I have not been taking any iron supplements so not sure
Hi all I am a bit worried about my ferritin level as was high when last tested 197.4 (13.0 -150.0) Date done 27/10 /16 After getting print out of blood test done in last year from dr I have seen it was also high in may 20/16 198.5 (13.0 -150.0) I have not been taking any iron supplements so not sure
Raventhorpe
in
Thyroid UK
8 years ago
DBS surgery
My husband is going in for dbs in march at Ucsf. Dr said he would be in the hospital only 2-3 days. He is 70
My husband is going in for dbs in march at Ucsf. Dr said he would be in the hospital only 2-3 days. He is 70
Anking
in
Cure Parkinson's
8 years ago
DBS
I got the Boston-Scientific Vercise-DBS-System in 2016 in Würzburg
I got the Boston-Scientific Vercise-DBS-System in 2016 in Würzburg
guenoe
in
Cure Parkinson's
8 years ago
What next
I have received confirmation from the consultant that endoscopy confirms celiac disease and follow up is in a years time. Referred to dietician which has about a 2 month waiting time. However I have cut gluten out for a month now and although gut is calmer I still feel tired and not full of beans.
I have received confirmation from the consultant that endoscopy confirms celiac disease and follow up is in a years time. Referred to dietician which has about a 2 month waiting time. However I have cut gluten out for a month now and although gut is calmer I still feel tired and not full of beans.
Di64
in
Gluten Free Guerrillas
8 years ago
Mystery Solved! Solution is in your hands.
https://www.ncbi.nlm.gov/pmc/articles/PMC4559751/ Iron dysregulation in the BRAIN, not the body, is the culprit, per recent, above article. This lack of sufficient iron crossing the blood brain barrier has led to a shameful dopamine transport mechanism (abbreviated DAT in the article). A shameful dopamine
https://www.ncbi.nlm.gov/pmc/articles/PMC4559751/ Iron dysregulation in the BRAIN, not the body, is the culprit, per recent, above article. This lack of sufficient iron crossing the blood brain barrier has led to a shameful dopamine transport mechanism (abbreviated DAT in the article). A shameful dopamine
Hidden
in
Restless Legs Syndrome
8 years ago
My introduction...
Hi all My name is Ian, I'm 55 years old and have early onset Parkinson's disease. I was diagnosed in 2011, but had symptoms going back to the mid-90s. I had Deep Brain Stimulation surgery in April last year at the National Hospital for Neurology and Neurosurgery in London, and have a DBS recovery blog
Hi all My name is Ian, I'm 55 years old and have early onset Parkinson's disease. I was diagnosed in 2011, but had symptoms going back to the mid-90s. I had Deep Brain Stimulation surgery in April last year at the National Hospital for Neurology and Neurosurgery in London, and have a DBS recovery blog
Ianfrizell
in
Cure Parkinson's
8 years ago
RA & anaemia
My bloods showed I was anaemic , I was prescribed ferrous ferritin, I think that's right. I've now been told I'm not iron anaemic but, chronic disease anaemic???!! I didn't really say much as my appointment was with a gastroenterologist & he took me by surprise when he suddenly started talking about
My bloods showed I was anaemic , I was prescribed ferrous ferritin, I think that's right. I've now been told I'm not iron anaemic but, chronic disease anaemic???!! I didn't really say much as my appointment was with a gastroenterologist & he took me by surprise when he suddenly started talking about
jane1976
in
NRAS
8 years ago
Understanding
I'm new here I thought I would try this. I was diagnosed with Parkinson 7 year's ago. I've had DBS 5 year's ago. Going through a divorce, looking to meet a woman who understands PD . I have lived in Northern Ireland for 3 years. I own a house there and were I live now in Illinois. I'm not wealthy by
I'm new here I thought I would try this. I was diagnosed with Parkinson 7 year's ago. I've had DBS 5 year's ago. Going through a divorce, looking to meet a woman who understands PD . I have lived in Northern Ireland for 3 years. I own a house there and were I live now in Illinois. I'm not wealthy by
Hidden
in
Cure Parkinson's
8 years ago
Ferritin folate vitamin D and vitamin B12
Hi here are results for ferritin, folate, vitamin D and vitamin B12. Feedback is appreciated. Ferritin - 10 (15 - 150) Folate - 1.4 (2.5 - 19.5) Vitamin B12 - 183 (180 - 900) Vitamin D total - 44.2 (25 - 50 vitamin D deficiency. Supplementation is indicated)
Hi here are results for ferritin, folate, vitamin D and vitamin B12. Feedback is appreciated. Ferritin - 10 (15 - 150) Folate - 1.4 (2.5 - 19.5) Vitamin B12 - 183 (180 - 900) Vitamin D total - 44.2 (25 - 50 vitamin D deficiency. Supplementation is indicated)
Nikki58
in
Thyroid UK
8 years ago
Hashimoto PA and iron deficiency
Hi everyone Its been a while since I last wrote. So after long fight and many check ups as well as consult with haematologist I have been diagnosed with PA and began my injections. However recently I was feeling very bad (I have suspected developing hashimoto) so I went for a check up and my results
Hi everyone Its been a while since I last wrote. So after long fight and many check ups as well as consult with haematologist I have been diagnosed with PA and began my injections. However recently I was feeling very bad (I have suspected developing hashimoto) so I went for a check up and my results
madness07
in
Thyroid UK
8 years ago
1
...
71
72
73
...
100
Next page
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
Cure Parkinson's
777 results
Thyroid UK
645 results
Pernicious Anaemia Society
299 results
View top 10 communities
Sort by
Most Relevant
Newest