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Experiences with
D-bifunctional protein (DBP) deficiency
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DBS
Is it common to throw up right after DBS surgery. My sister is could it be the anesthesia??? U
Is it common to throw up right after DBS surgery. My sister is could it be the anesthesia??? U
GLENNM
in
Cure Parkinson's
6 years ago
IRON ADVICE
Does anyone know how long a gap I need to leave between taking my thyroxine/ T3 and my dispersible Iron supplement? I know they clash so I was wondering I really want an iron infusion. Can I pay for this? Does anyone have any leads? Thanks all.
Does anyone know how long a gap I need to leave between taking my thyroxine/ T3 and my dispersible Iron supplement? I know they clash so I was wondering I really want an iron infusion. Can I pay for this? Does anyone have any leads? Thanks all.
AuntieMandy
in
Thyroid UK
6 years ago
Next gen DBS
Anyone using the Vercise DBS devise? I am interested in any feedback. Also do you know any medical facilities that are using them in San Francisco Bay Area. Thx
Anyone using the Vercise DBS devise? I am interested in any feedback. Also do you know any medical facilities that are using them in San Francisco Bay Area. Thx
Jgenet
in
Cure Parkinson's
6 years ago
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B12 rejuvenation for most neurological problems.
Hi all am a 55y old female live in Scotland and was a staff nurse for years, had to take early retirement due to a diagnosis of MS in November 2014. I have a younger sister who had been diagnosed with MS 30 years ago, so knew the signs and symptoms. I have a 33y old daughter who has 3 young children,
Hi all am a 55y old female live in Scotland and was a staff nurse for years, had to take early retirement due to a diagnosis of MS in November 2014. I have a younger sister who had been diagnosed with MS 30 years ago, so knew the signs and symptoms. I have a 33y old daughter who has 3 young children,
Margomck32
in
Pernicious Anaemia Society
6 years ago
DBS, having MRI to determine if placement is correct
I had DBS 3 years ago. It is helping alot but still am on a roller coaster of off and on every two hours. The doc thinks I may not have the right placement of the ekectrodes in the brain. She is recommending an MRI to determine that. Then possibly another surgery to correct. Says that most people
I had DBS 3 years ago. It is helping alot but still am on a roller coaster of off and on every two hours. The doc thinks I may not have the right placement of the ekectrodes in the brain. She is recommending an MRI to determine that. Then possibly another surgery to correct. Says that most people
jebbers
in
Cure Parkinson's
6 years ago
What is a TBG lab test?
I was looking over my lab sheet for labs to be taken in two weeks and noticed my GP ordered Thyroid binding Globulins. It sounds like a reverse t4 when trying to understand it? I thought they ordered a TGab, but apparently that was not the case. What exactly will this result tell me? Oh how all your
I was looking over my lab sheet for labs to be taken in two weeks and noticed my GP ordered Thyroid binding Globulins. It sounds like a reverse t4 when trying to understand it? I thought they ordered a TGab, but apparently that was not the case. What exactly will this result tell me? Oh how all your
okaykay
in
Thyroid UK
6 years ago
Post DBS Surgery
It has now been five months since my DBS surgery. My brain is healing, the proof of which is that I am again reducing my meds. It is a balancing act - I increase what the Medtronic device is providing and decrease meds. My meds at this time are 1 extended release 25/100 sinemet and 1/4 regular relelase
It has now been five months since my DBS surgery. My brain is healing, the proof of which is that I am again reducing my meds. It is a balancing act - I increase what the Medtronic device is providing and decrease meds. My meds at this time are 1 extended release 25/100 sinemet and 1/4 regular relelase
annmariebaird
in
Cure Parkinson's
6 years ago
Post DBS Surgery
It has now been five months since my DBS surgery. My brain is healing, the proof of which is that I am again reducing my meds. It is a balancing act - I increase what the Medtronic device is providing and decrease meds. My meds at this time are 1 extended release 25/100 sinemet and 1/4 regular relelase
It has now been five months since my DBS surgery. My brain is healing, the proof of which is that I am again reducing my meds. It is a balancing act - I increase what the Medtronic device is providing and decrease meds. My meds at this time are 1 extended release 25/100 sinemet and 1/4 regular relelase
annmariebaird
in
Cure Parkinson's
6 years ago
Advice on "normal" vitamin levels in the blood
After doing some research and a bit of googling, I've discussed this with my GP and I've just had a blood test (last Friday) to check for the following: Vitamin D deficiency Vitamin B12 deficiency Folic Acid I have a lot of the symptoms of vitamin D deficiency and also B12. I'm hoping the surgery will
After doing some research and a bit of googling, I've discussed this with my GP and I've just had a blood test (last Friday) to check for the following: Vitamin D deficiency Vitamin B12 deficiency Folic Acid I have a lot of the symptoms of vitamin D deficiency and also B12. I'm hoping the surgery will
tigerlily72
in
Fibromyalgia Action UK
6 years ago
Do I need iron
Ferritin 18 (15 - 150) MCV 80 (83 - 98) MCHC 357 (310 - 350) Haemoglobin 115 (115 - 150) WBC 7.12 (4 - 12) RBC 4.41 (3.80 - 5.80) Haematocrit 0.41 (0.37 - 0.47) Platelets 254 (140 - 400) Iron 7 (6 - 26)
Ferritin 18 (15 - 150) MCV 80 (83 - 98) MCHC 357 (310 - 350) Haemoglobin 115 (115 - 150) WBC 7.12 (4 - 12) RBC 4.41 (3.80 - 5.80) Haematocrit 0.41 (0.37 - 0.47) Platelets 254 (140 - 400) Iron 7 (6 - 26)
MayaV
in
Thyroid UK
6 years ago
Calling all ectopic beaters!!❤❤
Hi all i am just recentley been told that i have a few intervals of ectopic beats after having a 24 hour monitor fitted, was told nothing to get my knickers in a twist about😊😊 told it could be thyroid disease, my meds-carbi, iron def-which i have. Just would like to know your experienes of them-any
Hi all i am just recentley been told that i have a few intervals of ectopic beats after having a 24 hour monitor fitted, was told nothing to get my knickers in a twist about😊😊 told it could be thyroid disease, my meds-carbi, iron def-which i have. Just would like to know your experienes of them-any
Rmichelle
in
Thyroid UK
6 years ago
Unithroid versus Generic Levothyroxine
Little over a week before my Endocrinology appointment I haven't had health insurance since November of 2017 I've had to switch amongst the leftover medications that I've had over the last 4 months switching from one brand unithroid to 2 different levothyroxine generic brands I've developed joint pain
Little over a week before my Endocrinology appointment I haven't had health insurance since November of 2017 I've had to switch amongst the leftover medications that I've had over the last 4 months switching from one brand unithroid to 2 different levothyroxine generic brands I've developed joint pain
palberts01
in
Thyroid UK
6 years ago
24 hour ecg monitor result and iron referral-gp appt just.🌟🌟🌟
Hi all again i have just had my gp appointment to sort out 2 things, 1st one was about my 24 hour monitor results, gp said they were normal but they have said at intervals my heart did do extra beats (ectopic?)and a slight rise in sinus rythum at intervals but they are happy no further investigation
Hi all again i have just had my gp appointment to sort out 2 things, 1st one was about my 24 hour monitor results, gp said they were normal but they have said at intervals my heart did do extra beats (ectopic?)and a slight rise in sinus rythum at intervals but they are happy no further investigation
Rmichelle
in
Thyroid UK
6 years ago
Restless leg cure
Has anyone heard of “deep brain stimulation” as a cure for restless leg syndrome. I have acute hereditary rls and read that Baylor College of Medicine (https://www.bcm.edu/healthcare/care-centers/parkinsons/conditions/restless-legs-syndrome) has a confirm case where the cured RLS through deep brain stimulation
Has anyone heard of “deep brain stimulation” as a cure for restless leg syndrome. I have acute hereditary rls and read that Baylor College of Medicine (https://www.bcm.edu/healthcare/care-centers/parkinsons/conditions/restless-legs-syndrome) has a confirm case where the cured RLS through deep brain stimulation
Jakba2003
in
Restless Legs Syndrome
6 years ago
RLS and Iron deficiency
I have recently seen an American site describing treatment for RLS based on Injections of Iron. I believe it originated at the John Hopkins Hospital and I wonder if anyone in the UK is using this treatment
I have recently seen an American site describing treatment for RLS based on Injections of Iron. I believe it originated at the John Hopkins Hospital and I wonder if anyone in the UK is using this treatment
rlsyndrome
in
Restless Legs Syndrome
6 years ago
Help with interpreting blood test results. What's the next step?
My god-daughter has just received more blood test results, some of which are in the photo attached. She previously had low B12 (for which she is now receiving loading injections), and also low serum folate, low iron, low transferrin saturation, and tested positive for Hashimoto's and Lactate Dehydrogenase
My god-daughter has just received more blood test results, some of which are in the photo attached. She previously had low B12 (for which she is now receiving loading injections), and also low serum folate, low iron, low transferrin saturation, and tested positive for Hashimoto's and Lactate Dehydrogenase
njames50
in
Pernicious Anaemia Society
6 years ago
DBS breakthrough - the patient will no longer need to be awake during the surgery
Parkinson's disease sufferers able to sleep through brain surgery after breakthrough: http://www.abc.net.au/news/2018-05-05/parkinsons-disease-breakthrough-deep-brain-stimulation/9730850
Parkinson's disease sufferers able to sleep through brain surgery after breakthrough: http://www.abc.net.au/news/2018-05-05/parkinsons-disease-breakthrough-deep-brain-stimulation/9730850
jeffreyn
in
Cure Parkinson's
6 years ago
Dbs recover
How long after DBS and after initial programming when do you see improvement. I have done the two surgeries and at my initial programming. I was told to increase power by 1 each day and to stay on same Meds. No relief yet
How long after DBS and after initial programming when do you see improvement. I have done the two surgeries and at my initial programming. I was told to increase power by 1 each day and to stay on same Meds. No relief yet
Bobby145
in
Cure Parkinson's
6 years ago
Starving Cancer with Methionine Restriction -
Hello, This short video explains that cancers require Methionine to grow. Methionine is an Essential Amino Acid that only comes from food. It is in the highest amount in fish, chicken , meat and Dairy. It is not in as high amounts in non animal product foods. Thoughts? Nutritionfacts.org is an amazing
Hello, This short video explains that cancers require Methionine to grow. Methionine is an Essential Amino Acid that only comes from food. It is in the highest amount in fish, chicken , meat and Dairy. It is not in as high amounts in non animal product foods. Thoughts? Nutritionfacts.org is an amazing
Hoffy
in
CLL Support
6 years ago
Anybody ready to share his impressions after DBS surgery? Second question: Mannitol consumption - does it work for Parkinson's? Best regards
Anybody ready to share his impressions after DBS surgery? Second question: Mannitol consumption - does it work for Parkinson's? Best regards
Anybody ready to share his impressions after DBS surgery? Second question: Mannitol consumption - does it work for Parkinson's? Best regards
Drimon
in
Cure Parkinson's
6 years ago
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