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Experiences with
D-bifunctional protein (DBP) deficiency
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Too soon to be tested?
I have an endo appointment on Tuesday to review meds. I’ve just checked my diary and discovered that the next bloods will be drawn just over 4 weeks since my T3 dose was doubled and my T4 increased from 50 to 75mcg. I thought it was longer. I’ve asked questions recently about this describing feeling
I have an endo appointment on Tuesday to review meds. I’ve just checked my diary and discovered that the next bloods will be drawn just over 4 weeks since my T3 dose was doubled and my T4 increased from 50 to 75mcg. I thought it was longer. I’ve asked questions recently about this describing feeling
Mickeydooley
in
Thyroid UK
5 years ago
Chiropractic care to reduce “Pisa (leaning tower posture”.
Has anybody tried Chiropractic care to straighten spine? Husband with DBS, pd falls constantly, severe leaning to right. Interested in knowing if this helped you with posture.
Has anybody tried Chiropractic care to straighten spine? Husband with DBS, pd falls constantly, severe leaning to right. Interested in knowing if this helped you with posture.
Parkiewife
in
Cure Parkinson's
5 years ago
Job.
Hi ladies and gents. I have got a part-time cleaning job at a local school. I have applied for my enhanced DBS even though I already have one. I go to register on Wednesday and will probably start work after Christmas now. I am feeling very well in myself. I have been reading my books on Narcissistic
Hi ladies and gents. I have got a part-time cleaning job at a local school. I have applied for my enhanced DBS even though I already have one. I go to register on Wednesday and will probably start work after Christmas now. I am feeling very well in myself. I have been reading my books on Narcissistic
Poulson
in
Action on Postpartum Psychosis
5 years ago
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Hot Springs while B12 and Iron Deficiency?
I have these deficiencies while the reason (such PA) is still assessed. In the meantime I'm being treated with b12 injections and I wonder whether bath in hot springs (such sulfur) is healthy for my symptoms or rather dangerous? I have many symptoms including muscle weakness, tightness and pain So I
I have these deficiencies while the reason (such PA) is still assessed. In the meantime I'm being treated with b12 injections and I wonder whether bath in hot springs (such sulfur) is healthy for my symptoms or rather dangerous? I have many symptoms including muscle weakness, tightness and pain So I
Shajarin
in
Pernicious Anaemia Society
5 years ago
NY Times Report: 9 PwP Lost Ability to Swim After DBS
This is a blow for those of us looking at DBS further down the road as a possible last-resort therapy, but I guess it will be a matter of weighing up the pros and cons when we have to confront the choice to go ahead or not. Has anyone in this community who’s had DBS encountered the same issue? https
This is a blow for those of us looking at DBS further down the road as a possible last-resort therapy, but I guess it will be a matter of weighing up the pros and cons when we have to confront the choice to go ahead or not. Has anyone in this community who’s had DBS encountered the same issue? https
Skydome
in
Cure Parkinson's
5 years ago
Do other dopamine boosters also cause augmentation?
I’m experiencing really bad RLS augmentation from supplementing with L-Dopa for three months, but wondering if I switch to other dopamine boosters such as Chlonine, Uridine, L-theanine, will the effect be the same? For context, this is what they specifically do: https://www.mindlabpro.com/blogs/nootropics
I’m experiencing really bad RLS augmentation from supplementing with L-Dopa for three months, but wondering if I switch to other dopamine boosters such as Chlonine, Uridine, L-theanine, will the effect be the same? For context, this is what they specifically do: https://www.mindlabpro.com/blogs/nootropics
RoDomHarr
in
Restless Legs Syndrome
5 years ago
Duopa pump and my day at work
Today at work in the interventional radiology department, i had a patient that was a pwp. He was there to have a tube replacement for his duopa pump system. This was new to me, so I am going to discuss it here for those who have also never heard of it . The duopa system is a wearable external pump that
Today at work in the interventional radiology department, i had a patient that was a pwp. He was there to have a tube replacement for his duopa pump system. This was new to me, so I am going to discuss it here for those who have also never heard of it . The duopa system is a wearable external pump that
bassofspades
in
Cure Parkinson's
5 years ago
DBS does it help to stop progression
I'm considering DBS I'd like to know if it stops progression of PD does it help in all areas of PD and where can I find the success rate of this surgery Thanks
I'm considering DBS I'd like to know if it stops progression of PD does it help in all areas of PD and where can I find the success rate of this surgery Thanks
Yhae
in
Cure Parkinson's
5 years ago
Has anyone tried Nicotine to reduce Dyskinesia?
I am wondering if anyone has tried Nicotine to reduce severe episodes of dyskinesia brought on by levadopa. I watched some amazing videos by a girl named Jasmine Sturr. She has has early onset pediatric PD. She ended up doing DBS and then inventing her own levadopa pump with her feeding tube. She went
I am wondering if anyone has tried Nicotine to reduce severe episodes of dyskinesia brought on by levadopa. I watched some amazing videos by a girl named Jasmine Sturr. She has has early onset pediatric PD. She ended up doing DBS and then inventing her own levadopa pump with her feeding tube. She went
Leylaleyla
in
Cure Parkinson's
5 years ago
Low Fasting Gastrin.
Hey guys, I had a blood test done recently and got some of the normal tests done. I got a CBC and HGB/HCT came back normal and I got an MMA test done and it came back at 99 (0-378 normal) so all of that checks out. This time though I did get a serum gastrin test for the first time. It came back at
Hey guys, I had a blood test done recently and got some of the normal tests done. I got a CBC and HGB/HCT came back normal and I got an MMA test done and it came back at 99 (0-378 normal) so all of that checks out. This time though I did get a serum gastrin test for the first time. It came back at
lownskater52
in
Pernicious Anaemia Society
5 years ago
Iron deficient anemia and liver disease
I have been feeling breathless and unusually tired of late with episodes of clamminess and heart pounding. My latest blood panel revealed that my MCH is well below normal and I have iron deficient anemia (anaemia for the Brits.) MCH stands for "mean corpuscular hemoglobin." MCH levels refer to the average
I have been feeling breathless and unusually tired of late with episodes of clamminess and heart pounding. My latest blood panel revealed that my MCH is well below normal and I have iron deficient anemia (anaemia for the Brits.) MCH stands for "mean corpuscular hemoglobin." MCH levels refer to the average
canadaliz
in
British Liver Trust
5 years ago
Struggleing
Ok I will show latest blood results 7 months on imbrutinib fist 3/4 months were absolutely fantastic! Now 7 month in and wbc down to 31k but fatigue has returned triple fold and truly just don’t feel well ruled out a virus and a little worried hematologist states could just be my body adjusting to new
Ok I will show latest blood results 7 months on imbrutinib fist 3/4 months were absolutely fantastic! Now 7 month in and wbc down to 31k but fatigue has returned triple fold and truly just don’t feel well ruled out a virus and a little worried hematologist states could just be my body adjusting to new
haposwald
in
CLL Support
5 years ago
Where to get an iron infusion?
Some people are having trouble finding where to go for an iron infusion at a reasonable price. If your anemic its no problem and your GP should arrange it for you with no questions. If your not anemic it seems you have to go to a private clinic or hospital and pay for it. If your not anemic and you have
Some people are having trouble finding where to go for an iron infusion at a reasonable price. If your anemic its no problem and your GP should arrange it for you with no questions. If your not anemic it seems you have to go to a private clinic or hospital and pay for it. If your not anemic and you have
Graham3196
in
Restless Legs Syndrome
5 years ago
Grapefruit
I hate this iPhone X it is the worst go for staying on sites I’m wth on Th the leaders wrote oa book forever ago but was rvomended for me to read Zhttps://www.amazon.co.uk/Parkinsons-Disease-Reducing-Symptoms-Nutrition/dp/0952605694 I’ve not read it because I leant mine to someone in my group in Horsham
I hate this iPhone X it is the worst go for staying on sites I’m wth on Th the leaders wrote oa book forever ago but was rvomended for me to read Zhttps://www.amazon.co.uk/Parkinsons-Disease-Reducing-Symptoms-Nutrition/dp/0952605694 I’ve not read it because I leant mine to someone in my group in Horsham
Lucyitswd
in
Cure Parkinson's
5 years ago
New App for Parkinson’s DBS from Medtronic/Samsung
https://venturebeat.com/2019/10/30/samsung-and-medtronic-use-app-for-parkinsons-disease-patient-therapy/
https://venturebeat.com/2019/10/30/samsung-and-medtronic-use-app-for-parkinsons-disease-patient-therapy/
Hidden
in
Cure Parkinson's
5 years ago
What are DBS machines available in market..., How the recharge is doing for battery.
kindly help on this.
kindly help on this.
Vishwa228
in
Cure Parkinson's
5 years ago
Sulphazaine and anaemia
Hi In new to the group.... Has anyone developed anaemia resulting from taking Sulphasazine ? This was my first treatment I was just starting week 6 of taking this drug when my hb went down to 72. My platelets and other blood work was degranged. I had to have a blood transfusion My consultant was adamant
Hi In new to the group.... Has anyone developed anaemia resulting from taking Sulphasazine ? This was my first treatment I was just starting week 6 of taking this drug when my hb went down to 72. My platelets and other blood work was degranged. I had to have a blood transfusion My consultant was adamant
Nwad68
in
NRAS
5 years ago
Injection frequency for Vitamin B12
I have been diagnosed with severe deficiency of B12 a month ago. My B12 level was 95 pmol/l (which is 42.27 ng/ml) and Active B12 level was 18 pmol/l (8.01 ng/ml) . I presented my GP and Neurologist with slow movements of right arm, right hand fingers and leg. I have sort of little burning sensation
I have been diagnosed with severe deficiency of B12 a month ago. My B12 level was 95 pmol/l (which is 42.27 ng/ml) and Active B12 level was 18 pmol/l (8.01 ng/ml) . I presented my GP and Neurologist with slow movements of right arm, right hand fingers and leg. I have sort of little burning sensation
lucldh
in
Pernicious Anaemia Society
5 years ago
Ferritin vs HB as proxy for iron deficiency / iron anaemia
Hi, My first time commenting here! When assessing a child for their likelihood of having a coeliac condition - a child with an IG(A) deficiency, what vitamin insufficiencies do you look at to support or rule out a potential case. My son’s doctor has said that the only important thing to look at, when
Hi, My first time commenting here! When assessing a child for their likelihood of having a coeliac condition - a child with an IG(A) deficiency, what vitamin insufficiencies do you look at to support or rule out a potential case. My son’s doctor has said that the only important thing to look at, when
HowNowWhatNow
in
Gluten Free Guerrillas
5 years ago
DBS after 5 to 10years people experiences
anyone using DBS from past 10 Years, if Yes, how is the condition now.. is the PD stabilized or progressed?
anyone using DBS from past 10 Years, if Yes, how is the condition now.. is the PD stabilized or progressed?
Vishwa228
in
Cure Parkinson's
5 years ago
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