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D-bifunctional protein (DBP) deficiency
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Remote DBS in China
Remote surgery will start to become popular with 5g networks. 5G is being used to perform remote surgery from thousands of miles away, and it could transform the healthcare industry https://www.businessinsider.com/5g-surgery-could-transform-healthcare-industry-2019-8?utmSource=twitter&utmContent=referral
Remote surgery will start to become popular with 5g networks. 5G is being used to perform remote surgery from thousands of miles away, and it could transform the healthcare industry https://www.businessinsider.com/5g-surgery-could-transform-healthcare-industry-2019-8?utmSource=twitter&utmContent=referral
Hidden
in
Cure Parkinson's
5 years ago
Does DBS improve sleep?
Has anyone who has had DBS found that it improved their non motor symptoms, especially sleep?
Has anyone who has had DBS found that it improved their non motor symptoms, especially sleep?
jackedmonston
in
Cure Parkinson's
5 years ago
DBS results please
Since I am beginniing to seriously consider DBS I would appreciate your comments regarding results, positive and negative,, and when and where was your surgery. Many thanks
Since I am beginniing to seriously consider DBS I would appreciate your comments regarding results, positive and negative,, and when and where was your surgery. Many thanks
jombi
in
Cure Parkinson's
5 years ago
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10 Days Ago it was DBS
Always stated to my neurologists and physical therapist for over three years now to please tell me things straight up, so they did. A few weeks ago i had my 6 month check-up, doc said "Mark you might want to consider looking into DBS, because at 1250mg of c/l per day your pushing the max level for what
Always stated to my neurologists and physical therapist for over three years now to please tell me things straight up, so they did. A few weeks ago i had my 6 month check-up, doc said "Mark you might want to consider looking into DBS, because at 1250mg of c/l per day your pushing the max level for what
TheLordsWeapon
in
Cure Parkinson's
5 years ago
Opicapone
My husband was given Opicapone about 18 months ago but stopped taking it for some reason. He started taking it again just over a month ago. He found immediate improvement with it eg. not having to go to the toilet so often during the night but he is finding it difficult to get the correct dose. It does
My husband was given Opicapone about 18 months ago but stopped taking it for some reason. He started taking it again just over a month ago. He found immediate improvement with it eg. not having to go to the toilet so often during the night but he is finding it difficult to get the correct dose. It does
JeanieBeanie
in
Cure Parkinson's
5 years ago
Cervical Dystonia
Hi everyone, I have had cervical dystonia for 30 years and been through many treatments.I wasn't diagnosed for 10 years and struggled on a daily basis, that was until I presented myself at the local hospital and received 1000 units of BOTOX.I had BOTOX injections for 10 years until it became ineffective.At
Hi everyone, I have had cervical dystonia for 30 years and been through many treatments.I wasn't diagnosed for 10 years and struggled on a daily basis, that was until I presented myself at the local hospital and received 1000 units of BOTOX.I had BOTOX injections for 10 years until it became ineffective.At
JJJ160
in
Dystonia Society
5 years ago
fbc pls help me understand resaults if you do
this is te resaults rbc 5.86 [4.20-5.40] hct 39.3 [37.0-47.0] mch 20.65 [27.00-32.00] mcv67.06 [82.00-92.00] mchc 3079 [32.00-36,00] rdw-cv 16.0 [115-14.5] pdw 17.4 [9.0- 17.0] pct 0.36 [0.19-0.29] lymphocytes 4.17 [0.95-3.07] all in brackets are the normal
this is te resaults rbc 5.86 [4.20-5.40] hct 39.3 [37.0-47.0] mch 20.65 [27.00-32.00] mcv67.06 [82.00-92.00] mchc 3079 [32.00-36,00] rdw-cv 16.0 [115-14.5] pdw 17.4 [9.0- 17.0] pct 0.36 [0.19-0.29] lymphocytes 4.17 [0.95-3.07] all in brackets are the normal
weazle74
in
Pernicious Anaemia Society
5 years ago
Does DBS control non motor problems, like sleep?
I’ve been diagnosed six years now (I’m 76). Three years in, my neurologist suggested DBS so I spoke to a neurosurgeon who has done many of these procedures. He said DBS works on “motor symptoms only.” Since medicine works for me, I did not go ahead. Recently I spoke to a friend in biotech who
I’ve been diagnosed six years now (I’m 76). Three years in, my neurologist suggested DBS so I spoke to a neurosurgeon who has done many of these procedures. He said DBS works on “motor symptoms only.” Since medicine works for me, I did not go ahead. Recently I spoke to a friend in biotech who
jackedmonston
in
Cure Parkinson's
5 years ago
So cold!
Hi, have Sys. Sclerosis ...I am not having a good time just now....or for quite a while.... I am feeling cold all the time. It is strange because it seems to be from my 'core' like I am not generating heat to warm my body, if that makes any sense! I have had a quilt around me on the livingroom couch
Hi, have Sys. Sclerosis ...I am not having a good time just now....or for quite a while.... I am feeling cold all the time. It is strange because it seems to be from my 'core' like I am not generating heat to warm my body, if that makes any sense! I have had a quilt around me on the livingroom couch
marilynmcl
in
Scleroderma & Raynaud's UK (SRUK)
5 years ago
Can I refer to fatigue during Ibrutinib treatment as anemia although iron is normal
Anemia with normal iron
Anemia with normal iron
onu1tadi2
in
CLL Support
5 years ago
Did not expect this..
Saw my neuro today... I'v been taking c/l and requip. Doc said with the amount of c/l I'm currently on 250mg 6 times a day and only getting 60-90 min of relief and my age (57) I would be the perfect candidate for DBS surgery which might grant me 10-15 years of a better quality of life. I asked if he
Saw my neuro today... I'v been taking c/l and requip. Doc said with the amount of c/l I'm currently on 250mg 6 times a day and only getting 60-90 min of relief and my age (57) I would be the perfect candidate for DBS surgery which might grant me 10-15 years of a better quality of life. I asked if he
TheLordsWeapon
in
Cure Parkinson's
5 years ago
Person with parkinsons disease
I was diagnosed in 2002 When l went to my local dr. With some symptoms of mind games, dragging one leg, writing getting scribbymas l continued writing, hard to sign my name, but no tremors yet, my dr. Sent me to a neurologist who when l told him of the symptoms, stated l had early signs of Parkinson’
I was diagnosed in 2002 When l went to my local dr. With some symptoms of mind games, dragging one leg, writing getting scribbymas l continued writing, hard to sign my name, but no tremors yet, my dr. Sent me to a neurologist who when l told him of the symptoms, stated l had early signs of Parkinson’
Bernieneedfixing
in
Cure Parkinson's
5 years ago
Do I have iron deficiency?
Hi all. Can anyone please have a look and see what they think of my results, if I am possibly deficient in iron? To me it looks like my iron serum & transferrin saturation are on the low side. However my ferritin is in the normal range, so my doctor has said I'm fine. BUT I don't feel fine. I have
Hi all. Can anyone please have a look and see what they think of my results, if I am possibly deficient in iron? To me it looks like my iron serum & transferrin saturation are on the low side. However my ferritin is in the normal range, so my doctor has said I'm fine. BUT I don't feel fine. I have
kingfisher51
in
Thyroid UK
5 years ago
Low Ferritin
Hello, I was diagnosed with iron-deficiency anemia and I am Vitamin B12 deficient. I received a blood test in June, and it showed that my ferritin level was a 4! My doctor immediately put me on prescription iron (I said absolutely not to an iron infusion), but I had to stop taking the iron because it
Hello, I was diagnosed with iron-deficiency anemia and I am Vitamin B12 deficient. I received a blood test in June, and it showed that my ferritin level was a 4! My doctor immediately put me on prescription iron (I said absolutely not to an iron infusion), but I had to stop taking the iron because it
stovall1992
in
Pernicious Anaemia Society
5 years ago
Hashimotos and iron deficiency anaemia
I have just been diagnosed with severe IDA - had to have an emergency iron infusion on Wednesday to preclude a blood transfusion. Feeling still exhausted but dizziness and headache gone Question is has anyone heard of an association between thyroid problems and iron deficiency ( which postdates the
I have just been diagnosed with severe IDA - had to have an emergency iron infusion on Wednesday to preclude a blood transfusion. Feeling still exhausted but dizziness and headache gone Question is has anyone heard of an association between thyroid problems and iron deficiency ( which postdates the
smwdorset
in
Thyroid UK
5 years ago
Iron Tablets vs Liquid
Last ten months, I’ve been taking 2 x 65mg Ferrous Fumarate tablets daily for iron deficiency. There is improvement in results albeit it’s been gradual. Currently travelling and come across a liquid preparation, called FPur by Althea, elementary iron, 0.1ml = 2mg. Can anybody advise whether then,
Last ten months, I’ve been taking 2 x 65mg Ferrous Fumarate tablets daily for iron deficiency. There is improvement in results albeit it’s been gradual. Currently travelling and come across a liquid preparation, called FPur by Althea, elementary iron, 0.1ml = 2mg. Can anybody advise whether then,
Sami-M
in
Thyroid UK
5 years ago
Iron supplementation and TSH levels
I don't know how it is in the UK, but dealing with drs and lab tests here in the US can be highly frustrating. My Endo doesn't check for Ferritin, Iron, etc with my TSH tests. So I did them myself. I also have an acupuncturist who has been helping me as a functional dr since most Western Drs here
I don't know how it is in the UK, but dealing with drs and lab tests here in the US can be highly frustrating. My Endo doesn't check for Ferritin, Iron, etc with my TSH tests. So I did them myself. I also have an acupuncturist who has been helping me as a functional dr since most Western Drs here
bessygo
in
Thyroid UK
5 years ago
Canadian guideline for Parkinson disease
KEY POINTS This guideline update reflects substantial changes in the literature on diagnosis and treatment of Parkinson disease, and adds information on palliative care. Impulse control disorders can develop in a person with Parkinson disease who is on any dopaminergic therapy at any stage in the disease
KEY POINTS This guideline update reflects substantial changes in the literature on diagnosis and treatment of Parkinson disease, and adds information on palliative care. Impulse control disorders can develop in a person with Parkinson disease who is on any dopaminergic therapy at any stage in the disease
Farooqji
in
Cure Parkinson's
5 years ago
GP wants to reduce my dose
Hi all I'm taking 125 mcg of levothyroxine and 20mcg of liothyronine. My levothyroxine had been increased by 25 mcg approx January this year as I had ongoing fatigue symptoms. GP had suggested levo increase. At the same time, he tested iron and that was found to be a little low. He prescribed me Syrton
Hi all I'm taking 125 mcg of levothyroxine and 20mcg of liothyronine. My levothyroxine had been increased by 25 mcg approx January this year as I had ongoing fatigue symptoms. GP had suggested levo increase. At the same time, he tested iron and that was found to be a little low. He prescribed me Syrton
helen_m
in
Thyroid UK
5 years ago
Adaptive Deep Brain Stimulation as an Advanced Parkinson’s disease Treatment (ADAPT): a pseudorandomised clinical trial
https://www.biorxiv.org/content/10.1101/749903v1?rss=1
https://www.biorxiv.org/content/10.1101/749903v1?rss=1
Farooqji
in
Cure Parkinson's
5 years ago
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