Search
Search
About
Log in
Join
Experiences with
D-bifunctional protein (DBP) deficiency
Posts
Communities
2,097 public posts
Filter results
Iron
Hi all, I just wanted to say that when my Iron was very low back in 2016 I decided to take Floradix liquid iron and my result went up from 73 to 111 in 5months The hospital were considering a blood transfusion when it was 73 but decided to prescribe iron tablets which I did not take but took Floradix
Hi all, I just wanted to say that when my Iron was very low back in 2016 I decided to take Floradix liquid iron and my result went up from 73 to 111 in 5months The hospital were considering a blood transfusion when it was 73 but decided to prescribe iron tablets which I did not take but took Floradix
ginid
in
Thyroid UK
3 years ago
Question about IV iron for anyone who has gotten an infusion.
Hey guys. Just asking this out of curiosity. But has anyone actually had RLS go away or improve after an IV iron infusion? I got one back in October and didn’t notice a perceivable difference. Pretty sure my levels are on the lower end now, so I’m getting an iron panel tomorrow but I just wanted to see
Hey guys. Just asking this out of curiosity. But has anyone actually had RLS go away or improve after an IV iron infusion? I got one back in October and didn’t notice a perceivable difference. Pretty sure my levels are on the lower end now, so I’m getting an iron panel tomorrow but I just wanted to see
Jademarie1
in
Restless Legs Syndrome
3 years ago
Blood test results and confused
Hi All, Still waiting to be seen by ENT. Meanwhile here is the result of blood test, can anyone help me understand if i've suddenly switched from hypothyriod to hyperthyriod? Is it possible and if so what is the next steps? Thank you.x TSH - 0.04mU/L (0.30 - 4.20mU/L) T3 - 5.6pmol/L (2.40-6.00pmol/L)
Hi All, Still waiting to be seen by ENT. Meanwhile here is the result of blood test, can anyone help me understand if i've suddenly switched from hypothyriod to hyperthyriod? Is it possible and if so what is the next steps? Thank you.x TSH - 0.04mU/L (0.30 - 4.20mU/L) T3 - 5.6pmol/L (2.40-6.00pmol/L)
noteboo
in
Thyroid UK
3 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Diagnosis - Vitamin B12 or folate deficiency anaemia
The public-facing NHS England page about
[i]Diagnosis - Vitamin B12 or folate deficiency anaemia[/i]
includes this: [i]A particular drawback of testing vitamin B12 levels is that the current widely used blood test only measures the total amount of vitamin B12 in your blood. This means it measures
The public-facing NHS England page about
[i]Diagnosis - Vitamin B12 or folate deficiency anaemia[/i]
includes this: [i]A particular drawback of testing vitamin B12 levels is that the current widely used blood test only measures the total amount of vitamin B12 in your blood. This means it measures
helvella
in
Pernicious Anaemia Society
3 years ago
Typical med progression?
My friend started taking l-dopa within the past year. She works fulltime and her workplace isn't aware of her diagnosis. Currently she's taking 8 Sinemet 100mg daily, plus 3 or 4 Rytary 145mg. She also takes sleeping medication, and botox for curled toes. She's reading articles on DBS. Any advice
My friend started taking l-dopa within the past year. She works fulltime and her workplace isn't aware of her diagnosis. Currently she's taking 8 Sinemet 100mg daily, plus 3 or 4 Rytary 145mg. She also takes sleeping medication, and botox for curled toes. She's reading articles on DBS. Any advice
genesurf
in
Cure Parkinson's
3 years ago
Fred the iron molecules tale : The end
This will only make sense if you’ve read my previous post https://healthunlocked.com/rlsuk/posts/146515820/fred-the-iron-molecule-and-rls-a-story. There was a question in this post and I promised the writer of the best answer a chocolate muffin. It’s my opinion that the best information was provided
This will only make sense if you’ve read my previous post https://healthunlocked.com/rlsuk/posts/146515820/fred-the-iron-molecule-and-rls-a-story. There was a question in this post and I promised the writer of the best answer a chocolate muffin. It’s my opinion that the best information was provided
Hidden
in
Restless Legs Syndrome
3 years ago
Fred the iron molecule, and RLS : A story.
A story with no ending. If you don't like stories skip to "THE END" I have an ex-colleague who used to teach physiology using guided imagery. I attended one of her lectures once on the oxygenation of blood. All the students had to close their eyes and sit, (or lie down) comfortably. Then she began
A story with no ending. If you don't like stories skip to "THE END" I have an ex-colleague who used to teach physiology using guided imagery. I attended one of her lectures once on the oxygenation of blood. All the students had to close their eyes and sit, (or lie down) comfortably. Then she began
Hidden
in
Restless Legs Syndrome
3 years ago
Post DBS experience by Benjamin stretcher
https://tmrwedition.com/2021/08/28/gratitude/amp/
https://tmrwedition.com/2021/08/28/gratitude/amp/
Farooqji
in
Cure Parkinson's
3 years ago
AMANTADINE FOR DYSKINESIA. HAVE YOU AN EXPERIENCE WITH THIS DRUG? PLEASE HELP.
Hi, I might consider this drug for Dyskinesia, if it gets too severe. My MDS is a little reluctant to prescribe it, because he says it may cause insomnia. Nevertheless, is this drug working for your dyskinesia? How long before it started working for you? My doctor said it could take 4 to 8 weeks.
Hi, I might consider this drug for Dyskinesia, if it gets too severe. My MDS is a little reluctant to prescribe it, because he says it may cause insomnia. Nevertheless, is this drug working for your dyskinesia? How long before it started working for you? My doctor said it could take 4 to 8 weeks.
OREOLU
in
Cure Parkinson's
3 years ago
Low iron but normal ferritin levels. Iron tablets?
Hi. My symptoms of RLS have become noticeably worse in the last 9 months. I had my levels tested in March this year and my ferritin was 35 and my iron was 6.7. I was given an iron infusion which raised my ferritin to 172 and my iron to 8.1, which is still low (11 to 18 is normal). I noticed my RLS symptoms
Hi. My symptoms of RLS have become noticeably worse in the last 9 months. I had my levels tested in March this year and my ferritin was 35 and my iron was 6.7. I was given an iron infusion which raised my ferritin to 172 and my iron to 8.1, which is still low (11 to 18 is normal). I noticed my RLS symptoms
oceanred
in
Restless Legs Syndrome
3 years ago
Questions about Topamax
Hi, Everyone. Haven't been on here in a while. My doc wants me to take topamax. This is to reduce migraines but I've read it also might help RLS. Does anyone here know if it causes augmentation (since it's a dopamine agonist)? Any other info you can offer would be helpful, too. Side effects? She's
Hi, Everyone. Haven't been on here in a while. My doc wants me to take topamax. This is to reduce migraines but I've read it also might help RLS. Does anyone here know if it causes augmentation (since it's a dopamine agonist)? Any other info you can offer would be helpful, too. Side effects? She's
Restlesssinger
in
Restless Legs Syndrome
3 years ago
Update on op
Hi everyone, Well you are not going to believe this, but, my op got cancelled, 3.30pm today, ran out of time, the op is going to be a lot bigger than they thought, surgeon told me I will need bone graft taken from my lower leg to build up bone on hip, plus muscle transfer. He’s on holiday now for
Hi everyone, Well you are not going to believe this, but, my op got cancelled, 3.30pm today, ran out of time, the op is going to be a lot bigger than they thought, surgeon told me I will need bone graft taken from my lower leg to build up bone on hip, plus muscle transfer. He’s on holiday now for
2013mayo
in
PMRGCAuk
3 years ago
High B12 without injections - Symptoms of deficiency
TL;DR: Has anyone had levels of B12 above the standard reference range (while never having had any B12 injections) before getting diagnosed with PA? Hi, over the last couple of years Ive suffered from what I believe was bouts of anemia which I recovered using iron and B12 supplementation. After suffering
TL;DR: Has anyone had levels of B12 above the standard reference range (while never having had any B12 injections) before getting diagnosed with PA? Hi, over the last couple of years Ive suffered from what I believe was bouts of anemia which I recovered using iron and B12 supplementation. After suffering
pk97
in
Pernicious Anaemia Society
3 years ago
What I have learned from 1 year with Early Onset PD - "Glass Half Full"
I decided to keep a journal of my journey - it has been quite a year but I have learned a lot. some of which maybe relevant for new and older PD people. I am not a doctor and this is not a medical opinion but there is lots available to make a stand against PD https://fightparkinsonsdisease.files.wordpress.com
I decided to keep a journal of my journey - it has been quite a year but I have learned a lot. some of which maybe relevant for new and older PD people. I am not a doctor and this is not a medical opinion but there is lots available to make a stand against PD https://fightparkinsonsdisease.files.wordpress.com
blazyb
in
Cure Parkinson's
3 years ago
curcumin supplementation interfering with iron?
I am wondering if this Google article holds any truth. (I am low in ferritin and working on increasing it thru iron supplementation with Vit C) Turmeric And Iron Deficiency: Can too much turmeric intake lead to iron deficiency? "Turmeric And Iron Deficiency: Can too much turmeric intake lead to iron
I am wondering if this Google article holds any truth. (I am low in ferritin and working on increasing it thru iron supplementation with Vit C) Turmeric And Iron Deficiency: Can too much turmeric intake lead to iron deficiency? "Turmeric And Iron Deficiency: Can too much turmeric intake lead to iron
kicker2
in
Restless Legs Syndrome
3 years ago
Got my T3 today
Hi, Endo started on a trial of T3 for 3 months 20mcg tablets but 10mcg with my 100 Levo I'm taking I'm not sure how to take it I take my 100 Levo at night about 9.30 if I'm right 10mcg is about 30mcg of Levo? I've also got to take Iron tablets as low end range iron which I thought my Gp said
Hi, Endo started on a trial of T3 for 3 months 20mcg tablets but 10mcg with my 100 Levo I'm taking I'm not sure how to take it I take my 100 Levo at night about 9.30 if I'm right 10mcg is about 30mcg of Levo? I've also got to take Iron tablets as low end range iron which I thought my Gp said
Hidden
in
Thyroid UK
3 years ago
Is Carbidopa/Levodopa 8x’s a day to much when you have the DBS?
My setting is on 3.30 left side, 1.00 right side. My doctor seems to give me more medicine instead of turning it up and I feel like it is causing a lot more symptoms.
My setting is on 3.30 left side, 1.00 right side. My doctor seems to give me more medicine instead of turning it up and I feel like it is causing a lot more symptoms.
Squarles2
in
Cure Parkinson's
3 years ago
Sharing DBS Journey
Hi, Just wanted to share my dad's process in case it will help anyone... He was diagnosed at 54 years old and will be 70 next month. He is rigidity dominant, experiences freezing of gait (mainly in initiating) and has dyskinesias from his meds (among many other PD symptoms!). Up until almost two years
Hi, Just wanted to share my dad's process in case it will help anyone... He was diagnosed at 54 years old and will be 70 next month. He is rigidity dominant, experiences freezing of gait (mainly in initiating) and has dyskinesias from his meds (among many other PD symptoms!). Up until almost two years
pdkid
in
Cure Parkinson's
3 years ago
From Low to Extremely high Ferritin - inflammation?
After months of my ferritin level at 7 (about 10 months) last year in August I had another blood test and it leaped up to 534. My dr said that it was artificially high because he saw some inflammatory marker, (I can’t say which one it was). A year later, blood test found it is 391. I had no iron supplementation
After months of my ferritin level at 7 (about 10 months) last year in August I had another blood test and it leaped up to 534. My dr said that it was artificially high because he saw some inflammatory marker, (I can’t say which one it was). A year later, blood test found it is 391. I had no iron supplementation
Purplegirl2
in
Pernicious Anaemia Society
3 years ago
Low Hemoglobin
Wondering if anyone runs a low hemoglobin level ( without bleeding or low iron ) while on ibrutinib or other BTKs ? I have been running 11.7 and 11.8 Thanks
Wondering if anyone runs a low hemoglobin level ( without bleeding or low iron ) while on ibrutinib or other BTKs ? I have been running 11.7 and 11.8 Thanks
Davidcara
in
CLL Support
3 years ago
1
...
27
28
29
...
100
Next page
10
20
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
Cure Parkinson's
775 results
Thyroid UK
638 results
Pernicious Anaemia Society
294 results
View top 10 communities
Sort by
Most Relevant
Newest