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D-bifunctional protein (DBP) deficiency
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Dry eyes & Vitamin B12
Hi, I have just come across an article online which I thought may be of interest to anyone who suffers from dry eyes as I do: [i]Vitamin B12 is a water-soluble vitamin that helps the body make DNA and nerve cells. Deficiency of this nutrient is associated with severe dry eye disease and eye pain, according
Hi, I have just come across an article online which I thought may be of interest to anyone who suffers from dry eyes as I do: [i]Vitamin B12 is a water-soluble vitamin that helps the body make DNA and nerve cells. Deficiency of this nutrient is associated with severe dry eye disease and eye pain, according
Moggy1234
in
Pernicious Anaemia Society
3 years ago
Matt Eagles: Positivity in Adversity – 46 years living with Parkinson’s
As many of you know, I am part of a small group of PWPs who regularly invite speakers to inspire or educate us on how to manage our symptoms. Our next zoom session will be taking place at 7:30 p.m. London time on Monday the 22nd of November. I will have the pleasure of interviewing Matt Eagles on the
As many of you know, I am part of a small group of PWPs who regularly invite speakers to inspire or educate us on how to manage our symptoms. Our next zoom session will be taking place at 7:30 p.m. London time on Monday the 22nd of November. I will have the pleasure of interviewing Matt Eagles on the
Michel0220
in
Cure Parkinson's
3 years ago
Approved: FDA Expands Exablate Neuro’s Use as Motor Symptom Treatment in Parkinson’s disease (focused ultrasound)
The U.S. Food and Drug Administration has approved Insightec’s incision-free brain “surgery” technology — Exablate Neuro — for the treatment of motor symptoms in Parkinson’s disease patients. According to the company, the device is indicated to use in patients with moderate-to-severe motor complications
The U.S. Food and Drug Administration has approved Insightec’s incision-free brain “surgery” technology — Exablate Neuro — for the treatment of motor symptoms in Parkinson’s disease patients. According to the company, the device is indicated to use in patients with moderate-to-severe motor complications
Hidden
in
Cure Parkinson's
3 years ago
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Upcoming webinar – Deep Brain Stimulation (DBS)
The Journal of Parkinson’s Disease, Cure Parkinson’s and Van Andel Institute are pleased to present our upcoming webinar. Join a panel of experts at 5.00 pm GMT, noon ET to discuss DBS. Professor Patrik Brundin will chair a panel of experts featuring: Professor Helen Bronte-Stewart Stanford University
The Journal of Parkinson’s Disease, Cure Parkinson’s and Van Andel Institute are pleased to present our upcoming webinar. Join a panel of experts at 5.00 pm GMT, noon ET to discuss DBS. Professor Patrik Brundin will chair a panel of experts featuring: Professor Helen Bronte-Stewart Stanford University
SuzeCP
Administrator
in
Cure Parkinson's
3 years ago
Iron blood test
I've ordered a full iron panel test from medichecks, but just wondering presumably I should stop my b vitamin complex a week ahead, but what about my iron supplements? Should I stop these as with any thyroid test?
I've ordered a full iron panel test from medichecks, but just wondering presumably I should stop my b vitamin complex a week ahead, but what about my iron supplements? Should I stop these as with any thyroid test?
Molly161018
in
Thyroid UK
3 years ago
I cant believe for 4 nights ive not had RLS
After 20+ years of suffering RLS being on all types of medication, sleepless nights etc, ive just done my 4th night without any medication and no symptoms. A few of you will remember my horrendous journey. Still waiting on my DBS surgery. I fell badly 2 weeks ago, injured my left leg and side. In
After 20+ years of suffering RLS being on all types of medication, sleepless nights etc, ive just done my 4th night without any medication and no symptoms. A few of you will remember my horrendous journey. Still waiting on my DBS surgery. I fell badly 2 weeks ago, injured my left leg and side. In
Banjo1
in
Restless Legs Syndrome
3 years ago
DBS for depression
Just stumbled on this https://www.dw.com/en/pacemaker-for-the-brain-relieves-womans-severe-depression/a-59472106
Just stumbled on this https://www.dw.com/en/pacemaker-for-the-brain-relieves-womans-severe-depression/a-59472106
Hidden
in
Cure Parkinson's
3 years ago
Adding good news
Hi all. I thought I would pop in and share some good news. I have refused to take all the drugs that have been offered to me. But even experimentation with lower levels of hydrocodone and OxyContin have been uncomfortable enough that I refused to go in the opioid direction. What has worked for me and
Hi all. I thought I would pop in and share some good news. I have refused to take all the drugs that have been offered to me. But even experimentation with lower levels of hydrocodone and OxyContin have been uncomfortable enough that I refused to go in the opioid direction. What has worked for me and
Marlayna
in
Restless Legs Syndrome
3 years ago
New DBS techniques ?
https://www.medicalnewstoday.com/articles/research-shows-promising-results-for-parkinsons-treatment?utm_source=Sailthru%20Email&utm_medium=Email&utm_campaign=MNT%20Daily%20News&utm_content=2021-10-11&apid=32293354&rvid=e3b0c44298fc1c149afbf4c8996fb92427ae41e4649b934ca495991b7852b855
https://www.medicalnewstoday.com/articles/research-shows-promising-results-for-parkinsons-treatment?utm_source=Sailthru%20Email&utm_medium=Email&utm_campaign=MNT%20Daily%20News&utm_content=2021-10-11&apid=32293354&rvid=e3b0c44298fc1c149afbf4c8996fb92427ae41e4649b934ca495991b7852b855
Xenos
in
Cure Parkinson's
3 years ago
Research shows promising results for Parkinson's disease treatment;
https://medicalxpress.com/news/2021-10-results-parkinson-disease-treatment.html Researchers from Carnegie Mellon University have found a way to make deep brain stimulation (DBS) more precise, resulting in therapeutic effects that outlast what is currently available. The work, led by Aryn Gittis and
https://medicalxpress.com/news/2021-10-results-parkinson-disease-treatment.html Researchers from Carnegie Mellon University have found a way to make deep brain stimulation (DBS) more precise, resulting in therapeutic effects that outlast what is currently available. The work, led by Aryn Gittis and
John_morris71
in
Cure Parkinson's
3 years ago
TENS : An Alternative Option for Management of PAIN From Multiple Causes
I had previously written a post about 10 potential topical options for pain management. You can read about those here: https://healthunlocked.com/cure-parkinsons/posts/144685614/10-topical-pain-relievers-of-varying-potency-for-localized-treatment-of-pain-that-are-readily-available And Here : https://
I had previously written a post about 10 potential topical options for pain management. You can read about those here: https://healthunlocked.com/cure-parkinsons/posts/144685614/10-topical-pain-relievers-of-varying-potency-for-localized-treatment-of-pain-that-are-readily-available And Here : https://
chartist
in
Cure Parkinson's
3 years ago
DBS or focused ultrasound
I can't decide which one is better if anyone with experience can guide me thank you
I can't decide which one is better if anyone with experience can guide me thank you
Yhae
in
Cure Parkinson's
3 years ago
Help with blood test results
Hi again Had my bloods tested again due to low platelets and iron. Have been taking 80mg iron tablets every day for a few months now. Any insight would be appreciated. Thanks in advance! Had to translate from French so hope I’m right. Leukocytes. 4,59 (4-10) Red blood cells 3,93 (4-5,20
Hi again Had my bloods tested again due to low platelets and iron. Have been taking 80mg iron tablets every day for a few months now. Any insight would be appreciated. Thanks in advance! Had to translate from French so hope I’m right. Leukocytes. 4,59 (4-10) Red blood cells 3,93 (4-5,20
Shenow
in
Thyroid UK
3 years ago
Focused ultrasound
I hear so much about PD patients receiving DBS, but I never hear about them opting for focussed ultrasound instead. According to this website, focused ultrasound will cure the motor symptoms of PD, but it would only be used on people with motor symptoms in one side of their body: https://www.fusfoundation.org
I hear so much about PD patients receiving DBS, but I never hear about them opting for focussed ultrasound instead. According to this website, focused ultrasound will cure the motor symptoms of PD, but it would only be used on people with motor symptoms in one side of their body: https://www.fusfoundation.org
Discogs_discogs
in
Cure Parkinson's
3 years ago
Low BMI, fatigue, and PA?
Hi again, everyone — It’s been almost a year since I received a positive IFAB test and started both B12 and iron supplementation. Since then, I’ve gone from being a very active and competitive runner (30-45 miles per week, though admittedly that became impossible shortly before my diagnosis) to being
Hi again, everyone — It’s been almost a year since I received a positive IFAB test and started both B12 and iron supplementation. Since then, I’ve gone from being a very active and competitive runner (30-45 miles per week, though admittedly that became impossible shortly before my diagnosis) to being
still_elsewhere
in
Pernicious Anaemia Society
3 years ago
DBS
Hello PWP! I thought I’d let you know and share my journey with my husband who had the DBS surgery 6 weeks ago. 2 days ago the battery was turned on and will be adjusted weekly in the next 3 weeks until the right intensity is reached. I was personally hesitant for him to do this surgery as it sounded
Hello PWP! I thought I’d let you know and share my journey with my husband who had the DBS surgery 6 weeks ago. 2 days ago the battery was turned on and will be adjusted weekly in the next 3 weeks until the right intensity is reached. I was personally hesitant for him to do this surgery as it sounded
pdwife41yrs
in
Cure Parkinson's
3 years ago
Levothyroxine sodium pentahydrate tablets - formulation considerations
Levothyroxine is reaching retirement! It has been available for just over sixty-five years. :-) Despite that, we still have to accept formulations which are problematic. This review paper summarises in its abstract two major causes of these problems. It then identifies shortcomings in the United States
Levothyroxine is reaching retirement! It has been available for just over sixty-five years. :-) Despite that, we still have to accept formulations which are problematic. This review paper summarises in its abstract two major causes of these problems. It then identifies shortcomings in the United States
helvella
Thyroid UK
in
Thyroid UK
3 years ago
The Unreasonable Effectiveness of Deep Brain Stimulation Therapy and the Future of Neuromodulation
A good article by Benjamin stretcher https://tmrwedition.com/2021/09/25/the-unreasonable-effectiveness-of-deep-brain-stimulation-therapy-and-the-future-of-neuromodulation/amp/?__twitter_impression=true
A good article by Benjamin stretcher https://tmrwedition.com/2021/09/25/the-unreasonable-effectiveness-of-deep-brain-stimulation-therapy-and-the-future-of-neuromodulation/amp/?__twitter_impression=true
Farooqji
in
Cure Parkinson's
3 years ago
Can it take up to 3 months to feel benefit of iron infusion?
Hi. After noticing my RLS symptoms were getting worse, I had my ferritin checked and found that it was only 5, so this led to me having an iron infusion 3 weeks ago. I had my ferritin checked again 2 weeks after the infusion, and found out yesterday that my ferritin has now risen to 363. However, this
Hi. After noticing my RLS symptoms were getting worse, I had my ferritin checked and found that it was only 5, so this led to me having an iron infusion 3 weeks ago. I had my ferritin checked again 2 weeks after the infusion, and found out yesterday that my ferritin has now risen to 363. However, this
oceanred
in
Restless Legs Syndrome
3 years ago
Advice please
I History: 50 yr old female on 60 Armour for 2yrs, still feeling poorly with low t4, so DR bumped me up to 90 armour and 8 wks later I feel better, but still not great. these are my current lab results: Any thoughts would be appreciated!!! Low WBC, low Neutrophils TSH 1.500 uIU/mL 0.450-4.500
I History: 50 yr old female on 60 Armour for 2yrs, still feeling poorly with low t4, so DR bumped me up to 90 armour and 8 wks later I feel better, but still not great. these are my current lab results: Any thoughts would be appreciated!!! Low WBC, low Neutrophils TSH 1.500 uIU/mL 0.450-4.500
loutomaio
in
Thyroid UK
3 years ago
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