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Fostair - So far so good!
Well Peeps, day 3 of the previously dreaded Fostair on the advice of my GP practice Pharmacist/Respiratory Nurse, & no side effects whatsoever. What I was dreading was similar to the previous 'maintenance' inhalers, Tiotropium & Aclidinium, both of which delivered a paradoxic reaction & had to be stopped
Well Peeps, day 3 of the previously dreaded Fostair on the advice of my GP practice Pharmacist/Respiratory Nurse, & no side effects whatsoever. What I was dreading was similar to the previous 'maintenance' inhalers, Tiotropium & Aclidinium, both of which delivered a paradoxic reaction & had to be stopped
JagNut
in
Lung Conditions Community Forum
4 years ago
2018 study explains why Green Tea, pomegranates, strawberries and other foods containing elegitannins (and thus EA) work against CLL
I just found a fabulous 2018 study which explains why green tea, pomegranates, strawberries and other foods containing elegitannins (and thus EA) could reduce your lymphocyte counts: https://www.sciencedirect.com/science/article/pii/S2213231715001111
I just found a fabulous 2018 study which explains why green tea, pomegranates, strawberries and other foods containing elegitannins (and thus EA) could reduce your lymphocyte counts: https://www.sciencedirect.com/science/article/pii/S2213231715001111
HowardR
in
CLL Support
4 years ago
Scared !!!
Hi. I went to my gyn last week for female issues and I had blood work drawn. My CBC was 28.10 then a week later 28.4 with smudge cells present each time which is very suggestive of CLL. My mom just passed this April at barely 66 with multiple myeloma with del 17 and I’m petrified as I’m only 46
Hi. I went to my gyn last week for female issues and I had blood work drawn. My CBC was 28.10 then a week later 28.4 with smudge cells present each time which is very suggestive of CLL. My mom just passed this April at barely 66 with multiple myeloma with del 17 and I’m petrified as I’m only 46
Madison1995
in
CLL Support
4 years ago
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low dose naltrexone
Hi - I am new to the forum, have had cll for over 10 years, still at stage zero. I have tried various supplements and treatments, have been on ldn 4.5 mg for about a year. My white blood cell count went down 30% in this last year. I had taken it before and stopped, tried a few other things and it crept
Hi - I am new to the forum, have had cll for over 10 years, still at stage zero. I have tried various supplements and treatments, have been on ldn 4.5 mg for about a year. My white blood cell count went down 30% in this last year. I had taken it before and stopped, tried a few other things and it crept
Hidden
in
CLL Support
4 years ago
Kidney Transplant /Dialysis
Greetings i have had MPA for about nine years now and have been a member of the group most of that time.With the help of my excellent doctors I have managed to outrun most of the nasty effects of Vasculitis but I fear the disease is finally catching up with me. I went to my regular quarterly review/
Greetings i have had MPA for about nine years now and have been a member of the group most of that time.With the help of my excellent doctors I have managed to outrun most of the nasty effects of Vasculitis but I fear the disease is finally catching up with me. I went to my regular quarterly review/
gibson100
in
Vasculitis UK
4 years ago
Cholesterol
Recently I read a post quoting Washington Post telling pharmaceutical companies extracted USD 2 trillion in the name of cholesterol management and it is the biggest scam after HBA1c parameters of pharmaceutical companies.Any comments ?
Recently I read a post quoting Washington Post telling pharmaceutical companies extracted USD 2 trillion in the name of cholesterol management and it is the biggest scam after HBA1c parameters of pharmaceutical companies.Any comments ?
kamtadale
in
Diabetes India
4 years ago
An oblique question
Is a TENS machine of any benefit for COPD or Essential Tremors?
Is a TENS machine of any benefit for COPD or Essential Tremors?
micox
in
Lung Conditions Community Forum
4 years ago
CAPD and night sweats
I have been on peritoneal dialysis for nearly two months. While things are going well in general, I am suffering from occasional excessive sweats. I wake up with soaking bedsheets and pillow, soggy hair and general sticky, sweaty body. Can anyone throw light on this condition?
I have been on peritoneal dialysis for nearly two months. While things are going well in general, I am suffering from occasional excessive sweats. I wake up with soaking bedsheets and pillow, soggy hair and general sticky, sweaty body. Can anyone throw light on this condition?
Hypochondriac123
in
Kidney Dialysis
4 years ago
Accelerated speed of discovery could lead to more effective smoking cessation aids.
Smoking claims the lives of more than seven million people each year. Smoking tobacco delivers nicotine to the neuroreceptors responsible for addiction, affecting the nervous system and causing addiction.A new study, led by scientists from the University of Bristol, into the molecular interactions involved
Smoking claims the lives of more than seven million people each year. Smoking tobacco delivers nicotine to the neuroreceptors responsible for addiction, affecting the nervous system and causing addiction.A new study, led by scientists from the University of Bristol, into the molecular interactions involved
2greys
in
Lung Conditions Community Forum
4 years ago
So much new CLL material to read
Welcome to the Fourth 2019 Issue of The CLL Society Tribune! So much to read there including amazing patient stories and my wife's Cajun Gingerbread recipe: https://cllsociety.org/quarter-4-2019-volume-5-issue-4/ More of my top 10 articles from ASCO: #8 Surviving CLL is only part of the story if we are
Welcome to the Fourth 2019 Issue of The CLL Society Tribune! So much to read there including amazing patient stories and my wife's Cajun Gingerbread recipe: https://cllsociety.org/quarter-4-2019-volume-5-issue-4/ More of my top 10 articles from ASCO: #8 Surviving CLL is only part of the story if we are
bkoffman
CLL CURE Hero
in
CLL Support
5 years ago
Ashwagandha?
Hi Folks Wonder if anyone here tried this Indian ginseng? I’m keen to take it for reducing anxieties and improve quality of sleep. It may cause increase in T-lymphocytes when I googled; not sure if it will also increase our absolute lymphocytes? Seok
Hi Folks Wonder if anyone here tried this Indian ginseng? I’m keen to take it for reducing anxieties and improve quality of sleep. It may cause increase in T-lymphocytes when I googled; not sure if it will also increase our absolute lymphocytes? Seok
Seok
in
CLL Support
5 years ago
CLL Horizons 2019 - Edinburgh 19-21 September - video of speaker sessions
Hi all we are now pleased to start releasing videos from CLL Horizons, *PRESS RELEASE*13th December 2019 CLL Advocates Network would like to announce the initial release of videos from the CLL HORIZONS 2019 Conference held in Edinburgh, Scotland, 19-21 September 2019. This event was held during the
Hi all we are now pleased to start releasing videos from CLL Horizons, *PRESS RELEASE*13th December 2019 CLL Advocates Network would like to announce the initial release of videos from the CLL HORIZONS 2019 Conference held in Edinburgh, Scotland, 19-21 September 2019. This event was held during the
HAIRBEAR_UK
Administrator
in
CLL Support
5 years ago
CLL SOCIETY'S ASH POSTER on our Free second opinion program plus two important papers from ASCO
Hi, Just back from a frenetic and fantastic ASH, but still have news to share from ASCO. But first here is a link to our poster on our free second opinion program: 4716 An Innovative Telemedicine Platform to Provide Expert Access to Patients with Chronic Lymphocytic Leukemia (CLL) https://cllsociety.org
Hi, Just back from a frenetic and fantastic ASH, but still have news to share from ASCO. But first here is a link to our poster on our free second opinion program: 4716 An Innovative Telemedicine Platform to Provide Expert Access to Patients with Chronic Lymphocytic Leukemia (CLL) https://cllsociety.org
bkoffman
CLL CURE Hero
in
CLL Support
5 years ago
‘Vaping’ Increases Odds of Asthma and COPD.
Using data from a large federal government telephone survey of adults, Johns Hopkins Medicine researchers report evidence that inhaling heated tobacco vapor through e-cigarettes was linked to increased odds of asthma and chronic obstructive pulmonary disease (COPD), conditions long demonstrated to be
Using data from a large federal government telephone survey of adults, Johns Hopkins Medicine researchers report evidence that inhaling heated tobacco vapor through e-cigarettes was linked to increased odds of asthma and chronic obstructive pulmonary disease (COPD), conditions long demonstrated to be
2greys
in
Lung Conditions Community Forum
4 years ago
Webinar - Oral Therapies and Adherence in Lymphoma and CLL Jan 23 2020, 2:00-3:00 PM EST
Register at: https://beacon360.content.online/xbcs/S1791/catalog/product.xhtml?eid=16215
Register at: https://beacon360.content.online/xbcs/S1791/catalog/product.xhtml?eid=16215
wmay13241
in
CLL Support
5 years ago
YABTKi or Yet Another BTK inhibitor - the A to Z list of Bruton's Tyrosine Kinase Inhibitors for CLL following Ibrutinib's success
I'll admit that YABTKi is not a recognised CLL related acronym, (acronym lists are here https://healthunlocked.com/cllsupport/posts/private/134932756/cll-abbreviations-in-one-post ), but perhaps it should be! I've attempted in this post to keep tabs on the growing list of BTK inhibitor (BTKi) drugs
I'll admit that YABTKi is not a recognised CLL related acronym, (acronym lists are here https://healthunlocked.com/cllsupport/posts/private/134932756/cll-abbreviations-in-one-post ), but perhaps it should be! I've attempted in this post to keep tabs on the growing list of BTK inhibitor (BTKi) drugs
AussieNeil
Partner
in
CLL Support
5 years ago
CLL Society Support Group Meetings USA Coming Up!
CLL Society Support Group Meetings Coming Up! https://myemail.constantcontact.com/CLL-Society-Alert----December-3--2019.html?soid=1120967015548&aid=3A0RRuM8V-s https://cllsociety.org/events/ - San Diego CLL Society Support and Education Meeting - December 4 @ 4:00 pm - New Orleans and Surrounding
CLL Society Support Group Meetings Coming Up! https://myemail.constantcontact.com/CLL-Society-Alert----December-3--2019.html?soid=1120967015548&aid=3A0RRuM8V-s https://cllsociety.org/events/ - San Diego CLL Society Support and Education Meeting - December 4 @ 4:00 pm - New Orleans and Surrounding
lankisterguy
Volunteer
in
CLL Support
5 years ago
Test Before Treat
Test Before Treat™ Although this comes from the USA, the logic and reasoning can apply to any international patient and medical professionals. https://cllsociety.org/wp-content/uploads/2019/08/Test-Before-Treat-One-pager-V3.pdf "More Patients Spill the Beans on their Test Before Treat™ Experiences
Test Before Treat™ Although this comes from the USA, the logic and reasoning can apply to any international patient and medical professionals. https://cllsociety.org/wp-content/uploads/2019/08/Test-Before-Treat-One-pager-V3.pdf "More Patients Spill the Beans on their Test Before Treat™ Experiences
lankisterguy
Volunteer
in
CLL Support
5 years ago
Venetoclax Added to Ibrutinib in High-Risk CLL Achieves a High Rate of Undetectable Minimal Residual Disease.
December 8, 2019 ASH poster. There are lots of us on long term Ibrutinib who have had a good response but still have a small amount of residual disease. I would welcome the chance to add venetoclax to my treatment as in this study which is an important piece of work by Michael J Keating et al. "[i]Patients
December 8, 2019 ASH poster. There are lots of us on long term Ibrutinib who have had a good response but still have a small amount of residual disease. I would welcome the chance to add venetoclax to my treatment as in this study which is an important piece of work by Michael J Keating et al. "[i]Patients
Jm954
Administrator
in
CLL Support
5 years ago
The TP53 mutational landscape in CLL is very complex
December 8, 2019 Interesting poster shedding a bit more light on the complexity of TP53 mutations and its independence from 17p deletion. [i]"TP53 aberrations, including somatic mutations of TP53 gene or 17p deletion leading to the loss of the TP53 locus, are a major predictive factor of resistance to
December 8, 2019 Interesting poster shedding a bit more light on the complexity of TP53 mutations and its independence from 17p deletion. [i]"TP53 aberrations, including somatic mutations of TP53 gene or 17p deletion leading to the loss of the TP53 locus, are a major predictive factor of resistance to
Jm954
Administrator
in
CLL Support
5 years ago
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