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Ceftazidime intravenous infusion
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But You Don't Look Sick
If any of you know about this, sorry for the repeat, but I Just found the term "Spoonies" in one of my friend's Facebook posts. The term comes from having an illness that cannot be seen, that causes fatigue and affects how you live, what you can do each day ,etc. If interested, this is a good read.
If any of you know about this, sorry for the repeat, but I Just found the term "Spoonies" in one of my friend's Facebook posts. The term comes from having an illness that cannot be seen, that causes fatigue and affects how you live, what you can do each day ,etc. If interested, this is a good read.
BeckyLUSA
in
CLL Support
7 years ago
ITP and joint pain
Ive had ITP since 2004, initially treated with steroids which has left me with insomnia, apart from some iVig before Christmas, as my levels normally stay above 30000 (30000 - 80000) we now just monitor rather than have any treatments. I do feel tired all the time, and have nasty monthlies along with
Ive had ITP since 2004, initially treated with steroids which has left me with insomnia, apart from some iVig before Christmas, as my levels normally stay above 30000 (30000 - 80000) we now just monitor rather than have any treatments. I do feel tired all the time, and have nasty monthlies along with
catowen
in
ITP Support Association
7 years ago
So surgery...
It seems that after about 4 years I'll need to fuse my ankle. Unfortunately the subtler joint fusion I received in August didn't fuse all the way and the infection I got in November and second surgery in December to remove the screws didn't help. I recently just got a steroid shot (again) and of course
It seems that after about 4 years I'll need to fuse my ankle. Unfortunately the subtler joint fusion I received in August didn't fuse all the way and the infection I got in November and second surgery in December to remove the screws didn't help. I recently just got a steroid shot (again) and of course
allard4life
in
NRAS
7 years ago
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Skin rash
I've had CLL for almost 9 years. WBC count had been mostly stable around 20K. After my 5th IVIG infusion (Feb 1, 2017), I developed a skin rash that started on my torso and has gone all over my body. It's been 2 months and hardly abated! Dermatologists put me on Prednisone for 3 weeks, and I've been
I've had CLL for almost 9 years. WBC count had been mostly stable around 20K. After my 5th IVIG infusion (Feb 1, 2017), I developed a skin rash that started on my torso and has gone all over my body. It's been 2 months and hardly abated! Dermatologists put me on Prednisone for 3 weeks, and I've been
CLLBill
in
CLL Support
7 years ago
RA Ankle Fusion
Hey all, So I've been dealing with RA for four years now, I'm currently 20, and I recently had a subtalor joint fusion in my right ankle. Unfortunately my hardware in my ankle got infected and they took it out. We're unsure if there was a nonfusion. The fusion doesn't seem to be working though, the past
Hey all, So I've been dealing with RA for four years now, I'm currently 20, and I recently had a subtalor joint fusion in my right ankle. Unfortunately my hardware in my ankle got infected and they took it out. We're unsure if there was a nonfusion. The fusion doesn't seem to be working though, the past
allard4life
in
NRAS
7 years ago
Chronic ITP
Hello I have a 5 years old daughter who was diagnosed with ITP at 3 after coming back from a horrible experience at Olympus indoor water park. She came home and had 2 ear infections and was treated with antibiotics, a few days later the rashes came up and her platelets were 3 that's when this nightmare
Hello I have a 5 years old daughter who was diagnosed with ITP at 3 after coming back from a horrible experience at Olympus indoor water park. She came home and had 2 ear infections and was treated with antibiotics, a few days later the rashes came up and her platelets were 3 that's when this nightmare
Kifah90
in
ITP Support Association
8 years ago
Chlorambucil ( Leukeran)
My father was diagnosed with cll approx., 9yrs ago his health has been quiet good for an 82yr young. But then came the anemia, he had to go for a bone marrow biopsy the other week thanks to reading on here we asked for gas/air they had to go in 3 times but he just laughed through it no problem. He
My father was diagnosed with cll approx., 9yrs ago his health has been quiet good for an 82yr young. But then came the anemia, he had to go for a bone marrow biopsy the other week thanks to reading on here we asked for gas/air they had to go in 3 times but he just laughed through it no problem. He
Julie_kerry
in
CLL Support
8 years ago
PCD Adult Service in Cumbria?
My son is 23 and was diagnosed with PCD at 13. Last year was his best as he was on Azithromycin 3x a week. As soon as he stopped he is having a dificult time since 30th of december: 4 different antibiotics amoxycilin, Doxycicline, and after founding pseudomonas in sputum took Ciprofloxacin and
My son is 23 and was diagnosed with PCD at 13. Last year was his best as he was on Azithromycin 3x a week. As soon as he stopped he is having a dificult time since 30th of december: 4 different antibiotics amoxycilin, Doxycicline, and after founding pseudomonas in sputum took Ciprofloxacin and
windle
in
PCD Family Support Group (UK)
8 years ago
IVIG
I've been getting IVIG every four weeks since September '16. Since the start on this year I've had one infection after another (upper respitory and sinus) or perhaps it's just one long one that fades then comes back. I've been given two different antibiotics, steroids, mucinex, codine, two different
I've been getting IVIG every four weeks since September '16. Since the start on this year I've had one infection after another (upper respitory and sinus) or perhaps it's just one long one that fades then comes back. I've been given two different antibiotics, steroids, mucinex, codine, two different
johnl
in
CLL Support
8 years ago
Spinal fusion L5 S1
Hi I am new here and wanted to see if I could get some more info. I have had severe continued pain in my lower pack for over 2 years now. I have tried steroid injections, nerve blocks, PT, pain meds, nerve meds, tens unit etc and no relief. I had my MRI and Dr thinks if the pain is this bad and nothing
Hi I am new here and wanted to see if I could get some more info. I have had severe continued pain in my lower pack for over 2 years now. I have tried steroid injections, nerve blocks, PT, pain meds, nerve meds, tens unit etc and no relief. I had my MRI and Dr thinks if the pain is this bad and nothing
jennwalton73
in
Pain Concern
8 years ago
Fighting the unknown
I don't know who reads these posts but I am grateful and thankful for any advice. I have mold in my lungs and am on voricanazole. They say I got it by my compromised immune system and CLL. I have lymphoma in my lungs and liver which they say is not related to my leukemia. I will start a regiment of ivig
I don't know who reads these posts but I am grateful and thankful for any advice. I have mold in my lungs and am on voricanazole. They say I got it by my compromised immune system and CLL. I have lymphoma in my lungs and liver which they say is not related to my leukemia. I will start a regiment of ivig
jeepnkaren
in
CLL Support
8 years ago
CLL Treatment - Give your body a rest?
So Friends - an interesting question for long term CLLers. As this form of Cancer will never be the principle cause of our demise - should we consider putting the CLL Treatment Drugs to one side, to deal with the side effects. My CLL journey started when I was diagnosed in 2001 and treated at various
So Friends - an interesting question for long term CLLers. As this form of Cancer will never be the principle cause of our demise - should we consider putting the CLL Treatment Drugs to one side, to deal with the side effects. My CLL journey started when I was diagnosed in 2001 and treated at various
MartyR
in
CLL Support
8 years ago
Vasculitis
Hi I live in Townsville in Australia and have an auto immune condition Vasculitis. I have had Peripheral Vasculitis for two years and have a ride of symptoms and experiences. I went from working a full time hectic job to one day experiencing what they called " dropped foot" to having to stop working
Hi I live in Townsville in Australia and have an auto immune condition Vasculitis. I have had Peripheral Vasculitis for two years and have a ride of symptoms and experiences. I went from working a full time hectic job to one day experiencing what they called " dropped foot" to having to stop working
Vrainbird
in
Vasculitis UK
8 years ago
Chronic pain
Having had a spinal fusion have been left with chronic pain..was wondering if anyone has any new ideas for coping.. Thanks Diane
Having had a spinal fusion have been left with chronic pain..was wondering if anyone has any new ideas for coping.. Thanks Diane
dianef438
in
Pain Concern
8 years ago
Adrenal insufficency
As you all know by now....I have been on your forum for almost five years and have gained considerable information and insight in dealing with this awful disease. (I haveGSA and PMR. ) I have made it through shingles, spinal fusion and laminectomy surgery as well as two cataract operations. Just recently
As you all know by now....I have been on your forum for almost five years and have gained considerable information and insight in dealing with this awful disease. (I haveGSA and PMR. ) I have made it through shingles, spinal fusion and laminectomy surgery as well as two cataract operations. Just recently
30048
in
PMRGCAuk
8 years ago
Muscle Relaxer?
I have PD and am currently taking Azilect, Ropinerole, and Carbidopa/levidopa. I am very active, but lifted a heavy object yesterday and have painful muscle spasms in my lower back. Can I take a muscle relaxer - Carisoprodol - which is leftover from a spinal fusion I had before going on PD meds?
I have PD and am currently taking Azilect, Ropinerole, and Carbidopa/levidopa. I am very active, but lifted a heavy object yesterday and have painful muscle spasms in my lower back. Can I take a muscle relaxer - Carisoprodol - which is leftover from a spinal fusion I had before going on PD meds?
bjmettler
in
Cure Parkinson's
8 years ago
will be having l5-s1 spinal fusion surgery as well as laminectomy...need help!!
i am having l5-s1 spinal fusion surgery and a laminectomy. i want to know what the pain will be like after the surgery. please post answers. i will appreciate your input.....another question...what kind of care will i need after i am discharged from the hospital? thank you very much!!!
i am having l5-s1 spinal fusion surgery and a laminectomy. i want to know what the pain will be like after the surgery. please post answers. i will appreciate your input.....another question...what kind of care will i need after i am discharged from the hospital? thank you very much!!!
cathylackey8
in
Cloudy with a Chance of Pain
8 years ago
Intro- First time post
I feel foggy. Like I'm drunk, or hungover, or on cold medicine. Headaches, lightheadedness, fatigue. This is my 13th year of this, and I have been worked up for EVERYTHING!!! I've seen MD's and Naturopathic physicians. For a while I thought I had an autoimmune "sticky blood" issue, but top LA rheumy
I feel foggy. Like I'm drunk, or hungover, or on cold medicine. Headaches, lightheadedness, fatigue. This is my 13th year of this, and I have been worked up for EVERYTHING!!! I've seen MD's and Naturopathic physicians. For a while I thought I had an autoimmune "sticky blood" issue, but top LA rheumy
ehc918
in
Foggy's "Invisible Illness" Support
8 years ago
Newly Diagnosed
Hi there Ive just been diagnosed with ITP rushed to hospital last week with a count of 4 wow what a week its bee had an infusion last weekend if IVIG my levels are now up to 300 & Ive had every test known to man Im still (a bit nervously) waiting for my bone marrow biopsy test results - although one
Hi there Ive just been diagnosed with ITP rushed to hospital last week with a count of 4 wow what a week its bee had an infusion last weekend if IVIG my levels are now up to 300 & Ive had every test known to man Im still (a bit nervously) waiting for my bone marrow biopsy test results - although one
eveplate
in
ITP Support Association
8 years ago
S joint fusion surgery Jan 24 2017
I had a s joint fusion Tuesday I can't put any weigh in my left foot pain is unbearable is that normal and how long till you don't use crutches.
I had a s joint fusion Tuesday I can't put any weigh in my left foot pain is unbearable is that normal and how long till you don't use crutches.
Jmdc99
in
Pain Concern
8 years ago
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