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Ceftazidime intravenous infusion
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Can a 14 years old take steroid 10 mg for a month due to ITP ?
My daughter having low platelets since August thiz year. After IVIG she has been on varying steroid doses high -low -high and currently at 10 mg. Docs suggested to continue 10 mg for a month . Has anyone experience of such long term use of steroids at such tender age ?
My daughter having low platelets since August thiz year. After IVIG she has been on varying steroid doses high -low -high and currently at 10 mg. Docs suggested to continue 10 mg for a month . Has anyone experience of such long term use of steroids at such tender age ?
Toughytoughy
in
ITP Support Association
8 years ago
Holiday Parties and low IGs
My IGs are low enough that I've started IVIG infusions. Do others like me avoid kissy huggy holiday parties. (Finally an excuse to be antisocial) john
My IGs are low enough that I've started IVIG infusions. Do others like me avoid kissy huggy holiday parties. (Finally an excuse to be antisocial) john
johnl
in
CLL Support
8 years ago
Steroids & IVig only works briefly, anybody experienced this?
Hello, my husband recently was diagnosed with ITP & given Steriods which took his count from 6 to 60 within a week or two then dropped back down.... Next IVIg which again worked for a week but now dropped to 8. His red & white cells are normal, bone marrow fine, no hiv or lupus etc just waiting for CT
Hello, my husband recently was diagnosed with ITP & given Steriods which took his count from 6 to 60 within a week or two then dropped back down.... Next IVIg which again worked for a week but now dropped to 8. His red & white cells are normal, bone marrow fine, no hiv or lupus etc just waiting for CT
Thewakey31
in
ITP Support Association
8 years ago
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Asking for information please......
I am new to this sight so thank you for allowing me to be a part of a Thorn filled journey that I am on since 2009.....Does anyone else suffer from gastroparesis and if so can you please share any information? I have had it for at least 2.5 years now and nothing can be done except a j tube which I refuse
I am new to this sight so thank you for allowing me to be a part of a Thorn filled journey that I am on since 2009.....Does anyone else suffer from gastroparesis and if so can you please share any information? I have had it for at least 2.5 years now and nothing can be done except a j tube which I refuse
Majikshoos
in
SHARE Metastatic Breast Cancer
8 years ago
Extreme Penile Pain - Suspecting Pudendal Nerve Entrapment - Seeking Advice and Hope
Hello everyone, My name is David, I'm 24 and I live in LA. About six months or so, I developed a distinct pain at the head/tip of my penis. I was sexually active at the time, so I figured I may have caught an STD or maybe just had UTI. Got tested for multiple STDs and infections by various urologists
Hello everyone, My name is David, I'm 24 and I live in LA. About six months or so, I developed a distinct pain at the head/tip of my penis. I was sexually active at the time, so I figured I may have caught an STD or maybe just had UTI. Got tested for multiple STDs and infections by various urologists
David23
in
Pelvic Pain Support Network
8 years ago
CAR-T Complete Remission Duration in Follicular Lymphoma
Here is some good news we learned from Dr. Steven Schuster (one of the gurus in CAR-T) during today's Lymphoma Research Foundation "Advances in Immunotherapy in the Treatment of Lymphoma" teleconference Q&A on November 17. Results from his UPENN Abramson Comprehensive Cancer Center follicular lymphoma
Here is some good news we learned from Dr. Steven Schuster (one of the gurus in CAR-T) during today's Lymphoma Research Foundation "Advances in Immunotherapy in the Treatment of Lymphoma" teleconference Q&A on November 17. Results from his UPENN Abramson Comprehensive Cancer Center follicular lymphoma
wmay13241
in
Non Hodgkin's Lymphoma Friends
8 years ago
I'm new and am having PLIF Spinal Fusion on 2 levels
i have hypermobility ehlers danlos syndrome (basicially too much collegan). As a result I have various illnesses and severe degenerative disc disease. I have had four failed disectomies over the course of the last six years on L5/S1 and in January I am having a PLIF spinal fusion on L4/5 and L5/S1. Am
i have hypermobility ehlers danlos syndrome (basicially too much collegan). As a result I have various illnesses and severe degenerative disc disease. I have had four failed disectomies over the course of the last six years on L5/S1 and in January I am having a PLIF spinal fusion on L4/5 and L5/S1. Am
23012017
in
Pain Concern
8 years ago
Zika
If I go on a Caribbean vacation and use caution by staying out of areas with excessive numbers of mosquitos and use "Off" mosquito repellent spray will I be safe enough? I have been having monthly IVIG infusions for many years now.
If I go on a Caribbean vacation and use caution by staying out of areas with excessive numbers of mosquitos and use "Off" mosquito repellent spray will I be safe enough? I have been having monthly IVIG infusions for many years now.
Catskillady
in
CLL Support
8 years ago
Crunch time!
I have just been diagnosed with degenerative hip problems, lordosis (excessive curvature of the lumbar spine), scoliosis of the lumbar spine, spina bifida occulta (hidden) and I have a 25-50% slip of my 5th lumbar vertebrae. All this is resulting in spinal fusion surgery in the new year which is major
I have just been diagnosed with degenerative hip problems, lordosis (excessive curvature of the lumbar spine), scoliosis of the lumbar spine, spina bifida occulta (hidden) and I have a 25-50% slip of my 5th lumbar vertebrae. All this is resulting in spinal fusion surgery in the new year which is major
Pottypud
in
Weight Loss Support
8 years ago
TODDLER WITH ITP
My son is three. February 2016 he came home from daycare, it was a Friday, with bruising down his back and buttocks. I thought he might have scrapped it on the slide . Friday night he was sitting with my mom and his thigh turned dark purple. More bruising Saturday and Sunday. He then Sunday night
My son is three. February 2016 he came home from daycare, it was a Friday, with bruising down his back and buttocks. I thought he might have scrapped it on the slide . Friday night he was sitting with my mom and his thigh turned dark purple. More bruising Saturday and Sunday. He then Sunday night
Bens_mom2013
in
ITP Support Association
8 years ago
Lithotripsy and Spinal Fusions
My name is Karen and I have a history of kidney stones. The last kidney stone was a 16 mm stone and took two lithotripsy's to break it up. I have also had a lumbar fusion L5 & S1 in 2001 and my latest x-ray showed a post surgical change in the Lumbosacral spine. This was noted from X-rays done between
My name is Karen and I have a history of kidney stones. The last kidney stone was a 16 mm stone and took two lithotripsy's to break it up. I have also had a lumbar fusion L5 & S1 in 2001 and my latest x-ray showed a post surgical change in the Lumbosacral spine. This was noted from X-rays done between
Firejetsgirl
in
Early CKD Support
8 years ago
Saw EP today
Hi everyone - just thought I would bring you up to date re the episode I posted about a few weeks ago as I met with the EP today. Firstly he confirmed it was AF with AFl and we agreed that I now stay on anticoagulants. Secondly he confirmed that I don't need to go to A&E at all unless I am feeling very
Hi everyone - just thought I would bring you up to date re the episode I posted about a few weeks ago as I met with the EP today. Firstly he confirmed it was AF with AFl and we agreed that I now stay on anticoagulants. Secondly he confirmed that I don't need to go to A&E at all unless I am feeling very
CDreamer
in
AF Association
8 years ago
New appointment for pain management
I had L5/S1 spinal fusion in March 2015. All of last year did not seem too bad, either that or I kept telling myself to give my back time to heal and that it would get better. This year I'm not so sure. I have been having sharp jabs in lower back that at times almost brings me to my knees, mostly
I had L5/S1 spinal fusion in March 2015. All of last year did not seem too bad, either that or I kept telling myself to give my back time to heal and that it would get better. This year I'm not so sure. I have been having sharp jabs in lower back that at times almost brings me to my knees, mostly
rettalee55
in
Australian Pain Management Association
8 years ago
Holiday insurance
Hi everybody looking for travel insurance have cll had chemo 6 years ago now have Ivig every 6 weeks keep me topped up looking for best deal I can any suggestions had I quote so far that will except me but it was well over 300 pounds for single trip and yearly was £600 price of my holiday Regards
Hi everybody looking for travel insurance have cll had chemo 6 years ago now have Ivig every 6 weeks keep me topped up looking for best deal I can any suggestions had I quote so far that will except me but it was well over 300 pounds for single trip and yearly was £600 price of my holiday Regards
Edgefield12
in
CLL Support
8 years ago
Back surgery update
I have spent the last two months agonizing over the need for back surgery weighed against my GCA and PMR.. I decided to go for it and had a spinal fusion along with a lamenectomy. It appears that it is successful...some bits of info that I learned as a result that may help someone else are....they
I have spent the last two months agonizing over the need for back surgery weighed against my GCA and PMR.. I decided to go for it and had a spinal fusion along with a lamenectomy. It appears that it is successful...some bits of info that I learned as a result that may help someone else are....they
30048
in
PMRGCAuk
8 years ago
ITP – Need more options
In September 2014 I was diagnosed with ITP. I found out due to a cold and routine check up. I have tried, Prednisone, IVIG, Rituxan, MMF, Nplate and a few others I can't think of at the moment. The only drug that seems to work is Nplate although the weekly Dr visit are not fun. Without drugs my count
In September 2014 I was diagnosed with ITP. I found out due to a cold and routine check up. I have tried, Prednisone, IVIG, Rituxan, MMF, Nplate and a few others I can't think of at the moment. The only drug that seems to work is Nplate although the weekly Dr visit are not fun. Without drugs my count
ITP_September_2014
in
ITP Support Association
8 years ago
Lumbar Fusion Surgery
Hello Everyone. I am a 55 year old male who had spinal fusion surgery over a year ago. Through the years I encountered back issues on occasion where the frequency and intensity started to increase. I was able to work through it until the pain got to the point where something had to be done. I had
Hello Everyone. I am a 55 year old male who had spinal fusion surgery over a year ago. Through the years I encountered back issues on occasion where the frequency and intensity started to increase. I was able to work through it until the pain got to the point where something had to be done. I had
Hidden
in
Pain Concern
8 years ago
About doctor Jill Schofield.
Here is a message I got from a member on the APS Facebook group I belong to. It explains what happened to Dr. Schofield. Thank you for the add. My daughter is 22 and has APS. She sees Dr Jill Schofield at UHC in Aurora. I was asked to pass this asking to any of her patients. Dr. Jill Schofield has
Here is a message I got from a member on the APS Facebook group I belong to. It explains what happened to Dr. Schofield. Thank you for the add. My daughter is 22 and has APS. She sees Dr Jill Schofield at UHC in Aurora. I was asked to pass this asking to any of her patients. Dr. Jill Schofield has
Hidden
in
Hughes Syndrome APS Forum
8 years ago
Behcets and cancer.
Can you help? I was not diagnosed for years and even left my own country to seek help. I found it, eventually, and now have had treatment according. ( IVIG and prednisone so far) just as I thought I was on the road to some kind of better health ( long over due) I was diagnosed with kidney cancer. I
Can you help? I was not diagnosed for years and even left my own country to seek help. I found it, eventually, and now have had treatment according. ( IVIG and prednisone so far) just as I thought I was on the road to some kind of better health ( long over due) I was diagnosed with kidney cancer. I
ambersorganics
in
Behçet's UK
8 years ago
Internal bleeding in brain due to itp
Hi everyone, This is let out my sadness, my wife 35 yrs old.was diagnosed with Itp 10 years back spleenotomy done any 7 yrs back, we have tried all know treatments and the count has been fluctuating between 4 and 60. 2 days ago she suffered internal bleeding on her right brain and now post surgery she
Hi everyone, This is let out my sadness, my wife 35 yrs old.was diagnosed with Itp 10 years back spleenotomy done any 7 yrs back, we have tried all know treatments and the count has been fluctuating between 4 and 60. 2 days ago she suffered internal bleeding on her right brain and now post surgery she
arjunmech
in
ITP Support Association
8 years ago
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