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Ceftazidime intravenous infusion
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W7R1 first five mins ?
Phew that was a hot one ! Not sure why but I am finding that in the first five minutes of my longer run I'm really struggling with my breathing, then it just seems to sort itself out. Can't believe that I am actually running for 25 mins non stop, 11 years ago I had a spinal fusion and never thought I'd
Phew that was a hot one ! Not sure why but I am finding that in the first five minutes of my longer run I'm really struggling with my breathing, then it just seems to sort itself out. Can't believe that I am actually running for 25 mins non stop, 11 years ago I had a spinal fusion and never thought I'd
Dawnie16
Graduate
in
Couch to 5K
6 years ago
Frustration
Dx 12 years ago with ITP. Had IVIG, steroids for 7 years with fluctuating numbers (from 7 to 120). Was on Promacta 75 mg for over a year with great results for about 4 months, then down in the tank again. Having my fourth Rituxan tomorrow; platelets at 20, down from 80. Still on steroids, also. Can
Dx 12 years ago with ITP. Had IVIG, steroids for 7 years with fluctuating numbers (from 7 to 120). Was on Promacta 75 mg for over a year with great results for about 4 months, then down in the tank again. Having my fourth Rituxan tomorrow; platelets at 20, down from 80. Still on steroids, also. Can
Shooshpsu
in
ITP Support Association
6 years ago
HAPPY (?) WORLD LUPUS DAY!! š¦š¦ā„ļøš¤
When I told Mum it was World Lupus Day today, she asked me what I was doing for it. I gave it a think, and responded, āEnjoying my life, enjoying being me today.ā Even though I spent the day at the hospital receiving my three weekly infusion of IVIg, I found my way to the hospital garden afterwards,
When I told Mum it was World Lupus Day today, she asked me what I was doing for it. I gave it a think, and responded, āEnjoying my life, enjoying being me today.ā Even though I spent the day at the hospital receiving my three weekly infusion of IVIg, I found my way to the hospital garden afterwards,
lupusinflight
in
LUPUS UK
6 years ago
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Triple Arthrodesis !!
Hi, my name is Wanda , I live in Ontario Canada. i have had RA for 25 years, I am 55, I have two awesome daughters Jennifer & Meagan, and a beautiful Grandson Nathan, I had a Tripplel Arthrodesis on April 26 20/18 I have no pain, I have my first check up today ! I will post the results š
Hi, my name is Wanda , I live in Ontario Canada. i have had RA for 25 years, I am 55, I have two awesome daughters Jennifer & Meagan, and a beautiful Grandson Nathan, I had a Tripplel Arthrodesis on April 26 20/18 I have no pain, I have my first check up today ! I will post the results š
Wandamcneil
in
NRAS
6 years ago
Update
Husbands started on medication had one IVIG infusion so far, spent a week in the hospital last month for an infection that got out of hand very quickly, home from work for 6 weeks this is his second week back to work , he is a little sore he's a mechanic, he's finding that he is more tired not sure if
Husbands started on medication had one IVIG infusion so far, spent a week in the hospital last month for an infection that got out of hand very quickly, home from work for 6 weeks this is his second week back to work , he is a little sore he's a mechanic, he's finding that he is more tired not sure if
Hidden
in
CLL Support
6 years ago
ITP diagnosed in Pregnancy
Somewhere in depression looking at my wife in this situation what we have never imagined at this stage of life at least but looking at you guys I feel a support. She has been diagnosed with ITP. Before pregnancy she was holding a count of 120 & was fit & fine. During her pregnancy in the first trimester
Somewhere in depression looking at my wife in this situation what we have never imagined at this stage of life at least but looking at you guys I feel a support. She has been diagnosed with ITP. Before pregnancy she was holding a count of 120 & was fit & fine. During her pregnancy in the first trimester
nitindhureja
in
ITP Support Association
6 years ago
Sed rates and IVIG (gammagobulin infusion).
I get gammagobulin every month through a 6 hr infusion for CVID. Got it on Weds and saw rheumatologist on thurs for the GCA/PMR. She had sed rate fine on me. Normally Iām normal low sed rate because Iām being treated with low dose prednisone and Actemra. My sed rate day after infusion. Came back
I get gammagobulin every month through a 6 hr infusion for CVID. Got it on Weds and saw rheumatologist on thurs for the GCA/PMR. She had sed rate fine on me. Normally Iām normal low sed rate because Iām being treated with low dose prednisone and Actemra. My sed rate day after infusion. Came back
Leeleep
in
PMRGCAuk
6 years ago
Post Spinal Surgery
Hello everyone just joined this community. Had a Spinal Fusion 7 weeks ago and am still experiencing low back pain when I stand for a while
Hello everyone just joined this community. Had a Spinal Fusion 7 weeks ago and am still experiencing low back pain when I stand for a while
Sensation16
in
Pain Concern
6 years ago
Lost the plot
Iām at a quandary to what or where Iām going in other words Iām lost. I have had PMR for about 18 months or a bit more as itās hard to determine the exact time it started. Hereās my story. It mainly affected my upper arms which became impossible to lift but with normal bloods I was given Pred by my GP
Iām at a quandary to what or where Iām going in other words Iām lost. I have had PMR for about 18 months or a bit more as itās hard to determine the exact time it started. Hereās my story. It mainly affected my upper arms which became impossible to lift but with normal bloods I was given Pred by my GP
Suffolklady
in
PMRGCAuk
6 years ago
I.V.I.G. any tips?
Frequent infections following chemo means H.I.V.G likely according to my chest consultant. She is writing to my haematologist who already has results that haemoglobulins are low.. anyone had this? did it make a difference? Any tips? Thanks and a Happy Healthy Easter everyone...
Frequent infections following chemo means H.I.V.G likely according to my chest consultant. She is writing to my haematologist who already has results that haemoglobulins are low.. anyone had this? did it make a difference? Any tips? Thanks and a Happy Healthy Easter everyone...
luckyackerl
in
CLL Support
6 years ago
No 11q or 17p deletion
Besides being Trisomy 12 and unmutated I was told by the nurse practitioner in my hematologist office that there is no 11q or 17p deletion so, does that mean I have them? I have been on watch & wait since my diagnosis of CLL in Sept of '07. Does anybody else have this as their status and if so, are
Besides being Trisomy 12 and unmutated I was told by the nurse practitioner in my hematologist office that there is no 11q or 17p deletion so, does that mean I have them? I have been on watch & wait since my diagnosis of CLL in Sept of '07. Does anybody else have this as their status and if so, are
Ladydi49
in
CLL Support
6 years ago
croup
My son was diagnosed in June of 2017 with the count of 2. He received IVIG and within a week his blood platelets were up to the five hundreds. Slowly but surely they will drop down to the 20th and he'd get a treatment again. He's had about four or five treatments of the IVIG. He has not had a treatment
My son was diagnosed in June of 2017 with the count of 2. He received IVIG and within a week his blood platelets were up to the five hundreds. Slowly but surely they will drop down to the 20th and he'd get a treatment again. He's had about four or five treatments of the IVIG. He has not had a treatment
Jmcleod
in
ITP Support Association
6 years ago
Raised platelet gradually from 21 to 222
I briefly wanted to share my son's journey with his ITP. He was diagnosed last January 6, 2018 with a count of 21, he was given ivig and count was raised to 117. Since then, I gave him a total transition healthy diet and lifestyle. He stopped eating processed, frozen, canned foods and pork.His daily
I briefly wanted to share my son's journey with his ITP. He was diagnosed last January 6, 2018 with a count of 21, he was given ivig and count was raised to 117. Since then, I gave him a total transition healthy diet and lifestyle. He stopped eating processed, frozen, canned foods and pork.His daily
zronquillo
in
ITP Support Association
6 years ago
double trouble
I had a spinal fusion some years ago - am ok but have difficulty getting up off floor, lifting things etc - my husband has just been confirmed with Parkinson - early stages - am concerned because of my condition how am i going to look after him - want to be prepared - want to look after him.
I had a spinal fusion some years ago - am ok but have difficulty getting up off floor, lifting things etc - my husband has just been confirmed with Parkinson - early stages - am concerned because of my condition how am i going to look after him - want to be prepared - want to look after him.
Hidden
in
Care Community
6 years ago
Cure ITP by homeopathic balancing of the immune system
Hi, Sorry to hear you are going through this. I don't have any answers other than saying for me once I got rid of the virus or whatever triggered the ITP and got my immune system balanced I improved dramatically. My story. The ITP was triggered by a bad virus or parasites that I caught in March 2017
Hi, Sorry to hear you are going through this. I don't have any answers other than saying for me once I got rid of the virus or whatever triggered the ITP and got my immune system balanced I improved dramatically. My story. The ITP was triggered by a bad virus or parasites that I caught in March 2017
CDmom
in
ITP Support Association
6 years ago
Donāt stand so close to me!
I want to now live in a bubble after this yearās flu! Itās now going on a month and Iām still coughing. Thanks to Tamiflu I avoided some of the misery. However, my 3 month CLL check at Mayo came back with a dropped neutrophil count as well as a dropped hemoglobin count from last time - all from the flu
I want to now live in a bubble after this yearās flu! Itās now going on a month and Iām still coughing. Thanks to Tamiflu I avoided some of the misery. However, my 3 month CLL check at Mayo came back with a dropped neutrophil count as well as a dropped hemoglobin count from last time - all from the flu
SunnyCA
in
CLL Support
6 years ago
Here I go again
Hi everyone Well after 5 months med free with a count of 30 that slowly dropped over the five months to 10, I have to go back on prednisone. Iām not looking forward to two weeks in it. I have to work full time this time and I have nobody to cover me if I get a side effect. I have never been offered anything
Hi everyone Well after 5 months med free with a count of 30 that slowly dropped over the five months to 10, I have to go back on prednisone. Iām not looking forward to two weeks in it. I have to work full time this time and I have nobody to cover me if I get a side effect. I have never been offered anything
wjoyful
in
ITP Support Association
6 years ago
Newly diagnosed and searching for answers.
My daughter was diagnosed on 2-16-18 with ITP, she was medevaced to a childrenās hospital. She tested positive for direct Coombs prior to her first IVIG. Her platelets at the time of transport was 15k. After treatment her platelets rose to 42k. Since then she was doing wonderful until this past Sunday
My daughter was diagnosed on 2-16-18 with ITP, she was medevaced to a childrenās hospital. She tested positive for direct Coombs prior to her first IVIG. Her platelets at the time of transport was 15k. After treatment her platelets rose to 42k. Since then she was doing wonderful until this past Sunday
amberlbrown2
in
ITP Support Association
6 years ago
Pneumonia Shot
Hello all....was wondering if anyone on here got the pneumonia shot and if so were there any complications? I did get the flu shot last October a couple weeks after I got sinusitis and bronchitis because I thought I was feeling better. It's been 5 months and I'm still coughing. My hematologist said
Hello all....was wondering if anyone on here got the pneumonia shot and if so were there any complications? I did get the flu shot last October a couple weeks after I got sinusitis and bronchitis because I thought I was feeling better. It's been 5 months and I'm still coughing. My hematologist said
Ladydi49
in
CLL Support
6 years ago
Finger fusion and tendon repair etc
Good Evening All Some of you guys know me but for brevity and basic info, I have RA/SLE/Reynauds/APS/Vasculitis/AnkySpond etc! Multiple ops, fused right foot and all toes K wired, tendons cut, toes shortened and straightened blah. I'm on biologics, Rituximab, and as soon as I get the nod from my consultant
Good Evening All Some of you guys know me but for brevity and basic info, I have RA/SLE/Reynauds/APS/Vasculitis/AnkySpond etc! Multiple ops, fused right foot and all toes K wired, tendons cut, toes shortened and straightened blah. I'm on biologics, Rituximab, and as soon as I get the nod from my consultant
Dragonfly4
in
NRAS
6 years ago
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