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Ceftazidime intravenous infusion
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New sarcoid user
Hi sarcoid people, My name is Helen and I am 33 years old and about to be diagnosed with an 'unusual' presentation of sarcoid. My neurologist wants me to have a gallium scan to confirm. Apparently the radioactive gallium attaches to red blood cells which will congruate around areas where the deposits
Hi sarcoid people, My name is Helen and I am 33 years old and about to be diagnosed with an 'unusual' presentation of sarcoid. My neurologist wants me to have a gallium scan to confirm. Apparently the radioactive gallium attaches to red blood cells which will congruate around areas where the deposits
MG82
in
SarcoidosisUK
8 years ago
Pain from Failed Spinal Fusion
Ok this is a first for me as in a Blog, so please bare with me! I’ve had 7 major back ops, have been on massive doses of OxyContin/Oxynorm and Oralmorph ect for 18yrs but now affecting mental state, can anyone help me? The pain in back, down the leg is at it’s worst. It all started 18yrs ago when I
Ok this is a first for me as in a Blog, so please bare with me! I’ve had 7 major back ops, have been on massive doses of OxyContin/Oxynorm and Oralmorph ect for 18yrs but now affecting mental state, can anyone help me? The pain in back, down the leg is at it’s worst. It all started 18yrs ago when I
Delboy1
in
Pain Concern
8 years ago
Pending diagnosis...
Hi All, I really wish I had joined this Forum a lot sooner....I am certain that no one wants to suffer but it is reassuring to read that I am not alone! For the last 4/5 years I have been suffering bouts of discomfort that can vary from urgent visits to the loo, pain, headaches - all sorts. For some
Hi All, I really wish I had joined this Forum a lot sooner....I am certain that no one wants to suffer but it is reassuring to read that I am not alone! For the last 4/5 years I have been suffering bouts of discomfort that can vary from urgent visits to the loo, pain, headaches - all sorts. For some
JBK1978
in
IBS Network
8 years ago
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IVIG in the UK?
Hi folks I've had a chest infection for the last four weeks and I'm now on my fifth lot of anti biotics this year. I spent 7 days in bed recently and I was also feverish. Reading on here it seems that some of you folks have been put on IVIG when you have had similar experiences. ( note: I have already
Hi folks I've had a chest infection for the last four weeks and I'm now on my fifth lot of anti biotics this year. I spent 7 days in bed recently and I was also feverish. Reading on here it seems that some of you folks have been put on IVIG when you have had similar experiences. ( note: I have already
Jamie_james
in
CLL Support
8 years ago
Sacroiliac joint fusion?
Hi guys, wondering if there was anyone out there who has has this procedure ? Following my sacral fracture, I have been left with severe chronic pain which the consultant and pain clinic doctor both think is chronic and permanent. However the orthopaedic surgeon who diagnosed the fracture initially
Hi guys, wondering if there was anyone out there who has has this procedure ? Following my sacral fracture, I have been left with severe chronic pain which the consultant and pain clinic doctor both think is chronic and permanent. However the orthopaedic surgeon who diagnosed the fracture initially
Toplady
in
Pain Concern
9 years ago
IVIG
I am wondering if anyone here with SS has been treated with IVIG? If so, what sort of benefit did you derive from it.....such as, did you have an improvement in symptoms, reduction in your pain levels, slowed progression of the extraglandular manifestations? Were you seeing a Rheumatologist at a large
I am wondering if anyone here with SS has been treated with IVIG? If so, what sort of benefit did you derive from it.....such as, did you have an improvement in symptoms, reduction in your pain levels, slowed progression of the extraglandular manifestations? Were you seeing a Rheumatologist at a large
Megansheart
in
The Australian Sjögren's Syndrome Association
9 years ago
Ivig
I just came to get support I'm very lost and anxious with all of this. My 4 month old was diagnosed with ITP his platelets were at 7,000 and now up to 214,000. He got ivig a week ago and now the petechiae is back and I'm scared his platelets are going down again.
I just came to get support I'm very lost and anxious with all of this. My 4 month old was diagnosed with ITP his platelets were at 7,000 and now up to 214,000. He got ivig a week ago and now the petechiae is back and I'm scared his platelets are going down again.
kjosborne
in
ITP Support Association
9 years ago
ataxia, as a way of life, ugh
Yesterday, I went to my neuro and it seems the IVIg has cleared up my weird antibody issue ( thought to bring on the ataxia), and I no longer get long-term hives (another symptom), but the ataxia remained and is advancing. My neuro thinks some antibodies are still around. They are going on that. Nevertheless
Yesterday, I went to my neuro and it seems the IVIg has cleared up my weird antibody issue ( thought to bring on the ataxia), and I no longer get long-term hives (another symptom), but the ataxia remained and is advancing. My neuro thinks some antibodies are still around. They are going on that. Nevertheless
neta
in
Ataxia UK
9 years ago
Giant cell hepatitis
Hi all I'm new to this page I'm looking for information on giant cell hepatitis if anyone has any I would be very great full, my son is two year old and has giant cell hepatitis and autoimmune haemolytic anaemia I no to have both them together its very rare, he went into full liver failure 11 months
Hi all I'm new to this page I'm looking for information on giant cell hepatitis if anyone has any I would be very great full, my son is two year old and has giant cell hepatitis and autoimmune haemolytic anaemia I no to have both them together its very rare, he went into full liver failure 11 months
Rueben13
in
Children's Liver Disease Foundation
9 years ago
FCR follow up is CT necessary?
Hi, we are coming up on two years since my husband finished a 6 month treatment with fcr. We had been told he had a "complete response with incomplete recovery of the bone marrow." His blood counts improve some then dwindle some; currently neutropenic again barely above 500. His onco has been insisting
Hi, we are coming up on two years since my husband finished a 6 month treatment with fcr. We had been told he had a "complete response with incomplete recovery of the bone marrow." His blood counts improve some then dwindle some; currently neutropenic again barely above 500. His onco has been insisting
dwolden
in
CLL Support
9 years ago
Is "watch and wait" approach to treatment a risky decision?
Greetings everyone! This is my first post, so I hope you will bear with me please. I’ve tried to be explicit but brief, but I apologize now for the length of this post! I’m seeking advice/reassurance about my recent diagnosis (4 months ago) of a cutaneous vasculitis. I’ll put my questions first and
Greetings everyone! This is my first post, so I hope you will bear with me please. I’ve tried to be explicit but brief, but I apologize now for the length of this post! I’m seeking advice/reassurance about my recent diagnosis (4 months ago) of a cutaneous vasculitis. I’ll put my questions first and
judya
in
Vasculitis UK
9 years ago
Spinal fusion and spinal cord compression.
Hello I have lower half spinal fusion and upper spinal cord compression. Does anyone else
Hello I have lower half spinal fusion and upper spinal cord compression. Does anyone else
Flojo44
in
Thyroid UK
9 years ago
Ivig
Has anyone found that the r e treatment of Ivig as not been as affective after a short time of having the treatment . I had my 4th round and don't feel it worked as good as the other times .I also had a headache for around 3 weeks from the last day of treatment x
Has anyone found that the r e treatment of Ivig as not been as affective after a short time of having the treatment . I had my 4th round and don't feel it worked as good as the other times .I also had a headache for around 3 weeks from the last day of treatment x
Jane1869
in
Myasthenia Gravis Association
9 years ago
Myasthenia gravis
Hi is there anyone in here who has ivig for myasthenia gravis . I am trying to find out if the treatment has worked and for how long Ect . I had my 4th ivig given over 5 days and it did not seem to work as well as the other 3 times x
Hi is there anyone in here who has ivig for myasthenia gravis . I am trying to find out if the treatment has worked and for how long Ect . I had my 4th ivig given over 5 days and it did not seem to work as well as the other 3 times x
Jane1869
in
Vasculitis UK
9 years ago
Shingles prior to ITP Diagnosis
I would be interested in hearing how many of us have had a bout of shingles in the months/years prior to getting diagnosed with ITP. This follows two conversations I have recently had whilst being given IVIG in hospital with fellow IVIG recipients who also had ITP and had had a bout of shingles prior
I would be interested in hearing how many of us have had a bout of shingles in the months/years prior to getting diagnosed with ITP. This follows two conversations I have recently had whilst being given IVIG in hospital with fellow IVIG recipients who also had ITP and had had a bout of shingles prior
rjsmyth
in
ITP Support Association
9 years ago
Spine issues, post surgery, nerve pain
Has anyone had spine surgery at t12 l1 or L2-L3. I would like to hear from you. Or who has has spinal fusion and can share their experiences, recovery process and tips. I'm 7 months post op from major back surgery at those levels with fusion at T12-L1. I'm have new nerve pain in my feet and legs
Has anyone had spine surgery at t12 l1 or L2-L3. I would like to hear from you. Or who has has spinal fusion and can share their experiences, recovery process and tips. I'm 7 months post op from major back surgery at those levels with fusion at T12-L1. I'm have new nerve pain in my feet and legs
Jtal19305
in
Pain Concern
9 years ago
Pseudomonas and breathing
Hi. I was diagnosed with broncheactasis in 2013. At that time my sputum culture showed no bacteria and u was sent home with lefloxin and was told that whenever I get infection I have to take leflox. I had no major infection in 2014 but in August 2015, I had a severe attack of broncheactasis. My Spo2
Hi. I was diagnosed with broncheactasis in 2013. At that time my sputum culture showed no bacteria and u was sent home with lefloxin and was told that whenever I get infection I have to take leflox. I had no major infection in 2014 but in August 2015, I had a severe attack of broncheactasis. My Spo2
Saadi-Malik
in
Lung Conditions Community Forum
9 years ago
MTP big toe joint fusion
I'd love to hear from anyone who's had this operation and whether they successfully returned to running. I had the op done last week and now recuperating wondering if I'll ever be able to run again 🏃🏻
I'd love to hear from anyone who's had this operation and whether they successfully returned to running. I had the op done last week and now recuperating wondering if I'll ever be able to run again 🏃🏻
Alty63
Graduate
in
Couch to 5K
9 years ago
recently diagnosed with CLL
In Jan 2015 I went to the hospital with a platelet count of 1,000. The doctor told me I had ITP and treated me for 10 months with steroids, IVIG, and Nplate shots. After 3 more hospitalizations, I changed doctors in November. The new doc started me on Rituxan, continued the weekly Nplate, and scheduled
In Jan 2015 I went to the hospital with a platelet count of 1,000. The doctor told me I had ITP and treated me for 10 months with steroids, IVIG, and Nplate shots. After 3 more hospitalizations, I changed doctors in November. The new doc started me on Rituxan, continued the weekly Nplate, and scheduled
ohiojim
in
CLL Support
9 years ago
Ivig
Has anyone found that sometimes after an IVIG they feel ok and other times not. Usually I feel ok, but this last one I feel nauseous and extremely tired.
Has anyone found that sometimes after an IVIG they feel ok and other times not. Usually I feel ok, but this last one I feel nauseous and extremely tired.
Whitespot
in
ITP Support Association
9 years ago
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