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Ceftazidime intravenous infusion
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IVIG
Has anyone found their joints very sore on IVIG?
Has anyone found their joints very sore on IVIG?
Whitespot
in
ITP Support Association
8 years ago
IVIG
Hi, Ive been battling with ITP for a year and the doc have me getting weekly treatments but it dont seem as affective anymore can someone give me advise or insight
Hi, Ive been battling with ITP for a year and the doc have me getting weekly treatments but it dont seem as affective anymore can someone give me advise or insight
rharvin
in
ITP Support Association
8 years ago
Osteopathic treatment
Hello, first time I've posted. I've had chronic back pain, now widespread pain for many years. I had a spinal fusion 6 years ago, successful at first, then 18 months later symptoms increased again. I've had all the usual Nhs treatment including caudal epidurals. I'm currently trying to reduce my meds
Hello, first time I've posted. I've had chronic back pain, now widespread pain for many years. I had a spinal fusion 6 years ago, successful at first, then 18 months later symptoms increased again. I've had all the usual Nhs treatment including caudal epidurals. I'm currently trying to reduce my meds
micharlie
in
Pain Concern
8 years ago
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Agonising Upper Back Pain
Hi, I have had Pmr for 17 months now and am currently on 9mg Pred. I have developed almost crippling pain in my upper back, it feels like my ribs are sliding about and I keep getting stuck. I have had a Spinal Fusion in the past, so of course I am worried about this. I think I need an xray, but my GP
Hi, I have had Pmr for 17 months now and am currently on 9mg Pred. I have developed almost crippling pain in my upper back, it feels like my ribs are sliding about and I keep getting stuck. I have had a Spinal Fusion in the past, so of course I am worried about this. I think I need an xray, but my GP
Attic
in
PMRGCAuk
8 years ago
New Meds for Nerve Pain?
Hey all out there I am just wondering about other people's experience with gabapentin and/or nortriptalyine? I have unstable veterbrae with a severely herniated disc that's pushing constantly on my L5 nerve. I am looking into having spinal fusion soon but until then I am trying everything to get my
Hey all out there I am just wondering about other people's experience with gabapentin and/or nortriptalyine? I have unstable veterbrae with a severely herniated disc that's pushing constantly on my L5 nerve. I am looking into having spinal fusion soon but until then I am trying everything to get my
AshMorgan77
in
Pain Concern
8 years ago
New to itp
My granddaughter was diagnosed with itp September 24, 2015. The past month she has been in the hospital three times. First time got igiv and went from 10000 to 130000 in a week but next week down to 7000. Back in the hospital with two treatments of Ivig and up to 66000 the next week. Next week down
My granddaughter was diagnosed with itp September 24, 2015. The past month she has been in the hospital three times. First time got igiv and went from 10000 to 130000 in a week but next week down to 7000. Back in the hospital with two treatments of Ivig and up to 66000 the next week. Next week down
Sam1930
in
ITP Support Association
9 years ago
Ivig
So I had my last IVIG on sept.25th. 2 days prior to that I started on 30 mg prednisone. I'm slowly weening off. My count went up to 125 then slowly decreased. As of October 6 I was down to 10 mg pred. My count went down to 17. I go for blood tests weekly. My next count was 21 then 57. Still on 10 mg
So I had my last IVIG on sept.25th. 2 days prior to that I started on 30 mg prednisone. I'm slowly weening off. My count went up to 125 then slowly decreased. As of October 6 I was down to 10 mg pred. My count went down to 17. I go for blood tests weekly. My next count was 21 then 57. Still on 10 mg
Whitespot
in
ITP Support Association
9 years ago
My platelets in a graph!
I thought it would be interesting to upload this graph, it shows my platelets tracked in ITP tracker app for the iPhone. The first two high peaks are IVIG, in between them I had Rituximab. The last part is Revolade and it goes up and down a bit depending on how much Prednisolone I have. The next stage
I thought it would be interesting to upload this graph, it shows my platelets tracked in ITP tracker app for the iPhone. The first two high peaks are IVIG, in between them I had Rituximab. The last part is Revolade and it goes up and down a bit depending on how much Prednisolone I have. The next stage
JasonJ
in
ITP Support Association
9 years ago
Terrible Ignorance
I have been sitting on this since Monday but have decided to share it with you because I am still so angry and upset. Some of you know that I am back nebulising ceftazidime again for my bronchiectasis. It is almost impossible to find outside the hospital. Tesco at Stratford have managed to get it before
I have been sitting on this since Monday but have decided to share it with you because I am still so angry and upset. Some of you know that I am back nebulising ceftazidime again for my bronchiectasis. It is almost impossible to find outside the hospital. Tesco at Stratford have managed to get it before
Hidden
in
Lung Conditions Community Forum
9 years ago
My ITP journey
Hi every one I have been diagnosed with ITP in the summer of 2006 from that year on forward i was in and out of the hospital either that or in the outpatient unit. I have been given several medications first it was prednisone which i was not to fond of it then I was given rituxan,WinRho, decadron and
Hi every one I have been diagnosed with ITP in the summer of 2006 from that year on forward i was in and out of the hospital either that or in the outpatient unit. I have been given several medications first it was prednisone which i was not to fond of it then I was given rituxan,WinRho, decadron and
Nespinoza
in
ITP Support Association
9 years ago
I coughed lol
Yes I only coughed and had horrible pain in lower back and leg. after tons of tests and phyiso i could no longer carry on and agreed to have spinal fusion which only give two weeks pain free and returned not in one leg but both. it's nearly two years since the op and again tests phyiso and more medication
Yes I only coughed and had horrible pain in lower back and leg. after tons of tests and phyiso i could no longer carry on and agreed to have spinal fusion which only give two weeks pain free and returned not in one leg but both. it's nearly two years since the op and again tests phyiso and more medication
Hidden
in
Pain Concern
9 years ago
I coughed lol
hi yes couple of years ago while in work I coughed and had horrible pain in lower back. after tons of tests and phyiso I ended up having spinal fusion which only give two weeks pain free and returned not in one leg but both. it's nearly two years since the op and I'm still unable to do normal activities
hi yes couple of years ago while in work I coughed and had horrible pain in lower back. after tons of tests and phyiso I ended up having spinal fusion which only give two weeks pain free and returned not in one leg but both. it's nearly two years since the op and I'm still unable to do normal activities
Hidden
in
Pain Concern
9 years ago
First Post
Hope I'm doing this on the right part. Just need to put things down where other people with similar problems are so I don't feel like I'm going mad. Had lumber spinal fusion and after a number of years metal work removed because I was still in a lot of pain. I am in chronic pain and have had various
Hope I'm doing this on the right part. Just need to put things down where other people with similar problems are so I don't feel like I'm going mad. Had lumber spinal fusion and after a number of years metal work removed because I was still in a lot of pain. I am in chronic pain and have had various
Rod-S
in
Pain Concern
9 years ago
itp since 8 month
my 8 year daughter has itp since 8 month. her platelets count is bellow 10000.she has been taken storied for six months .she was also infused ivig 3 times , also infused anti d. but after a week her palates again dropped down. please help me .
my 8 year daughter has itp since 8 month. her platelets count is bellow 10000.she has been taken storied for six months .she was also infused ivig 3 times , also infused anti d. but after a week her palates again dropped down. please help me .
547-amit
in
ITP Support Association
9 years ago
Control of CAR-T immune cells could mean safer, more precise cancer treatment for CLL and many other cancers.
'[i]Researchers at the University of California-San Francisco have engineered a molecular "on switch" that allows tight control over the actions of immune cells known as T cells, according to new research published in Science Express:"[/i] http://www.medicalnewstoday.com/articles/299952.php The linked
'[i]Researchers at the University of California-San Francisco have engineered a molecular "on switch" that allows tight control over the actions of immune cells known as T cells, according to new research published in Science Express:"[/i] http://www.medicalnewstoday.com/articles/299952.php The linked
AussieNeil
Administrator
in
CLL Support
9 years ago
Fostamatinib Trials
Hi I was diagnosed a year ago with ITP and not responded to Steriods, MMF and Rituxamab, only treatment that raises my plaltelets is IVIG temporarily. I have now been referred to Oxford and they are trialing a new drug called Fostamatinib - I had never heard of this but they would like me to start trialing
Hi I was diagnosed a year ago with ITP and not responded to Steriods, MMF and Rituxamab, only treatment that raises my plaltelets is IVIG temporarily. I have now been referred to Oxford and they are trialing a new drug called Fostamatinib - I had never heard of this but they would like me to start trialing
Sachmo16
in
ITP Support Association
9 years ago
Treatment
After taking steroids and then IVIG I was wondering what everyone's next step was. Neither of those seem to keep my numbers up for very long?
After taking steroids and then IVIG I was wondering what everyone's next step was. Neither of those seem to keep my numbers up for very long?
Whitespot
in
ITP Support Association
9 years ago
Introducing myself
I'll try and keep this short......in May 2012 I was under a huge amount of stress in my job and developed dreadful pain in my shoulders and upper arms - three days in I couldn't dress myself. Long story short my osteopath diagnosed PMR and of course my GP tested for everything else but that. In desperation
I'll try and keep this short......in May 2012 I was under a huge amount of stress in my job and developed dreadful pain in my shoulders and upper arms - three days in I couldn't dress myself. Long story short my osteopath diagnosed PMR and of course my GP tested for everything else but that. In desperation
Ida-June128
in
PMRGCAuk
9 years ago
ITP since May this year. Currently on Revolade
I was diagnosed (in Sweden) after the usual doctors visit, I had bruising, mouth blood blisters, the red dots all over my body, and a 16 hour nose bleed that really told me something wasn't quite right! I was rushed into hospital with a count of 3, they tested it about 4 times in 24 hours. After 4 days
I was diagnosed (in Sweden) after the usual doctors visit, I had bruising, mouth blood blisters, the red dots all over my body, and a 16 hour nose bleed that really told me something wasn't quite right! I was rushed into hospital with a count of 3, they tested it about 4 times in 24 hours. After 4 days
JasonJ
in
ITP Support Association
9 years ago
A little bit of help?
I'm new here and I'm 16 years old, in 2011 I was hit by a car. My left ankle was totally destroyed and after 1 hour of the nurses debating to have my ankle amputated they decided to try their best and repair my ankle, after about a year I started getting really bad pain in my ankle. I would walk only
I'm new here and I'm 16 years old, in 2011 I was hit by a car. My left ankle was totally destroyed and after 1 hour of the nurses debating to have my ankle amputated they decided to try their best and repair my ankle, after about a year I started getting really bad pain in my ankle. I would walk only
Leah-Vasconcelos
in
Arthritis Action
9 years ago
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