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Ceftazidime intravenous infusion
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My latest treatment for colonised Pseudomonas
After receiving results for the dreaded pseudomonas again ... Doc told me its colonised and that's it ... so changed my way of thinking ... So when I think I might have an infection, to get a test done via GP but don't panic as the stubborn bugger won't necessarily need Iv antibiotics yet .. The new
After receiving results for the dreaded pseudomonas again ... Doc told me its colonised and that's it ... so changed my way of thinking ... So when I think I might have an infection, to get a test done via GP but don't panic as the stubborn bugger won't necessarily need Iv antibiotics yet .. The new
poppyshola
in
Lung Conditions Community Forum
7 months ago
Intralipids, IVIG experience?
Hi, is there any of you who suffered from a number of implantation failures and finally achieved successful pregnancy by using intralipids / IVIG? Any good (or bad) experiences of using them?
Hi, is there any of you who suffered from a number of implantation failures and finally achieved successful pregnancy by using intralipids / IVIG? Any good (or bad) experiences of using them?
WaitingforGabriel
in
Fertility Network UK
1 day ago
IVIg infusion clinic help
hello, I have been advised to do both intralipid and Ivig infusion for my next FET with immunotherapy. Our doctor is ok for us to do IVIG elsewhere to save money. I’m based in London and prices for IVIg are scary. I’ve read of people who travelled to do it abroad: where did you go? What countries/
hello, I have been advised to do both intralipid and Ivig infusion for my next FET with immunotherapy. Our doctor is ok for us to do IVIG elsewhere to save money. I’m based in London and prices for IVIg are scary. I’ve read of people who travelled to do it abroad: where did you go? What countries/
Oumil
in
Fertility Network UK
7 days ago
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Help with rehab at home after acute phase of autoimmune encephalitis for my 16 year old
I am mum to a 16 year old daughter who has recently been diagnosed with autoimmune encephalitis. After several weeks in and out of A&E and several other departments, where they thought it was psychological, we were referred to the neurologists by the psychiatrist who after several tests diagnosed AE
I am mum to a 16 year old daughter who has recently been diagnosed with autoimmune encephalitis. After several weeks in and out of A&E and several other departments, where they thought it was psychological, we were referred to the neurologists by the psychiatrist who after several tests diagnosed AE
Cat29red
in
Encephalitis Society
7 days ago
Advice needed
Hi everyone - after a bit of advice from the collective brain :) We are incredibly lucky enough to have a little boy from our 6th transfer in 2021, and had 5 frozen embryos at the clinic should we decide to try for a sibling. We've now done 2 FETs with exactly the same protocol (steroids / intralipids
Hi everyone - after a bit of advice from the collective brain :) We are incredibly lucky enough to have a little boy from our 6th transfer in 2021, and had 5 frozen embryos at the clinic should we decide to try for a sibling. We've now done 2 FETs with exactly the same protocol (steroids / intralipids
Millbanks
in
Fertility Network UK
8 days ago
IVIG with CALR ET
Has anyone with ET/MPN ever received IVIG? I have ET and my platelets are in the mid to high 500k range on 1000mg HU daily. IVIG has a risk for blood clots but it appears to be one of the few things that might help with a severe neuropathy I’ve developed. My docs think I will be ok but I am quite nervous
Has anyone with ET/MPN ever received IVIG? I have ET and my platelets are in the mid to high 500k range on 1000mg HU daily. IVIG has a risk for blood clots but it appears to be one of the few things that might help with a severe neuropathy I’ve developed. My docs think I will be ok but I am quite nervous
George1976
in
MPN Voice
14 days ago
return of immune system
I achieved remission in May 2022 after a year of O & V. My immune system has still not returned and I’ve thankfully been given IVIG infusions to help me out. I was told my immune system would return one year after the completion of Obinutuzumab infusions and those ended in September of 2021. Has anyone
I achieved remission in May 2022 after a year of O & V. My immune system has still not returned and I’ve thankfully been given IVIG infusions to help me out. I was told my immune system would return one year after the completion of Obinutuzumab infusions and those ended in September of 2021. Has anyone
Cllinmaryland
in
CLL Support
1 month ago
arrhythmia and the flu and Covid vaccine
Hi all! I had a physical on Wednesday and since I hadn’t received my flu and Covid vaccine yet this year went ahead and got them. I came home and did a workout and felt fine until evening when fever and chills hit along with some mild sporadic heart arrhythmia. I took it easy the next couple days and
Hi all! I had a physical on Wednesday and since I hadn’t received my flu and Covid vaccine yet this year went ahead and got them. I came home and did a workout and felt fine until evening when fever and chills hit along with some mild sporadic heart arrhythmia. I took it easy the next couple days and
CoCoLuna11
in
CLL Support
2 months ago
Advice for managing adenomyosis
Hello fellow IVF warriors 💗 I wondered if anyone can give me some advice on how to manage adenomyosis whilst going through IVF? A bit of background on me: I started the IVF process in May 2022 after a year and half of trying naturally for our second child, who would be a sibling to our baby
Hello fellow IVF warriors 💗 I wondered if anyone can give me some advice on how to manage adenomyosis whilst going through IVF? A bit of background on me: I started the IVF process in May 2022 after a year and half of trying naturally for our second child, who would be a sibling to our baby
Sophia_Mama
in
Fertility Network UK
2 months ago
Brukinsa and Skin
I'm posting just for input from our group on a simple issue. I started Brukinsa on January 1, and I'm also on IVIG infusions once every four weeks since October 1. Last week from January 15 through January 20 I was in Boston for a two week blood and check up post the Jan 1 start on Brukinsa for three
I'm posting just for input from our group on a simple issue. I started Brukinsa on January 1, and I'm also on IVIG infusions once every four weeks since October 1. Last week from January 15 through January 20 I was in Boston for a two week blood and check up post the Jan 1 start on Brukinsa for three
wizzard166
in
CLL Support
2 months ago
Facet joints
Hi,I recently went to see a consultant. I have a.10 year history of l5/s1 disc protrusion. Pain has changed the last few years and has been more in the facet joints. I have had 2 lots of facet injections over the last 2 years however had a bad flare up about 5 months ago which I am still recovering
Hi,I recently went to see a consultant. I have a.10 year history of l5/s1 disc protrusion. Pain has changed the last few years and has been more in the facet joints. I have had 2 lots of facet injections over the last 2 years however had a bad flare up about 5 months ago which I am still recovering
AMS_1
in
Pain Concern
26 days ago
Autoimmune Encephilitis
Hi all! I’m here on bahalf of my little sister. She’s 23. Her joruney started with a grand mal seizure on her honeymoon. She was hospitalized in Fort Worth for a month where they determined she had viral encephalitis and meningitis caused by HSV-1. She was released to neuro rehab at Baylor a month later
Hi all! I’m here on bahalf of my little sister. She’s 23. Her joruney started with a grand mal seizure on her honeymoon. She was hospitalized in Fort Worth for a month where they determined she had viral encephalitis and meningitis caused by HSV-1. She was released to neuro rehab at Baylor a month later
emquinty
in
Encephalitis Society
3 months ago
iron lab results 10 weeks post iron infusion
I have had four iron infusions in the last 2 years. 10 weeks ago I received Injectafer 1000 mg with so-so results. I had seen a hematologist at my neurologist/Sleep specialist’s urging out of his concern for my out of whack lab numbers. The hematologist was not concerned. I gave my sleep, specialist
I have had four iron infusions in the last 2 years. 10 weeks ago I received Injectafer 1000 mg with so-so results. I had seen a hematologist at my neurologist/Sleep specialist’s urging out of his concern for my out of whack lab numbers. The hematologist was not concerned. I gave my sleep, specialist
SleeplessinNC
in
Restless Legs Syndrome
1 month ago
Heartened to know I am not alone in the struggles caused by pramipexole
I have had RLS and PLMD as long as I can remember. I’m sure all of those nights I struggled with symptoms as a child that were brushed off as growing pains…RLS. My mom suffers mildly. Unfortunately, both of my daughters also have many challenges that began as teens. What I’ve been through is so complex
I have had RLS and PLMD as long as I can remember. I’m sure all of those nights I struggled with symptoms as a child that were brushed off as growing pains…RLS. My mom suffers mildly. Unfortunately, both of my daughters also have many challenges that began as teens. What I’ve been through is so complex
SleeplessinNC
in
Restless Legs Syndrome
1 month ago
Dog bite not on my Xmas list
So… today, while walking my Old English Sheepdog, three dogs escaped from their leashes and one of them bit my leg. They also tried to bite my dog but because most of her is fur they didn’t reach flesh. I, however, went home and did a cursory clean with hydrogen peroxide and went to urgent care. They
So… today, while walking my Old English Sheepdog, three dogs escaped from their leashes and one of them bit my leg. They also tried to bite my dog but because most of her is fur they didn’t reach flesh. I, however, went home and did a cursory clean with hydrogen peroxide and went to urgent care. They
CoCoLuna11
in
CLL Support
3 months ago
In Remission for a year
Hi has anyone had a long remission with normal platelets ( no medication) only to go back to less then 10 again? I am hoping I am over ITP. The first time I had less then 10 for a couple weeks which was brought back to normal with IVIG and promacta. I was on medication for a month then none at all.
Hi has anyone had a long remission with normal platelets ( no medication) only to go back to less then 10 again? I am hoping I am over ITP. The first time I had less then 10 for a couple weeks which was brought back to normal with IVIG and promacta. I was on medication for a month then none at all.
joecirillo
in
ITP Support Association
3 months ago
ZANUBRUTINIB TREATMENT STARTS IN JANUARY
This is primarily an update on where I am on our broken road, as I've been posting since my diagnosis in March 2018. I'm also curious to receive input from others who started their first treatment on Zanubrutinib. My six month evaluation took place at Dana Farber on September 11, and I finally heard
This is primarily an update on where I am on our broken road, as I've been posting since my diagnosis in March 2018. I'm also curious to receive input from others who started their first treatment on Zanubrutinib. My six month evaluation took place at Dana Farber on September 11, and I finally heard
62Panhead
in
CLL Support
4 months ago
Has anyone had IVIG as well as intralipids - within the same cycle?
Is this overkill? I have high NK cells and very high cytokines as well as a need for a blood thinner. My clinic's plan involves both IVIG and intralipids (as well as steroids and clexane) a few days before transfer. I've not often seen this being done (intralipids as well as IVIG) so I thought I would
Is this overkill? I have high NK cells and very high cytokines as well as a need for a blood thinner. My clinic's plan involves both IVIG and intralipids (as well as steroids and clexane) a few days before transfer. I've not often seen this being done (intralipids as well as IVIG) so I thought I would
Skittles11
in
Fertility Network UK
4 months ago
Denosumab vs Bisphosphonates
Dear all, I will keep this brief so that I don't bore anyone! I am 55 yr female, and to my horror, fractured T12 out of the blue one morning two and a half years ago. Little did I think it was a fracture, so I walked and went to the gym for 4 days. This is with evolving neurological signs. Anyway,
Dear all, I will keep this brief so that I don't bore anyone! I am 55 yr female, and to my horror, fractured T12 out of the blue one morning two and a half years ago. Little did I think it was a fracture, so I walked and went to the gym for 4 days. This is with evolving neurological signs. Anyway,
emersee
in
Bone Health and Osteoporosis UK
2 months ago
Sacroiliac joint fusion
After many painful years I'm on the NHS list for sacroiliac joint fusion. Of course there is a 12 month waiting list. Has any one had this operation done privately? Struggling to find a private consultant in Yorkshire.
After many painful years I'm on the NHS list for sacroiliac joint fusion. Of course there is a 12 month waiting list. Has any one had this operation done privately? Struggling to find a private consultant in Yorkshire.
eeeee
in
Pelvic Pain Support Network
4 months ago
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