Experiences with

Ceftazidime intravenous infusion

On Friday, I had a PICC line inserted into my right arm to administer Ceftazidime ABs every 24 hours by Hospital at Home nurses. My hand hurt from the moment the line was inserted and by Tuesday, I was experiencing numbness and pins and needles. Long story short, I had an ultrasound and a four inch

Hi First of all, sorry about the length of my post. Where do I start? I am looking for some kind of good news or positives - it all feels really doom and gloom at the moment. My 17 year old son was diagnosed with Lupus in November 2024 following a drop in his platelets and some marking/bruising.

This is the recording of the All-Ireland ITP Support Group Meeting that took place on Wednesday 12th February 2025 with Dr. Gerard Crotty, plus Mervyn Morgan ITPSA CEO and members of the ITPSA Board. Items discussed, included: Question about IVIG and Pregnancy. Platelet Count and Epidurals IVIG

I had my first bout of ITP 4 years ago with platets at 1. It took a month to restore normal platelets. I had to have two rounds of IVig and took Promacta. Once my platets returned to nomal I stopped all medication. One and a half years later it mysteriously returned and my platets were at 1. That only

I attended the Royal Bournemouth Hospital - Jigsaw Building on Saturday, and was advised that all non chemo treatments (Blood transfusions, IVIG treatments, etc) are to now be provided by the Poole Hospital. Just providing the Heads-Up to any Bournemouth Hospital patients.

Hi fellow travelers, wondering if anyone has has a major outbreak of canker sores? I’m traveling in sunny climes and got too much sun (I know: bad on Calquence! I wasn’t as careful as I should’ve been and have truly learned my lesson!) Got rashy all over then a day later I have a big sore on the inside

Hi everyone (apologies for long post) I hope this update is reassuring for people who are struggling. I have had some really dark times with infertility and sometimes I valued seeing messages like these, other times I struggled. Whichever camp you are in I get it but I did want to come on and give an

I was dx with CLL in 2015 and have been on w& w since. Most of the time I feel fine and I don't remember I have it. My WBC climbed by 1000's with every checkup since then, but not rapidly enough to warrant treatment. Then, mysteriously, for the last year ( one checkup every 4 mos), my WBC started going

I was dx with CLL in 2015 and have been on w& w since. Most of the time I feel fine and I don't remember I have it. My WBC climbed by 1000's with every checkup since then, but not rapidly enough to warrant treatment. Then, mysteriously, for the last year ( one checkup every 4 mos), my WBC started going

When I originally joined this site, I became a regular contributor for a number of years. Then without my realizing it, the daily emails stopped. I must have been extra busy with work when that happened, because I didn't notice it immediately. Then a good while after that I realized that I hadn't

I have had a mild chest infection since the 20th June.  Producing mucus mainly in the morning for the first few hours.  Then clears during the rest of the day to sporadic coughing and mucus.  The history of this infection is below: Was initially prescribed Amoxicillin 500mg capsules - 42 capsule - take

So it looks like I have come down with myasthenia gravis, a neuromuscular condition, possibly induced by diltiazem. My question is about next steps. Anyone with stories of corticosteroid, emg or ivig? Thanks so much. Just FYI it is difficult to type now so please excuse brevity

I have been receiving infusions of IVIG (immunoglobulin) on a monthly basis for many years for a immune deficiency disorder. I have noticed hair growth around my temples that is not my natural hair color or texture. I wonder if this is a result of the infusions of the donor antibodies I receive. Has

I am W/W for 5 years. I do get IVIg every10 weeks for the last year. I am not sure when the best time to get my RSV vaccine in between the infusion time line. My blood work is stable except IgG

Good morning. Some of you may remember me and how the grinch has been following me around for a while. You were all so caring and wonderful when my daughter died and I was flooded out of my home just before Christmas. I was scheduled for spinal fusion surgery and the timing was ideal as we have temporarily

Hi all, its a long one so feel free to skip but I'm looking for some advice... I had a bunionectomy and joint fusion both feet, 2021 (L) and 2023 (R) and have had a relatively normal recovery aside from occasional pain apart from a gradual loss of movement in my left big toe which I saw the surgeon

I’m a 26 year old male that was in the army and became ill at 24 years old with myocarditis and LVEF reduced to 10% and experienced complete heart block and needed emergency pacemaker fitted(now have an ICD fitted). LVEF has fluctuated massively through 2.5 years of intensive treatment and now sits roughly

Our daughter has had 4 rounds of ivig. Her brain swelling (basal ganglia) has practically returned to normal however her behavioural issues indicate scarring to the frontal lobe and loss of executive function. The neurologists have suggested stopping monthly ivig as the inflammation has gone down. I'm

Greetings! I'm sharing my story in hope it will help others. 375 days ago I decided to go all in, hard core, Intermittent Fasting with my final protocol. My GOAL: REDUCE FLUID RETENTION REDUCE FAT REDUCE PAIN LEVELS BE AS HEALTHY AS POSSIBLE I have a lot of pain from injuries and arthritis. I

Hi Friends, I've been in remission for almost 4 years, after Ibrutinib and V and O. My Immunoglobulin levels have been on the decline for 6 months. Not crazy low but I was sick alot this year and I'm usually not. Went to the Pulmonologist for 6 month long chest congestion. Had numerous tests, imaging