Experiences with

Ceftazidime intravenous infusion

On Friday, I had a PICC line inserted into my right arm to administer Ceftazidime ABs every 24 hours by Hospital at Home nurses. My hand hurt from the moment the line was inserted and by Tuesday, I was experiencing numbness and pins and needles. Long story short, I had an ultrasound and a four inch

Our daughter has had 4 rounds of ivig. Her brain swelling (basal ganglia) has practically returned to normal however her behavioural issues indicate scarring to the frontal lobe and loss of executive function. The neurologists have suggested stopping monthly ivig as the inflammation has gone down. I'm

Hi Friends, I've been in remission for almost 4 years, after Ibrutinib and V and O. My Immunoglobulin levels have been on the decline for 6 months. Not crazy low but I was sick alot this year and I'm usually not. Went to the Pulmonologist for 6 month long chest congestion. Had numerous tests, imaging

My daughter 22 fell ill with encephalitis in July this year. She responded very well to IVIG and steroids for 5 days. She left hospital feeling well enough to return to Uni and work. She has autoimmune encephalitis seronegative. In late August she deteriorated and returned to hospital in September

Greetings Everyone. Just thought I would give a brief update on my journey. As some may recall, I have CLL and AHIA. I got Covid though what impact that had on AHIA becoming severe was/is unclear. I entered the hospital on September 11th. Quickly my hemoglobin dropped to 3.4. I spent 20 days in the

Hello everyone, I’m seeking advice and support regarding my 4-year-old son’s condition. He is an incredibly active child with no major symptoms apart from a persistently low platelet count. Here’s a summary of what we’ve been through: Initial Hospitalization: Around 15 days back, my son was admitted

I just came back from a fabulous trip visiting my sisters, one lives in France, the other in Italy. On the way back the plane was full of people coughing. Not surprising 2 days after returning, I tested positive for Covid. Called my oncologist but nurse told me he doesn’t prescribe paxlovid anymore because

Hi everyone. Just wanted to update those that responded to my plight of CLL/AHIA and COVID and seek additional thoughts since, at this level I have low expertise. I am still in the hospital (15 days now) because my hemoglobin will not stabilize. I get blood transfusions and hemoglobin goes up some,

Hi fellow travelers, I have questions about IVIg. I never had IgG levels checked at diagnosis, in 2014. I’ve had frequent infections over the years, and then my CLL “bloomed” in late ‘22 and I started Acalabrutinib. I’ve been on it a year and a half. Recently, when discussing my immunity, (especially

Hello. I don’t know if I am writing for advice or some of your caring encouraging words. First of all I am in a deep state of grieving. My 44 year old daughter died of breast cancer one month ago . She had a 14 year old daughter and 23 year old autistic son. She lived in America and because of my pathetic

PSA is going up. 0.04 on 24th April, 0.27 on 25th July, 0.41 on 24th August and 1.68 today. I have been on Eligard since I was diagnosed with metastatic PCa in 2016 and my psa has been usually negligible. Have had radiation, chemotherapy (Docetaxel) and SBRT to 2 areas (T10 vertebrae & 6th rib) over

I was diagnosed with CLL in 2002 & been on wait & watch until recently. Treatment with FCR is imminent but only after a severe skin infection has cleared up. Dermatologist took 2 biopsies which the Pathologist reported skin infection/rash was Hypersensitive Dermatitis. I had an IV when I had a CT

As you may recall, my daughter is also JAK2v617f positive, currently showing as ET. My son has idiopathic erythrocytosis, no known mutation. My next younger brother was diagnosed with a high-grade Non-Hodgkin's B Cell lymphoma several years ago. Thankfully, his lymphoma was successfully treated with

Does anyone have Spondilolisthesis whats the best medal I've tried loads none work on list for spinal fusion

Because of an injury to my lower back, foolish launch attempt of a Seadoo for grandkids to ride, I received a steroid shot and and orals. Because near the end of my oral steroids my back injury was not healed I visited a Chiropractor who gave me more steroids. Near the end of those steroids I visited

My psa has risen from <0.01 in Feb to 0.04 in April to 0.27 in July then 0.41 this week. I had a CT and full body scan on Tuesday, which according to my MO, who I saw today, showed no ‘hotspots’. Because my PCa metastasised to 4 places in 2016 when first diagnosed, I had radiation to the prostate followed

Sharing some info on my ET experience…. CALR type 2 here with severe neuropathy that came on after 4 years of peg. Could be a coincidence or from the peg, not sure. I also have an antibody that is known to attack nerves called myelin associated glycoprotein. Traditionally it is known to only effect

hi About to cycle soon and wanted to hear some positive stories if anyone had immune treatment with steroids. I'm due to have a Hycosy for my uterus to check there's no issues then cycle the month after.

This is my scar at the 9 week mark after spinal fusion of 7 vertebrae. There are 2 rods and 12 screws in my back to help stabilise my vertebrae after prostate cancer caused a compression fracture. I have discontinued most of the pain medication. I dropped to a 5 microgram Norspan patch yesterday after

Hey there fellow warriors. I am agonising over IVF transfer protocols. After a year of batch stimming I am very fortunate to have 3 euploid blastocysts on ice ready to transfer. I have had five failed transfers (x2 miscarriages, 3 BFNs) and feel like I have tried everything already in terms of protocols