My son is 23 and was diagnosed with PCD at 13. Last year was his best as he was on Azithromycin 3x a week. As soon as he stopped he is having a dificult time since 30th of december: 4 different antibiotics amoxycilin, Doxycicline, and after founding pseudomonas in sputum took Ciprofloxacin and afterwards Ceftazidime IV, for 2 weeks, which he had to wait about 10 days to be organized.
Even during the IV his sputum started to change colour and taste, he his poorly again, but the result of sputum was negative due to the antibiotic. Had to repeat the sputum test and all takes time and worry, as his condition is not improving in the meanwhile
Great difficulty in response from the consultant in Carlisle. Does anyone know the best way to have a quicker response for this situation in this area of the Country?