PCD Family Support Group (UK) | HealthUnlocked
PCD Family Support Group (UK)
411 members • 190 posts
PCD/Bronchiectasis and headaches
Hi everyone, I have PCD and bronchiectasis and regularly get headaches which stems from my shoulder and neck. Its not migraine/stress related as I get them and...
Hi everyone, I have PCD and bronchiectasis and regularly get headaches which ste...
11 days ago
Love to hear your experiences - the cough that won’t go away!
Hi everyone! We are currently on the wait list cilia testing for my almost 12 month old. She has had a chronic wet cough from 2 months old and been on...
Hi everyone! We are currently on the wait list cilia testing for my almost 12 mo...
4 days ago
Top tips for 10 year old physio
Two years post-diagnosis twice daily physio is a source of constant conflict between my daughter and I. She understands her condition well and eventually...
Two years post-diagnosis twice daily physio is a source of constant conflict bet...
a month ago
Hi all, first time on here! I have been diagnosed with PCD and situs invertus since birth. I am about to have an operation on my sinuses to remove parts of a...
Hi all, first time on here! I have been diagnosed with PCD and situs invertus si...
10 days ago
Does anyone know the life expectancy for PCD in the North of England?
19 days ago
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This volunteer-run group supports patients and families affected by Primary Ciliary Dyskinesia (PCD) in the UK...
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The PCD Family Support Group relies entirely on voluntary donations, we do not receive any public money to support our work.