The PCD Family Support Group support people (patients and their families) affected by the condition in the UK.
The group is run by volunteers so any...Read more
Having a tough time.
PCDWIFE8 days ago
PCDmama8 days ago
My 3 year old son's doctor is recommending sinus surgery to open up the drainage passages for more efficient draining. Have any of you with...
dmacheta19 days ago
Hi would appreciate advice on hypertonic nebulisers. Is it something that is routinely prescribed in adult patients with PCD? I have been on...
Ill health retirement
Iram_sa12 days ago
dmacheta113 days ago
Hi I am 52 years old finally diagnosed with PCD after persisting for 26 years to get a diagnosis...
Travelling to England from Canada
Hidden13 days ago
I am coming to England to visit my parents and family next summer. I now use a nebulizer everyday. Does it still it work with the usual trav...
PCD and Heterotaxy
Hidden14 days ago
Hi all, my son has PCD. We recently received genetic counselling where it was confirmed that we would have a 1:4 chance of having another ba...
Physio for 3yr old
KayErin14 days ago
My daughter was diagnosed with PCD at around 5months but as shes getting older im finding physio harder she either doesnt want to do it or t...
Gastrointestinal problems PCD
Grace9614a month ago
Have you had your flu jab yet?
0300 111 0122
The PCD Family Support Group relies entirely on voluntary donations, we do not receive any public money to support our work.
Start a Community