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Ceftazidime intravenous infusion
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Good hematologist in London
Hi , My son is 3 years old and he had been diagnosed with ITP one month ago , started with small dots on his body and when we did the CBC test his platelets were 10 , he admired in the hospital for one week and they gave him steroids and IVIG , after 4 days his platelets jumped high to 179 , after 10
Hi , My son is 3 years old and he had been diagnosed with ITP one month ago , started with small dots on his body and when we did the CBC test his platelets were 10 , he admired in the hospital for one week and they gave him steroids and IVIG , after 4 days his platelets jumped high to 179 , after 10
qassemi
in
ITP Support Association
7 years ago
9 year old with ITP
Hi my son was diagnosed last June 9 with itp with platelet count of 4. had two bottles of ivig and platelet count was still at 4. had another two bottles of ivig and platelet count went up to 7 and the doctor discharged him. cbc were done june 15 and june 21 and platelet count still at 4. has no major
Hi my son was diagnosed last June 9 with itp with platelet count of 4. had two bottles of ivig and platelet count was still at 4. had another two bottles of ivig and platelet count went up to 7 and the doctor discharged him. cbc were done june 15 and june 21 and platelet count still at 4. has no major
Hidden
in
ITP Support Association
7 years ago
IVIG infusion
Just wondering how people did with IVIG infusions. I've had lots of sinus infections over the past 3 years so doc thought I should start IVIG infusions. I am 56 and pretty healthy otherwise. I had chemo 4 years ago and had 7 months of Imbruvica a year ago.
Just wondering how people did with IVIG infusions. I've had lots of sinus infections over the past 3 years so doc thought I should start IVIG infusions. I am 56 and pretty healthy otherwise. I had chemo 4 years ago and had 7 months of Imbruvica a year ago.
Huckfin1
in
CLL Support
7 years ago
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Glad I found this group
Hi! My name is Deana and I was diagnosed in 2008 at the age of 40. In 2010 I had my first round of chemo and had a reaction to Rituxan but continued on with the other two. I have been on IVIG consecutively for the last year but no chemo since 2010. Numbers are going crazy now but praying they stay somewhat
Hi! My name is Deana and I was diagnosed in 2008 at the age of 40. In 2010 I had my first round of chemo and had a reaction to Rituxan but continued on with the other two. I have been on IVIG consecutively for the last year but no chemo since 2010. Numbers are going crazy now but praying they stay somewhat
DRADCLIFF
in
CLL Support
7 years ago
Magnetic bracelets
Hi all, I was diagnosed 4 years ago now, still on w&w + 3 weekly IVIG transfusions, & nave been suffering for years with arthritis in my right thumb (I am right handed, which makes this a pain). A friend tells me his arthritic pain has much reduced after using a magnetic bracelet. I am keen to try, but
Hi all, I was diagnosed 4 years ago now, still on w&w + 3 weekly IVIG transfusions, & nave been suffering for years with arthritis in my right thumb (I am right handed, which makes this a pain). A friend tells me his arthritic pain has much reduced after using a magnetic bracelet. I am keen to try, but
Alan20
in
CLL Support
7 years ago
Necrotising myopathy/myositis
I have been diagnosed with NM/Myositis and have over the course of a couple of months become totally dependent 24/7 and am in a wheelchair. I start IVIG treatment on 19/06. Can anyone offer advice on this illness/treatment? I am finding it difficult to cope emotionally as well as physically now.
I have been diagnosed with NM/Myositis and have over the course of a couple of months become totally dependent 24/7 and am in a wheelchair. I start IVIG treatment on 19/06. Can anyone offer advice on this illness/treatment? I am finding it difficult to cope emotionally as well as physically now.
Maureenhall55
in
Care Community
7 years ago
Itp
Hi I have recently been diagnosed with itp and i had the ivig treatment a week and half ago as my levels had dropped to 2 after the infusion levels went up to 110 now i have suddenly come out with blood blisters in my moith and have bruises on my legs with petechiae does this mean my levels have dropped
Hi I have recently been diagnosed with itp and i had the ivig treatment a week and half ago as my levels had dropped to 2 after the infusion levels went up to 110 now i have suddenly come out with blood blisters in my moith and have bruises on my legs with petechiae does this mean my levels have dropped
sarb30
in
ITP Support Association
7 years ago
Car-T TV special. National Geographic break through series.
1 hour on Car-T. Main guy discussed had CLL. It is totally gone now!!! Great show. On TV currently or can be watched online I think, The Show is called Breakthough on the National Geographic Channel http://channel.nationalgeographic.com/breakthrough-series/videos/using-cells-to-battle-cancer/ Does
1 hour on Car-T. Main guy discussed had CLL. It is totally gone now!!! Great show. On TV currently or can be watched online I think, The Show is called Breakthough on the National Geographic Channel http://channel.nationalgeographic.com/breakthrough-series/videos/using-cells-to-battle-cancer/ Does
Hoffy
in
CLL Support
7 years ago
Ibrutinib and Medicare
I'm from NJ and have relapsed SLL - unmutated - as far as I know I don't have any the mutations that make the disease really high risk. My doctor wants to put me in Ibrutinib because my last PET Scan should the lymph nodes neck, axilla, abdomen and pelvis are getting bulky and some new nodes are appearing
I'm from NJ and have relapsed SLL - unmutated - as far as I know I don't have any the mutations that make the disease really high risk. My doctor wants to put me in Ibrutinib because my last PET Scan should the lymph nodes neck, axilla, abdomen and pelvis are getting bulky and some new nodes are appearing
ReneeSusan
in
CLL America Support
7 years ago
Result bone marrow biopsy
My results for my bone marrow biopsy are fine a so a big bonus : ))) but as we know always a but it is ITP unkown my hemotologist told me my immune system is very weak I am no meds just getting monitored when I had ivig drip platelets went to 220 after 4 weeks now dropped to 120 not too concerned
My results for my bone marrow biopsy are fine a so a big bonus : ))) but as we know always a but it is ITP unkown my hemotologist told me my immune system is very weak I am no meds just getting monitored when I had ivig drip platelets went to 220 after 4 weeks now dropped to 120 not too concerned
Topography52_-
in
ITP Support Association
7 years ago
13 yr old soccer girl w/ITP
My girl was diagnosed last month after her platelet counts were discovered at under 10. Had IVIG. Yesterday had more blood test and they are even lower. She's began bruising again and Tonight she has the red dots looks like a rash all over her torso and is itching. Benadryl? Or do I call the doc?
My girl was diagnosed last month after her platelet counts were discovered at under 10. Had IVIG. Yesterday had more blood test and they are even lower. She's began bruising again and Tonight she has the red dots looks like a rash all over her torso and is itching. Benadryl? Or do I call the doc?
Stayinyurlane
in
ITP Support Association
7 years ago
Does Flu and Colds makes the platelet count drops to low level?
My child was confined 2 weeks ago and he received IvIg for 1 day and Solumedrol 870mg for 3 days and no medication at home.....after a week his platelet went up to 359k and after a week again his platelet went low to 29.6k without any petechiae, hematoma and bleeding. ( my son is a bleeder his bleeding
My child was confined 2 weeks ago and he received IvIg for 1 day and Solumedrol 870mg for 3 days and no medication at home.....after a week his platelet went up to 359k and after a week again his platelet went low to 29.6k without any petechiae, hematoma and bleeding. ( my son is a bleeder his bleeding
DavieSimon
in
ITP Support Association
7 years ago
Paulinpain
Hi There, Thank you for letting me join this communting. I suffer with Low chronic back pain from an accident at work in 1992. I now live in Spain and have done so since 2005, Here i have had 5 operations, Two Triple level spinal fusions and Two more Procedures of RFA and Still suffer and take pain meds
Hi There, Thank you for letting me join this communting. I suffer with Low chronic back pain from an accident at work in 1992. I now live in Spain and have done so since 2005, Here i have had 5 operations, Two Triple level spinal fusions and Two more Procedures of RFA and Still suffer and take pain meds
Paulinpain
in
Pain Concern
7 years ago
Joint pain
In the past I was diagnosed with Rheumatoid Arthritis then told I had fibromyalgia when I switched rheumatologist. I quit going to doctors and taking meds (hydroxychloroquine, enbrel and mythelprednosolone) and started crossfit which did help until I needed spinal fusion (bounce house not crossfit) which
In the past I was diagnosed with Rheumatoid Arthritis then told I had fibromyalgia when I switched rheumatologist. I quit going to doctors and taking meds (hydroxychloroquine, enbrel and mythelprednosolone) and started crossfit which did help until I needed spinal fusion (bounce house not crossfit) which
Heidi-B
in
Hughes Syndrome APS Forum
7 years ago
Critical illness myopathy
Hi. I'm a mum of a 16 yr old who suffered post surgery complications after a spinal fusion. She ended up with an emergency tracheotomy and then the following week had some event. She has just been comfirmed by a muscle biopsy with critical illness myophady. aprohy of the fast twitch fibres.) They are
Hi. I'm a mum of a 16 yr old who suffered post surgery complications after a spinal fusion. She ended up with an emergency tracheotomy and then the following week had some event. She has just been comfirmed by a muscle biopsy with critical illness myophady. aprohy of the fast twitch fibres.) They are
Hanban14
in
ICUsteps
7 years ago
Pain now or pain later
I'm 30 years old. I had corrective surgery for scoliosis and acute lateral shift when I was 13. I was reasonably fine until about 2 years ago where I started having severe pain in my hip. After over a year of tests and checks it seems that the facet joints at the base of my spinal fusion are rubbing
I'm 30 years old. I had corrective surgery for scoliosis and acute lateral shift when I was 13. I was reasonably fine until about 2 years ago where I started having severe pain in my hip. After over a year of tests and checks it seems that the facet joints at the base of my spinal fusion are rubbing
Pepper86
in
Pain Concern
7 years ago
Ivig ..... Bone marrow biopsy
Well I had my ivig as luck would have it I had a reaction ( HCA mentioned it was rare ) and not a good one on Thursday 2 weeks after my ivig came down with a rash over my face which is visible and all under my skin no doubt the rash will appear visable soon over my body I have been to local my health
Well I had my ivig as luck would have it I had a reaction ( HCA mentioned it was rare ) and not a good one on Thursday 2 weeks after my ivig came down with a rash over my face which is visible and all under my skin no doubt the rash will appear visable soon over my body I have been to local my health
Topography52_-
in
ITP Support Association
7 years ago
Broken Back
I recently just broke my vertebrae and have to have a spinal fusion and I am so scared.. Does anyone have tips on how to prepare for surgery?
I recently just broke my vertebrae and have to have a spinal fusion and I am so scared.. Does anyone have tips on how to prepare for surgery?
Cayla_Smith
in
Sports Injury
7 years ago
Why does the argc clinic have such a high success rate for ivf
Is it because they offer ivig? Is there anything else that's additional that they offer?
Is it because they offer ivig? Is there anything else that's additional that they offer?
Bumbo
in
Fertility Network UK
7 years ago
My First Day
This is my first day on this diet or healthy eating plan. I have recently had a spinal fusion so at the moment I can do core strengthening exercises only. Five years ago I lost 4 stone on a drink and eat diet and was more on the too skinny chart. Now, having little exercise and eating more, I need
This is my first day on this diet or healthy eating plan. I have recently had a spinal fusion so at the moment I can do core strengthening exercises only. Five years ago I lost 4 stone on a drink and eat diet and was more on the too skinny chart. Now, having little exercise and eating more, I need
Diesse
in
Weight Loss Support
7 years ago
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