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Buprenorphine/ Subutex,, Temgesic,CBD, THC , Traumeel injections
I can’t not emphasis this enough Anyone starting Buprenorphine / Subutex Or the micro dose version Temgesic. You will not get this advice from your doctors but I urge you to start in this manor. Buy a pill cutter and nightly cut you sublingual tablet into about 8 /10 tiny little crumbs. These medications
I can’t not emphasis this enough Anyone starting Buprenorphine / Subutex Or the micro dose version Temgesic. You will not get this advice from your doctors but I urge you to start in this manor. Buy a pill cutter and nightly cut you sublingual tablet into about 8 /10 tiny little crumbs. These medications
Shumbah
in
Restless Legs Syndrome
3 years ago
Blacks eyes without injury
Had to go off treatment due to liver problems a few months ago. Have another ivig treatment soon. Just noticed I have bruises under and beside my eyes. Has anyone experienced that? No injury!
Had to go off treatment due to liver problems a few months ago. Have another ivig treatment soon. Just noticed I have bruises under and beside my eyes. Has anyone experienced that? No injury!
Porter01
in
CLL Support
3 years ago
IVIG
As some of you know who have been active in my recent posts, I started seeing an Immunologist a few weeks ago. She encouraged me to get the third shot, and began blood tests different from what our CLL Specialists give us. I had the first Pneumonia vaccine shot sometime earlier this year, or maybe
As some of you know who have been active in my recent posts, I started seeing an Immunologist a few weeks ago. She encouraged me to get the third shot, and began blood tests different from what our CLL Specialists give us. I had the first Pneumonia vaccine shot sometime earlier this year, or maybe
wizzard166
in
CLL Support
3 years ago
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Looking for success stories after treatment with Humira
Hi all, Extremely high immunes.. keep having CP losses and MC .. about to start humira and IVIG for what will be my 5th and final IVF cycle.. wondering if anyone has had success.. or am I basically wasting my time trying one last time?
Hi all, Extremely high immunes.. keep having CP losses and MC .. about to start humira and IVIG for what will be my 5th and final IVF cycle.. wondering if anyone has had success.. or am I basically wasting my time trying one last time?
letro112
in
Fertility Network UK
3 years ago
IVIG Infusions
I have been on Revolade for six months with no positive results. I have an IVIG every three weeks to boost my platelet count. Does anyone else have IVIG on a regular basis and how long can you keep doing this before having to have your spleen removed? Thank you
I have been on Revolade for six months with no positive results. I have an IVIG every three weeks to boost my platelet count. Does anyone else have IVIG on a regular basis and how long can you keep doing this before having to have your spleen removed? Thank you
Bradyella
in
ITP Support Association
3 years ago
Low Levels of IgA, IgG and IgM - What Triggers IGIV?
Greetings from your UN-mutated colleague! The blood work from last week's visit to oncology revealed (besides the other troubling CLL indicators) that my Ig levels (which were already low), have dropped since first being diagnosed in February 2020. I've dealt with early-winter, chronic bronchitis on
Greetings from your UN-mutated colleague! The blood work from last week's visit to oncology revealed (besides the other troubling CLL indicators) that my Ig levels (which were already low), have dropped since first being diagnosed in February 2020. I've dealt with early-winter, chronic bronchitis on
Jungle-Jim
in
CLL Support
3 years ago
The Leukemia & Lymphoma Society’s National Patient Registry COVID-19 vaccination antibody results - published today (Greenberg et al)
As a valued member of The Leukemia & Lymphoma Society’s National Patient Registry, a project of the Michael J. Garil Patient Data Collective, we wanted you to be among the first to know about COVID-19 vaccination antibody results we published today (Greenberg et al., 2021). https://i7.t.hubspotemail.net
As a valued member of The Leukemia & Lymphoma Society’s National Patient Registry, a project of the Michael J. Garil Patient Data Collective, we wanted you to be among the first to know about COVID-19 vaccination antibody results we published today (Greenberg et al., 2021). https://i7.t.hubspotemail.net
lankisterguy
Volunteer
in
CLL Support
3 years ago
KIR or LAD tests for recurrent implantation failure
Hi - does anyone have any experiences with these tests? I’ve got history of recurrent implantation failure with PGS normal embryos and high NKC. We have one embryo left and starting a protocol with humiera added to IVIG but consultant just rang and recommended these tests at another clinic. Should I
Hi - does anyone have any experiences with these tests? I’ve got history of recurrent implantation failure with PGS normal embryos and high NKC. We have one embryo left and starting a protocol with humiera added to IVIG but consultant just rang and recommended these tests at another clinic. Should I
Gabriella89
in
Fertility Network UK
3 years ago
IVIG treatment
I just had my first of 6 IVIG treatments due to low immunity. The treatment went well but about 24 hours later I got a raging headache, leg cramps and aching in shoulders and neck area. This has continued. Anyone else go through this? I have taken Tylenol for the intense headache but it isn’t working
I just had my first of 6 IVIG treatments due to low immunity. The treatment went well but about 24 hours later I got a raging headache, leg cramps and aching in shoulders and neck area. This has continued. Anyone else go through this? I have taken Tylenol for the intense headache but it isn’t working
Rivergoddess
in
CLL Support
3 years ago
SURGERY?
I am facing a full spinal fusion mainly due to double Scoliosis with Cobb angles of 38.4 degrees. I had a C2 through T4 fusion in Dec. 2014. Due to the Scoliosis, I am having significantly more general pain, especially in my neck and Sciatica in my right leg hip joint ("electric shocks"). Then radiated
I am facing a full spinal fusion mainly due to double Scoliosis with Cobb angles of 38.4 degrees. I had a C2 through T4 fusion in Dec. 2014. Due to the Scoliosis, I am having significantly more general pain, especially in my neck and Sciatica in my right leg hip joint ("electric shocks"). Then radiated
zenith10
in
Osteoarthritis Action
3 years ago
RLS episode after Spinal Surgery
I’ve had RLS since 1995. Although I feel it was dormant all my life Bc I used to flail my arms & kick my legs as a child when I slept! Shared bed with sister it was a family joke she’d say I beat her up last night lol! Ha I just thank God it waited to show its ugly face! It came out after giving birth
I’ve had RLS since 1995. Although I feel it was dormant all my life Bc I used to flail my arms & kick my legs as a child when I slept! Shared bed with sister it was a family joke she’d say I beat her up last night lol! Ha I just thank God it waited to show its ugly face! It came out after giving birth
HeBgBgirl
in
Restless Legs Syndrome
3 years ago
Covid antibodies
I have great antibodies from my Covid vaccine. I am very immunosuppressed, getting IVIG infusions every 6 weeks. I had the finger prick test which showe no antibodies then I had the blood draw test Covid IGg spike protein test and I had 4 times the positive rate for the test. Please don’t let someone
I have great antibodies from my Covid vaccine. I am very immunosuppressed, getting IVIG infusions every 6 weeks. I had the finger prick test which showe no antibodies then I had the blood draw test Covid IGg spike protein test and I had 4 times the positive rate for the test. Please don’t let someone
LDPCLL
in
Vasculitis UK
3 years ago
Help with newly diagnosed ITP husband
Where do I start? 11 days ago my husband woke up feeling unwell with a rash over his body and having nosebleeds. He was rushed to hospital and said his platelets were at 1. This was new to us. And they said it was probably ITP. He was also feeling unwell with fevers. They started him on steroids and
Where do I start? 11 days ago my husband woke up feeling unwell with a rash over his body and having nosebleeds. He was rushed to hospital and said his platelets were at 1. This was new to us. And they said it was probably ITP. He was also feeling unwell with fevers. They started him on steroids and
Dominiquegriff
in
ITP Support Association
3 years ago
Back Pain after 5 operations
I am living with server back pain after a botched spinal fusion in the lumbar region which fell apart inside me five operations later the pain is worse than my presenting problem, I cope on pain killers. Here in Devon the health service is still hiding behind Covid I have waited over 12 months for a
I am living with server back pain after a botched spinal fusion in the lumbar region which fell apart inside me five operations later the pain is worse than my presenting problem, I cope on pain killers. Here in Devon the health service is still hiding behind Covid I have waited over 12 months for a
mikecom1
in
Lung Conditions Community Forum
3 years ago
Failed Right Wrist Ulna Resection Surgery,Fusion w/ Tendon transfer at 32
I'm new here and I would like to share about my severely eroded & fused right wrist. It took almost 8 years before I was diagnosed with R.A and it all started with a right wrist pain that got worse over the years. Finally got great health insurance and a great Orthopaedic surgeon that tried his best
I'm new here and I would like to share about my severely eroded & fused right wrist. It took almost 8 years before I was diagnosed with R.A and it all started with a right wrist pain that got worse over the years. Finally got great health insurance and a great Orthopaedic surgeon that tried his best
Hannahdeezy
in
NRAS
3 years ago
Would you go for Intralipid or IVIg?
Hi lovely people, I have elevated NK cell level (29.7) and my consultant recommends immunotherapy either with Intralipids (would bring my NK level to 18-21) or IVIg (bring level to 14.9) he said steroids were not being offered during the pandemic. I want the best chances for my next transfer which means
Hi lovely people, I have elevated NK cell level (29.7) and my consultant recommends immunotherapy either with Intralipids (would bring my NK level to 18-21) or IVIg (bring level to 14.9) he said steroids were not being offered during the pandemic. I want the best chances for my next transfer which means
Clar-bear
in
Fertility Network UK
3 years ago
IVIG
Dr said there is a still a cancer risk with kesimpta as it is essentially the same thing as ocrevas. She suggested IVIG. Does anyone have any experience with it?
Dr said there is a still a cancer risk with kesimpta as it is essentially the same thing as ocrevas. She suggested IVIG. Does anyone have any experience with it?
Tulip77
in
My MSAA Community
3 years ago
Where to get IVIG drip
Hi Can someone please recommend where I can get IVIG admistered in the UK or abroad at a reasonable price. The fertility clinic I'm with at the moment are charging £2000 for this! I would greatly appreciate any advice and suggestions. Thank you in advance.
Hi Can someone please recommend where I can get IVIG admistered in the UK or abroad at a reasonable price. The fertility clinic I'm with at the moment are charging £2000 for this! I would greatly appreciate any advice and suggestions. Thank you in advance.
weekitty
in
Fertility Network UK
3 years ago
I have had ITP for 5 months and no medications have helped....Prednisone, Dexamethasone (very temporary) Revolade and Rituximab. IVIG ???
Has anyone here been having IVIG infusions on a regular basis (perhaps every three weeks) rather than having a splenectomy?
Has anyone here been having IVIG infusions on a regular basis (perhaps every three weeks) rather than having a splenectomy?
Bradyella
in
ITP Support Association
3 years ago
What next?
Hi all, I’ve just found out my 2nd FET has failed and looking for any advice what to do next. We had 3 PGS normal embryos, 2 out of 3 have now failed to implant. I’ve had ERA, EMMA, Alice tests, a Hysteroscopy abs HyCoSy and everything was normal. I’ve got high NKC but had treatment with an IVIG drip
Hi all, I’ve just found out my 2nd FET has failed and looking for any advice what to do next. We had 3 PGS normal embryos, 2 out of 3 have now failed to implant. I’ve had ERA, EMMA, Alice tests, a Hysteroscopy abs HyCoSy and everything was normal. I’ve got high NKC but had treatment with an IVIG drip
Gabriella89
in
Fertility Network UK
3 years ago
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