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"It says here you have Osteoporosis"
Hello all. I was diagnosed with GCA and PMR in February and started with a 3 day IV course of Prednisilone then went on 60mg a day tapering down to 10mg in about June when I had a flare up, bounced up to 25mg and am now tapering by 2.5mg per month. I had a DEXA scan around about May time but didn't
Hello all. I was diagnosed with GCA and PMR in February and started with a 3 day IV course of Prednisilone then went on 60mg a day tapering down to 10mg in about June when I had a flare up, bounced up to 25mg and am now tapering by 2.5mg per month. I had a DEXA scan around about May time but didn't
Brizzleben
in
PMRGCAuk
6 years ago
Alendronic acid
Been to the dentist today cos have an infection under a crown. It’s got to come out but because I have taken AA I have to go to a hospital apparently. Even though I stopped taking it 9 months ago my lovely dentist said I have to be 2 years free of it. Just to make everyone aware. 🌸
Been to the dentist today cos have an infection under a crown. It’s got to come out but because I have taken AA I have to go to a hospital apparently. Even though I stopped taking it 9 months ago my lovely dentist said I have to be 2 years free of it. Just to make everyone aware. 🌸
Suet3942
in
PMRGCAuk
6 years ago
Hi Friends, I am still hoping to find successful treatment for my wife's horrendous pmr pred side effects and skin fragility.
Last week a stumble against the bedroom wall whilest undressing caused her to raise her arm to prevent a fall but the friction against the wall was sufficient to tear a flap of approx. 30 sq.cm. plus an injury to her leg. Fortunately our local medical centre provided excellent first aid care and healing
Last week a stumble against the bedroom wall whilest undressing caused her to raise her arm to prevent a fall but the friction against the wall was sufficient to tear a flap of approx. 30 sq.cm. plus an injury to her leg. Fortunately our local medical centre provided excellent first aid care and healing
Yorkie2
in
PMRGCAuk
6 years ago
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Egg head and concussion!
Here we are then! As the title says that’s exactly what happened. So no running for me this weekend. While at work on Friday after returning from my lunch break I accidentally whacked my forehead on the metal door of one of the anaesthetic drug cupboards in the anaesthetic room. This had been left opened
Here we are then! As the title says that’s exactly what happened. So no running for me this weekend. While at work on Friday after returning from my lunch break I accidentally whacked my forehead on the metal door of one of the anaesthetic drug cupboards in the anaesthetic room. This had been left opened
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Graduate10
in
Bridge to 10K
6 years ago
No help from gp
Hi I’m new to this in 2009 the hospital thought I had Paget’s disease of the bone in my right leg which was not diagnosed properly until 2017 I know nothing of this disease only what I have read on the internet my doctor just said take alendronic acid tablet once a week tried asking him for more information
Hi I’m new to this in 2009 the hospital thought I had Paget’s disease of the bone in my right leg which was not diagnosed properly until 2017 I know nothing of this disease only what I have read on the internet my doctor just said take alendronic acid tablet once a week tried asking him for more information
GrandadH
in
Paget’s Support
6 years ago
Actemra Is Now In My Life
Hi everyone, Kentishgirl Girl Here, we I am now on actemra, I'm not happy about it! the possible side effects scare me to death!!, the data sheet indicates you can suffer horrific side effects, having the desese in itself is a pathway to horrible side effects! and to add this lot to the mix, just adds
Hi everyone, Kentishgirl Girl Here, we I am now on actemra, I'm not happy about it! the possible side effects scare me to death!!, the data sheet indicates you can suffer horrific side effects, having the desese in itself is a pathway to horrible side effects! and to add this lot to the mix, just adds
Kentishgirl
in
PMRGCAuk
6 years ago
Finding it Difficult to Cope
Good Morning Everyone I am feeling so down at the moment and thought it might help to get everything off my chest. I have Seropositive RA which I control with 2 x 5mg Prednisolone twice daily as any other Rheumy medication makes me very sick. I also have Osteoporosis of the spine and hip. I have been
Good Morning Everyone I am feeling so down at the moment and thought it might help to get everything off my chest. I have Seropositive RA which I control with 2 x 5mg Prednisolone twice daily as any other Rheumy medication makes me very sick. I also have Osteoporosis of the spine and hip. I have been
lara1953
in
Pain Concern
6 years ago
Update
Hi everyone Quick update on my phased back to work .I have just done 4 five hour shifts .One was renewing my first aid .Next week in upping my hours and working 10 till 5.Still feeling tired after work so have been relaxing with a nice mug of hot tea . Hope all are well and everyone is doing good
Hi everyone Quick update on my phased back to work .I have just done 4 five hour shifts .One was renewing my first aid .Next week in upping my hours and working 10 till 5.Still feeling tired after work so have been relaxing with a nice mug of hot tea . Hope all are well and everyone is doing good
Vonnieruth
in
AF Association
6 years ago
Coping methods for pain and mental health with endo?
Hi, first post here, I was diagnosed 6 months ago with "99% chance I have endo, but can't confirm until lap performed". I'm 26, and have suffered with bad periods since I was 14. After 11 years of going back and forth to doctors and being dismissed, after having issues with pill being discontinued and
Hi, first post here, I was diagnosed 6 months ago with "99% chance I have endo, but can't confirm until lap performed". I'm 26, and have suffered with bad periods since I was 14. After 11 years of going back and forth to doctors and being dismissed, after having issues with pill being discontinued and
Tmuss
in
Endometriosis UK
6 years ago
Sunday morning
Hi all Just letting you all know I'm in my second week back in phased return to work Even though I'm only doing five hours a day over three days I'm still tired.Tomorrow I have to go to another home to update my first aid training So hoping my paf or anxiety doesn't kick in Hope all those I have got
Hi all Just letting you all know I'm in my second week back in phased return to work Even though I'm only doing five hours a day over three days I'm still tired.Tomorrow I have to go to another home to update my first aid training So hoping my paf or anxiety doesn't kick in Hope all those I have got
Vonnieruth
in
AF Association
6 years ago
Best healthy course of action for my bones
Hi! Hopefully my posts will show up now. I was given alendronic acid by my doc and after a short while, I stopped taking it because of some unsettling symptoms. If like to take some supplements, but not a whole pharmaceutical, and works appreciate recommendations of the most crucial. Also, I seem to
Hi! Hopefully my posts will show up now. I was given alendronic acid by my doc and after a short while, I stopped taking it because of some unsettling symptoms. If like to take some supplements, but not a whole pharmaceutical, and works appreciate recommendations of the most crucial. Also, I seem to
Calicocat18
in
PMRGCAuk
6 years ago
On birth control but doctor wants me to take Tranexamic Acid. Worried!! Anyone have to take this before while on birth control?
Hi everyone, I’m pretty new here and desperate to hear if anyone on birth control ever had to take Tranexamic Acid? Each medication heightens the chances for blood clots and both of them together probably isn’t good. I have been having this prolonged bleeding which seems to be stress induced for about
Hi everyone, I’m pretty new here and desperate to hear if anyone on birth control ever had to take Tranexamic Acid? Each medication heightens the chances for blood clots and both of them together probably isn’t good. I have been having this prolonged bleeding which seems to be stress induced for about
Jenncxo
in
Endometriosis UK
6 years ago
Should I request to have laparoscopy?
Hi! I’m 19 now but I have suffered with chronic period pain ever since I started my period when I was 12. Missed a lot of time in school, was often getting sick and blacking out because the pain was so bad. GP prescribed mefenamic acid and tranexamic acid but did nothing. I started having period like
Hi! I’m 19 now but I have suffered with chronic period pain ever since I started my period when I was 12. Missed a lot of time in school, was often getting sick and blacking out because the pain was so bad. GP prescribed mefenamic acid and tranexamic acid but did nothing. I started having period like
peach167
in
Endometriosis UK
6 years ago
PMR, Refusing Bisphosphates and Calcium Spplements
I was diagnosed with PMR in May this year and am currently on 9mg Prednisolone with instructions from the rheumatologist to decrease by 1mg per month. If I manage to decrease at this rate I will be on 7mg by the time I see him (or the nurse specialist) again. I have read lots of posts on here and have
I was diagnosed with PMR in May this year and am currently on 9mg Prednisolone with instructions from the rheumatologist to decrease by 1mg per month. If I manage to decrease at this rate I will be on 7mg by the time I see him (or the nurse specialist) again. I have read lots of posts on here and have
Omanain
in
PMRGCAuk
6 years ago
Dentist nightmare
I was firstly prescribed alendronic acid tablets but after a fracture was discovered on my spine - was given an aclasta infusion (it is yearly) Unfortunately I suffer with many problems with my teeth and during the year I had the infusion had to suffer dreadful toothache for 3 months before I could
I was firstly prescribed alendronic acid tablets but after a fracture was discovered on my spine - was given an aclasta infusion (it is yearly) Unfortunately I suffer with many problems with my teeth and during the year I had the infusion had to suffer dreadful toothache for 3 months before I could
OldCrumbly
in
Bone Health and Osteoporosis UK
6 years ago
CBD Oil for Endo pain
Hi, Has anyone else tried cbd oil for endo pain? I have been on mefenamic acid for the last year and it’s not fully working. Yesterday I bought some cbd oil. It’s only 2.75% cbd and i’m Putting three drops under my tongue three times a day. I’m looking forward to seeing if it has any benefit and i’ll
Hi, Has anyone else tried cbd oil for endo pain? I have been on mefenamic acid for the last year and it’s not fully working. Yesterday I bought some cbd oil. It’s only 2.75% cbd and i’m Putting three drops under my tongue three times a day. I’m looking forward to seeing if it has any benefit and i’ll
Maddieking
in
Endometriosis UK
6 years ago
Asking for MRI
I'm going back to the doctors next week, a new doctors since I've moved house, to ask about (initially) the insane vulval itching I seem to be having mid cycle. However my period just started and it's heavier than the last, which was heavier than the last and so forth, and I'm wondering what options
I'm going back to the doctors next week, a new doctors since I've moved house, to ask about (initially) the insane vulval itching I seem to be having mid cycle. However my period just started and it's heavier than the last, which was heavier than the last and so forth, and I'm wondering what options
kate24601
in
Endometriosis UK
6 years ago
Reduce the pain and stay positive :)
This month marks a year that I turned vegetarian in a bid to reduce the pain I feel from endometriosis. Like many of you I am still waiting for the lap. My world was turned upside down when I thought that all my years of pain might be something that would stop me having a family. Mentally it took a long
This month marks a year that I turned vegetarian in a bid to reduce the pain I feel from endometriosis. Like many of you I am still waiting for the lap. My world was turned upside down when I thought that all my years of pain might be something that would stop me having a family. Mentally it took a long
Nic9543
in
Endometriosis UK
6 years ago
Getting GP to listen?!
Hi, I'm new to this and to be honest I don't know where else to turn so I thought I'd ask people who have been through it all! I started getting my cycle when I was about 12 or 13, and it was irregular. It didn't come back for 6 months then 2 months and so on, but once it got a bit more regular it got
Hi, I'm new to this and to be honest I don't know where else to turn so I thought I'd ask people who have been through it all! I started getting my cycle when I was about 12 or 13, and it was irregular. It didn't come back for 6 months then 2 months and so on, but once it got a bit more regular it got
georgiabee
in
Endometriosis UK
6 years ago
Mefenamic acid (painkiller)
Guys I just wanted to share this with you - as every little helps! My doctor recently prescribed this to me (I'd never heard of it in my life) and I have to say it's given me some good relief at times, I suffer really badly with pain all up my sides, back, legs & pelvis but this really does ease it
Guys I just wanted to share this with you - as every little helps! My doctor recently prescribed this to me (I'd never heard of it in my life) and I have to say it's given me some good relief at times, I suffer really badly with pain all up my sides, back, legs & pelvis but this really does ease it
beatingendotogetha
in
Endometriosis UK
6 years ago
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