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Paget’s Support

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Pamidronate infusion long term side effects

I had 2 infusions of pamidronate over 2 days in Aug 2019 for a stiff knee and Fi...

Wrong post

Sorry Have written in Paget's post would have been PMR THATS HOW ANXIOUS I AM F...

Awful night

Waken at 2 sweating dripping wet ,head felt numb , pins and needles ,started pan...

Are all the Paget's Diseases connected???

Hi, my apologies in advance if this is a profoundly stupid question but I've bee...

Community Guidelines

Welcome to the Paget's Support Community for support of Paget's disease! We’r...

Updates to this community

We want to let you know that as of next week, Paget's Association will no longer...
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MaddieHUHealthUnlocked

Trying to figure it out

Hi Everyone, I'm Hannah, I'm undergoing investigation to find out what's going ...

U.S. Paget’s Disease patient - new member

Hello All, I was diagnosed with PD of the right knee and femur at age 49. It see...

Pagets With MGUS, What I should know about it,

I would be pleased for any information on this , As have been treated before wit...

Paget's Disease Information Meeting - live online 14:00hrs (UK time), Fri 11th Jan 2019

Brandon Lewis, MP for Great Yarmouth, where Sir James Paget was born and where w...

Can you lose the efficiency of bisphosphonates with time? Can the body get used to them after many uses and then not getting help from them?

This question is for the administration. I have been using bisphosphonates orall...

I would like to know if there is anybody with PDB from Canada. Toronto maybe?

I am 62 years old and having PDB since I was 35.

Come to a Paget's meeting or listen online

On the first International Paget's Awareness Day, 11th January 2019, you can joi...

Appropriate use of this forum

This is a post from the admin: - Please would all users of this forum refrain fr...

Hereditary links?

Hi, I'm new here and I've been exploring my family tree which has given me a cou...

Hyperparathyrodism

have been diagnosed with Hyperparathyrodism and now wondering if this caused the...

The 1st Ever Paget's Day!

The first ever Paget's Awareness Day is taking place on the 11th January 2019! T...

infusion

Would you suggest taking the infusion for the paget’s disease ?

No help from gp

Hi I’m new to this in 2009 the hospital thought I had Paget’s disease of the bon...

Do you need Support?

Do you need information, support or advice regarding Paget’s Disease? The Paget'...

Raging panic.

Iam going for a stress angiogram next week. Am very worried , any advice. Have h...

ECG STRESS TEST

Have just been told by my GP. That I need a stress ECG test. Am now worried abou...

pagets

i have just been told that i have pagets of the bone. Started i guess from the c...

Resently diagnosed with PD in skull

Hi. In january I was diagnosed with PD in skull. I am 45 years old. Had zolodro...

Paget's since 2004

I have probably had Paget's in my right femur since 2004 but went undiagnosed un...

Paget's Disease

Are there any local support groups near Riverside, CA 92504 for Paget's Disease ...

Hello I am Marieeve

I had Zoledronic Acid infusion, 25 July/17. I have not felt well ever since. At ...

My ten year fight with Paget's

It's a first post for me. I have Paget's in my right femur with the complication...

Christmas

Happy Christmas all : )

The reclast has helped me

Since the infusion on Nov 2nd I have been feeling better, yes I can tell where t...
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