Paget’s Support | HealthUnlocked

I had 2 infusions of pamidronate over 2 days in Aug 2019 for a stiff knee and Fibrous Dysplasia. I was told it would help strengthen my knee, the Fibrous...

Sorry Have written in Paget's post would have been PMR THATS HOW ANXIOUS I AM FEELING.

Waken at 2 sweating dripping wet ,head felt numb , pins and needles ,started panicking And took tablets 15mg then ,didn't sleep but wondering if this is...

Hi, my apologies in advance if this is a profoundly stupid question but I've been searching for an answer to it on the web for 3 days now, without success, so...

Welcome to the Paget's Support Community for support of Paget's disease! We’re very glad you have chosen to be a part of our community. The Paget's Support...

We want to let you know that as of next week, Paget's Association will no longer be moderating this community. Over the past few years, Paget's Association has...

Hi Everyone, I'm Hannah, I'm undergoing investigation to find out what's going on but I suspect something autoimmune/connective tissue as I've had a million...

Hello All, I was diagnosed with PD of the right knee and femur at age 49. It seems to recur every four years and is back again for the 5th time. I’m always...

I would be pleased for any information on this , As have been treated before with pamidronate and then zoledrate acid, for pagets...Does also affect the Mgus...

Brandon Lewis, MP for Great Yarmouth, where Sir James Paget was born and where we will be holding a Paget's Information Event and Webinar on Friday 11th Jan,...

This question is for the administration. I have been using bisphosphonates orally every 4 years ( that would be 5-6 times during 20 years) and after that 5...

I am 62 years old and having PDB since I was 35.

On the first International Paget's Awareness Day, 11th January 2019, you can join a free Information Meeting in Edinburgh, Manchester, Salford or Great...

This is a post from the admin: - Please would all users of this forum refrain from arguing or upsetting each other on this forum. If this forum is not helpful...

Hi, I'm new here and I've been exploring my family tree which has given me a couple of things which I hope somebody here can help with - apologies in advance...

have been diagnosed with Hyperparathyrodism and now wondering if this caused the pagets disease. I feel like the docs have not been very helpful and would like...

The first ever Paget's Awareness Day is taking place on the 11th January 2019! Take part by entering our competition or by wearing Blue and green (the colours...

Would you suggest taking the infusion for the paget’s disease ?

Hi I’m new to this in 2009 the hospital thought I had Paget’s disease of the bone in my right leg which was not diagnosed properly until 2017 I know nothing of...

Do you need information, support or advice regarding Paget’s Disease? The Paget's Association can help. Please email helpline@paget.org.uk

Iam going for a stress angiogram next week. Am very worried , any advice. Have had pains in between shoulder blades and breathless when mowing the lawn, for a...

Have just been told by my GP. That I need a stress ECG test. Am now worried about it .any one had one? Think I may have angina. What happens if they find...

i have just been told that i have pagets of the bone. Started i guess from the car accident when, i had my femur, smashed up at 16, im not 68 and they have...

Hi. In january I was diagnosed with PD in skull. I am 45 years old. Had zolodronic infusion 2 Month ago and still feels a strange feeling in my when I try to...

I have probably had Paget's in my right femur since 2004 but went undiagnosed until 2010 when it was found by chance on an Xray taken of my lower back, which...

Are there any local support groups near Riverside, CA 92504 for Paget's Disease of the bone. ty

I had Zoledronic Acid infusion, 25 July/17. I have not felt well ever since. At the moment I am getting very bad back pain from the waist up. is this due to...

It's a first post for me. I have Paget's in my right femur with the complication of micro stress fractures. The consultant at the time recommended no...

Happy Christmas all : )

Since the infusion on Nov 2nd I have been feeling better, yes I can tell where the pain is in my body but I am not getting the full force of the pain.