I was diagnosed with PMR in May this year and am currently on 9mg Prednisolone with instructions from the rheumatologist to decrease by 1mg per month. If I manage to decrease at this rate I will be on 7mg by the time I see him (or the nurse specialist) again.
I have read lots of posts on here and have gone from never having heard of PMR to being quite well informed! So thank you everyone for your contributions to this valuable service.
My GP, under advice from the rheumy prescribed Alendronic Acid, I took two doses and it made me so ill I told him I couldn’t take it, so he prescribed Risedronate Sodium instead. Through my research on here I discovered that this is another bisphosphate. Further reading makes me believe the stuff is likely to do me more harm than good. I don’t have osteoporosis, it was suggested as a preventative. I am not going to take it but should I tell my doctor or save myself a lot of possible argument and just let him believe I am taking it? I I would be grateful for opinions.
I have decided to try and strengthen my bones with supplements so I am taking Calcium 400mg twice a day together with 90mcg K2 and 400mg D3. I also drink about a pint of semi-skimmed milk a day, half a small carton of yogurt and try to eat a bit of cheese every day. I would be grateful for any further suggestions. I am a bit nervous as my mother did have osteoporosis and I nursed her through a couple of crush fractures in her spine which natually gave her a lot of pain.
I also take Thyroxine and Ranitidine so trying to arrange all this pill taking so they don’t interfere with each other is not easy!! I had a bit of a wobble yesterday when I realised this was not a temporary thing but now part of my life for the foreseeable future!!
I am grateful to you all for getting me this far.