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Hello I have not posted for sometime but not because I have forgotten my fellow PMR sufferers. Since I stopped my steroid treatment at the beginning of November 2018, family issues, including a bereavement have kept me very busy. Together with work (really looking forward to retirement but still 2 years
Hello I have not posted for sometime but not because I have forgotten my fellow PMR sufferers. Since I stopped my steroid treatment at the beginning of November 2018, family issues, including a bereavement have kept me very busy. Together with work (really looking forward to retirement but still 2 years
Mitziecat
in
PMRGCAuk
5 years ago
Alendronic Acid
Hi all I was diagnosed with PMR 6 years ago GP put me on 15 mg of Pred and reduced down to 3 when I had a flare, I have been on Alendronic Acid for the first 5 years, a different GP said I no longer need to take it, then I saw rheumatologist, and he wants me back on it, I had a dexa scan in February
Hi all I was diagnosed with PMR 6 years ago GP put me on 15 mg of Pred and reduced down to 3 when I had a flare, I have been on Alendronic Acid for the first 5 years, a different GP said I no longer need to take it, then I saw rheumatologist, and he wants me back on it, I had a dexa scan in February
kate1978
in
PMRGCAuk
5 years ago
Alendronate Shows Promise as Maintenance Therapy for Osteoporosis
Rheumatology Network Editorial Staff September 24, 2019 The bisphosphonate alendronate (Binosto and Fosamax) can effectively maintain the gains in bone mineral density achieved with a year-long course of denosumab treatment in 91 percent of 126 patients who participated in a randomized clinical trial
Rheumatology Network Editorial Staff September 24, 2019 The bisphosphonate alendronate (Binosto and Fosamax) can effectively maintain the gains in bone mineral density achieved with a year-long course of denosumab treatment in 91 percent of 126 patients who participated in a randomized clinical trial
lupus-support1
Administrator
in
Hughes Syndrome APS Forum
5 years ago
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Has anyone stopped taking Ursodiol for a short time?
Has anyone stop taking your Urisidol for two weeks if so what happened or what was the longest you were not able to take your - Ursodeoxycholic acid (UDCA) - ursodiol for liver
Has anyone stop taking your Urisidol for two weeks if so what happened or what was the longest you were not able to take your - Ursodeoxycholic acid (UDCA) - ursodiol for liver
Arlie
in
PBC Foundation
5 years ago
Alendronic Acid quandary?
I was prescribed Alendronic Acid a year ago along with the vitamin D supplement. i have been taking the Vit D but could not bring myself to take the Acid. I have had two operations on my Jaw in the past and the some of the teeth I have left are a bit iffy . Has anyone got any advice on improving bone
I was prescribed Alendronic Acid a year ago along with the vitamin D supplement. i have been taking the Vit D but could not bring myself to take the Acid. I have had two operations on my Jaw in the past and the some of the teeth I have left are a bit iffy . Has anyone got any advice on improving bone
Pentrellwyn39gorrig
in
PMRGCAuk
5 years ago
Bleeding prior to ovulation
Hi all I posted about this a little while ago and since have seen my consultant. Mid cycle bleeding - pretty much like a period. I need to use sanitary products to manage it. Often small clots and bright red bleeding. It happens every month without fail for a week prior to ovulation and a couple
Hi all I posted about this a little while ago and since have seen my consultant. Mid cycle bleeding - pretty much like a period. I need to use sanitary products to manage it. Often small clots and bright red bleeding. It happens every month without fail for a week prior to ovulation and a couple
RoGemRo
in
Endometriosis UK
5 years ago
No thyroid /Alendronic acid problems
Hi I am a new member. I had thyroid cancer & now have no thyroid or parathyroid & therefore need to take daily calcium, which is monitored every 6 months. I recently have been prescribed alendronic acid for pre osteoporosis.( one per week) However the day after taking this I feel really ill - dizzy ,
Hi I am a new member. I had thyroid cancer & now have no thyroid or parathyroid & therefore need to take daily calcium, which is monitored every 6 months. I recently have been prescribed alendronic acid for pre osteoporosis.( one per week) However the day after taking this I feel really ill - dizzy ,
Etch43
in
Thyroid UK
5 years ago
Insomnia and worry through IVF/pregnancy after miscarriage earlier in the year
Hello I’ve always been a terrible sleeper. I am really pleased that I am pregnant after my first round of ivf (very early days).l BUT... I miscarried at 21 weeks earlier in the year and although I am feeling so blessed and lucky and happy to be pregnant, I am also terrified and sleeping worse than ever
Hello I’ve always been a terrible sleeper. I am really pleased that I am pregnant after my first round of ivf (very early days).l BUT... I miscarried at 21 weeks earlier in the year and although I am feeling so blessed and lucky and happy to be pregnant, I am also terrified and sleeping worse than ever
SimsB
in
Fertility Network UK
5 years ago
Diphenhydramine
How long does it take for Diphenhydrami ne to leave the system as I want to try another sleep aid?
How long does it take for Diphenhydrami ne to leave the system as I want to try another sleep aid?
jonboy40
in
Sleep Matters
5 years ago
Zoledronic Acid infusion
So I’ve had the first infusion and boy I was so ill for 2 weeks - is this really worth it for 3 x annual infusions ? I’ve just had a thought is having these 3 infusions a permanent cure so as to speak or will my bones degenerate again over time because if they do just what is the point of having it
So I’ve had the first infusion and boy I was so ill for 2 weeks - is this really worth it for 3 x annual infusions ? I’ve just had a thought is having these 3 infusions a permanent cure so as to speak or will my bones degenerate again over time because if they do just what is the point of having it
Babyr1996
in
Bone Health and Osteoporosis UK
5 years ago
Rheumy update
Saw the rheumy last week and although I didn’t get the results yet for the DXA scan on 2nd August, I am to stick with the Prednisolone and a slow taper. Hurrah! The Leuflomide and mycophenolate (apologies for spelling) questions arose but they are not recommended for me- hurrah again! I did tell the
Saw the rheumy last week and although I didn’t get the results yet for the DXA scan on 2nd August, I am to stick with the Prednisolone and a slow taper. Hurrah! The Leuflomide and mycophenolate (apologies for spelling) questions arose but they are not recommended for me- hurrah again! I did tell the
Cyclegirl54
in
PMRGCAuk
5 years ago
Alendronic acid
Hi, I've just been reading the leaflet that has come with my alendronic acid, it says some people can't take it, one of these reasons is if you have digestive problems, I have IBS and UC, do the doctors not actually look at your notes before prescribing meds, I already have bad indigestion from the steroids
Hi, I've just been reading the leaflet that has come with my alendronic acid, it says some people can't take it, one of these reasons is if you have digestive problems, I have IBS and UC, do the doctors not actually look at your notes before prescribing meds, I already have bad indigestion from the steroids
Poppylop
in
PMRGCAuk
5 years ago
Just saying Hello and giving an update
Hi guys, how are you all? I hope not too bad. I have been extremely tired and my fingers and toes have got much worse lately, so I'm actually struggling typing right now.. I would like to try to minimize my typing but it's actually really difficult because of computer and phone use daily! :o How do you
Hi guys, how are you all? I hope not too bad. I have been extremely tired and my fingers and toes have got much worse lately, so I'm actually struggling typing right now.. I would like to try to minimize my typing but it's actually really difficult because of computer and phone use daily! :o How do you
regina79
in
NRAS
5 years ago
Swollen prickling numb legs and feet
I have been tapering from 60mg to currently 8mg since diagnosis of GCA in May 2018. Had a couple of flares and was put on Met and then Lev December 2018. Since taking all the prescribed drugs (Omnipresole been taking for years, Aspirin, chewable vit D, Alendronic Acid, iron tablets) I have had horrendous
I have been tapering from 60mg to currently 8mg since diagnosis of GCA in May 2018. Had a couple of flares and was put on Met and then Lev December 2018. Since taking all the prescribed drugs (Omnipresole been taking for years, Aspirin, chewable vit D, Alendronic Acid, iron tablets) I have had horrendous
Cairn
in
PMRGCAuk
5 years ago
Ibandronic Acid
I tried to tolerate Alendronic Acid, but was quite poorly with taking it, However my doctor prescribed Ibandronic Acid taken monthly; this is the 3rd monthly dose now. I can truly say now that I’ve had no side effects at all- Hope this helps someone experiencing the side effects of Alendronic Acid.
I tried to tolerate Alendronic Acid, but was quite poorly with taking it, However my doctor prescribed Ibandronic Acid taken monthly; this is the 3rd monthly dose now. I can truly say now that I’ve had no side effects at all- Hope this helps someone experiencing the side effects of Alendronic Acid.
Wayfair
in
PMRGCAuk
5 years ago
Pain in right hip and rib
While on ADT and PSA 0.008, can the cancer spread to the pelvic bone ie sacral ala?
While on ADT and PSA 0.008, can the cancer spread to the pelvic bone ie sacral ala?
Neeta12
in
Advanced Prostate Cancer
5 years ago
The last month
Diagnosed PMR Nov. last. Now starting my last month at 1mg pred. Everything has went smoothly. Hopefully I will still be as well at end Sept. Will be glad to get off Alendronic acid. Hope everyone is making same progress as I have.
Diagnosed PMR Nov. last. Now starting my last month at 1mg pred. Everything has went smoothly. Hopefully I will still be as well at end Sept. Will be glad to get off Alendronic acid. Hope everyone is making same progress as I have.
barny49
in
PMRGCAuk
5 years ago
Zoledronic Acid infusion
Hi Thursday morning I had my first Zoledronic Acid infusion and not liking the side affects one bit. I feel aweful flue without the runny nose & sore throat - not nice
Hi Thursday morning I had my first Zoledronic Acid infusion and not liking the side affects one bit. I feel aweful flue without the runny nose & sore throat - not nice
Babyr1996
in
Bone Health and Osteoporosis UK
5 years ago
DEXA scan results and thanks to this forum.
Firstly thanks to this forum for the advice about alendronic acid and dexa scans. In brief, I was diagnosed with PMR in April started pred in May. My GP wanted me to go on AA because I'd broken a bone a few years back and there was the assumption I was low bone density. (I mentioned it was a spectacular
Firstly thanks to this forum for the advice about alendronic acid and dexa scans. In brief, I was diagnosed with PMR in April started pred in May. My GP wanted me to go on AA because I'd broken a bone a few years back and there was the assumption I was low bone density. (I mentioned it was a spectacular
Daisyfield
in
PMRGCAuk
5 years ago
PROLONGE BLEEDING ?PCOS
Hi guys, I've recently joined this site as a recommendation from a friend. I was wondering if anyone can give me some advice. I've been having prolonged periods since the beginning of may. The 2nd week of may i started my period and I was on it for 8 days. This is unusual for me as my periods are only
Hi guys, I've recently joined this site as a recommendation from a friend. I was wondering if anyone can give me some advice. I've been having prolonged periods since the beginning of may. The 2nd week of may i started my period and I was on it for 8 days. This is unusual for me as my periods are only
Shaz002
in
PCOS UK (Verity)
5 years ago
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