how are you all? I hope not too bad. I have been extremely tired and my fingers and toes have got much worse lately, so I'm actually struggling typing right now.. I would like to try to minimize my typing but it's actually really difficult because of computer and phone use daily! How do you all cope with this?!
I have told work about my diagnosis and they have called in a DSE person who is also a Physio. This should happen next week. I don't know what to expect but I suppose I can let her know what my struggle is currently.
Today I'm working from home and I'm really relieved as I don't know if I could have gone to work I went to give a presentation with a colleague in Hertfordshire last night and it was quite late plus the walk from the station to the venue and vice versa was way too much for my body. I don't know how I got back in 1 piece. I feel inflammation pain everywhere since. It was my first presentation and I enjoyed it but I think I will have to let them know that if it involves too much walking they either need to arrange a cab or I can't make it... I can't be feeling this way for a presentation. It's just stupid.
I also went to see an NHS Rheumatologist on Monday. He was okay..nothing special. A bit stupid just like all docs..! But he did examined all my joints which is what the other specialist hasn't done. He, however pressed so much on my tender ankles and fingers that I had a lot of pain afterwards. He also sent me for hands and feet X rays. Not sure why no wrists and ankles as well? But anyway, he's also increased my Methotrexate dose (and Folic Acid). Which will be increased every 2 weeks until I get to 6 pills.. We'll see if that helps. He also referred me to a specialist nurse. I told him that my pain is mostly where my very subtle nodules are on the index and middle fingers (on the side of the MCP joints) and he replied saying 'No that is not a "common" site for nodules'.... As I said 'stupid' docs. Oh well at least he helped out with the meds and he sent me for X -Rays. What do people do for painful fingers and typing...?
I have a First Aid training all day tomorrow and Friday and I really don't know what I was thinking when I agreed to extend this certificate and responsibility.. these training are so intense and require a lot of simulations. I hope I'll be ok
I hope you're all well! xxx