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Sjogren's Syndrome and Coeliac disease.
I've had Sjogren's for over 20 years now and am having issues with bloating, IBS, and food intolerances and constipation. Was wondering if anyone with Sjogren's has also been diagnosed with coeliac disease and how they got diagnosed as I would like to get tested.
I've had Sjogren's for over 20 years now and am having issues with bloating, IBS, and food intolerances and constipation. Was wondering if anyone with Sjogren's has also been diagnosed with coeliac disease and how they got diagnosed as I would like to get tested.
maxie4969
in
The Australian Sjögren's Syndrome Association
9 months ago
what to do??
I am really struggling, I am wondering if I have hashimotos. Diagnosed with an underactive thyroid in march ( the day my dad died) just 6 months after losing my mother in law. Had gone to the drs thinking my HRT needed tweaking for my perimenopause symptoms. (Hair loss, brittle nails, weight gain, sweating
I am really struggling, I am wondering if I have hashimotos. Diagnosed with an underactive thyroid in march ( the day my dad died) just 6 months after losing my mother in law. Had gone to the drs thinking my HRT needed tweaking for my perimenopause symptoms. (Hair loss, brittle nails, weight gain, sweating
Vorney
in
Thyroid UK
9 months ago
Macrophages, type of immune cell, tied to lupus nephritis in children
M1 macrophages may cause more severe kidney disease in young patients Inflammatory macrophages, a type of immune cell tasked with clearing the body of harmful invaders and dead cells, may be linked to more severe lupus nephritis in children with systemic lupus erythematosus, a small study suggests.
M1 macrophages may cause more severe kidney disease in young patients Inflammatory macrophages, a type of immune cell tasked with clearing the body of harmful invaders and dead cells, may be linked to more severe lupus nephritis in children with systemic lupus erythematosus, a small study suggests.
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
2 months ago
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Update on study of diagnostic journeys in lupus/SLE, Sjögren's and UCTD.
Hi
Thanks to interviewees and organisations
I'd like thank all of those who I interviewed for this study in the last few months and to thank Lupus UK, the British Sjögren's Association, and APS Support UK for their help in publicising the study. The interviews provided really valuable insights
Hi
Thanks to interviewees and organisations
I'd like thank all of those who I interviewed for this study in the last few months and to thank Lupus UK, the British Sjögren's Association, and APS Support UK for their help in publicising the study. The interviews provided really valuable insights
RupertW-SUMS
in
LUPUS UK
9 months ago
anxiety/holding down jobs
Hi brothers and sisters., i got diagnosed as having pernicious 2 and half years ago - ive always had anxiety - more so in the workplace, ive only worked 4 months in the last 3 years due to anxiety- but feel maybe the anxiety worse after the pernicious diagnosis? definetelt feels like that for me.
Hi brothers and sisters., i got diagnosed as having pernicious 2 and half years ago - ive always had anxiety - more so in the workplace, ive only worked 4 months in the last 3 years due to anxiety- but feel maybe the anxiety worse after the pernicious diagnosis? definetelt feels like that for me.
dolphin66stag
in
Pernicious Anaemia Society
9 months ago
Thrombocytopenia
Hi all, I have just been diagnosed with autoimmune thrombocytopenia, which is very low platelet count and can cause bruising and excessive bleeding. Diagnosed with PBC in 2018. Just wondered if anyone else has this as I know that we can be prone to more than one autoimmune condition.
Hi all, I have just been diagnosed with autoimmune thrombocytopenia, which is very low platelet count and can cause bruising and excessive bleeding. Diagnosed with PBC in 2018. Just wondered if anyone else has this as I know that we can be prone to more than one autoimmune condition.
nunbrook
in
PBC Foundation
9 months ago
Warning, ugly face
I am not diagnosed with Lupus, but I do have Ehlers Danlos Syndrome and Generalised multi joint Osteoarthritis, fibromyalgia and am hypothyroid.However, I am trying to get to the bottom of the terrible sores that come up on my face and neck. They can be terrible and then clear up a bit, but never fully
I am not diagnosed with Lupus, but I do have Ehlers Danlos Syndrome and Generalised multi joint Osteoarthritis, fibromyalgia and am hypothyroid.However, I am trying to get to the bottom of the terrible sores that come up on my face and neck. They can be terrible and then clear up a bit, but never fully
Lozza812
in
LUPUS UK
9 months ago
Covid vaccines and Lupus Flare - up
Everytime I get a Covid shot I get a painful Lupus Flare- up for 4 to 5 months . In the 30 years of having Lupus I have never been so sick as since I have been taking Covid shots . I am thinking I will wait at least 1 year , if not longer for another one .
Everytime I get a Covid shot I get a painful Lupus Flare- up for 4 to 5 months . In the 30 years of having Lupus I have never been so sick as since I have been taking Covid shots . I am thinking I will wait at least 1 year , if not longer for another one .
seabreezegirl
in
LUpus Patients Understanding and Support
9 months ago
Thyroid antibody result
Hi there, I was just wondering if a thyroid antibody level of 822 is quite high? My T4 is 9.6 and TSH is 12.04 Have been on Levothroxine 50mg for nearly 6 weeks so awaiting another blood test to see if it’s helped bring the levels down. I haven’t had a chance to discuss the antibody result with
Hi there, I was just wondering if a thyroid antibody level of 822 is quite high? My T4 is 9.6 and TSH is 12.04 Have been on Levothroxine 50mg for nearly 6 weeks so awaiting another blood test to see if it’s helped bring the levels down. I haven’t had a chance to discuss the antibody result with
Cloud77
in
Thyroid UK
9 months ago
A vaccine for PMR?
But if it works for these other
diseases
, it might work for PMR, too. https://www.thehealthsite.com/
diseases
-conditions/
autoimmune
-disorder-treatment-new-vaccine-may-completely-reverse-
diseases
-1009841/
But if it works for these other
diseases
, it might work for PMR, too. https://www.thehealthsite.com/
diseases
-conditions/
autoimmune
-disorder-treatment-new-vaccine-may-completely-reverse-
diseases
-1009841/
papadapadoo
in
PMRGCAuk
10 months ago
Do I have lupus?
Several years ago I was having a lot of joint pains in my legs and fevers. I was referred to haematology who then referred me on to infectious diseases. The consultant did blood tests and told me I had a positive ANA test and anti-Double stranded dna antibody test which was positive, he diagnosed me
Several years ago I was having a lot of joint pains in my legs and fevers. I was referred to haematology who then referred me on to infectious diseases. The consultant did blood tests and told me I had a positive ANA test and anti-Double stranded dna antibody test which was positive, he diagnosed me
Poppy-12345
in
LUPUS UK
9 months ago
results of inspire study
INSPIRE (Investigating Neuropsychiatric Symptom Prevalence and Impact in Rheumatology patient Experiences) research I took part in this study and they have published the results which may be of interest- it was looking at the hidden mental health symptoms of people with
autoimmune
diseases
, so cognitive
INSPIRE (Investigating Neuropsychiatric Symptom Prevalence and Impact in Rheumatology patient Experiences) research I took part in this study and they have published the results which may be of interest- it was looking at the hidden mental health symptoms of people with
autoimmune
diseases
, so cognitive
Tbrz
in
Vasculitis UK
1 year ago
Possible Drug Induced Lupus and Thyroid meds ?
Thanks in advance to anyone who responds. I have been battling a horrible rash around the entire side of my body (itchy, painful ribs, blistering like bumps, and once it clears my skin looks bruised) rash has lingered now for 7 weeks …. First rash happened a couple of yrs ago and lasted only 3 weeks
Thanks in advance to anyone who responds. I have been battling a horrible rash around the entire side of my body (itchy, painful ribs, blistering like bumps, and once it clears my skin looks bruised) rash has lingered now for 7 weeks …. First rash happened a couple of yrs ago and lasted only 3 weeks
Batty1
in
Thyroid UK
9 months ago
More on Vit D
Observational studies have consistently shown an inverse association between serum 25-hydroxyvitamin D concentration and
autoimmune
diseases
; however, there is a lack of evidence from randomized controlled trials to support a benefit of vitamin D supplementation, particularly for
autoimmune
thyroid
diseases
Observational studies have consistently shown an inverse association between serum 25-hydroxyvitamin D concentration and
autoimmune
diseases
; however, there is a lack of evidence from randomized controlled trials to support a benefit of vitamin D supplementation, particularly for
autoimmune
thyroid
diseases
diogenes
in
Thyroid UK
8 months ago
cortisol/underactive thyroid
Out of interest, if your cortisol is high in the morning, would taking your levothyroxine in the morning make you feel even more stressed/twitchy?
Out of interest, if your cortisol is high in the morning, would taking your levothyroxine in the morning make you feel even more stressed/twitchy?
Puddingym
in
Thyroid UK
3 months ago
CAR T-cell therapy IMPT-514 gets FDA fast track designation for lupus
Investigational treatment targets active, resistant lupus nephritis and SLE The U.S. Food and Drug Administration (FDA) has granted fast track designation to IMPT-514, a CAR T-cell therapy being developed by Immpact Bio for people with active, treatment-resistant lupus nephritis and systemic lupus
Investigational treatment targets active, resistant lupus nephritis and SLE The U.S. Food and Drug Administration (FDA) has granted fast track designation to IMPT-514, a CAR T-cell therapy being developed by Immpact Bio for people with active, treatment-resistant lupus nephritis and systemic lupus
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
9 months ago
Intensified Saphnelo dosing seen to benefit lupus nephritis patients
lupusnewstoday.com/news/intensified-dosing-of-saphnelo-seen-to-benefit-lupus-nephritis-patients/ October 16, 2023 Treatment with an intensified dosing regimen of Saphnelo (anifrolumab) led to greater improvements in kidney function compared with standard dosing or a placebo for people with active
lupusnewstoday.com/news/intensified-dosing-of-saphnelo-seen-to-benefit-lupus-nephritis-patients/ October 16, 2023 Treatment with an intensified dosing regimen of Saphnelo (anifrolumab) led to greater improvements in kidney function compared with standard dosing or a placebo for people with active
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
9 months ago
Membership of the Pernicious Anaemia Society
https://pernicious-anaemia-society.org/member/ Membership of Health Unlocked is not the same as membership of the charity which represents the interests of people with PA or suspected of having PA. You can join the Society at the link above. We are an international organisation and you don't have
https://pernicious-anaemia-society.org/member/ Membership of Health Unlocked is not the same as membership of the charity which represents the interests of people with PA or suspected of having PA. You can join the Society at the link above. We are an international organisation and you don't have
PAScomms
in
Pernicious Anaemia Society
9 months ago
CLL / SLL & Autoimmune Disease ???
Recently I've had very bad fatigue, hives, joint pain/swelling, and high white cell counts indicative of inflammation. Have SLL and been on BTKs for 2.5 years but my hemo doesn't think drug side effects or disease progression are causing these symptoms. Rather, she said they could indicated a separate
Recently I've had very bad fatigue, hives, joint pain/swelling, and high white cell counts indicative of inflammation. Have SLL and been on BTKs for 2.5 years but my hemo doesn't think drug side effects or disease progression are causing these symptoms. Rather, she said they could indicated a separate
Amberesque
in
CLL Support
9 months ago
Coeliac-related thyroid problems
My 15 year old granddaughter has thyroid problems(hypo) associated with her having coeliac disease. Her condition is monitored (TSH is currently 5) and it seems to be a case of "wait and see" and the thyroid may correct itself. I understand this but the symptoms of feeling unwell, low energy etc from
My 15 year old granddaughter has thyroid problems(hypo) associated with her having coeliac disease. Her condition is monitored (TSH is currently 5) and it seems to be a case of "wait and see" and the thyroid may correct itself. I understand this but the symptoms of feeling unwell, low energy etc from
Dunbar25
in
Gluten Free Guerrillas
9 months ago
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