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REMINDER - This Saturday 2nd March - St Georges Hospital from 9.30am - Medical lecture and Q+A with Dr Kaul!
Consultant Rheumatologist Dr Arvind Kaul, the Head of Rheumatology & Lupus Patient Care at St. George's Hospital will be hosting the next South London Lupus Group Medical Patient-Focused Lecture on Saturday 2nd March, from 9.30am. Our agenda for the morning as follows: 09.30 Arrival + refreshments
Consultant Rheumatologist Dr Arvind Kaul, the Head of Rheumatology & Lupus Patient Care at St. George's Hospital will be hosting the next South London Lupus Group Medical Patient-Focused Lecture on Saturday 2nd March, from 9.30am. Our agenda for the morning as follows: 09.30 Arrival + refreshments
michaellasmith
Administrator
in
LUPUS UK
2 months ago
Focus group with Kuma Health - 8th March 10.30am until 12pm!
We at Kuma Health are passionate about improving the lives of people with lupus. We're designing new tools and resources to make lupus care easier and more effective, and we need your voice! Join our focus group to share your experiences and help us: • Understand the challenges you face daily • Get
We at Kuma Health are passionate about improving the lives of people with lupus. We're designing new tools and resources to make lupus care easier and more effective, and we need your voice! Join our focus group to share your experiences and help us: • Understand the challenges you face daily • Get
michaellasmith
Administrator
in
LUPUS UK
2 months ago
Have the new guide-lines on B12 deficiency/ Pernicious Anaemia been published yet?
They have been so delayed. .
They have been so delayed. .
wedgewood
in
Pernicious Anaemia Society
2 months ago
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Half moons on fingers
Hey guys, I have an underactive thyroid and know the importance of getting vitamin levela checked Is it true that lack of or small half moons can be a sign of deficiencies? Just took a photo or my fingers, what do people think? If zoomed in, can just about see half moon on some
Hey guys, I have an underactive thyroid and know the importance of getting vitamin levela checked Is it true that lack of or small half moons can be a sign of deficiencies? Just took a photo or my fingers, what do people think? If zoomed in, can just about see half moon on some
yewotc23
in
Thyroid UK
2 months ago
Advice needed on thyroxine management
I am hoping someone can advise me about my thyroxine dose. Here's a little background: In September 2023, I was underweight and having trouble gaining weight and suffering from anxiety. I had been on 75mcg of levothyroxine daily for an underactive thyroid. I had recently developed pins and needles
I am hoping someone can advise me about my thyroxine dose. Here's a little background: In September 2023, I was underweight and having trouble gaining weight and suffering from anxiety. I had been on 75mcg of levothyroxine daily for an underactive thyroid. I had recently developed pins and needles
SarrahMay
in
Thyroid UK
2 months ago
Prednisone for treatment of AIG
I've just been started on Prednisone or Prednisolone, immunosuppressant steroids, for treatment of Autoimmune Gastritis/autoimmune PA. This has recently, within the last few years been shown to possibly heal AIG, although not entirely cure. It is also used to prevention immune system rejection of organ
I've just been started on Prednisone or Prednisolone, immunosuppressant steroids, for treatment of Autoimmune Gastritis/autoimmune PA. This has recently, within the last few years been shown to possibly heal AIG, although not entirely cure. It is also used to prevention immune system rejection of organ
Rexz
in
Pernicious Anaemia Society
2 months ago
Lupus flare
Hi has anyone experience a lupus flare which was tiggered by a suspected infection? Ended up in hospital but they couldnt detect where the infection / virus was dispite full blood tests, urine tests as well as blood and urine culuture tests. Pretty scary.Thanks
Hi has anyone experience a lupus flare which was tiggered by a suspected infection? Ended up in hospital but they couldnt detect where the infection / virus was dispite full blood tests, urine tests as well as blood and urine culuture tests. Pretty scary.Thanks
Flows
in
LUPUS UK
2 months ago
sulfasalazine side effects
Hi. I am on sulfasalazine for mixed connective tissue disease (similar to rheumatoid arthritis and lupus), which I started taking again after many years of my disease being in remission. I was initially on sulfasalazine 10 years ago and it is a horrid medication. Was, and am again, terribly dizzy
Hi. I am on sulfasalazine for mixed connective tissue disease (similar to rheumatoid arthritis and lupus), which I started taking again after many years of my disease being in remission. I was initially on sulfasalazine 10 years ago and it is a horrid medication. Was, and am again, terribly dizzy
girldoc
in
NRAS
2 months ago
updated journey
I’m getting so frustrated with this underactive thyroid. My only symptom before I was diagnosed again was unexplained weight gain. I had put on half a stone but hadn’t changed any habits. After starting on levothyroxine I put on another 2 stone. This may have been made worse due to all my joints seizing
I’m getting so frustrated with this underactive thyroid. My only symptom before I was diagnosed again was unexplained weight gain. I had put on half a stone but hadn’t changed any habits. After starting on levothyroxine I put on another 2 stone. This may have been made worse due to all my joints seizing
ScriptMaz
in
Thyroid UK
2 months ago
worried
hi I was diagnosed with nafld in November and told to lose weight I was about 2 stone overweight I have now hit healthy weight but my liver is showing still problems in the bloods so I have now been referred for autoimmune screening and mri scan also my urine is very dark have anyone gone through this
hi I was diagnosed with nafld in November and told to lose weight I was about 2 stone overweight I have now hit healthy weight but my liver is showing still problems in the bloods so I have now been referred for autoimmune screening and mri scan also my urine is very dark have anyone gone through this
Candycru
in
British Liver Trust
2 months ago
Link between Vitamin B12 Deficiency and MS
A recent study, conducted by researchers from Sanford Burnham Prebys, in collaboration with others, and published in the December 2023 issue of Cell Reports, sheds more light on the subject, revealing a molecular link between vitamin B12 deficiency and multiple sclerosis. The researchers suggest the
A recent study, conducted by researchers from Sanford Burnham Prebys, in collaboration with others, and published in the December 2023 issue of Cell Reports, sheds more light on the subject, revealing a molecular link between vitamin B12 deficiency and multiple sclerosis. The researchers suggest the
BettysMom
in
My MSAA Community
2 months ago
Thyroid Antibodies
Just read a post from Thyroid UK about antibodies. The raised TPO connection seems clear, but then It says “The next group is the TG Ab. These levels rise as well as the TPO Ab levels in autoimmune thyroiditis, but to a lesser degree...” I don’t understand what this is saying…does it mean that BOTH
Just read a post from Thyroid UK about antibodies. The raised TPO connection seems clear, but then It says “The next group is the TG Ab. These levels rise as well as the TPO Ab levels in autoimmune thyroiditis, but to a lesser degree...” I don’t understand what this is saying…does it mean that BOTH
JoJoloveschocolate
in
Thyroid UK
2 months ago
LUPUS UK is delighted to announce their new CEO will be Caroline Olshewsky
After a rigorous and careful selection process, involving a panel of Trustees and the staff at the National Office in Romford, Caroline Olshewsky will start her new position on Monday 18th March 2024. Caroline will take the reins from Paul Howard who has been CEO since March 2020 and has been with the
After a rigorous and careful selection process, involving a panel of Trustees and the staff at the National Office in Romford, Caroline Olshewsky will start her new position on Monday 18th March 2024. Caroline will take the reins from Paul Howard who has been CEO since March 2020 and has been with the
Paul_Howard
LUPUS UK
in
LUPUS UK
2 months ago
facial rash
hi there, I have just had a positive ana result and suspected lupus so I am being referred to a rheumatologist. I have a slight red rash on both cheeks but nothing on my nose. Can a lupus facial rash be just mildly on both cheeks and not on your nose? thanks in advance for any replies? Pinkyerin
hi there, I have just had a positive ana result and suspected lupus so I am being referred to a rheumatologist. I have a slight red rash on both cheeks but nothing on my nose. Can a lupus facial rash be just mildly on both cheeks and not on your nose? thanks in advance for any replies? Pinkyerin
Pinkyerin
in
LUPUS UK
2 months ago
Eltroxin Mercury Pharma
Hello I have been struggling with underactive thyroid and recently diagnosed with Benign nodules and had to come off 50mcg levothyroxine as it caused hoarse voice, goiter to swell etc. My recent lab results were TSH 5.79 and T4 10.8. I still am struggling with my thyroid swelling up. I have been for
Hello I have been struggling with underactive thyroid and recently diagnosed with Benign nodules and had to come off 50mcg levothyroxine as it caused hoarse voice, goiter to swell etc. My recent lab results were TSH 5.79 and T4 10.8. I still am struggling with my thyroid swelling up. I have been for
Chesterblue
in
Thyroid UK
2 months ago
Have you experience of Chemotherapy and underactive thyroid?
I have recently completed chemo following surgery for a bowel tumour. I was wondering if anyone has experience of chemotherapy and underactive thyroid? I have continued to take 75 T4 and 20 T3. It’s difficult to know if the fatigue / sleep problems are to do with the thyroid or chemo. many thanks.
I have recently completed chemo following surgery for a bowel tumour. I was wondering if anyone has experience of chemotherapy and underactive thyroid? I have continued to take 75 T4 and 20 T3. It’s difficult to know if the fatigue / sleep problems are to do with the thyroid or chemo. many thanks.
Mantras131
in
Thyroid UK
2 months ago
Steroid injection in the Bum
Hi , I had a steroid shot as I have rheumatoid Arthrits which I've had for 14 years But 2 days ago I had the steroid shot in my bottom I've had them before but that was maybe 8 years ago .2 days later I'm in pain again ..I can't remember if this is normal .
Hi , I had a steroid shot as I have rheumatoid Arthrits which I've had for 14 years But 2 days ago I had the steroid shot in my bottom I've had them before but that was maybe 8 years ago .2 days later I'm in pain again ..I can't remember if this is normal .
Trishfrog1
in
NRAS
2 months ago
Active b12 levels normal - can it still be PA??
Hello everyone, I am wondering if you can have normal or high active b12 levels but still have pernicious anemia?
Hello everyone, I am wondering if you can have normal or high active b12 levels but still have pernicious anemia?
Suffering_sunny
in
Pernicious Anaemia Society
2 months ago
Can anyone shed some light on Anti CCP antibodies result?
Hi everyone, my name is Claire. I’ve just received back some blood test results (Rheumatoid Factor and Anti CCP antibodies). The Rheumatoid Factor came back negative but the Anti CCP came back as 10.4 K/UL. The test states that normal range is under 2.9 K/Ul yet mine is over 3 times higher. The last
Hi everyone, my name is Claire. I’ve just received back some blood test results (Rheumatoid Factor and Anti CCP antibodies). The Rheumatoid Factor came back negative but the Anti CCP came back as 10.4 K/UL. The test states that normal range is under 2.9 K/Ul yet mine is over 3 times higher. The last
Cheshirecatz
in
NRAS
2 months ago
Is inflammatory arthritis affecting your daily life?
Researchers led by Dr Sam Norton at King's College London would like to invite you to take part in research exploring the impact of inflammatory arthritis on daily life. People with inflammatory arthritis (such as rheumatoid arthritis, psoriatic arthritis, and spondylarthritis) typically experience
Researchers led by Dr Sam Norton at King's College London would like to invite you to take part in research exploring the impact of inflammatory arthritis on daily life. People with inflammatory arthritis (such as rheumatoid arthritis, psoriatic arthritis, and spondylarthritis) typically experience
Aribah-NRAS
NRAS
in
NRAS
2 months ago
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