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Coeliac-related thyroid problems
My 15 year old granddaughter has thyroid problems(hypo) associated with her having coeliac disease. Her condition is monitored (TSH is currently 5) and it seems to be a case of "wait and see" and the thyroid may correct itself. I understand this but the symptoms of feeling unwell, low energy etc from
My 15 year old granddaughter has thyroid problems(hypo) associated with her having coeliac disease. Her condition is monitored (TSH is currently 5) and it seems to be a case of "wait and see" and the thyroid may correct itself. I understand this but the symptoms of feeling unwell, low energy etc from
Dunbar25
in
Thyroid UK
9 months ago
neck pain, turning head very painful. PMR/GCA flare?
For the past several days I’ve had a stiff neck and neck pain when turning my head and looking down, it’s pretty bad this morning after waking up. Also much worse tinnitus and ears feel blocked. Heating pad seemed to worsen it. I’ve been trying to sort out what’s been causing pain in various
For the past several days I’ve had a stiff neck and neck pain when turning my head and looking down, it’s pretty bad this morning after waking up. Also much worse tinnitus and ears feel blocked. Heating pad seemed to worsen it. I’ve been trying to sort out what’s been causing pain in various
Mstiles
in
PMRGCAuk
9 months ago
PMR pain versus arthritis
I have been reducing down to 4 but have pain in hips upon waking goes away after I am up. Is this PMR or my arthritis?
I have been reducing down to 4 but have pain in hips upon waking goes away after I am up. Is this PMR or my arthritis?
Artwatercolour
in
PMRGCAuk
9 months ago
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Please any advice
Hi , I have hashimoto and underactive thyroid on 75mg levotyroxine, feeling tired very bad headache ct scan normal , headache worse before period and I have more symptoms . Do you have problem with Prolactine and thyroid? Call GP but waiting over month to speak with DR TSH 3.7 ( 0.2-4.2) Prolactine
Hi , I have hashimoto and underactive thyroid on 75mg levotyroxine, feeling tired very bad headache ct scan normal , headache worse before period and I have more symptoms . Do you have problem with Prolactine and thyroid? Call GP but waiting over month to speak with DR TSH 3.7 ( 0.2-4.2) Prolactine
monapple
in
Thyroid UK
9 months ago
Kirsty Young's story- Living with Rheumatoid Arthritis
“It can strike anyone at any age, from any background. And there are around about 450,000 people in the UK right now dealing with their Rheumatoid Arthritis”. Kirsty Young, Scottish television and radio presenter was diagnosed with Rheumatoid Arthritis in 2018. Hear Kirsty’s story of living with Rheumatoid
“It can strike anyone at any age, from any background. And there are around about 450,000 people in the UK right now dealing with their Rheumatoid Arthritis”. Kirsty Young, Scottish television and radio presenter was diagnosed with Rheumatoid Arthritis in 2018. Hear Kirsty’s story of living with Rheumatoid
Aribah-NRAS
NRAS
in
NRAS
9 months ago
Possible lupus???
Had graves years ago, was brought on by pregnancy, it levelled itself out. I went to the doctors to get bloods as I thought it maybe back. My Thyriod has came back fine, however my Immunoglobulin G and M levels are high.. I'm calling the doctors tomorrow, but wondered if this could be a sign of lupus
Had graves years ago, was brought on by pregnancy, it levelled itself out. I went to the doctors to get bloods as I thought it maybe back. My Thyriod has came back fine, however my Immunoglobulin G and M levels are high.. I'm calling the doctors tomorrow, but wondered if this could be a sign of lupus
RebeccaD1231
in
LUPUS UK
9 months ago
Advise Please
Hi, If any of you could offer any opinions / advise on my blood tests it would be apricated. Bit of back ground: Underactive Thyroid for around 7 years currently on 150mg Levothyroxine Low B 12 - been advised to take supplements by GP which I am taking for around 3 months Low Vitamin D - been advised
Hi, If any of you could offer any opinions / advise on my blood tests it would be apricated. Bit of back ground: Underactive Thyroid for around 7 years currently on 150mg Levothyroxine Low B 12 - been advised to take supplements by GP which I am taking for around 3 months Low Vitamin D - been advised
Belinda1136
in
LUPUS UK
9 months ago
Sjogren's and eyes
I suffer with sjogren's and have been seen by many eye Dr's at my local hospital that is Addenbrooke's Cambridge. The last Dr I saw told me I had tried everything I could try. My eye's have been reasonably good on very calm days but a windy day upsets them and now the colder weather. The thought
I suffer with sjogren's and have been seen by many eye Dr's at my local hospital that is Addenbrooke's Cambridge. The last Dr I saw told me I had tried everything I could try. My eye's have been reasonably good on very calm days but a windy day upsets them and now the colder weather. The thought
Bailybiscuit
in
NRAS
9 months ago
Just a quick one. Been caught off guard
At surgery now for a separate issue to thyroid and GP has slotted me in for a blood test here for rheumatoid arthritis, Can’t remember the Metavive protocol; I took it last night at bedtime, is it ok to do the test now
At surgery now for a separate issue to thyroid and GP has slotted me in for a blood test here for rheumatoid arthritis, Can’t remember the Metavive protocol; I took it last night at bedtime, is it ok to do the test now
Noelnoel
in
Thyroid UK
9 months ago
New to RA /methotrexate looking for advice.
Been diagnosed with rheumatoid arthritis a few weeks ago and starting methotrexate tomorrow which I’m starting on 10mg for 2 weeks then 15mg for 2 weeks then 20mg from there, also 5mg of folic acid the other six days and 5mg of prednisone for now but reducing it. Do I need to worry about anything ?
Been diagnosed with rheumatoid arthritis a few weeks ago and starting methotrexate tomorrow which I’m starting on 10mg for 2 weeks then 15mg for 2 weeks then 20mg from there, also 5mg of folic acid the other six days and 5mg of prednisone for now but reducing it. Do I need to worry about anything ?
Alan7690
in
NRAS
9 months ago
World Mental Health Day
Today is World Mental Health Day. The CEO of the PAS, Katrina Burchell, has explored in A History of Pernicious Anaemia the socioeconomic changes that occurred from the 19th Century which shaped the geopolitical arena. This impacted on science, medicine and technology. Please also note that in this
Today is World Mental Health Day. The CEO of the PAS, Katrina Burchell, has explored in A History of Pernicious Anaemia the socioeconomic changes that occurred from the 19th Century which shaped the geopolitical arena. This impacted on science, medicine and technology. Please also note that in this
Narwhal10
in
Pernicious Anaemia Society
9 months ago
Do you have or have you had menopausal symptoms?
Did it affect your Rheumatoid Arthritis? Has any healthcare professional talked to you about the Menopause and RA? NRAS and the Royal College of Nursing (RCN) Rheumatology Forum’s survey seeks to find out what your experiences are to further inform healthcare professionals. What do they need to know
Did it affect your Rheumatoid Arthritis? Has any healthcare professional talked to you about the Menopause and RA? NRAS and the Royal College of Nursing (RCN) Rheumatology Forum’s survey seeks to find out what your experiences are to further inform healthcare professionals. What do they need to know
Aribah-NRAS
NRAS
in
NRAS
9 months ago
Voclosporin for lupus nephritis now approved in Scotland
We are very pleased that voclosporin, a treatment for lupus nephritis, has now been approved for use in Scotland. This follows approval for use in England and Wales by NICE earlier this year. Check out our website to find more information about voclosporin & how it may be used: https://lupusuk.org.uk
We are very pleased that voclosporin, a treatment for lupus nephritis, has now been approved for use in Scotland. This follows approval for use in England and Wales by NICE earlier this year. Check out our website to find more information about voclosporin & how it may be used: https://lupusuk.org.uk
Debbie_kinsey
Administrator
in
LUPUS UK
9 months ago
Vitamin and mineral deficiencies/Thyroid dysfunction.. Chicken or Egg?
Before I spend my hard earned money on going to a private ENDO because the NHS is failing me I wanted to ask what you all thought about the problem of iron deficiency and vitamin D deficiency and how this relates to underactive thyroid . I read a lot here about how these vitamins should be optimal for
Before I spend my hard earned money on going to a private ENDO because the NHS is failing me I wanted to ask what you all thought about the problem of iron deficiency and vitamin D deficiency and how this relates to underactive thyroid . I read a lot here about how these vitamins should be optimal for
doingitfordad
in
Thyroid UK
9 months ago
Pernicious anaemia, no stomach acid and pain
I have had pernicious anaemia for 18 years and injections every 10 weeks. I have suffered with reflux, heartburn and congestion for many years. Last year a 24hr manometry test revealed I had zero stomach acid. Doctors offer me no advice at all to help with my digestive issues. This includes when I have
I have had pernicious anaemia for 18 years and injections every 10 weeks. I have suffered with reflux, heartburn and congestion for many years. Last year a 24hr manometry test revealed I had zero stomach acid. Doctors offer me no advice at all to help with my digestive issues. This includes when I have
Suesue246
in
Pernicious Anaemia Society
9 months ago
Anti-nuclear factor levels
Hi all, this is my first time posting here. I'm wondering whether anyone can help me make sense of blood results. Anti-nuclear Factor DNA states positive. Specifically Anti-RO60 which is 26.0.I have some typical symptoms of Lupus including butterfly rash on face and develop itchy rash on exposed skin
Hi all, this is my first time posting here. I'm wondering whether anyone can help me make sense of blood results. Anti-nuclear Factor DNA states positive. Specifically Anti-RO60 which is 26.0.I have some typical symptoms of Lupus including butterfly rash on face and develop itchy rash on exposed skin
Funkyweirdo
in
LUPUS UK
9 months ago
Can PA antibodies be reversed??
I told her that it’s impossible to reverse what the immune system does otherwise medicine would have found cures for all
autoimmune
diseases
. I have worked so hard to get my B12 levels to where they are that there’s NO way anyone will stop me from my B12 injections!!!
I told her that it’s impossible to reverse what the immune system does otherwise medicine would have found cures for all
autoimmune
diseases
. I have worked so hard to get my B12 levels to where they are that there’s NO way anyone will stop me from my B12 injections!!!
GoneWithTheWind1972
in
Pernicious Anaemia Society
8 months ago
Anyone has this issue
I was given my B12 injection today and told I need to book a review with a GP as my B12 level is good and that I could now take oral B12 instead. My experience before on oral B12 is it didn’t work for me. Every bit of research I have read states Pernicious Anaemia doesn’t go away and you need B12 injections
I was given my B12 injection today and told I need to book a review with a GP as my B12 level is good and that I could now take oral B12 instead. My experience before on oral B12 is it didn’t work for me. Every bit of research I have read states Pernicious Anaemia doesn’t go away and you need B12 injections
1998cd
in
Pernicious Anaemia Society
10 months ago
Devon and Cornwall Lupus Group Information day - Saturday 14th October - Everyone welcome!
Come join the Devon and Cornwall Lupus Group for our next Information day, next Saturday. It will be a great opportunity to learn, network and support LUPUS UK and those affected by the disease. If you would like more information or to RSVP, please contact DCLG.secretary@gmail.com.
Come join the Devon and Cornwall Lupus Group for our next Information day, next Saturday. It will be a great opportunity to learn, network and support LUPUS UK and those affected by the disease. If you would like more information or to RSVP, please contact DCLG.secretary@gmail.com.
michaellasmith
Administrator
in
LUPUS UK
10 months ago
Nasal flu vaccine transmission
For anyone who has children, or close contact, and is on immunosuppressants, have you been around children who have had the live flu vaccine and been ok? They gave to my sister's son at school today (against her consent as she's on methotrexate for rheumatoid arthritis, so she wanted him to have the
For anyone who has children, or close contact, and is on immunosuppressants, have you been around children who have had the live flu vaccine and been ok? They gave to my sister's son at school today (against her consent as she's on methotrexate for rheumatoid arthritis, so she wanted him to have the
Grizzly-bear
in
Vasculitis UK
10 months ago
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