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Do anyone have a movement disorder?
I haven't got lupus but have aps and from what I've been told you can have a movement disorder with lupus. I have involuntary movements from what looks like I'm being electrocuted (like whole body spasms that bring my whole body in) tics, left side facial spasms (also tongue) and hand movements. It's
I haven't got lupus but have aps and from what I've been told you can have a movement disorder with lupus. I have involuntary movements from what looks like I'm being electrocuted (like whole body spasms that bring my whole body in) tics, left side facial spasms (also tongue) and hand movements. It's
Charts
in
LUPUS UK
6 months ago
Advice please 😌
Hi everybody, It’s nice to meet you all! So I’m sure you have loads of people posting on here about their frustrations with the NHS/GPs etc. therefore I won’t bore you with all of the details. My journey began in Dec 22 with what I thought was a bout of viral infection-induced joint pain in my hands
Hi everybody, It’s nice to meet you all! So I’m sure you have loads of people posting on here about their frustrations with the NHS/GPs etc. therefore I won’t bore you with all of the details. My journey began in Dec 22 with what I thought was a bout of viral infection-induced joint pain in my hands
Rocinante_89
in
LUPUS UK
6 months ago
updated Sjögren’s leaflet
https://sjogrensresearch-ireland.eu/wp-content/uploads/2022/09/Sjogrens-information-leaflet_2023-1.pdf Might be of interest!
https://sjogrensresearch-ireland.eu/wp-content/uploads/2022/09/Sjogrens-information-leaflet_2023-1.pdf Might be of interest!
weathervane
in
LUPUS UK
6 months ago
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when to test child for CD?
Those of you with CD diagnosed in adulthood but with children - is there any evidence to suggest it’s beneficial to limit gluten in the diet? A fellow coeliac recently told me age 4 is when to get tested but he couldn’t recall where he got that info from. My daughter has no obvious signs and we haven
Those of you with CD diagnosed in adulthood but with children - is there any evidence to suggest it’s beneficial to limit gluten in the diet? A fellow coeliac recently told me age 4 is when to get tested but he couldn’t recall where he got that info from. My daughter has no obvious signs and we haven
Anj1a
in
Gluten Free Guerrillas
6 months ago
A vaccine for PMR?
But if it works for these other
diseases
, it might work for PMR, too. https://www.thehealthsite.com/
diseases
-conditions/
autoimmune
-disorder-treatment-new-vaccine-may-completely-reverse-
diseases
-1009841/
But if it works for these other
diseases
, it might work for PMR, too. https://www.thehealthsite.com/
diseases
-conditions/
autoimmune
-disorder-treatment-new-vaccine-may-completely-reverse-
diseases
-1009841/
papadapadoo
in
PMRGCAuk
7 months ago
Hello - I'm a new member
Hello, I've just joined today and wanted to say hello. I was diagnosed with Rheumatoid Arthritis around 26 years ago, and it's been quite a journey. I've been on numerous treatments over the years, and had several surgeries. Fortunately, I've managed to keep working - although it's becoming more
Hello, I've just joined today and wanted to say hello. I was diagnosed with Rheumatoid Arthritis around 26 years ago, and it's been quite a journey. I've been on numerous treatments over the years, and had several surgeries. Fortunately, I've managed to keep working - although it's becoming more
WendyB123
in
NRAS
6 months ago
Just joined
Hi everyone, just want to say hello and am pleased that I am now part of this online community. I've had Rheumatoid Arthritis for over 30 years now and it's good to be able to hear from others in the same situation .
Hi everyone, just want to say hello and am pleased that I am now part of this online community. I've had Rheumatoid Arthritis for over 30 years now and it's good to be able to hear from others in the same situation .
AcerGirl
in
NRAS
6 months ago
Stating and underactive thyroid
Hi I suffer with underactive thyroid and fibromalarga reciently I got put on stating for high colesteral after 3 day I stopped them my muscles felt like I'd been hit buy a bus i
Hi I suffer with underactive thyroid and fibromalarga reciently I got put on stating for high colesteral after 3 day I stopped them my muscles felt like I'd been hit buy a bus i
shazzafloyd
in
Thyroid UK
6 months ago
Study to help patients manage their underactive thyroid
Just saw this and thought both that it is interesting it is being done. And, secondly, wondered if any would be willing to take part. I've scan read the information about the study and it appears that there is no geographical limit (please reply to let me know if I am wrong!) - just that you need to
Just saw this and thought both that it is interesting it is being done. And, secondly, wondered if any would be willing to take part. I've scan read the information about the study and it appears that there is no geographical limit (please reply to let me know if I am wrong!) - just that you need to
helvella
Thyroid UK
in
Thyroid UK
6 months ago
North Wales Lupus Group - Get together - 12th November 1.30pm!
Come join the North Wales Lupus Group on Sunday 12th November from 1:30 until 3:30pm, at Betty’s Café, Penmaenmawr, LL34 6AA. A great opportunity to meet others with lupus or an associated condition. Everyone welcome! Refreshments included! If you would like to join or for more information, please
Come join the North Wales Lupus Group on Sunday 12th November from 1:30 until 3:30pm, at Betty’s Café, Penmaenmawr, LL34 6AA. A great opportunity to meet others with lupus or an associated condition. Everyone welcome! Refreshments included! If you would like to join or for more information, please
michaellasmith
Administrator
in
LUPUS UK
6 months ago
Tingly Legs
Been on 25mg levothyroxine for about 18 months due to Tsh being 3.0 and GP wanted it under 2.0 as trying to conceive. Never noticed any side affects. For about 4 weeks now I've had a tingling feeling in legs and feet and one hand which is carpal tunnel like. Bloods fine, b12 satisfactory and tsh is 1.9
Been on 25mg levothyroxine for about 18 months due to Tsh being 3.0 and GP wanted it under 2.0 as trying to conceive. Never noticed any side affects. For about 4 weeks now I've had a tingling feeling in legs and feet and one hand which is carpal tunnel like. Bloods fine, b12 satisfactory and tsh is 1.9
Bristolgal8
in
Thyroid UK
6 months ago
Thyroid results
Hi I've struggled years with an underactive thyroid I have just received latest results wondered if anyone can help
Hi I've struggled years with an underactive thyroid I have just received latest results wondered if anyone can help
Rockingdog54
in
Thyroid UK
6 months ago
New to all this.
Im a 47yr old male and have recently been having blood tests after displaying all the standard underactive thyroid symptoms including huge fatigue. After being put on 25mg levothyroxine (to get me started on medication), the most recent tests showed a TSH of 3.6 (coming down from 6.2 on previous test
Im a 47yr old male and have recently been having blood tests after displaying all the standard underactive thyroid symptoms including huge fatigue. After being put on 25mg levothyroxine (to get me started on medication), the most recent tests showed a TSH of 3.6 (coming down from 6.2 on previous test
BiffAHiram
in
Thyroid UK
6 months ago
Dysautonomia in Sjögren's - Genital Sore/dry symptoms
Because of the shame or embarrassment sometimes involved in talking about vulvar or vaginal symptoms, I have not really gone into depth with my Rheumatologist. I am just wondering whether anyone has any tips of how to soothe:- Burning of the vagina or vulvaI Itchy vulva or vagina I am also going through
Because of the shame or embarrassment sometimes involved in talking about vulvar or vaginal symptoms, I have not really gone into depth with my Rheumatologist. I am just wondering whether anyone has any tips of how to soothe:- Burning of the vagina or vulvaI Itchy vulva or vagina I am also going through
Energy14
in
LUPUS UK
6 months ago
B12 Deficiency or Underactive Thyroid at Play?
Recently, my FBC came back with:
Mean cell haemoglobin level 32.7 pg [27.0 - 32.0]; Above high reference limit
Only just above the range. Am I right in thinking this confirms anemia? I have been supplementing with B complex, so my blood serum tests show they are quite healthy (upper quarter
Recently, my FBC came back with:
Mean cell haemoglobin level 32.7 pg [27.0 - 32.0]; Above high reference limit
Only just above the range. Am I right in thinking this confirms anemia? I have been supplementing with B complex, so my blood serum tests show they are quite healthy (upper quarter
HealthStarDust
in
Thyroid UK
6 months ago
Sjogren's Syndrome and Coeliac disease.
I've had Sjogren's for over 20 years now and am having issues with bloating, IBS, and food intolerances and constipation. Was wondering if anyone with Sjogren's has also been diagnosed with coeliac disease and how they got diagnosed as I would like to get tested.
I've had Sjogren's for over 20 years now and am having issues with bloating, IBS, and food intolerances and constipation. Was wondering if anyone with Sjogren's has also been diagnosed with coeliac disease and how they got diagnosed as I would like to get tested.
maxie4969
in
The Australian Sjögren's Syndrome Association
6 months ago
what to do??
I am really struggling, I am wondering if I have hashimotos. Diagnosed with an underactive thyroid in march ( the day my dad died) just 6 months after losing my mother in law. Had gone to the drs thinking my HRT needed tweaking for my perimenopause symptoms. (Hair loss, brittle nails, weight gain, sweating
I am really struggling, I am wondering if I have hashimotos. Diagnosed with an underactive thyroid in march ( the day my dad died) just 6 months after losing my mother in law. Had gone to the drs thinking my HRT needed tweaking for my perimenopause symptoms. (Hair loss, brittle nails, weight gain, sweating
Vorney
in
Thyroid UK
6 months ago
Update on study of diagnostic journeys in lupus/SLE, Sjögren's and UCTD.
Hi
Thanks to interviewees and organisations
I'd like thank all of those who I interviewed for this study in the last few months and to thank Lupus UK, the British Sjögren's Association, and APS Support UK for their help in publicising the study. The interviews provided really valuable insights
Hi
Thanks to interviewees and organisations
I'd like thank all of those who I interviewed for this study in the last few months and to thank Lupus UK, the British Sjögren's Association, and APS Support UK for their help in publicising the study. The interviews provided really valuable insights
RupertW-SUMS
in
LUPUS UK
6 months ago
anxiety/holding down jobs
Hi brothers and sisters., i got diagnosed as having pernicious 2 and half years ago - ive always had anxiety - more so in the workplace, ive only worked 4 months in the last 3 years due to anxiety- but feel maybe the anxiety worse after the pernicious diagnosis? definetelt feels like that for me.
Hi brothers and sisters., i got diagnosed as having pernicious 2 and half years ago - ive always had anxiety - more so in the workplace, ive only worked 4 months in the last 3 years due to anxiety- but feel maybe the anxiety worse after the pernicious diagnosis? definetelt feels like that for me.
dolphin66stag
in
Pernicious Anaemia Society
6 months ago
Thrombocytopenia
Hi all, I have just been diagnosed with autoimmune thrombocytopenia, which is very low platelet count and can cause bruising and excessive bleeding. Diagnosed with PBC in 2018. Just wondered if anyone else has this as I know that we can be prone to more than one autoimmune condition.
Hi all, I have just been diagnosed with autoimmune thrombocytopenia, which is very low platelet count and can cause bruising and excessive bleeding. Diagnosed with PBC in 2018. Just wondered if anyone else has this as I know that we can be prone to more than one autoimmune condition.
nunbrook
in
PBC Foundation
6 months ago
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