Search
Search
About
Log in
Join
Experiences with
Autoimmune diseases
Posts
Communities
44,141 public posts
Filter results
Any readers?
Would really appreciate recommendation for books linking autoimmune disease and trauma. Somebody I care about wants to read about it. Thank you. 😊
Would really appreciate recommendation for books linking autoimmune disease and trauma. Somebody I care about wants to read about it. Thank you. 😊
Pawsedagain
in
Thyroid UK
6 months ago
Obesity Associated With Faster MS Disease Progression
[i]
Obesity in multiple sclerosis (MS) was tied to faster worsening of disability and an increased risk of physical, psychological, and cognitive decline, a prospective cohort study showed.
[/i] [i]
[/i]
https://www.medpagetoday.com/meetingcoverage/actrims/108992?xid=nl_mpt_DHE_2024-03
[i]
Obesity in multiple sclerosis (MS) was tied to faster worsening of disability and an increased risk of physical, psychological, and cognitive decline, a prospective cohort study showed.
[/i] [i]
[/i]
https://www.medpagetoday.com/meetingcoverage/actrims/108992?xid=nl_mpt_DHE_2024-03
BettysMom
in
My MSAA Community
6 months ago
Rhupus
I have rhupus which is lupus and severe rheumatoid. arthritis having both and it being aggressive there r only 1% to 2% in the world that ever have both I guess I was just the lucky one lol unfortunately this is the most painful disease in the world you get never get over less your bones hurt so bad
I have rhupus which is lupus and severe rheumatoid. arthritis having both and it being aggressive there r only 1% to 2% in the world that ever have both I guess I was just the lucky one lol unfortunately this is the most painful disease in the world you get never get over less your bones hurt so bad
Buglove22
in
LUpus Patients Understanding and Support
6 months ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Lupus diagnosis after taking hydroxychloriquine for 14 months
Hi guys, hope everyone is well. Since getting diagnosed with lupus last month one thing has been really bothering me... As bit of a back story I was diagnosed with RA a few years ago. Over the last 6-8 months I've been amassing a bunch of other symptoms which last month resulted in my RA diagnosed
Hi guys, hope everyone is well. Since getting diagnosed with lupus last month one thing has been really bothering me... As bit of a back story I was diagnosed with RA a few years ago. Over the last 6-8 months I've been amassing a bunch of other symptoms which last month resulted in my RA diagnosed
Diagnosis_Collector
in
LUPUS UK
6 months ago
Blood Test for MS Activity Gets FDA Breakthrough Designation
The US Food and Drug Administration (FDA) has granted breakthrough device designation to the Elecsys Neurofilament Light Chain (NfL) test for multiple sclerosis (MS). November, 2023
Made by Roche, the test is intended to be used as an aid in detection of disease activity in adults aged 18
The US Food and Drug Administration (FDA) has granted breakthrough device designation to the Elecsys Neurofilament Light Chain (NfL) test for multiple sclerosis (MS). November, 2023
Made by Roche, the test is intended to be used as an aid in detection of disease activity in adults aged 18
BettysMom
in
My MSAA Community
6 months ago
REMINDER! Harrogate Lupus Group - Coffee and Chat meeting - 2nd March 10.30am
REMINDER! Saturday 2nd March, the Harrogate Lupus Group will be meeting at 10.30am, at the Woodlands Methodist Church Hall, 71 Wetherby Road, Harrogate, HG2 7SG. We will be joined by Frances Pearson, who will be talking about her ideas on the Lupus Observatory. Everyone is welcome to join! If you
REMINDER! Saturday 2nd March, the Harrogate Lupus Group will be meeting at 10.30am, at the Woodlands Methodist Church Hall, 71 Wetherby Road, Harrogate, HG2 7SG. We will be joined by Frances Pearson, who will be talking about her ideas on the Lupus Observatory. Everyone is welcome to join! If you
michaellasmith
Administrator
in
LUPUS UK
6 months ago
Laryngitis and lupus
Hi, I am having my 2nd bout of laryngitis in 10 weeks, having never having had it before. I have just looked on Doctor Google and it says that my laryngitis can be caused by my lupus. Is this correct? Is this something I need to mention to my lupus specialist? I am due to start on methotrexate next
Hi, I am having my 2nd bout of laryngitis in 10 weeks, having never having had it before. I have just looked on Doctor Google and it says that my laryngitis can be caused by my lupus. Is this correct? Is this something I need to mention to my lupus specialist? I am due to start on methotrexate next
pattypatchwork
in
LUPUS UK
6 months ago
New diagnosis
Hi there, I got I'll from glandular fever in my late teens and have been given different diagnosis over the years and now I have been told I have rheumatoid arthritis. I'm hopefully going to start sulfasalazine and just wondered has this been successful for people? I've been so fatigued for so long,
Hi there, I got I'll from glandular fever in my late teens and have been given different diagnosis over the years and now I have been told I have rheumatoid arthritis. I'm hopefully going to start sulfasalazine and just wondered has this been successful for people? I've been so fatigued for so long,
DogsMakeLifeGood
in
NRAS
6 months ago
TSH 37 - taking Levothyroxine 200mg
hi I was hoping to get some help / advice I have suffered with underactive thyroid for around 4/5 years Started on 75mg Levothyroxine had regular repeat tests over the years and doctor has just increased my Levothyroxine dose each time as my TSH has not reduced my latest result was a TSH of 37
hi I was hoping to get some help / advice I have suffered with underactive thyroid for around 4/5 years Started on 75mg Levothyroxine had regular repeat tests over the years and doctor has just increased my Levothyroxine dose each time as my TSH has not reduced my latest result was a TSH of 37
Jadewhitcombe
in
Thyroid UK
6 months ago
Belimumab treatment
Hi I have lurked on this site for years but now after reoccurring pericarditis my treatment for lupus will change. I need advice and have questions I've been in Plaqunail and methotrexate for years and tapering off prendsisone at the moment. The pericarditis comes back when I taper off the steriod
Hi I have lurked on this site for years but now after reoccurring pericarditis my treatment for lupus will change. I need advice and have questions I've been in Plaqunail and methotrexate for years and tapering off prendsisone at the moment. The pericarditis comes back when I taper off the steriod
Spacecadet73
in
LUPUS UK
6 months ago
REMINDER - This Saturday 2nd March - St Georges Hospital from 9.30am - Medical lecture and Q+A with Dr Kaul!
Consultant Rheumatologist Dr Arvind Kaul, the Head of Rheumatology & Lupus Patient Care at St. George's Hospital will be hosting the next South London Lupus Group Medical Patient-Focused Lecture on Saturday 2nd March, from 9.30am. Our agenda for the morning as follows: 09.30 Arrival + refreshments
Consultant Rheumatologist Dr Arvind Kaul, the Head of Rheumatology & Lupus Patient Care at St. George's Hospital will be hosting the next South London Lupus Group Medical Patient-Focused Lecture on Saturday 2nd March, from 9.30am. Our agenda for the morning as follows: 09.30 Arrival + refreshments
michaellasmith
Administrator
in
LUPUS UK
6 months ago
Focus group with Kuma Health - 8th March 10.30am until 12pm!
We at Kuma Health are passionate about improving the lives of people with lupus. We're designing new tools and resources to make lupus care easier and more effective, and we need your voice! Join our focus group to share your experiences and help us: • Understand the challenges you face daily • Get
We at Kuma Health are passionate about improving the lives of people with lupus. We're designing new tools and resources to make lupus care easier and more effective, and we need your voice! Join our focus group to share your experiences and help us: • Understand the challenges you face daily • Get
michaellasmith
Administrator
in
LUPUS UK
6 months ago
Have the new guide-lines on B12 deficiency/ Pernicious Anaemia been published yet?
They have been so delayed. .
They have been so delayed. .
wedgewood
in
Pernicious Anaemia Society
6 months ago
Half moons on fingers
Hey guys, I have an underactive thyroid and know the importance of getting vitamin levela checked Is it true that lack of or small half moons can be a sign of deficiencies? Just took a photo or my fingers, what do people think? If zoomed in, can just about see half moon on some
Hey guys, I have an underactive thyroid and know the importance of getting vitamin levela checked Is it true that lack of or small half moons can be a sign of deficiencies? Just took a photo or my fingers, what do people think? If zoomed in, can just about see half moon on some
yewotc23
in
Thyroid UK
6 months ago
Advice needed on thyroxine management
I am hoping someone can advise me about my thyroxine dose. Here's a little background: In September 2023, I was underweight and having trouble gaining weight and suffering from anxiety. I had been on 75mcg of levothyroxine daily for an underactive thyroid. I had recently developed pins and needles
I am hoping someone can advise me about my thyroxine dose. Here's a little background: In September 2023, I was underweight and having trouble gaining weight and suffering from anxiety. I had been on 75mcg of levothyroxine daily for an underactive thyroid. I had recently developed pins and needles
SarrahMay
in
Thyroid UK
6 months ago
Prednisone for treatment of AIG
I've just been started on Prednisone or Prednisolone, immunosuppressant steroids, for treatment of Autoimmune Gastritis/autoimmune PA. This has recently, within the last few years been shown to possibly heal AIG, although not entirely cure. It is also used to prevention immune system rejection of organ
I've just been started on Prednisone or Prednisolone, immunosuppressant steroids, for treatment of Autoimmune Gastritis/autoimmune PA. This has recently, within the last few years been shown to possibly heal AIG, although not entirely cure. It is also used to prevention immune system rejection of organ
Rexz
in
Pernicious Anaemia Society
6 months ago
Lupus flare
Hi has anyone experience a lupus flare which was tiggered by a suspected infection? Ended up in hospital but they couldnt detect where the infection / virus was dispite full blood tests, urine tests as well as blood and urine culuture tests. Pretty scary.Thanks
Hi has anyone experience a lupus flare which was tiggered by a suspected infection? Ended up in hospital but they couldnt detect where the infection / virus was dispite full blood tests, urine tests as well as blood and urine culuture tests. Pretty scary.Thanks
Flows
in
LUPUS UK
6 months ago
sulfasalazine side effects
Hi. I am on sulfasalazine for mixed connective tissue disease (similar to rheumatoid arthritis and lupus), which I started taking again after many years of my disease being in remission. I was initially on sulfasalazine 10 years ago and it is a horrid medication. Was, and am again, terribly dizzy
Hi. I am on sulfasalazine for mixed connective tissue disease (similar to rheumatoid arthritis and lupus), which I started taking again after many years of my disease being in remission. I was initially on sulfasalazine 10 years ago and it is a horrid medication. Was, and am again, terribly dizzy
girldoc
in
NRAS
6 months ago
updated journey
I’m getting so frustrated with this underactive thyroid. My only symptom before I was diagnosed again was unexplained weight gain. I had put on half a stone but hadn’t changed any habits. After starting on levothyroxine I put on another 2 stone. This may have been made worse due to all my joints seizing
I’m getting so frustrated with this underactive thyroid. My only symptom before I was diagnosed again was unexplained weight gain. I had put on half a stone but hadn’t changed any habits. After starting on levothyroxine I put on another 2 stone. This may have been made worse due to all my joints seizing
ScriptMaz
in
Thyroid UK
6 months ago
worried
hi I was diagnosed with nafld in November and told to lose weight I was about 2 stone overweight I have now hit healthy weight but my liver is showing still problems in the bloods so I have now been referred for autoimmune screening and mri scan also my urine is very dark have anyone gone through this
hi I was diagnosed with nafld in November and told to lose weight I was about 2 stone overweight I have now hit healthy weight but my liver is showing still problems in the bloods so I have now been referred for autoimmune screening and mri scan also my urine is very dark have anyone gone through this
Candycru
in
British Liver Trust
6 months ago
1
...
19
20
21
...
100
Next page
10
20
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
Thyroid UK
5883 results
British Liver Trust
4549 results
Advanced Prostate Cancer
4485 results
View top 10 communities
Sort by
Most Relevant
Newest