Coeliac-related thyroid problems

[Dunbar25]

My 15 year old granddaughter has thyroid problems(hypo) associated with her having coeliac disease. Her condition is monitored (TSH is currently 5) and it seems to be a case of "wait and see" and the thyroid may correct itself. I understand this but the symptoms of feeling unwell, low energy etc from both illnesses mean she is losing time off school in her GCSE year and also she is looking to go into a sports-related career. Does anyone have experience of anything that could help her symptoms

I have a thyroid problem myself and on medication so know something about it but her case is very different.

[BabsyWabsy]

Oh, poor girl. That must be miserable. I have no answers, but would a second opinion be a good idea?

[CATRYNA49]

I developed Hashimotos and Celiac at age 14/15. I went undiagnosed for 50 years and so other autoimmune disorders developed because of that. You need to immediately get your granddaughter off of all grains, soy, and sugar. If you do this and she adds supplements to her diet that support her thyroid and adrenals, chances are she will not need pharmaceuticals. I never have and I was diagnosed 12 years ago at age 63. Have her cholesterol levels checked too. That will determine as to whether she merely has Hypothyroidism or the autoimmune disease, Hashimotos. Also, she should never have anymore vaccines, as they are problematic for us and more than likely are what led to the developing of autoimmune problems.

[Dottie11 in reply to CATRYNA49]

I also have low Thyroid and undiagnosed Celiac for decades. I have Panhypogammaglobuanemia which was throwing false negatives on the testing of my bloods. So no further investigations were ever done. My thoughts on thyroid could be due to malnutritional elements re poor absorption .

[Researchfan]

Hi and sympathies for your granddaughter. Low energy and feeling unwell is no fun and especially at such a young age. How long ago was she diagnosed coeliac? If it was recent it takes time to heal the gut and replenish nutrients after malabsorption. This could be a cause of the low energy. It may be knock on effects to The thyroid which needs vitamins and minerals to function optimally. Does she supplement iron, B vitamins especially the ones lacking with coeliac, B12, Folate (methyfolate liquid or spray better absorbed than tablets).

Unfortunately drs are good at wait and see when comes to hypothyroidism. It can certainly correct itself given the right conditions- healing the gut, good diet and low stress.

If it’s autoimmune thyroid this should be dx as soon as possible and thyroid medication will help. If the dr is unwilling to test for thyroid antibodies the NHS lab run by Royal Devon web at home finger prick tests you send back to them is a good option if you can afford it (it is monitor my health dot com. They are very good and because it’s nhs lab will advise what to do if results show anything and can take to GP for treatment. The thyroid peroxidase antibodies test is about £29. Or they do full health screen test including anaemia etc for about £70. I used them to monitor my thyroid after high TSH with GP that wasn’t bothered, it was gluten related.

It takes weeks to months but strict gluten free diet, supplementing liquid iron, B vitamins, vitamin D3, avoiding milk and cheese /dairy an hour or two with taking iron as can stop absorption of iron. Or do a dairy free gluten free diet for a couple weeks in case that cross reacts with gluten (casein can be seen by the body like gluten in 50% of coeliacs, maize corn too) and avoid processed gluten free products. Basic meat, fish, eggs if tolerate them, fruit and vegetables, real whole foods and plenty of them. Also avoid gluten free oats if having them at the moment as some coeliacs also recognise the toxic peptides in oats gluten. These can be ongoing inflammatory sources even on a gluten free diet. (I can provide the scientific references if needed.)

Doing another coeliac blood test can help to check the antibodies and whether there’s hidden gluten causing the symptoms too.

Supplementing specifically selenium (two Brazil nuts a day provides recommendation daily allowance), vitamin D, iodine helps the thyroid.

Hope this is a helpful reply.

Also has she had blood sugars checked to make sure that’s ok as type 1 diabetes is prevalent in young coeliacs too. It’s the same genes predisposing to. Fatigue and feeling unwell symptoms too.

X

[Researchfan in reply to Researchfan]

monitormyhealth.org.uk/our-...

NHS lab private tests for thyroid.