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Aplastic anaemia
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B12D bloods show positive TPOAb
Hi Guys A few weeks ago, I posted concern over hubby's bloods when GP said all was fine. To cut a long, and sadly not unfamiliar story to you short, I managed to get him to see a private consultant who identified at least 3 other long term health niggles associated with B12D. Hubby is now on SI treatment
Hi Guys A few weeks ago, I posted concern over hubby's bloods when GP said all was fine. To cut a long, and sadly not unfamiliar story to you short, I managed to get him to see a private consultant who identified at least 3 other long term health niggles associated with B12D. Hubby is now on SI treatment
Wwwdot
in
Pernicious Anaemia Society
1 year ago
Vitamin Levels Tested- advice please.
Hi there,I recently had my vitamin levels taken, as despite taking levothyroxine and T3 I am still feeling extremely tired, have hair loss, weight gain and lack of concentration. I wondered if it might be my vitamins. The results were: B12 & Folate Serum vitamin B12: 932 ng/L (180- 770) Serum folate
Hi there,I recently had my vitamin levels taken, as despite taking levothyroxine and T3 I am still feeling extremely tired, have hair loss, weight gain and lack of concentration. I wondered if it might be my vitamins. The results were: B12 & Folate Serum vitamin B12: 932 ng/L (180- 770) Serum folate
Misspinkdaisy
in
Thyroid UK
1 year ago
If your doctor worries that too much B12 is toxic, show them this study on ALS & B12
ALS is the same as Lou Gehrig's disease, and is also what Stephen Hawking had. It is a neurodegenerative disease, thought to mostly affect the motor neurons. Ryosuke Oki, et al, "Efficacy and Safety of Ultrahigh-Dose Methylcobalamin in Early-Stage Amyotrophic Lateral Sclerosis" JAMA Neurol. 2022;
ALS is the same as Lou Gehrig's disease, and is also what Stephen Hawking had. It is a neurodegenerative disease, thought to mostly affect the motor neurons. Ryosuke Oki, et al, "Efficacy and Safety of Ultrahigh-Dose Methylcobalamin in Early-Stage Amyotrophic Lateral Sclerosis" JAMA Neurol. 2022;
jade_s
in
Pernicious Anaemia Society
1 year ago
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blood test results
could someone interpret my blood results please? I have a phone conversation with my Endo next week and would like to be prepared. Many thanks. Haemaglobin 112 Red cell count 3.69 Haematocrit 0.331 Serum ferritin 19 Serum vitamin B12 882 Serum TSH 0.11 Serum Free T4 17 Serum Free T3 3.8 Thank
could someone interpret my blood results please? I have a phone conversation with my Endo next week and would like to be prepared. Many thanks. Haemaglobin 112 Red cell count 3.69 Haematocrit 0.331 Serum ferritin 19 Serum vitamin B12 882 Serum TSH 0.11 Serum Free T4 17 Serum Free T3 3.8 Thank
Silverangel
in
Thyroid UK
1 year ago
Not anemia? Lab results question.
It's been a couple months since my last iron infusion. Last week, I had labs drawn, and results included: [H] WBC (18.1), RDW (16.4), Platelets (614), Creatinine (1.04); [L] MCH (24.1), MCHC (30.5), Iron (22); [LL] Iron Saturation (7). Hemoglobin was just within normal range at 11.2, and
It's been a couple months since my last iron infusion. Last week, I had labs drawn, and results included: [H] WBC (18.1), RDW (16.4), Platelets (614), Creatinine (1.04); [L] MCH (24.1), MCHC (30.5), Iron (22); [LL] Iron Saturation (7). Hemoglobin was just within normal range at 11.2, and
hollywollydoodle
in
CLL Support
1 year ago
How do I start on self injecting?
I have been on B12 injections for years, but since covid they don't last. I get mine every 8 weeks, but symptoms return after only one week now and get progressively worse, tremors, ataxia, severe pain in spine.... but GP refuses injections more frequently. How do I go about self injecting, where do
I have been on B12 injections for years, but since covid they don't last. I get mine every 8 weeks, but symptoms return after only one week now and get progressively worse, tremors, ataxia, severe pain in spine.... but GP refuses injections more frequently. How do I go about self injecting, where do
totallyFrustrated
in
Pernicious Anaemia Society
9 months ago
blood results and one mthfr variant - help please š
Hi I have been trying to get my head around all of this and I find it very confusing. Can anyone give their honest opinion on my vitamin levels. I am about to start b12 injections and believe because I carry one mthfr variant I need to take methyl folate. I really struggle with vitamin d also.
Hi I have been trying to get my head around all of this and I find it very confusing. Can anyone give their honest opinion on my vitamin levels. I am about to start b12 injections and believe because I carry one mthfr variant I need to take methyl folate. I really struggle with vitamin d also.
Kath2022
in
Pernicious Anaemia Society
1 year ago
B12 deficiency, macrocytosis, and potassium drop
I have macrocytic anemia. My MCV for the past 7 years has hovered around 100. I had one good result of 93 and that was 3 months after getting loading shots of Cyanocobalamin when I was first diagnosed with B12 deficiency over a year ago. My doctor stopped my shots after that and I took only sublingual
I have macrocytic anemia. My MCV for the past 7 years has hovered around 100. I had one good result of 93 and that was 3 months after getting loading shots of Cyanocobalamin when I was first diagnosed with B12 deficiency over a year ago. My doctor stopped my shots after that and I took only sublingual
OriginalSpinach
in
Pernicious Anaemia Society
1 year ago
Teenager with B12 Deficiency - Help
Hi In 2021 my 15 yr old daughter had symptoms of B12 deficiency (sleeping too much, poor appetite, exhausted in sport, depressed, moody) so I had her blood tested privately via online company and the Active B12 results were low normal (against adult ref ranges) so we had the recommended MMA which was
Hi In 2021 my 15 yr old daughter had symptoms of B12 deficiency (sleeping too much, poor appetite, exhausted in sport, depressed, moody) so I had her blood tested privately via online company and the Active B12 results were low normal (against adult ref ranges) so we had the recommended MMA which was
srf831
in
Pernicious Anaemia Society
1 year ago
frustrating!!
so I posted my sons blood results being concerned over his very low active b12 and having to wait weeks for an appointment with Gp. Finally seen Gp who question the private bloods and ordered her own. She tested for pernicious anaemia apparently. Other blood results have returned and are Ferritin
so I posted my sons blood results being concerned over his very low active b12 and having to wait weeks for an appointment with Gp. Finally seen Gp who question the private bloods and ordered her own. She tested for pernicious anaemia apparently. Other blood results have returned and are Ferritin
Blister4
in
Pernicious Anaemia Society
10 months ago
low ferratin
Afternoon all looking for some more advice. As previously said been feeling feeling terrible for about a year. Doctors thought that it was my low folate as my level was low. Got that level up to late teens and my b12 is high nearly 1500. my ferratin is 29 which is on the low side but my iron study
Afternoon all looking for some more advice. As previously said been feeling feeling terrible for about a year. Doctors thought that it was my low folate as my level was low. Got that level up to late teens and my b12 is high nearly 1500. my ferratin is 29 which is on the low side but my iron study
Lee_maynard
in
Pernicious Anaemia Society
7 months ago
Iron deficiency anaemia
I have PA atrophic gastritis,Addisons disease and an under active thyroid ..been so tired have put on a few pounds and on occasions my sinus tachycardia seems worse I take a low dose beta blocker . As my thyroid levels have been checked Iām wondering if I have iron deficiency anaemia ā¦seeing GP next
I have PA atrophic gastritis,Addisons disease and an under active thyroid ..been so tired have put on a few pounds and on occasions my sinus tachycardia seems worse I take a low dose beta blocker . As my thyroid levels have been checked Iām wondering if I have iron deficiency anaemia ā¦seeing GP next
davina70
in
Pernicious Anaemia Society
1 year ago
Adrenal problems
I'd like someone to advise on some results I received last week. I have just had an adrenal "crash" so to speak and my previous post was about my thyroid meds. I'd like to know where in range ferritin and iron should be.Ferritin 113ug/L (11-307) Haemoglobin estimation 128g/L (115-165) Hematocrit 38.8%
I'd like someone to advise on some results I received last week. I have just had an adrenal "crash" so to speak and my previous post was about my thyroid meds. I'd like to know where in range ferritin and iron should be.Ferritin 113ug/L (11-307) Haemoglobin estimation 128g/L (115-165) Hematocrit 38.8%
carolinegodlonton
in
Thyroid UK
1 year ago
Raising funds - Brighton Marathon places
still looking for some volunteers - please like and share the below information We have secured three places for Brighton Marathon Sunday 7th April 2024 in the name of The Pernicious Anaemia Society. We are looking for runners who want to help us raise awareness and raise money for the Pernicious Anaemia
still looking for some volunteers - please like and share the below information We have secured three places for Brighton Marathon Sunday 7th April 2024 in the name of The Pernicious Anaemia Society. We are looking for runners who want to help us raise awareness and raise money for the Pernicious Anaemia
PAScomms
in
Pernicious Anaemia Society
10 months ago
Reducing Besremi dosing
Hi Community, I shared prior that I upped my Besremi dose from 150 to 180 the past two months. All was going well with several benefits which hadn't happened the past 18 months on Besremi: My JAK2 Allele dropped more than 20%, I have not needed a PB for months which means I now have normal iron
Hi Community, I shared prior that I upped my Besremi dose from 150 to 180 the past two months. All was going well with several benefits which hadn't happened the past 18 months on Besremi: My JAK2 Allele dropped more than 20%, I have not needed a PB for months which means I now have normal iron
Elizka
in
MPN Voice
1 year ago
Pernicious Anaemia
Hi all, following conversation on here I asked my doctor for a blood test to check for Pernicious Anaemia. These are the results. They all look good. Could someone please point out which ones the pernicious anaemia tests are? TIA š. Results in comments as I canāt figure out how to attach multiple
Hi all, following conversation on here I asked my doctor for a blood test to check for Pernicious Anaemia. These are the results. They all look good. Could someone please point out which ones the pernicious anaemia tests are? TIA š. Results in comments as I canāt figure out how to attach multiple
EllsBells591
in
Thyroid UK
10 months ago
PV & Gene Editing for Sickle cell anemia
Has anyone been following the latest news on treatment for sickle cell anemia? Since many of us are treated with hydroxyurea which is approved for sickle cell anemia, I was wondering if this may be in our future? "The F.D.A. approved the first gene editing therapy ever, for sickle cell disease, a debilitating
Has anyone been following the latest news on treatment for sickle cell anemia? Since many of us are treated with hydroxyurea which is approved for sickle cell anemia, I was wondering if this may be in our future? "The F.D.A. approved the first gene editing therapy ever, for sickle cell disease, a debilitating
ERei
in
MPN Voice
7 months ago
Vitamin B12 status in health and disease: a critical review. Diagnosis of deficiency and insufficiency ā clinical and laboratory pitfalls
This is an extraordinary thorough review of B12 deficiency and B12 insufficiency, with an actual description of the difference, including severity of symptoms. One interesting factoid is quoted here: "In 1900, Russell noted characteristics of B12 deficiency that are overlooked with surprising frequency
This is an extraordinary thorough review of B12 deficiency and B12 insufficiency, with an actual description of the difference, including severity of symptoms. One interesting factoid is quoted here: "In 1900, Russell noted characteristics of B12 deficiency that are overlooked with surprising frequency
WiscGuy
in
Pernicious Anaemia Society
1 year ago
Advice on iron status
Hi lovely people, I was hoping to get some advice on my iron status. A bit of background, I have just recently increased levo to 88mcg a couple of weeks ago, and was on 75mcg before that. So, I am aware that my thyroid hormone is still too low. It's a slow process getting docs to increase! My question
Hi lovely people, I was hoping to get some advice on my iron status. A bit of background, I have just recently increased levo to 88mcg a couple of weeks ago, and was on 75mcg before that. So, I am aware that my thyroid hormone is still too low. It's a slow process getting docs to increase! My question
catpotter44
in
Thyroid UK
7 months ago
Iron levels
Had an awesome break through with a locum GP who checked my iron levels, found them to be low and gave me Ferrous Sulphate. Itās worked wonders. Yay! However, three months in and my normal GP has asked me to go for another blood test to check my iron levels now and wonāt give me further ferrous sulphate
Had an awesome break through with a locum GP who checked my iron levels, found them to be low and gave me Ferrous Sulphate. Itās worked wonders. Yay! However, three months in and my normal GP has asked me to go for another blood test to check my iron levels now and wonāt give me further ferrous sulphate
DrPaulHT
in
Restless Legs Syndrome
7 months ago
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