Pernicious Anaemia: Hi all, following... - Thyroid UK

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Pernicious Anaemia

EllsBells591 profile image
16 Replies

Hi all, following conversation on here I asked my doctor for a blood test to check for Pernicious Anaemia. These are the results. They all look good. Could someone please point out which ones the pernicious anaemia tests are? TIA 😊.

Results in comments as I can’t figure out how to attach multiple here.

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EllsBells591
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Fruitandnutcase profile image
Fruitandnutcase

You have some personal details and doctors names on here that you should blank out.

EllsBells591 profile image
EllsBells591 in reply to Fruitandnutcase

Updated, thank you

EllsBells591 profile image
EllsBells591

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EllsBells591

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EllsBells591

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EllsBells591

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EllsBells591

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EllsBells591

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Jaydee1507 profile image
Jaydee1507Administrator

Other than the first test which is a full blood count I can't see anything much that relates to PA. I would have expected to see an MMA test and parietel cell antobody test at the minimum.

pernicious-anaemia-society....

Could you question your GP about this?

cks.nice.org.uk/topics/anae...

EllsBells591 profile image
EllsBells591 in reply to Jaydee1507

I have a telephone appointment later this week, just wanted to be sure I wasn’t missing anything!

SlowDragon profile image
SlowDragonAdministrator

B12 is too low….but well within NHS range

So likely to need to self supplement B12 and vitamin B complex

Are you vegetarian or vegan

Low B12 symptoms

b12deficiency.info/signs-an...

methyl-life.com/blogs/defic...

With serum B12 result below 500, (Or active B12 below 70) recommended to be taking a separate B12 supplement and a week later add a separate vitamin B Complex 

Then once your serum B12 is over 500 (or Active B12 level has reached 70), you may be able to reduce then stop the B12 and just carry on with the B Complex.

If Vegetarian or vegan likely to need ongoing separate B12 few times a week

B12 drops

natureprovides.com/products...

Or

B12 sublingual lozenges

uk.iherb.com/pr/jarrow-form...

cytoplan.co.uk/shop-by-prod...

B12 range in U.K. is too wide

Interesting that in this research B12 below 400 is considered inadequate

healthunlocked.com/thyroidu...

Low folate

supplementing a good quality daily vitamin B complex, one with folate in (not folic acid)

This can help keep all B vitamins in balance and will help improve B12 levels too

Difference between folate and folic acid

healthline.com/nutrition/fo...

Many Hashimoto’s patients have MTHFR gene variation and can have trouble processing folic acid.

thyroidpharmacist.com/artic...

B vitamins best taken after breakfast

Thorne Basic B recommended vitamin B complex that contains folate, but they are large capsules. (You can tip powder out if can’t swallow capsule)

Thorne currently difficult to find at reasonable price, should be around £20-£25. iherb.com often have in stock. Or try ebay

Other options

healthunlocked.com/thyroidu....

Igennus B complex popular option too. Nice small tablets. Most people only find they need one per day. But a few people find it’s not high enough dose

IMPORTANT......If you are taking vitamin B complex, or any supplements containing biotin, remember to stop these 7 days before ALL BLOOD TESTS , as biotin can falsely affect test results

endo.confex.com/endo/2016en...

endocrinenews.endocrine.org...

In week before blood test, when you stop vitamin B complex, you might want to consider taking a separate folate supplement (eg Jarrow methyl folate 400mcg) and continue separate B12

Post discussing how biotin can affect test results

healthunlocked.com/thyroidu...

no vitamin D result

EllsBells591 profile image
EllsBells591 in reply to SlowDragon

Vegan. I take Thorne complex but stopped 7 days before test. Also started taking separate b12 every other day after my last private test in Aug showed active b12 at 44.2

SlowDragon profile image
SlowDragonAdministrator in reply to EllsBells591

So you will very likely need B12 daily

EllsBells591 profile image
EllsBells591 in reply to SlowDragon

In addition to Thorne complex?

SlowDragon profile image
SlowDragonAdministrator in reply to EllsBells591

Can’t see ferritin result

EllsBells591 profile image
EllsBells591 in reply to SlowDragon

115 ug/L

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