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Does anyone have any feedback on Wegener's Gramgranulomatosis?
I have Wegener's and it has primarily affected my eyes and lungs. I've been on rituximab and 25mg methotrexate for two years but I have a host of issues from taking the rituximab.
I have Wegener's and it has primarily affected my eyes and lungs. I've been on rituximab and 25mg methotrexate for two years but I have a host of issues from taking the rituximab.
Youelbeverly
in
NRAS
6 months ago
Diagnosis
Hello, my first post 😁 I have had Tinnitus for many years. I live with it and I cope well most of the time. No one has ever looked at my ears apart from my GP. He looked in my ears and said 'yes you just have a bit of wax' you probably have Tinnitus' I complain of pain I frequently get in my right
Hello, my first post 😁 I have had Tinnitus for many years. I live with it and I cope well most of the time. No one has ever looked at my ears apart from my GP. He looked in my ears and said 'yes you just have a bit of wax' you probably have Tinnitus' I complain of pain I frequently get in my right
Idontknow71
in
Tinnitus UK
6 months ago
Foot op
Hi I had foot surgery 6 weeks ago I had big toe fused and metatarsal heads removed, I now have a foot about 1 and half sizes smaller than the other foot.I can't find any information about this surgery, so wondering if anyone on here has had it done please
Hi I had foot surgery 6 weeks ago I had big toe fused and metatarsal heads removed, I now have a foot about 1 and half sizes smaller than the other foot.I can't find any information about this surgery, so wondering if anyone on here has had it done please
mazzy21
in
NRAS
6 months ago
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Gerd and tinnitus
Can Gerd cause issues to Eustachian tube dysfunction or problems, and in turn tinnitus?
Can Gerd cause issues to Eustachian tube dysfunction or problems, and in turn tinnitus?
Healthymetoday
in
Tinnitus UK
6 months ago
sibo advice
I have been unwell for 3 years with multi symptoms including stomach , history of diarrhoea, constipation, food in the stool ,joint pains, exhaustion. Can SIBO cause symptoms apart from the stomach.? I’m having the breath test in a couple of weeks Thank you
I have been unwell for 3 years with multi symptoms including stomach , history of diarrhoea, constipation, food in the stool ,joint pains, exhaustion. Can SIBO cause symptoms apart from the stomach.? I’m having the breath test in a couple of weeks Thank you
Merav
in
Pernicious Anaemia Society
10 months ago
Respiratory Exposure to Highly Fluorinated Chemicals via Application of Ski Wax and Related Health Effects
Initially, I wondered why this paper had ended up in my alert. But a very brief scan read revealed this sentence: [i]PFAS exposure can adversely impact [/i][i]
cardiometabolic
[/i][i], [/i][i]
thyroid
[/i][i], liver, kidney, reproductive, and [/i][i]
immune
[/i][i] [/i][i]
health[
Initially, I wondered why this paper had ended up in my alert. But a very brief scan read revealed this sentence: [i]PFAS exposure can adversely impact [/i][i]
cardiometabolic
[/i][i], [/i][i]
thyroid
[/i][i], liver, kidney, reproductive, and [/i][i]
immune
[/i][i] [/i][i]
health[
helvella
Thyroid UK
in
Thyroid UK
6 months ago
DVLA eye test result
Two days ago I posted about waiting for my result of my eye test and was anxious it would drag on. On the 13th December I went to see my consultant, I made it obvious I was not happy with the lack of support during and after covid and that I knew my eyesight had deteriorated because of it. Two weeks
Two days ago I posted about waiting for my result of my eye test and was anxious it would drag on. On the 13th December I went to see my consultant, I made it obvious I was not happy with the lack of support during and after covid and that I knew my eyesight had deteriorated because of it. Two weeks
Ibstockblue
in
Glaucoma UK
6 months ago
Colonoscopy - have you had one done?
Hello Could you please share if you've had IBS symptoms and have had a colonoscopy done? And the results please? I'm having stress related IBS symptoms, stool appearance changes daily, feel gas move in my intestines, stomach gurgling and would like to know if others have had colonoscopy rule out anything
Hello Could you please share if you've had IBS symptoms and have had a colonoscopy done? And the results please? I'm having stress related IBS symptoms, stool appearance changes daily, feel gas move in my intestines, stomach gurgling and would like to know if others have had colonoscopy rule out anything
Catsandsunsets
in
IBS Network
10 months ago
Hand grip training for lowering blood pressure?
Good morning all you helpful people. I’ve just heard a fascinating thing on the Zoe podcast, about hand grip strength and high blood pressure. Apparently, using a hand-held device to strengthen your hand grip over several weeks can effectively lower your blood pressure. I’ve had a look online, and it
Good morning all you helpful people. I’ve just heard a fascinating thing on the Zoe podcast, about hand grip strength and high blood pressure. Apparently, using a hand-held device to strengthen your hand grip over several weeks can effectively lower your blood pressure. I’ve had a look online, and it
Outsidethelines
in
Atrial Fibrillation Support
6 months ago
It's mortar and pestle time - Ginkgo update
Holland & Barrett have discontinued 30mg Ginkgo tablets, leaving 60mg and 120mg on the shelf. No more convenience for a 3 x 30mg dose. I tried a 120 but the increase in tinnitus which happens for me on dose day was uncomfortable so I won't be doing that again. It looks like more is not necessarily better
Holland & Barrett have discontinued 30mg Ginkgo tablets, leaving 60mg and 120mg on the shelf. No more convenience for a 3 x 30mg dose. I tried a 120 but the increase in tinnitus which happens for me on dose day was uncomfortable so I won't be doing that again. It looks like more is not necessarily better
Ray200
in
Tinnitus UK
27 days ago
Fear of getting ill (nosophobia)
Hello, does anyone else have the fear of getting ill? It's really crippling me at the moment. The other day I had a huge "floater" in my eye. I have been to the eye doctor and a retina specialist and everything is ok. But I'm still having extremely bad anxiety attacks. I'm finding it difficult to
Hello, does anyone else have the fear of getting ill? It's really crippling me at the moment. The other day I had a huge "floater" in my eye. I have been to the eye doctor and a retina specialist and everything is ok. But I'm still having extremely bad anxiety attacks. I'm finding it difficult to
Tobytime45
in
Anxiety Support
6 months ago
Recommendations for overcoming dizzy episodes?
I have Tinnitus and Pulsatile tinnitus, since summer have had intermittent muffled ears, bit of dizziness. Past 3 weeks have had 24/7 clogged muffled ears like I've got my entire head wrapped in cotton wool and then in a box. What as really hit me hard is the swoosh of dizziness that suddenly hits
I have Tinnitus and Pulsatile tinnitus, since summer have had intermittent muffled ears, bit of dizziness. Past 3 weeks have had 24/7 clogged muffled ears like I've got my entire head wrapped in cotton wool and then in a box. What as really hit me hard is the swoosh of dizziness that suddenly hits
hollyrain
in
Tinnitus UK
6 months ago
Improvement
Hello friends, I recently had myself a Stroke, the ambulance and emergency depth staff were exceptional at their jobs and I was only in the Edinburgh Royal Infirmary for 3 days. I'm home now with almost no signs that I had a stroke due to the Medical Staff doing such a great job. I immediately had my
Hello friends, I recently had myself a Stroke, the ambulance and emergency depth staff were exceptional at their jobs and I was only in the Edinburgh Royal Infirmary for 3 days. I'm home now with almost no signs that I had a stroke due to the Medical Staff doing such a great job. I immediately had my
ArchieCatPurr
in
MPN Voice
6 months ago
Orbital Floor Depomedrone Injection
Hi All Has anyone had any experience of the above for TED? Been offered this or intravenous Methyldprednisolone. Thyroid Eye specialist has given me a week to make my mind up as to which way I would like to go. There are 3 options, the 2 I’ve just stated or do nothing and risk permanent bulging eyes
Hi All Has anyone had any experience of the above for TED? Been offered this or intravenous Methyldprednisolone. Thyroid Eye specialist has given me a week to make my mind up as to which way I would like to go. There are 3 options, the 2 I’ve just stated or do nothing and risk permanent bulging eyes
BlueSkiesAbove
in
Thyroid UK
6 months ago
My blood sugar is 254mg/dl after 1 hour of lunch
I had a lunch at 1 pm. It included one bowl (100gm) of white rice, sambar, a small cup of potato fry, another cup of vegetables, and 200ml of buttermilk. I took metformin 500mg before lunch and went for a 2km walk inside my office. Took a random blood sugar at 2:30 pm and was shocked to see the reading
I had a lunch at 1 pm. It included one bowl (100gm) of white rice, sambar, a small cup of potato fry, another cup of vegetables, and 200ml of buttermilk. I took metformin 500mg before lunch and went for a 2km walk inside my office. Took a random blood sugar at 2:30 pm and was shocked to see the reading
secretsubject
in
Diabetes India
6 months ago
Tapering problem
Hi I am now down to 3.5mg Again.I got some chest painThat's settled down but I feel soo weak and tired.Im having problems with my toes going numb on me too.Im raising them up at night time .I don't know what the Dr can do.I think it's a nerve thing.I have told him many times about the numbness.I get
Hi I am now down to 3.5mg Again.I got some chest painThat's settled down but I feel soo weak and tired.Im having problems with my toes going numb on me too.Im raising them up at night time .I don't know what the Dr can do.I think it's a nerve thing.I have told him many times about the numbness.I get
Raewynne
in
PMRGCAuk
6 months ago
bungi61
I have eaten the same food 4 the last 3/4 weeks trying 2 keep this nasty IBS and Diverticular Disease at bay fed up now as I am trying all that I can 2 stop the nasty watery stuff ( poop ) away as when I have a nasty watery poop I take 1/2 imodiums just 2 make it stop I also take Buscopan every 2/3
I have eaten the same food 4 the last 3/4 weeks trying 2 keep this nasty IBS and Diverticular Disease at bay fed up now as I am trying all that I can 2 stop the nasty watery stuff ( poop ) away as when I have a nasty watery poop I take 1/2 imodiums just 2 make it stop I also take Buscopan every 2/3
bungi1961
in
IBS Network
10 months ago
Seeking advise about an implantable loop recorder.
I am a 72 year old male in good health. I had persistent AFIB for many years – probably caused by 40 years of alcoholism. Four years ago, I quit drinking after a mild stroke and began exercising religiously and adhering to a healthy diet. A little over a year ago I had an ablation done, and now I take
I am a 72 year old male in good health. I had persistent AFIB for many years – probably caused by 40 years of alcoholism. Four years ago, I quit drinking after a mild stroke and began exercising religiously and adhering to a healthy diet. A little over a year ago I had an ablation done, and now I take
kurtgv
in
AF Association
6 months ago
Rivaroxaban
Happy New Year everyone! Just wondering if anyone else has any side effects from Rivaroxaban? I'd been taking 20mg per day since 2017 with no noticeable side effects. I not only have AF but Bronchiectasis as well. Needed to put a sputum sample in for testing and carried this out in the usual way
Happy New Year everyone! Just wondering if anyone else has any side effects from Rivaroxaban? I'd been taking 20mg per day since 2017 with no noticeable side effects. I not only have AF but Bronchiectasis as well. Needed to put a sputum sample in for testing and carried this out in the usual way
PAP48
in
Lung Conditions Community Forum
6 months ago
pisa syndrome
My dad has parkinson since 2015. His symptoms were under control until September 22'. In september he started developing pisa syndrome. He leans to the right side and walks like a drunken sailor. It affected his gait and his balance. His decline went downhill until March where he was hospitilised in
My dad has parkinson since 2015. His symptoms were under control until September 22'. In september he started developing pisa syndrome. He leans to the right side and walks like a drunken sailor. It affected his gait and his balance. His decline went downhill until March where he was hospitilised in
lisa103
in
Cure Parkinson's
10 months ago
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